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Dc Boedts said my cases is very treatable and said he thinks it's TTTS causing my issues. Said my OCD is playing a massive part 1
I'm sorry you can't get a handle on sleep. I noticed in my spike periods sleep gets worse for me. It's harder to fall asleep, and I'm more likely...
...preferred tinnitus tone. I can relate. While I have mild hyperacusis, TTTS, and hearing loss, tinnitus is at least 95% of that problem for me...
@Ngo13 I was tested for TTTS at U of M and my test came back clean. It comes and goes and they said it was anxiety related. Not everything is...
You sure no TTTS? It is probably from the trigeminal nerve, which runs through middle ear muscles. I get this sometimes and I thought it was from...
Does anyone have a rumble in their ear when you touch your cheek bone? I'm wondering if it's inflammation or nerve damage? No TTTS
...everything, worsening and changing rapidly. I also have dysacusis, palinacousis, musical tinnitus, severe h, ttts. There is just no hope for me :(
I agree. There are limits to habituation. Pain makes it impossible, just like you can't habituate to toothache. What antidepressants made it worse?
...I hear a Morse code beeping over fans, A/C, etc). I had pretty severe TTTS to the point where I couldn’t even talk without my left ear...
...I still have other issues. Ear fullness comes and goes randomly, TTTs has gotten better, H is better too. The only thing that really triggers...
...but maybe tympanometry will show something. I also wonder if it’s TTTS—tensor tympanic syndrome—but I'm trying not to drive myself crazy....
...dishabituate, but the variability of it makes it worse. And worsening TTTS and hyperacusis over time is also a factor. Best wishes that it...
This is very comforting to read. I’m experiencing hyperacusis myself. I’m 8 months in, along with tinnitus, & it’s driving me potty! But...
...twice, and both times it lasted for about 9 months to a year. TTTS also tends to fade, especially if you keep away from extreme anxiety about...
...Ca++ release, meaning that they still might bring relief to TTTS. I'll try to find that paper again. What's even more idiotic is that nobody...
Also, Flupirtine has in all likelihood a greater affinity for Kv7.4 channels than XEN1101: (Source) In my opinion, it was a great mistake of...
Hey guys, I’m in a world of hell at the moment. Here’s my story for those who care to read. At the start of January I got sick with some sort of...
I believe the TTTS bothers me more than the tinnitus and is the source of my hyperacusis. I remembered that Flupirtine has muscle relaxant...
...have now, which is combined with moderate hearing loss, hyperacusis, TTTS, insomnia, anxiety, and other chronic pain. There's an automatic...
I sympathize with you, as this is where I've been as well for the past eight years. My reactive tinnitus and hyperacusis dictate my life. My...
...benefit over the last 2+ years of severe tinnitus. Hyperacusis and TTTS started in 2023 and don't seem to have improved, either. One odd thing...
TTTS, aural fullness and reactive T makes it impossible to habituate. I can somehow deal with the normal T and H, but this is too much.
I just can't do it anymore. The TTTS is so bad, it's like a pulling sensation in my ears. If I pull on my earlobe my hearing enhances also
@SumGuy TTTS is usually caused by some sort of acoustic trauma and/or stress/anxiety. Often in combination with h. Im pretty sure you stopping...
@SumGuy Definetly TTTS. Ive had bouts of this many, many times over several years. It has always eased up for me, but sometimes it can linger for...
Yes, that's how it differs very differently from my tinnitus. The TTTS is the muscle contracting. Sometimes it's just individual thumps...
I have TTTS symptoms intermittently with fluttering or thumping of my eardrum, with and without sound stimulus, but if it's caused by sounds, it...
@SumGuy What you are describing might be TTTS related.
...and has caused (I assume) my recent hyperacusis/phonophobia and MEM/TTTS situation. I’m trying many of the recommended treatments, like CBT,...
...But he did, at least, seem pretty knowledgeable about MEM & TTTS. It seems a lot of people on here have seen ENTs who are not. I’m kind of...
...is just speculating. From your descriptions earlier, it sounds like TTTS (which is a type of MEM). Do some sounds sound louder than they used...
...However, he said it is highly likely to be stapedial MEM and not TTTS, based on my description of my symptoms and his experience. Actually,...
This doesn’t sound like dysacusis. Your symptoms are more in line with TTTS or Middle Ear Myoclonus. Dysacusis, or sound distortions, messes...
...and they make like a grinding noise. Not sure if that's related to TTTS. I do notice I shy away from noise a bit, but I'm not sure if that's my...
How long did you have distortions for?
...to mention other issues such as hyperacusis, noxacusis, reactivity, TTTS, anxiety, insomnia, etc. Life definitely isn't even a fraction as...
...all of my treatment options for either my mental health or tinnitus/TTTS situation have tinnitus as a side effect. What a twisted nightmare...
Testimonials mean nothing. Where's your scientific study? Where's your placebo control? Even if it was "3500" people you say you've "helped," this...
...sound therapy will help that) and it helps voices, clicking sounds, TTTS, and hyperacusis. It helps about 40% of those that follow...
Have you looked into Clomipramine? It's an old TCA mainly used for OCD, but there have been some anecdotal reports popping up recently that it has...
...developed a more constant tinnitus as well as sound sensitivity & TTTS. There’s no underlying reason or cause for the sensitivity & TTTS, other...
This was indeed almost a good report... I am much worse now. I wrote it 5 days after the door slam incident I noted in the post - I got so angry...
Yes, everything I've seen says symptoms return upon stopping the medicine.
Sounds like ttts
I’ve been taking 100 mg per day for just two weeks now. I haven’t noticed any changes in my tinnitus. I take L-Theanine at night, I’ve been...
Does Carbamazepine need to be taken permanently for TTTS? Does it only help with the spasms? I have this constant tugging feeling which gets...
...can happen. I have no ETD, but I had this for the longest time. The TTTS is still there, but the clicking only happens when I vigorously shake...
...for my own situation. I've only been dealing with hyperacusis and TTTS for a couple of months, so I'm still on a very high anxiety alert about...
Yeah, the low frequency T I have is very different from my TTTS (thumps & fluttering). Low frequency masking helps. Have you tried "easyjet jet...
Low hum is more prevalent than ever for some reason. My normal methods for getting it to stop are not working. Its doesnt seem like TTTS.
...(pretty much spot on) for me and many others who have it. It's TTTS. For me, this comes and goes. I can have it for 1 week to 2-3 months...
...just one Advil for a headache. I think I’ve also developed a case of TTTS, which really has my anxiety amped up to a new level that is not fun...
...will help to reinforce positive thinking. You may or may not have TTTS. If you have it, then please do not despair because it can be treated....
...that will have a ripple effect on my tinnitus, hyperacusis and TTTS. Regarding TTTS, I seem to have all of the classic symptoms, and based on...
...me out. I have to admit the Valium helped with my hyperacusis and TTTS but is no longer needed, thankfully. Don't worry about a "boring" life....
Yes, it sounds like TTTS. I experience that with fluttering or thumping of the eardrum in one ear at a time, sometimes to sounds like voices and...
...into my worsening of tinnitus, which later included hyperacusis and TTTS. I already had moderate hearing loss. The severe tinnitus is the worst...
The tension can be tonic tensor tympani syndrome (TTTS). Unchecked tension can lead to a whole host of nasty symptoms like the fullness you...
That sounds a little like my situation. That's TTTS. There is no plugged/full feeling for me, but each ear is different with TTTS in my case. My...
Well, I'm not sure if your biggest obstacle at the moment is TTTS or hyperacusis (sensitivity to noise)? What I refered to in my post was mainly...
