Barry098

Since my onset of T I've had weakness in the upper part of my thighs. It feels like pins or needles and my reflexes become over reactive. It has settled for the most part but if I have a flare up it will come back. It may be a nervous system issue.

It might be a stress response, and as you mentioned @BellaMia a nervous system out of sync. You should see your GP if you have it for more than 4-6 weeks.

@MindOverMatter I think T is a nervous system problem and I only experience the pins and needles feeling in my legs when my T is screaming at me. Seems connected but maybe not.

T calms down after a shower and coffee. The T itself doesn’t really bother me so much. But it feels like the symptom of a medical condition.

Nice. Silence? Or just low?

Very low T…Every once in awhile I think
I can hear silence but then when I listen hard I realize my ears are always ringing. For me that’s as good as silence though!

I was thinking the same thing. Makes since.

Work allergies, I had them often.

@BrOKeN_1 and @Jammer lol

Like with various other things, I've heard it both ways. I've taken different ones and don't think it affected tinnitus. Unfortunately, I can't even say I've even slept any better with them (Diphenhydramine/Benadryl, Doxylamine, Hydroxyzine HCL, Trazodone, Nortriptyline).

@Barry098 - your stories give me a bit of hope. How you go from screaming T to a 2 or 3. I am in a bad spiral. Worsening all the time. It’s heartbreaking to think if it goes away as it did for you in 2017 in can come back. Always need to be careful. Thank you for sharing your stories. Stay away from my posts. I’m a disaster. :) I can’t protect from noise.

In some odd way, I appreciate that my T is consistently horrific, as opposed to tricking me into thinking I'm getting better, to then only to return with a vengeance a day later.

I’ve had long periods of horrific. I’ll definitely take any breaks in can get at this point!

absolutely!

Seriously wonder how many years this condition has taken off our lives collectively…I bet when added up, T is in competition with cancer.

However, plenty of rest, shifting focus from my head to more whole body experience, and attention on breathing.. all helpful. Anything that promotes wellbeing is the thing.. i'd say... hope a good today.. and going day by day

@L along the way
All great advice. I especially like what you said about shifting from the head to the body. This is very true for me as well. And day by day is great but often times it’s step by step for me. Just depends on how intense things get. I appreciate your thoughts thanks for sharing.

@Barry098 likewise, and i feel too, that every small step towards more wellbeing is valuable. Thank you too & hope today may be a good day

@Barry098. So sorry. Especially that you did escape it (fully!) once. How cruel to be pulled back into hell again. And again.

Thanks @gameover I might request that my handle be changed to Prometheus because it would better suit my experience! I’m fairly confident that this will resolve too…it’s just that I’m tired of going down this road again and again. Wish I could just live in a bubble…

Unfortunately, you'd then be deaf with tinnitus.

If being deaf meant no T I would consider it. Unfortunately it's likely worse.

@Jammer I don’t mind the T as much as the reactivity to external sounds and the fact that I get injured so easily. I would love to be able to go places without fear of this getting worse all the time. @Tryn2BHopeful not sure it’s really an option anyway but it’s fun to contemplate

Mine never used to be like this. It is a new stage for me I guess.

Barry does yours normally vary from quieter to loud?

@Pixelito recently yes. This is new though. In the past I would injure them and they would scream for months and then slowly they would resolve. If I didn’t injure them they would remain pretty stable. This recent injury caused them to fluctuate really wildly. It’s pretty disconcerting actually because I don’t know what to expect from one minute to the next.

I am growing fat.

@steifzug that just means you have a good stomach for stress and anxiety. I only gain weight when I’m relaxed.

You are strong! I mean it.

That's good if you can control your reaction. Mine is automatic going on 2+ years now. Haven't been able to control my reaction since before that, when it was still somewhat mild compared to these days.

@streifzug I appreciate your kind words. I am getting better at not letting it utterly destroy me but I’m still struggling with this like everyone else here

That’s a beautiful gift. You can use them when needed if they don’t bother you. Opens up the world a little. How anyone puts them in with screaming T is beyond me.

Yeah…makes no sense but, maybe it’s because I always feel safe with them in.

Could Bananas be the key ?

I have an icy banana smoothie about every day to soothe stomach discomfort. I don't think it helps my tinnitus.

@ZFire that thread is hilarious. Thanks for sharing. I had a few good laughs. I doubt the banana actually made a difference but I’ll try it again tomorrow and report back. Today, no banana and screaming T, BTW

@RunningMan and @Joshua Macleod thanks for your feedback. The hardest part of dealing with T for me is lack of good sleep. Yesterday was a surprisingly quiet T day (that has never happened to me so early on after an injury). Last night I really thought I would finally get a good nights sleep but it was waking me up all night. Very exhausting and frustrating.

I can only speak for myself, and I genuinely hope this happens for you too, but my sleep is so much better now than a year ago. I do sometimes still struggle to get to sleep, but I suspect that's unrelated life stresses. That said, I've been in those situations where you just cannot get to sleep.

I can usually get to sleep initially ok, but an hour or two later, I'm usually waking up, and after a time or two of that, I can't get back to sleep without zolpidem. I had some sleep improvement in the first few months of severe tinnitus when I sometimes got no sleep, but sleep is consistently poor still - 5 hr average broken sleep maybe.

@gameover i totally understand where you are. It draws all kinds of emotions out of you. I’ve dealt with this so long now though that I’ve entered this familiarity stage where it almost feels like an annoying relative that comes to visit. Or maybe I just have Stockholm syndrome at this point because I don’t feel anger anymore.

yeah at times if there is like a new tone or sound or new volume. I would say about 20% anxiety and 80% misery + hopelessness. Fam & friends also adds to the anxiety, esp when they are demanding or questioning my life decisions.

@crescentsky that sounds like my story for many years. This recent time though, it’s weird but I have no anger, self pity or resentment about this. I think, I’ve pretty much made peace with this condition…so I only have the 20% anxiety that you describe…

I think mornings are also the worst for me!

Same here. Anxiety is worst in the morning a while after waking while still in bed. Sometimes it gets better quickly after getting up, and sometimes it's a slow improvement through the day. Late evening is almost always best.

@RunningMan sounds like where I was prior to this recent injury. Mornings could be a little rough but calmed down throughout the day. Now it is rough in the morning and progressively worse throughout the day. By this time at night T is absolutely screaming!

@streifzug Last two major acoustic injuries I lost 30 lbs in about six weeks both times! Severe tinnitus is the most effective diet I’ve tried!

It's really crazy. I hope you get better soon!

Thanks @streifzug I’ll survive it…I have years of practice under my belt. Just disappointed that I’m back at ground zero once again.