danielthor
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danielthor

Member, Male, from Denmark

Months of no sound of heartbeat when wearing plugs. All of a sudden I hear it loud and clear. No worsening though. What gives? Jul 31, 2021 at 3:53 PM

danielthor was last seen:
Aug 1, 2021 at 10:58 PM
    1. danielthor
      danielthor
      Months of no sound of heartbeat when wearing plugs. All of a sudden I hear it loud and clear. No worsening though. What gives?
      1. Wrfortiscue likes this.
      2. danielthor
        danielthor
        Been hearing it all day
        Jul 31, 2021 at 5:01 PM
    2. danielthor
      danielthor
      Thought I’d use today’s slip-up in ‘silence’ as an excuse to go drive and pick up package. No apperant spike. First time since onset
      1. aot, Keith Handy and Steph1710 like this.
    3. danielthor
      danielthor
      My tablet fell from my bed to the floor. Despite no pain from it, Plugs + muff, I will consider it going back to square 1 for both H & T.
      1. Wrfortiscue likes this.
      2. View previous comments...
      3. Wrfortiscue
        Wrfortiscue
        Wow yours is that bad?
        Jul 30, 2021 at 3:22 PM
      4. danielthor
        danielthor
        @Wrfortiscue It could probably be worse, although hard to imagine.
        Jul 30, 2021 at 5:49 PM
        aot likes this.
      5. Gabriel5050
        Gabriel5050
        I think you'll be fine. I think it's hard to have an entire contiguous 30 days of no sound. Especially when this is considered a reset. Maybe consider an upper limit of time as well.
        Jul 30, 2021 at 8:22 PM
        danielthor likes this.
    4. danielthor
      danielthor
      Compiling a list of possible treatments and ailments for T. Can’t wait to get started. My life has purpose, - now more than ever, honestly.
      1. Steph1710 and Wrfortiscue like this.
      2. Wrfortiscue
        Wrfortiscue
        Rock on
        Jul 28, 2021 at 1:47 AM
        danielthor likes this.
    5. danielthor
      danielthor
      For those of you with reactive T: does it spike from eating? It’s getting ridicilous. I basically can’t do anything without it going bunkers
      1. Wrfortiscue likes this.
      2. View previous comments...
      3. danielthor
        danielthor
        @Wrfortiscue Sucks. What are you doing to get out of it, do you avoid sounds completely or just let yourself have it?
        Jul 27, 2021 at 11:04 AM
        Wrfortiscue likes this.
      4. Wrfortiscue
        Wrfortiscue
        @danielthor i don’t know what to do… this crap keeps Morphing every 2 weeks
        Jul 27, 2021 at 12:11 PM
      5. danielthor
        danielthor
        @Wrfortiscue I’m with you. Reach out if you need anyone to talk to. I’m gonna keep as quiet as I possibly can until I see some improvements in this
        Jul 27, 2021 at 12:52 PM
    6. danielthor
      danielthor
      My T is reacting to when I eat now, lol
      1. danielthor
        danielthor
        Not sure what course of action I should take now. I have to eat
        Jul 25, 2021
    7. danielthor
      danielthor
      I think I’m getting symptoms of visual snow. It’s freaking me out
      1. danielthor
        danielthor
        I started Abilify 2 weeks ago, so I’m hoping it’s just that. Seeing a lot of reports on vision-issues with abilify
        Jul 21, 2021
      2. AbeS
        AbeS
        I also started seeing it slightly a year ago and today it’s a bit more noticable.
        Can Abilify help Hyperacusis or what is it for?
        Jul 22, 2021
      3. danielthor
        danielthor
        @AbeS I’m taking it for CFS/ME-related neuroinflammation. It might have an effect on H & T. I’ll keep you guys updated on that. So far nothing, only these eye-issues
        Jul 22, 2021
    8. danielthor
      danielthor
      My T reacts to my chronic neuroinflammation. I will not be able to heal this thing with silence
      1. danielthor
        danielthor
        Hoping low-dose Abilify will help.
        Jul 18, 2021
    9. danielthor
      danielthor
      I have 3-4 flies in my room that insist on flying and buzzing around my ears
      1. kingsfan
        kingsfan
        Free white noise makers
        Jul 18, 2021
        danielthor and Steph1710 like this.
      2. Christiaan
        Christiaan
        Those are the kind of unwanted house pets that are often only fit to be squashed, and I say this as an ethical vegan;)
        Jul 18, 2021
        danielthor and Steph1710 like this.
    10. danielthor
      danielthor
      T reacts just as much to overstimulation as it does to noise. A true indicator that what I’m dealing with here is a neurological, not ears
      1. ALS and kuromi like this.
    11. danielthor
      danielthor
      Dropped a pen on the floor right before bedtime. Guess I won’t be sleeping tonight
      1. Stacken77 likes this.
      2. AbeS
        AbeS
        Do you get a spike from something like that? It’s insane...
        Jul 17, 2021
      3. danielthor
        danielthor
        @AbeS Yeah, my T is reactive. Reacts to all sounds. Slept fine tho
        Jul 17, 2021
        kuromi and AbeS like this.
    12. danielthor
      danielthor
      Can the “ears” heal despite stress that makes them react? (stimulants, sleep deprivation, etc)
      1. martinberryhorse likes this.
    13. danielthor
      danielthor
      I wonder if going deaf would do anything for reactive T
      1. View previous comments...
      2. Stacken77
        Stacken77
        @danielthor Going completely deaf, e.g. though sectioning the auditory nerve, would of course fix both reactivity and hyperacusis, but the lack of auditory input would most likely result in catastrophic tinnitus.
        Jul 16, 2021
        danielthor likes this.
      3. danielthor
        danielthor
        Jul 16, 2021
      4. Tezcatlipoca
        Tezcatlipoca
        But there is sound, deaf just means you can't hear it, but your hearing organs do react
        Jul 17, 2021
        danielthor likes this.
    14. danielthor
      danielthor
      Picking up a purchase at a guy’s house. Hardcore punk blaring out the open door when I arrive
      1. Wrfortiscue and Tweedleman like this.
      2. View previous comments...
      3. Steph1710
        Steph1710
        @danielthor I’ll put some on now and have a listen, because that’s what this art gallery needs haha!
        Jul 15, 2021
        danielthor likes this.
      4. Steph1710
        Steph1710
        @danielthor I have just listened to one track so far - ‘Unchained Angel’.. I love it! Hooked on the first song. :)
        Jul 15, 2021
        danielthor likes this.
      5. Steph1710
        Steph1710
        Sorry, @danielthor, I’m commenting again. Nasty Savage have a similar sound to some of Van Halen’s heavier stuff, like the track ‘loss of control’. If you haven’t heard it, have a listen and see if you agree?
        Jul 15, 2021
    15. danielthor
      danielthor
      I’ma see if I can get a neurologist to look at some of the anecdotal evidence of benzo-use for T & H, and hopefully I can get it prescribed
      1. twa
        twa
        Hey @danielthor, I'm pretty sure that benzo withdrawal after a back injury caused my initial T. Interested to hear what the neuro says.
        Jul 13, 2021
      2. danielthor
        danielthor
        @twa Sorry to hear that. I would only use it once a week for specific situations like grocery-shopping, doctor’s appointments, some outdoor pleasures etc. I literally can’t leave my room without getting worse. I’m as afraid of benzo-withdrawal as I am of my condition getting worse, so I will try my best not to get hooked, I just need relief
        Jul 14, 2021
        twa likes this.
    16. danielthor
      danielthor
      Getting convinced the cure for this is not in the regenerative medicin of the future, but in medicine already available on the market today.
      1. kuromi likes this.
      2. View previous comments...
      3. Sironketchup
        Sironketchup
        I'm a pharmacist so getting my hand on these drugs should be easy if I really wanted. I agree with you that this condition is neurological. But I don't think most medication can heal this, but maybe suppress for some time. Mind there often is a rebound and or / tolerance builduing up.
        Ath the moment I'm trying to increase neuroplasticity and using Lenire.
        Jul 12, 2021
        danielthor likes this.
      4. Gabriel5050
        Gabriel5050
        Jul 12, 2021
        danielthor and Sironketchup like this.
      5. danielthor
        danielthor
        Jul 12, 2021
        aot likes this.
    17. danielthor
      danielthor
      Showering with plugs + muffs. Crazy adjustments is the only way through this
      1. tracyNYC likes this.
      2. Bill Bauer
        Bill Bauer
        You are doing the right thing. Eventually you will be able to not have to do this.
        Jul 12, 2021
        danielthor likes this.
    18. danielthor
      danielthor
      Benzos could be a really great strategy for me right now. I can do my groceries, shower, see a friend, talk to doctor, all in 1 day a week
      1. Gabriel5050 and aot like this.
      2. danielthor
        danielthor
        And not worry about a setback. The rest of the week I’ll be in silence. I think I can handle that. Better than nothing
        Jul 10, 2021
        kuromi and aot like this.
      3. aot
        aot
        A part of me wants to try Benzos, but there's so many risks. They're more or less my last resort, assuming I can be prescribed any.
        Jul 10, 2021
        Gabriel5050, kuromi and Stacken77 like this.
      4. danielthor
        danielthor
        Yeah they’re not even a resort for me at the moment. But only because it’s so hard to get a hold of them where I live
        Jul 10, 2021
        kuromi likes this.
    19. danielthor
      danielthor
      I don’t think I’m ever going back to headsets and airpods, even after cures and treatments. The thought alone makes me cringe
      1. View previous comments...
      2. Damocles
        Damocles
        Agreed!

        ...also, sorry about Wednesday. To be fair, we spent years playing "clean" and it never got us anywhere...
        Jul 9, 2021
        danielthor likes this.
      3. Christiaan
        Christiaan
        Right you are! I sometimes think they should put a huge warning sign on all these products. People should know what it does to one's hearing
        Jul 9, 2021
        danielthor likes this.
      4. Kriszti
        Kriszti
        Me neither, but I miss them like crazy. It's freeing to be able to let the noise of the world out and only listen to what you actually want to. I never thought that a "harmless" habit would ruin my life beyond measure.
        Jul 10, 2021
        ALS, danielthor and Christiaan like this.
    20. danielthor
      danielthor
      T very low this morning. I suspect it will increase as the day gets going, I’m just glad it has the potential to go this low still
      1. Exit, Keith Handy, aot and 3 others like this.
      2. Vassili
        Vassili
        Lowrider T. :D
        Jul 8, 2021
        ALS, danielthor and kuromi like this.
    21. danielthor
      danielthor
      Woke up with my reactive T still at 10/10. New baseline?
      1. View previous comments...
      2. Stacken77
        Stacken77
        Of course, I may never know if what I experience now is something delayed from when I've worked, but I never experienced any long delay between spikes, they always set in either immediately or during the night. Again; during work was the first time since this hell started where I saw improvements - when I sat in silence again for a few days, I got worse. I've tried silence, it has never worked.
        Jul 8, 2021
      3. danielthor
        danielthor
        I’ve had reactive t for a couple of weeks now. It usually only spikes for a day and I wake up at baseline, and then it spikes again once I go out and then back to baseline again the next day. The longest I’ve had it spike is 2 days
        Jul 8, 2021
      4. Stacken77
        Stacken77
        @danielthor In about a week I'll be working again. I'll monitor my progression, and if my baseline straight up progressively deteriorates without sign of stopping in 2 months, I'll quit my job and put my life on lockdown. In my mind, sound exposure, in my case, makes sense, this could save my life, but I'm not 100% sure. If silence hasn't helped, I guess the only alternative left to try is sound.
        Jul 8, 2021
        danielthor likes this.
    22. danielthor
      danielthor
      I want to be a tinnitus / hyperacusis succes-story. That’s my number one goal in life
      1. ALS, Exit, AbeS and 5 others like this.
    23. danielthor
      danielthor
      My family screaming and yelling in the living room. The enthusiasm of football penetrating through double-protection
      1. Christiaan
        Christiaan
        It's definitely a double edged sword when you want to support your team while having H. Hope your T/H doesn't spike. Congrats with reaching the semi-finals BTW. Denmark deserved it!
        Jul 3, 2021
        danielthor likes this.
    24. danielthor
      danielthor
      I seem to have habituated in the matter of days. No longer afraid to go out and have my Tinnitus react
      1. View previous comments...
      2. Bill Bauer
        Bill Bauer
        You are playing with fire.

        You can ignore reality, but you will not be able to ignore the consequences of ignoring reality.
        Jul 3, 2021
        Exit and danielthor like this.
      3. danielthor
        danielthor
        @Bill Bauer Nice Ayn Rand quote. I don’t see how it relates to this though. I use double-protection when out and I avoid loud places like the plague
        Jul 3, 2021
        aot likes this.
      4. Tanni
        Tanni
        What kind of a person actually WANTS someone to be too afraid to leave their house??? Shameful. Especially when they're always talking about travelling themselves.

        Take no notice, @danielthor. Keep protecting in loud environments, and good luck with the work/study.
        Jul 4, 2021
        aot, kuromi and danielthor like this.
    25. danielthor
      danielthor
      I have a hard time distinguishing between T and my perception of T when I come home. All I know is that it’s on my mind, ferociously.
      1. Brittany95 likes this.
    26. danielthor
      danielthor
      Phone fell from bed while I was sleeping. Huge spike in T. New adjustment: I won’t have anything up in bed with me from now on
    27. danielthor
      danielthor
      I was playing around with my dog and it barked right into my face. I only had the muffs on, but it didn’t hurt and no apparent spike. Weird
      1. Keith Handy and Stacken77 like this.
    28. danielthor
      danielthor
      I sometimes forget that T only seems so severe because of the plugs. I take them out every hour or so just to get the right perspective
      1. Stacken77 likes this.
      2. Stacken77
        Stacken77
        @danielthor I know right. If I could live my life without hearing protection 24/7, my tinnitus would become a non-issue pretty quick, I'd be habituated in a few days. But the hearing protection is what makes the tinnitus harder to deal with.
        Jun 25, 2021
        kuromi and danielthor like this.
    29. danielthor
      danielthor
      Tinnitus is literally the sound of stress
      1. Steph1710 likes this.
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  • About

    Gender:
    Male
    Location:
    Denmark
    Tinnitus Since:
    04/2020
    Cause of Tinnitus:
    Unknown
    HYPERACUSIS:

    After becoming bedridden in early 2020 with severe CFS/ME, I accidentally blasted myself with my airpods on full volume. I now had two depilitating deceases for which there were no answers.
    The pain in my ears started slowly. It was just noticable in the kitchen and the shower. Then the phone began to hurt. Music hurt. Phonecalls hurt. I went to the doctor and his voice hurt. My voice hurt. I began plugging up. There was a bunch of progress and a bunch of setbacks during this time. What ultimately did me in was my dog barking right outside my window. I was confident at this point. The days up to this point had been good, and thought I’d just let him bark. “My ears can probably handle it”. They couldn’t. It came on like a shock through my skull. After this day forward I was no longer able to plug up, the sound of my heart beat felt like needles in my ears. And because it had gotten so severe I wasn’t able to stay home either. I had to get away

    During this time I was also battling severe CFS. It’s a neurological disease, and it’s real serious if you get a bad case of it. I wasn’t able to use my phone, to go on reddit and other support groups, to ask for guidance or anything like that. i eventually called my doctor, explained to him my situation and asked to be placed at a psych ward. The place I got there was great. Real silent, no disturbances. There was a fan in the ceiling, and I’m pretty sure it must have helped me out somehow, because even though it was quite loud, two weeks later I could listen to music again. I went home, and continued doing this. Then one day I got into an arguement over the phone. My dad yelled and I felt another shock. I realized now that hyperacusis is cumulative. And even though you may not feel pain from the things you’re doing with your ears, it is still causing damage, one tiny marker at a time. Music was off now. People’s voices began hurting again. My own voice hurt. Thankfully I was still able to wear plugs, so I put them back and they haven’t been out since.

    REACTIVE TINNITUS:

    Fastforward a couple of months into my second setback of my hyperacusis journey. Early 2021. I found that I was able to listen to music on my phone for an hour or so, a couple of times a day, with my plugs in. I did this despite of the occasional discomfort. I thought as long as my hyperacusis wasn’t spiking, every thing was alright, and I continued to do so for a couple of more months. At some point there was tinnitus. It wasn’t very severe, I didn’t think much of it, so I continued in my ways. After some time the tinnitus increased, it became severe, and it was reactive. I stopped with the music. I had to stop going it. I can’t shower anymore. I can’t speak, or listen to people talk. I’m basically stuck. Right now I’m just focusing on resting and healing, and hoping that it will resolve. I’m probably not gonna kill myself. I’m too self-involved, feel myself to be too important for the world to end it. My optimism is also helping. The way I see it, the worse it gets - the better it becomes. The longer I suffer - the better it’s gonna feel once I’m finally free. 10 years down the line I might come to think of this as the greatest thing that has ever happened to me. I don’t want to miss out on that.