danielthor
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danielthor

Member, Male, from Denmark

Thinking about soundproofing my room once my parents go back to work Sep 18, 2021 at 9:51 AM

danielthor was last seen:
Viewing latest content, Sep 20, 2021 at 9:13 PM
    1. danielthor
      danielthor
      Thinking about soundproofing my room once my parents go back to work
      1. ALS, Stacken77, Steph1710 and 2 others like this.
      2. Damocles
        Damocles
        do it!
        Sep 18, 2021 at 11:02 AM
        danielthor likes this.
      3. Kriszti
        Kriszti
        I'm thinking the same. I have obnoxious and very inconsiderate upstairs neighbours and their loudness does not mix well with my tinnitus. Problem is, that's expensive and I'm not sure about the results, so might not be worth it. Keep us updated if you go through with it.
        Sep 18, 2021 at 11:39 AM
        Damocles, ALS and danielthor like this.
      4. aot
        aot
        Surprised you haven't already done it, tbh.
        Sep 18, 2021 at 8:21 PM
        danielthor likes this.
    2. danielthor
      danielthor
      Family & friends. Their company is nothing but a reminder of what I’m missing out on. Regenerative medicine, make me whole
      1. NTV, Steph1710 and Damocles like this.
      2. View previous comments...
      3. danielthor
        danielthor
        as opposed to when you are out socializing for example, where you’re equally as focused on the conversation / yourself / the person, as you are to your ears and sensitivity -> You don’t have nearly as much time and space to be focused in on the sensitivity, so the symptoms become way less ->
        Sep 18, 2021 at 6:42 AM
        Stacken77 likes this.
      4. danielthor
        danielthor
        That is how I experience it at least. Seems like no matter how I play audio I will focus in and tense up and get symptoms
        Sep 18, 2021 at 6:43 AM
        Stacken77 likes this.
      5. Stacken77
        Stacken77
        @danielthor That's actually really interesting. I haven't experienced it that way as I mostly see it as a constant feedback of the auditory system, but it's plausible.
        Sep 18, 2021 at 9:55 AM
        danielthor likes this.
    3. danielthor
      danielthor
      I’ve done myself a huge favour by not avoiding silence, by not distracting myself from it, to just sit with it and let it be what it is
      1. Steph1710, BrOKeN_1 and Damocles like this.
      2. BrOKeN_1
        BrOKeN_1
        Here here... it is what it is
        Sep 17, 2021 at 5:39 AM
        Steph1710 and danielthor like this.
    4. danielthor
      danielthor
      The government wants me to go have meetings with them every second week. Now I can’t do monk-mode ;(
      1. Stacken77
        Stacken77
        Sep 16, 2021 at 6:20 PM
        Damocles and danielthor like this.
      2. danielthor
        danielthor
        @Stacken77 Thanks for asking. I’m on social benefits. I told them I was unable to do a full conversation with them, both because of H & T, but also because of my other neurological disorder. We agreed to take it in smaller pieces. I figure I only have to do a couple
        Sep 16, 2021 at 8:00 PM
        Stacken77 and ALS like this.
      3. danielthor
        danielthor
        It still pains me though that I have to do this, because sitting and isolating myself from sounds will be for nothing now until this is over. Weeks or months where I could have healed
        Sep 16, 2021 at 8:01 PM
        Stacken77 and ALS like this.
    5. danielthor
      danielthor
      Does the regenerative stuff for T have any implications for hyperacusis?
      1. View previous comments...
      2. Foamearplugssuck
        Foamearplugssuck
        Tbh I think that regenerative meds suit H better than T....I think tinnitus is a much harder problem to solve, where as if you can just repair the auditory nerve, that should help hyperacusis go away
        Sep 15, 2021 at 4:22 AM
        danielthor likes this.
      3. danielthor
        danielthor
        @Foamearplugssuck I hope you’re right since T for me seems to be a lot easier to treat naturally and H not so much anymore
        Sep 15, 2021 at 7:49 AM
      4. Foamearplugssuck
        Foamearplugssuck
        @danielthor I thought T would be easier too, but after de Ridder's interview I'm not sure anymore, and I think the real obstacle with H is just the lack of research. I guess we'll find out in the coming years though.
        Sep 15, 2021 at 5:47 PM
        danielthor likes this.
    6. danielthor
      danielthor
      My other chronic health-condition is deteriorating and I’m considering stemcell-treatment
      1. ALS and Damocles like this.
      2. View previous comments...
      3. Steph1710
        Steph1710
        @danielthor sorry you’re suffering too. Chronic conditions make functioning normally such effort, & like we were unlucky enough to gain T & H too! Regarding stemcell treatment, I was looking at one in Thailand (apparently it’s good for stemcells). However, the past few months my lungs improved a little, thanks to exercising again, & using a COPD inhaler, & a few rounds of prednisolone when I experience a flare up.
        Sep 12, 2021
        danielthor likes this.
      4. Steph1710
        Steph1710
        But, if they worsen again, I will start looking into stem cells seriously, because not being able to breath is pretty shitty. I gained three and a half stone last year because I was unable to do any moving and the steroids I was put on made me rapidly gain weight. I never want to be in that position again.
        Sep 12, 2021
        danielthor likes this.
      5. danielthor
        danielthor
        @Steph1710 I’ve been looking towards Thailand as well. There’s one in particular that uses “neural stem cells”. Those sound like my golden ticket, maybe for T & H as well! I’m glad you’re feeling better. I wonder if steroids could do anything for me, at least alliviate me somewhat. I’m currently waiting in line for an CFS/ME-specialist / neurologist. I’ll bring this up with him. Thanks for bringing it up!
        Sep 12, 2021
        Steph1710 likes this.
    7. danielthor
      danielthor
      For some incredible reason I did not spike from driving for over an hour on the highway today
      1. ALS, Steph1710, Wrfortiscue and 8 others like this.
      2. View previous comments...
      3. Gabriel5050
        Gabriel5050
        I see you have ups and downs with your T. I'm glad you can drive. Gives you some independence.
        Sep 7, 2021
        Wrfortiscue and danielthor like this.
      4. danielthor
        Sep 7, 2021
        Wrfortiscue likes this.
      5. danielthor
        danielthor
        Spike never came :D
        Sep 8, 2021
        Gabriel5050 and Kriszti like this.
    8. danielthor
      danielthor
      “Setbacks clear the way for better prosperity” - Marcus Aurelius
      1. Brittany95, Steph1710, ALS and 2 others like this.
    9. danielthor
      danielthor
      Xanax does nothing for my tinnitus, officially concluded
      1. View previous comments...
      2. danielthor
        danielthor
        @Stacken77 It’s kinda hard to say, actually. I fell asleep an hour or two later. All I know is that the T was blaring its usual tune all night
        Sep 6, 2021
        Stacken77 likes this.
      3. danielthor
        danielthor
        I will try taking it again on friday, but during the daytime
        Sep 6, 2021
        Christiaan likes this.
      4. kingsfan
        kingsfan
        Maybe try clonazepam? I have had a hard time gaining any access to benzos so have only been able to try Xanax and Valium.
        Sep 6, 2021
        danielthor likes this.
    10. danielthor
      danielthor
      I wish those of us who are severely crushed by chronic illness could be put into a coma and be waked once the cures were ready
    11. danielthor
      danielthor
      Do herbs aggrivate tinnitus? I started taking Feverfew yesterday and the T has never been louder
      1. Damocles likes this.
      2. Damocles
        Damocles
        I should think so.

        Just consider how many people's tinnitus is spiked by Ginkgo Biloba and CBD oil (the latter does it for me).
        Aug 31, 2021
        Wrfortiscue and danielthor like this.
      3. Damocles
        Damocles
        Lay off those herbs from now on @danielthor, I think.

        You can write your rap songs without them.
        Aug 31, 2021
        danielthor likes this.
    12. danielthor
      danielthor
      Any hope for neuralink? Seeing as Elon Musks partner has severe tinnitus and all
      1. Steph1710 likes this.
      2. Christiaan
        Christiaan
        Well, it's a bit of wait and see when it comes to a novel device like Neuralink. The company will start the trial later this year, so that's at least good news. Although we don't know if people with tinnitus will be accepted in the new test phase. Maybe Grimes will push her boyfriend to make an exception for us;)
        Aug 28, 2021
        Steph1710 and danielthor like this.
      3. convolution
        Aug 28, 2021
        Christiaan and danielthor like this.
      4. lucy_snow
        lucy_snow
        If i remember right, she has moderate tinnitus, not severe.
        Aug 28, 2021
        Christiaan and danielthor like this.
    13. danielthor
      danielthor
      Hearing-aids exist to lower certain frequincies for H sufferers. I wonder if they can make T less reactive that way
      1. Stacken77 likes this.
    14. danielthor
      danielthor
      Reacting to eating again.
      1. Damocles likes this.
      2. View previous comments...
      3. Damocles
        Damocles
        I've also been reacting to eating lately.

        Reacting like: "Mmmmmmmmm" and "YUM!" (ˆ ڡ ˆ)ψ
        Aug 26, 2021
        Wrfortiscue and Christiaan like this.
      4. Damocles
        Damocles
        Seriously though @danielthor, I just ate 4 Dark Chocolate Ginger Biscuits, and they were the crunchiest b@st@rds I've ever chewed in my life. No spike.
        Aug 26, 2021
        Christiaan likes this.
      5. Damocles
        Damocles
        Roughly 7 years ago, I couldn't have done that without holding my head in my hands for the rest of the evening. So don't start thinking anything is permanent.

        Imma be sending you some of these horrible Ginger f*ckers in a couple years.
        Aug 26, 2021
        Christiaan and danielthor like this.
    15. danielthor
      danielthor
      Had to drive for an hour to get to the doctor. The spike is incredible. I’m not out of the clear yet
      1. ALS, Christiaan, Wrfortiscue and 2 others like this.
      2. Christiaan
        Christiaan
        Sorry to hear that Daniel. Perhaps it's a bit of back and forth with reactive T? Judging some posts on TT, it seems to improve that way for certain cases. I know that mine took about 4 or 5 months to vanish.
        Aug 23, 2021
        danielthor likes this.
      3. danielthor
        danielthor
        @Christiaan Thanks. Maybe I’m just not ready for the road yet. Short trips and verbal communication are not nearly as bothersome anymore tho, which is a good sign of things to come, I hope
        Aug 23, 2021
        Christiaan likes this.
      4. Christiaan
        Christiaan
        I hope so too. Taking things bit by bit seems like a good strategy. Take it easy my friend:)
        Aug 23, 2021
        danielthor likes this.
    16. danielthor
      danielthor
      World is opening up to me again now that my spikes have become bearable. Gonna do monk-mode for the rest of the year tho and get the rest
      1. starrynights, ALS, JPGL and 6 others like this.
    17. danielthor
      danielthor
      I drove to the supermarket and went grocery-shopping and didn’t spike
      1. JPGL, ALS, Christiaan and 8 others like this.
      2. danielthor
        danielthor
        I also talked for the first time in a month and no spike
        Aug 21, 2021
        ALS, Kriszti, kuromi and 4 others like this.
      3. twa
        twa
        Proud of you! You can do this!
        Aug 21, 2021
        JPGL, kuromi and danielthor like this.
      4. Christiaan
        Christiaan
        That's good news, Daniel!
        Aug 21, 2021
        danielthor likes this.
    18. danielthor
      danielthor
      Ok so my T is back at its most reactive state. A week of silence made it way less reactive. Maybe I just need more time
      1. Stacken77
        Stacken77
        @danielthor Keep at it man and you'll get there! What set you back? Did you take the car for a ride? How did it go?
        Aug 20, 2021
        Christiaan and danielthor like this.
      2. danielthor
        danielthor
        @Stacken77 Played around with digital audio again ;( I’m trying to find the fine line to when my T starts spiking from it. Just hard when it’s constantly changing. I’m gonna take a month now of silence and see where it gets me
        Aug 20, 2021
        Christiaan and Stacken77 like this.
      3. Stacken77
        Stacken77
        @danielthor I've read of quite a few cases who's especially sensitive to digital audio. Before my T turned hyper-reactive in Feb, all sounds were fine, then in just a week, all and any sounds began to cause spikes. Very weird indeed. Currently I'm experimenting with methods to reintroduce sound again, but it sure is trial and error.
        Aug 20, 2021
        Christiaan and danielthor like this.
    19. danielthor
      danielthor
      My hyperacusis is still very bad, but T is way less reactive now. I’m gonna go drive tomorrow
      1. kuromi, ALS, Hamsti and 3 others like this.
      2. twa
        twa
        Yay! Enjoy!
        Aug 19, 2021
        kuromi and danielthor like this.
    20. danielthor
      danielthor
      I get Excruciating burning-pain from walking. I guess I just can’t leave my house for the time being
      1. Wrfortiscue, aot and ShaunR like this.
      2. View previous comments...
      3. Wrfortiscue
        Wrfortiscue
        Sorry man :(
        Aug 14, 2021
        danielthor likes this.
      4. Christiaan
        Christiaan
        I too am sorry to hear that, Daniel. Hope yours get better with time.
        Aug 14, 2021
        danielthor likes this.
      5. Farida
        Farida
        Rly sorry to hear that, TTTs is a fucking bitch for real
        Aug 14, 2021
        danielthor likes this.
    21. danielthor
      danielthor
      Huge spike for no apparent reason
      1. JPGL, MBH, Stacken77 and 1 other person like this.
      2. Stacken77
        Stacken77
        @danielthor I'm in a spike primarily affecting my left ear. I'm also noticing a strange pattern; after 8pm, my left ear turns severe(hard to sleep), but when waking up, it's fine but my right ear is instead severe, but it usually recedes in an hour or so. This condition is awfully strange indeed...
        Aug 12, 2021
        JPGL, Wrfortiscue and danielthor like this.
    22. danielthor
      danielthor
      I haven’t thought about my T once for the last two days
      1. JPGL, Stacken77, ALS and 7 others like this.
      2. Wrfortiscue
        Wrfortiscue
        Hell yeah
        Aug 10, 2021
        danielthor likes this.
      3. Ava Lugo
        Ava Lugo
        DanielThor, Is your T pretty quiet and mild? I didn’t get a chance to read your posts yet. When my T was very mild, I could forget about it.
        Aug 11, 2021
        danielthor likes this.
      4. danielthor
        danielthor
        @Ava Lugo My T is reactive, and when it reacts it becomes incredibly severe. When I’m just alone in my room in silence it’s probably around 6/10. It’s pretty bad, but I’m able to tune it out somehow
        Aug 12, 2021
        Exit and Stacken77 like this.
    23. danielthor
      danielthor
      I’m noticing a trend in my reactive T ->
      1. Stacken77 likes this.
      2. danielthor
        danielthor
        Every time I expose myself the reactivity will get really bad for a couple of days, but then after a few days of silence it dies down. Today it didn’t react towards eating, but now because I decided to test myself with digital audio, the T is now severe and will react to eating the next couple of days. I’m learning my lessons
        Aug 7, 2021
        Wrfortiscue, Julien87 and Stacken77 like this.
      3. Exit
        Exit
        Mine is exactly the opposite...
        Sort of.., never ever dies down.. just less annoying
        Aug 18, 2021
        danielthor likes this.
    24. danielthor
      danielthor
      T was really quiet this morning and then I ate
      1. kuromi likes this.
      2. View previous comments...
      3. Stacken77
        Stacken77
        @danielthor Yes, I believe not all spikes are equal. The spikes I get from driving is insane. I believe this is due to what in TRT-litterature is called "winding up" where low level noise over a longer period of time causes increases. In my experience, short one off noises, even loud ones, rarely spikes me, but 30 minutes of pink noise causes a severe 2 day spike, same as with driving.
        Aug 6, 2021
        ALS and danielthor like this.
      4. aot
        aot
        Ingredients.
        Aug 6, 2021
        danielthor likes this.
      5. danielthor
        danielthor
        @Stacken77 We seem to be in the exact same boat. I can literally have my dog bark in my face with only plugs in, and not spike. But a faint frequincy of the wind for 20 minutes outside while wearing plugs + muffs will have me in absolute agony for the rest of the day
        Aug 6, 2021
        Stacken77 likes this.
    25. danielthor
      danielthor
      Did Kent Taylor ever undergo stemcell-treatment? I wonder. He had the money
      1. Hamsti, Christiaan and Wrfortiscue like this.
    26. danielthor
      danielthor
      Reached out to local neuro, mailed him about my situation. Asked about benzos. Not expecting much xD
      1. Christiaan and Stacken77 like this.
    27. danielthor
      danielthor
      I dread having to eat now. I dread having to sleep, talk, walk, shower, breathe. The world is closing in on me, there’s nowhere to go
      1. Exit, Wrfortiscue and Christiaan like this.
      2. View previous comments...
      3. danielthor
        danielthor
        @Stacken77 I would say so yeah, I ran as fast as I could out of the room, but those few seconds hurt like hell. My H seems to be back at baseline now though
        Aug 4, 2021
        Stacken77 likes this.
      4. danielthor
        danielthor
        I just recently tested it by saying something outloud in my room and didn’t feel any pain from it. Does it hurt when you do that?
        Aug 4, 2021
        Stacken77 likes this.
      5. Stacken77
        Stacken77
        @danielthor Glad to hear your H is to baseline again. My H doesn't "hurt", but all sounds are perceived as much louder than they should. I have bad TTTS in the right ear though, which thumps to normal speech again, it can cause some discomfort. Quick noises like light switches startles me badly.
        Aug 4, 2021
    28. danielthor
      danielthor
      T has been horrible today. Don’t know what I did wrong. Probably because I ate
      1. Wrfortiscue and Christiaan like this.
      2. View previous comments...
      3. danielthor
        danielthor
        @Stacken Sometimes it feels like I’m being operated on by a drill, sometimes a laser. I have a musical tone as well, and I even hear bits and pieces from real-life conversations. It’s scary, but thankfully gets drowned out by the piercing-drill tone. I guess there is a silver lining afterall xD
        Aug 5, 2021
      4. danielthor
        danielthor
        @Stacken77 My T is also very fast-sounding. Like I’m being thrown through space at high speed or something
        Aug 5, 2021
      5. danielthor
        danielthor
        Aug 5, 2021
        Christiaan likes this.
    29. danielthor
      danielthor
      My friends are always sharing songs with me. I don’t know how to tell them that I can’t actually listen
      1. Hamsti likes this.
    30. danielthor
      danielthor
      Not sure if habituated, or T less reactive now after two weeks of silence. It’s still bad, but better
      1. MBH, Brittany95, Steph1710 and 2 others like this.
      2. danielthor
        danielthor
        I tested it with walking, talking and listening to audio on lowest volume
        Aug 2, 2021
      3. Christiaan
        Christiaan
        That's good news and definitely a good thing, Daniel. When it comes to T, progress mostly comes in small steps. Who knows, maybe it will get waaaay better in a year or two.
        Aug 2, 2021
        Steph1710 and danielthor like this.
      4. danielthor
        danielthor
        @Christiaan Thanks for the encouragment Christian! Now I’m not sure wether it was the silence that did it, or if the progress would have happened regardless. I’m gonna tread lightly though, still not gonna drive, etc. But maybe in a few weeks or months I might be able to
        Aug 2, 2021
        Christiaan likes this.
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  • About

    Gender:
    Male
    Location:
    Denmark
    Tinnitus Since:
    04/2020
    Cause of Tinnitus:
    Unknown
    HYPERACUSIS:

    After becoming bedridden in early 2020 with severe CFS/ME, I accidentally blasted myself with my airpods on full volume. I now had two depilitating deceases for which there were no answers.
    The pain in my ears started slowly. It was just noticable in the kitchen and the shower. Then the phone began to hurt. Music hurt. Phonecalls hurt. I went to the doctor and his voice hurt. My voice hurt. I began plugging up. There was a bunch of progress and a bunch of setbacks during this time. What ultimately did me in was my dog barking right outside my window. I was confident at this point. The days up to this point had been good, and thought I’d just let him bark. “My ears can probably handle it”. They couldn’t. It came on like a shock through my skull. After this day forward I was no longer able to plug up, the sound of my heart beat felt like needles in my ears. And because it had gotten so severe I wasn’t able to stay home either. I had to get away

    During this time I was also battling severe CFS. It’s a neurological disease, and it’s real serious if you get a bad case of it. I wasn’t able to use my phone, to go on reddit and other support groups, to ask for guidance or anything like that. i eventually called my doctor, explained to him my situation and asked to be placed at a psych ward. The place I got there was great. Real silent, no disturbances. There was a fan in the ceiling, and I’m pretty sure it must have helped me out somehow, because even though it was quite loud, two weeks later I could listen to music again. I went home, and continued doing this. Then one day I got into an arguement over the phone. My dad yelled and I felt another shock. I realized now that hyperacusis is cumulative. And even though you may not feel pain from the things you’re doing with your ears, it is still causing damage, one tiny marker at a time. Music was off now. People’s voices began hurting again. My own voice hurt. Thankfully I was still able to wear plugs, so I put them back and they haven’t been out since.

    REACTIVE TINNITUS:

    Fastforward a couple of months into my second setback of my hyperacusis journey. Early 2021. I found that I was able to listen to music on my phone for an hour or so, a couple of times a day, with my plugs in. I did this despite of the occasional discomfort. I thought as long as my hyperacusis wasn’t spiking, every thing was alright, and I continued to do so for a couple of more months. At some point there was tinnitus. It wasn’t very severe, I didn’t think much of it, so I continued in my ways. After some time the tinnitus increased, it became severe, and it was reactive. I stopped with the music. I had to stop going it. I can’t shower anymore. I can’t speak, or listen to people talk. I’m basically stuck. Right now I’m just focusing on resting and healing, and hoping that it will resolve. I’m probably not gonna kill myself. I’m too self-involved, feel myself to be too important for the world to end it. My optimism is also helping. The way I see it, the worse it gets - the better it becomes. The longer I suffer - the better it’s gonna feel once I’m finally free. 10 years down the line I might come to think of this as the greatest thing that has ever happened to me. I don’t want to miss out on that.