Autumnly's Recent Activity

  1. Autumnly rated all to gain's post Agree in the thread Be Honest. Do You Still Enjoy Life?.

    I know what you are saying, and I feel for all those people with the above illnesses, but for many on this forum tinnitus is a major disability....

    Sep 19, 2019 at 6:39 PM
  2. Autumnly rated UKBloke's post Agree in the thread Lenire — Bimodal Stimulation Treatment by Neuromod.

    @Liz Windsor thank you for posting in the user experience thread. Being that tinnitus has been with you since 2012 I find your latest journal...

    Sep 19, 2019 at 4:26 PM
  3. Autumnly liked Liz Windsor's post in the thread Lenire — Bimodal Stimulation Treatment by Neuromod.

    Just to clarify. Lenire has NOT given me hyperacusis. I already have hyperacusis in respect of certain sounds. Motorbikes, crockery, sirens, dogs...

    Sep 19, 2019 at 4:26 PM
  4. Autumnly rated GlennS's post Agree in the thread Lenire — Bimodal Stimulation Treatment by Neuromod.

    What? The whole deal with Lenire is that hyperacusis sufferers are supposed to be "super responders".

    Sep 19, 2019 at 4:09 PM
  5. Autumnly rated Redknight's post Agree in the thread Lenire — Bimodal Stimulation Treatment by Neuromod.

    I don't believe that's what Liz has said.

    Sep 19, 2019 at 3:18 PM
  6. Autumnly rated FGG's post Informative in the thread Frequency Therapeutics — Hearing Loss Regeneration.

    I think this answers the question if whether Frequency believes in their drug. These are actually pretty incredible changes in word scores...

    Capture+_2019-09-19-05-42-55.png Sep 19, 2019 at 2:08 PM
  7. Autumnly rated FGG's post Agree in the thread Frequency Therapeutics — Hearing Loss Regeneration.

    That's because it was not assessed in phase 1, will be assessed in phase 2a, however.

    Sep 19, 2019 at 2:07 PM
  8. Autumnly rated Lurius's post Hug in the thread I'm Now Happy I Got Tinnitus.

    Hey there, @Dave A I think you may have misjudged your audience a little bit. While I'm certainly happy that you've found a way to cope with...

    Sep 19, 2019 at 2:07 PM
  9. Autumnly liked Liz Windsor's post in the thread Lenire — User Experiences and Reviews.

    Well, as promised, here is my three week update. Everything I wrote in my previous post is still the case so I won't repeat myself. There is,...

    Sep 19, 2019 at 1:29 PM
  10. Autumnly liked KotaDomowa's post in the thread Lenire — Bimodal Stimulation Treatment by Neuromod.

    Yes, I flew from Poland. It was a long, surreal journey. I don't know why so long. [ATTACH] [ATTACH]

    c_oc=AQmGyk0VgyO7EJHfBoCy4AbSKCWPDS_8i3PEK49ltf0BFtxBOmuNOoNzqTGFOQ_gOsA&_nc_ht=scontent.fktw1-1.jpg c_oc=AQmCIwY9whfPwD5PcaOYoz6UarNhvGG3WA7m2bW02hBrL7uoJ1nkWt9vFhhKOW6Jmyw&_nc_ht=scontent.fktw1-1.jpg Sep 19, 2019 at 1:27 PM
  11. Autumnly liked JohnK's post in the thread Lenire — Bimodal Stimulation Treatment by Neuromod.

    When I first read this, I interpreted "downwards" as "my life is going downwards" not "the tinnitus is going downwards." Phew!

    Sep 19, 2019 at 1:25 PM
  12. Autumnly rated JohnK's post Good Question in the thread Lenire — Bimodal Stimulation Treatment by Neuromod.

    A... positive effect?

    Sep 19, 2019 at 1:25 PM
  13. Autumnly liked JohnAdams's post in the thread Hello from Viking Land.

    yeah, mine is pretty low, 5-6 days out of the week it is hardly noticeable.

    Sep 19, 2019 at 8:24 AM
  14. Autumnly liked KotaDomowa's post in the thread Lenire — Bimodal Stimulation Treatment by Neuromod.

    I had a Neuromod meeting yesterday. I will receive Lenire 26/11 :D

    Sep 18, 2019 at 10:21 PM
  15. Autumnly liked Liz Windsor's post in the thread Lenire — Bimodal Stimulation Treatment by Neuromod.

    Hi again... Sorry, events overtook me. I shall report back as soon as I get chance. Thanks. Liz.

    Sep 18, 2019 at 10:08 PM
  16. Autumnly replied to the thread Lenire — Bimodal Stimulation Treatment by Neuromod.

    That's true for the TENT-A1 trial! In the TENT-A2 trial (191 participants) people with tinnitus up to 10 years were included. (Inclusion Criteria:...

    Sep 18, 2019 at 8:11 PM
  17. Autumnly rated Badger19's post Agree in the thread Worrying About Friends and Family Getting Tinnitus from Loud Noises.

    I have long stopped warning people outside my close family. I made an exception last week. One of my best friends was going to a festival. I...

    Sep 18, 2019 at 7:35 PM
  18. Autumnly liked TibuJenkins's post in the thread Lenire — Bimodal Stimulation Treatment by Neuromod.

    I saw your post in the "Experiences" section. I've decided that if I get an appointment to visit them in Ireland next year (I'm on the list), I...

    Sep 18, 2019 at 7:31 PM
  19. Autumnly liked Barry O'Connell's post in the thread Suicidal.

    Thanks, I've managed to pull it around somewhat since this morning. More hopeful now after watching some success stories on YouTube. Was a bit...

    Sep 18, 2019 at 7:11 PM
  20. Autumnly rated Zuben's post Agree in the thread Tinnitus Research Initiative (TRI) 2019 Conference.

    Yes actually. Demonstrating real socioeconomic effects of the condition through data, as opposed to anecdotal evidence, may help secure funding...

    Sep 18, 2019 at 7:10 PM
  21. Autumnly rated Lynny's post Good Question in the thread Lenire — Bimodal Stimulation Treatment by Neuromod.

    Is there a (strong) possibility that Lenire will only help those with shorter term tinnitus? Is there any reason to believe it could help treat...

    Sep 18, 2019 at 6:39 PM
  22. Autumnly rated Agrajag364's post Informative in the thread Lenire — Bimodal Stimulation Treatment by Neuromod.

    Very early results are better than I thought they might be in terms of improval, compared to hyped up treatments for other conditions I have past...

    Sep 18, 2019 at 6:36 PM
  23. Autumnly rated Ringeee's post Good Question in the thread Lenire — Bimodal Stimulation Treatment by Neuromod.

    Has anyone that has had tinnitus for years seen improvement with the Lenire?

    Sep 18, 2019 at 6:36 PM
  24. Autumnly rated Harley's post Agree in the thread Worrying About Friends and Family Getting Tinnitus from Loud Noises.

    There is honestly not much you can do aside from warning them. Most people simply won't believe that a horrid, incurable condition like this can...

    Sep 18, 2019 at 4:19 PM
  25. Autumnly replied to the thread Turmeric with Curcumin Seems to Be Helping.

    It seems like the closest we currently are to having a medical treatment that actually reduces chronic tinnitus is bimodal neurostimulation....

    Sep 18, 2019 at 4:17 PM
  26. Autumnly liked JohnAdams's post in the thread Be Honest. Do You Still Enjoy Life?.

    Most of the time.

    Sep 18, 2019 at 2:55 PM
  27. Autumnly rated DaveFromChicago's post Agree in the thread Be Honest. Do You Still Enjoy Life?.

    I have the Widex Zen White Noise Maskers / Hearing Amplifiers. When my tinnitus is particularly aggravated, this supplemental white noise only...

    Sep 18, 2019 at 2:55 PM
  28. Autumnly rated Ken219's post Agree in the thread Worrying About Friends and Family Getting Tinnitus from Loud Noises.

    You are warning them. That is about all you can do.

    Sep 18, 2019 at 2:10 PM
  29. Autumnly rated Redknight's post Winner in the thread Lenire — Bimodal Stimulation Treatment by Neuromod.

    Massively better! Almost not an issue anymore. It's been a bumpy road, but the trend has been down. I still hear tinnitus from time to time, but I...

    Sep 18, 2019 at 2:10 PM
  30. Autumnly liked Redknight's post in the thread Lenire — User Experiences and Reviews.

    6 Week Update It's been a rocky road, but the trend over the six weeks has been downwards. My tinnitus is very low and often silent now. I'd say...

    Sep 18, 2019 at 1:42 PM
  31. Autumnly rated Marceline's post Hug in the thread Restaurant Survival.

    Yesterday was my birthday and although I had lot of work today, my boyfriend (*) persuaded me to take an evenig off and go to a small restaurant....

    Sep 18, 2019 at 12:09 PM
  32. Autumnly liked Stu1983's status.

    “Be kind, for everyone you meet is fighting a hard battle” Plato

    Sep 18, 2019 at 10:29 AM
  33. Autumnly liked Phi's post in the thread Lenire — Bimodal Stimulation Treatment by Neuromod.

    Thank you.

    Sep 18, 2019 at 9:44 AM
  34. Autumnly rated Barry O'Connell's post Hug in the thread Suicidal.

    Hello, it's been about 4 months since I developed tinnitus & the lack of sleep & almost constant anxiety is really starting to get to me. I have...

    Sep 18, 2019 at 9:43 AM
  35. Autumnly liked Shahin Safazadeh's post in the thread Participate in Tinnitus Studies (EU Only).

    Thank you for your consideration. Since there are several studies with different criteria, we are going to make a systematic form to let the...

    Sep 18, 2019 at 9:42 AM
  36. Autumnly attached a file to the thread Lenire — Bimodal Stimulation Treatment by Neuromod.

    Click on someone's photo or name -> click on "profile page" -> then go to "information". [spoiler]

    Bildschirmfoto 2019-09-18 um 10.37.31.png Bildschirmfoto 2019-09-18 um 10.35.13.png Bildschirmfoto 2019-09-18 um 10.35.19.png Bildschirmfoto 2019-09-18 um 10.39.55.png Sep 18, 2019 at 9:38 AM
  37. Autumnly rated Ringeee's post Good Question in the thread Lenire — Bimodal Stimulation Treatment by Neuromod.

    Wow that's awesome! How has it gotten better and for how long have you had it? Thanks for sharing!

    Sep 18, 2019 at 9:34 AM
  38. Autumnly rated ChrisBoyMonkey's post Agree in the thread Otonomy OTO-413 — Treatment of Hidden Hearing Loss.

    Awesome news! I hope their treatments, including OTO-313, work and are successful in their trials.

    Sep 18, 2019 at 6:43 AM
  39. Autumnly liked Jackjohnson183's post in the thread Frequency Therapeutics — Hearing Loss Regeneration.

    A mutual friend of @síocháin was in the Regain trial who reported that his tinnitus and hyperacusis were much better and was able to play in his...

    Sep 18, 2019 at 5:54 AM
  40. Autumnly liked Stu1983's status.

    I went to my audiologist today and my H is healing from sound therapy. My loudness discomfort level has risen from 80db to 95dB.

    Sep 18, 2019 at 5:52 AM
  41. Autumnly rated Enclave's post Optimistic in the thread Otonomy OTO-413 — Treatment of Hidden Hearing Loss.

    Kicking off:...

    Sep 18, 2019 at 5:52 AM
  42. Autumnly liked BigNick's post in the thread Lenire — Bimodal Stimulation Treatment by Neuromod.

    Yes, definitely better, still sucks tho!

    Sep 18, 2019 at 5:52 AM
  43. Autumnly rated Ruse's post Good Question in the thread Lenire — Bimodal Stimulation Treatment by Neuromod.

    Does anyone know what will happen if one wishes to undergo the treatment again in the future, e.g. in the instance of a further acoustic trauma?...

    Sep 18, 2019 at 5:51 AM
  44. Autumnly rated Redknight's post Good Question in the thread Lenire — Bimodal Stimulation Treatment by Neuromod.

    Do they change the timings @BigNick? Mine's on Friday.

    Sep 18, 2019 at 5:51 AM
  45. Autumnly rated Chriscom's post Agree in the thread 2019 Tinnitus Expo in London on 14 September.

    Thank you for this update Hazel, and for the PDF of the presentation. There's no substitute for showing up at these things and some of them are...

    Sep 17, 2019 at 7:42 PM
  46. Autumnly rated Frédéric's post Informative in the thread Cognitive Performance in Chronic Tinnitus Patients.

    Cognitive Performance in Chronic Tinnitus Patients: A Cross-Sectional Study Using the RBANS-H. Abstract OBJECTIVE: Many tinnitus patients report...

    Sep 17, 2019 at 5:15 PM
  47. Autumnly replied to the thread I Think It's a Mistake to Bank on a Cure.

    Thanks for the reply, appreciate that! Yeah, I also don't think there's a hidden epidemic. I wonder if the number is higher than we currently...

    Sep 17, 2019 at 5:13 PM
  48. Autumnly liked linearb's post in the thread I Think It's a Mistake to Bank on a Cure.

    "Nonsense", as in "irrational, defies logical understanding, imposes insane requirements and limits on life", nothing more, nothing less. When my...

    Sep 17, 2019 at 5:08 PM
  49. Autumnly rated Harley's post Agree in the thread I Really Need Some Words of Encouragement Right Now — My Mother Is Unsupportive.

    I'm sorry to say this, but your mother is an ignorant piece of shit. Threatning a person with Tinnitus and Hyperacusis with noise is about the...

    Sep 17, 2019 at 5:04 PM
  50. Autumnly rated keka's post Hug in the thread I Really Need Some Words of Encouragement Right Now — My Mother Is Unsupportive.

    She just threatened to throw the dishes on the ground. I had to run.

    Sep 17, 2019 at 5:04 PM