LostinTX

@SharonBell - all of it. The more time passes the more foods impact my ears. I cannot have an inch of wine. I’m talking bad spike for days. Actually feels like a permanent worsening at this point. All the foods you mention. We are the same. My ears are like glass.

@SharonBell it does every now and then. Alcohol actually helps me sometimes lower it and calm me down. I ate a bunch of sugar cookies yesterday which I haven't done in months and i woke up to louder buzzing. It's calmed back down now. Coffee doesn't affect me at all and I had given it up for almost 2 years at T onset.

Yea i find if i don't eat at a its lower

They simply haven't submitted it for whatever reason.

@LostinTX it’s like everything they have has to go in your ears. That scares me because I can’t even wear earplugs or headphones because that’s all I hear is my T and then it sizzles so it gets so much worse and with their inventions I could not use it when it goes in the ears I hate it. Most people with T can use ear plugs some it makes their T louder, but mine it sizzles in my head.

@LostinTX I’m going through menopause also do you think our T will get better when mentapause is over?

I keep trying but it's hard. I even try to see the bright side that it has gone down in volume monumentally from the beginning. But I started out severe/catastrophic and now completely feel I have PTSD from it knowing how LOUD it can go.

It's like knowing you have a grenade in your head that can go off anytime the rest of your life. I was that person that slept in complete dark and silence every night and you grieve all the moments you took for granted.

@LostinTX you said you have constant buzzing in your head. Mine is in my ears and head constant.Do you mean it’s on like the top of your head or your whole head?

@LostinTX I have been taking flexeril at night to help me sleep too. I have been taking it for a couple years on and off when I need it for my back, but lately I have taking it to help me sleep.

@SharonBell i no longer take it and haven't for maybe over 6 months. I now take one 300mg gabapentin and 10-15mg of melatonin and I sleep solid 6-8 hours now

curious about when this dates from.

@LostinTX do you know what caused your T?

@LostinTX can I ask why you quit taking flexeril?

Stress maybe? Anxious about what may be? Our brains are goofy goober for sure. Hope it recedes quickly for you.

I would really like to taper off ssri myself due to the possible ototoxic properties but due to my obsessive compulsive nature I'm afraid I would end up spiraling.

@BrOKeN_1 it's hard to get off SSRI's for sure. I've been on HRT (hormone replacement for several months but I've gained weight easily and thought I'd try being off it and see how it goes. I guess it helps the T too though, maybe? Thank God today was better but I've had 3 possible vestibular migraines in the 22 months of T and they are debilitating when they happen. Thankful they are rare.

How did you know ?

Oh my! Hopefully you continue that trend

@JPGL I reached out to the researcher. The study was unblinded and she was able to share with me what I got.

Yeah I can’t be around loud things. Makes mine worse and can’t wear ear plugs because it makes my head sizzle.

@LostinTX , honestly that’s a great idea..

@LostonTX I use my phone to all day for sound therapy. My problem is I can’t sit there and relax because my anxiety is bad from the T, I’m not sure how to explain it, but I guess I’m scared of my T, I feel like a difference person and I havnt accepted it.

@LostinTX do you have any suggestions that would help me? My T is in both ears and my head. It buzzes-static electricity all day 24/7, mine is the same except when it gets louder.

What kinda dreams

@Wrfortiscue Umm Eyes Wide Shut kind of dreams lmao!

I think several people have written here that Dr Shore stated it's likely it will, just that she isn't testing for it right now to keep parameters constrained.

Is it okay to ask what you think you may have been given?

@kingsfan i think i was given the drug but could be wrong. My T was loud over everything and i had horrible insomnia for a year no matter what i took! Ambien couldn't even knock me out for more than 2-3 hours. 2 weeks after the shot i started sleeping better and the volume went from severe to moderate over 2-3 months after

@Joe Cuber I'm sorry and know how you feel. I had to take 3/4 of a .5mg klonipin today. It helped and I was then able to get outside and walk my dogs a mile which I haven't done in weeks due to catching covid and being sick 2 weeks. Hope your day gets better too!

@LostinTX did you do an experiment? I saw you talking about the oto313 study.

@LostinTX I got my tinnitus from Covid. I had it twice in 2021-2022 and then had another really bad virus in January of 2023.

@LostinTX Did it make your t worse? My husbands brother-in-law had Covid and his T was worse, but I think it’s gone back down now. I wear my mask everywhere I’m so scared of getting Covid again it terrifies me.

@SharonBell no it did not make it permanently worse. Every time I've caught it I've taken ivermectin and other antivirals like lysine, oil of oregano and cat's claw

Hang in there.. the body aches were the worse for me. Like getting hit by a truck. I lay in bed for three days!

@ZFire yeah I’m guessing. Usually it’s the same story. Blows too hard, hears a pop then loud ringing

Barotrauma, @ZFire.

Ruptured the eardrum in my right ear when I was nine, doing it.

And like @Wrfortiscue said, far too many negative anecdotal accounts around, in relation to tinnitus, for it to be something I would recommend.

Yeah I read those stories and made a point to not blow too hard, but the pressure was so bad

Most viruses will decrease hearing + increase tinnitus (temporarily) = spikesville.

I recommend Quercetin to speed up recovery from the infection.

And try not to stress over the spike, as that's going to negatively impact your immune system.

@Damocles thank you. I think I have some in our medicine cabinet. Yeah this has made me spin out to a bad place today wondering how long I can continue with this loud shit and really not want to keep going. It also sounds like I have laryngitis from whatever this is.

How do you measure?

@Wrfortiscue an audiologist at UTSW here did. After the audiogram they play noises to mask. I guess they call it MML? where i've seen it mentioned before. My report showed 56db even though at that time I told them nothing masked during the exam? I know it's much lower than when i had that exam, but I still have horrible spikes!

Any treatment options they recommended?

only Widex hearing aids for sound therapy and the whole package with treatment expensive AF $5K after insurance

@martinberryhorse I feel ya. I was on that horrible rollercoaster no sleep for a year from T onset. Thankfully, I got 7 hours straight before waking last night. Hope it holds! But I do heavily medicate to sleep :(

I can totally relate to that. Do not fall into despair though. I have been through that countless times, but i always get back to the good sleep... though it may take som time.

@LostinTX how was your hearing test? Do you have any hearing loss? I saw you said, the audiologist thinks it was a virus.

Sucks huh

It's frustrating for sure.. takes me all day to adjust. Then overnight it ramps up just to start the whole process over agian