Emgee's Recent Activity

  1. Emgee liked Kara77's post in the thread My Journey to Silence.

    Hi, I know what it's like to have debilitating tinnitus, and today, it's 99% gone. It's not the first thought I have when I wake up in the...

    Jun 4, 2020 at 1:51 PM
  2. Emgee liked serendipity1996's post in the thread Frequency Therapeutics — Hearing Loss Regeneration.

    They're presenting at a conference tomorrow (virtually) so we may get some updates then.

    Jun 3, 2020 at 11:19 PM
  3. Emgee liked Orions Pain's post in the thread Frequency Therapeutics — Hearing Loss Regeneration.

    You know that feeling once you wake from a nightmare and reality sets in and you begin to relax. Well I think the day that a successful...

    Jun 3, 2020 at 11:04 PM
  4. Emgee liked FGG's post in the thread Frequency Therapeutics — Hearing Loss Regeneration.

    And if one group of sufferers is helped before others, let's not quit until we are all free!

    Jun 3, 2020 at 10:58 PM
  5. Emgee liked Lucifer's post in the thread Frequency Therapeutics — Hearing Loss Regeneration.

    It does feel like we are a family. I would love to meet all of you guys when this is over.

    Jun 3, 2020 at 10:58 PM
  6. Emgee liked mrbrightside614's post in the thread Frequency Therapeutics — Hearing Loss Regeneration.

    In all seriousness if this ends up being a cure/significant relief to many I’d love to have a party and rejoice with all of you fine people that...

    Jun 3, 2020 at 10:57 PM
  7. Emgee rated Lucifer's post Agree in the thread Frequency Therapeutics — Hearing Loss Regeneration.

    I really hope it’s Phase 3 next. I want this drug to come out ASAP.

    Jun 3, 2020 at 9:19 AM
  8. Emgee replied to the thread Frequency Therapeutics — Hearing Loss Regeneration.

    Unfortunately, masking reactive tinnitus makes it worse for a lot of people (myself included). Any consistent external noise causes my tinnitus to...

    Jun 2, 2020 at 11:50 PM
  9. Emgee liked BBakkers's status.

    I'm sick of waiting for a cure or just a relief.

    Jun 2, 2020 at 11:27 PM
  10. Emgee liked Steph1710's status.

    Not that anyone cares but I'm logging out for 2 weeks whilst I sit some very important exams! Stay safe & well everybody! <3

    Jun 2, 2020 at 6:27 PM
  11. Emgee liked Alex0o_o0's status.

    I need me some of that regenerative medicine doc!

    Jun 2, 2020 at 4:16 PM
  12. Emgee liked Tavia R's status.

    I find it amusing that when the entire earth is too loud what always comes to mind is Billy Corgan's "the world is a vampire sent to drain"

    Jun 2, 2020 at 3:44 PM
  13. Emgee liked Lucifer's comment on aot's profile post

    I would never wish it upon anyone but if a celebrity who was protesting did get it I hope they raise better awareness and the negative effects of...

    Jun 2, 2020 at 3:15 PM
  14. Emgee liked aot's status.

    Happy Birthday to my Dad! 74 years young.

    Jun 2, 2020 at 3:15 PM
  15. Emgee liked aot's status.

    Something tells me that the U.S is gonna get a dramatic increase of noise induced T.

    Jun 2, 2020 at 3:15 PM
  16. Emgee rated hans799's post Informative in the thread Lenire — Bimodal Stimulation Treatment by Neuromod.

    A discussion with @PeterPan has revealed that I've misunderstood the definition of hyperacusis and apparently I have it, too. I often find myself...

    Jun 2, 2020 at 3:12 PM
  17. Emgee liked jmasterj's post in the thread Lenire — Bimodal Stimulation Treatment by Neuromod.

    I haven't heard much from the Minnesota team for some time. I am on their mailing list for a possible next phase study, but I haven't heard much...

    Jun 2, 2020 at 2:53 PM
  18. Emgee liked DoNotGoGentle's post in the thread Frequency Therapeutics — Hearing Loss Regeneration.

    https://seekingalpha.com/article/4351165-frequency-therapeutics-fxminus-322-top-line-data-from-exploratory-study-proves-promising More info about...

    Jun 1, 2020 at 11:11 PM
  19. Emgee rated PeteJ's post Hug in the thread Suicidal.

    I hate when the tones are screaming! I don't need a hearing aid so does that mean I am a candidate for this hearing/cochlear regeneration...

    Jun 1, 2020 at 9:36 PM
  20. Emgee liked ASilverLight's status.

    And just like that I go from horrible days to a relatively quiet one - along with less severe symptoms I've had for months. Coincidence?

    Jun 1, 2020 at 7:55 PM
  21. Emgee liked aot's status.

    Noticed that @glynis hasn't been on in awhile. Hoping she's safe.

    Jun 1, 2020 at 1:34 PM
  22. Emgee liked Steph1710's status.

    Brother-in-law told me he's had T since childhood, & it's so loud he hears it's constantly. I've known him 6 years & he's never mentioned it

    Jun 1, 2020 at 1:33 PM
  23. Emgee rated Lola808's post Hug in the thread Frequency Therapeutics — Hearing Loss Regeneration.

    I have reactive tinnitus in my left ear. I am sitting in mostly silence right now and don't hear anything but if I am exposed to noise then I get...

    May 31, 2020 at 7:15 PM
  24. Emgee replied to the thread Frequency Therapeutics — Hearing Loss Regeneration.

    I have exactly the same condition but in my right ear. I hope FX-322 will work for us. I think hearing restoration should lead to a normalized...

    May 31, 2020 at 7:14 PM
  25. Emgee liked Tavia R's status.

    There comes a point you realize you're going to have to get through it because there's no other choice. How have I gotten this far?

    May 31, 2020 at 6:55 PM
  26. Emgee rated ASilverLight's post Hug in the thread Suicidal.

    I'm at the end of my rope. Life at home is horrible and I'm in no position to move out. I've lost so much because of these damn loud intrusive...

    May 31, 2020 at 6:34 PM
  27. Emgee replied to the thread Developed Severe Reactive Tinnitus After Yesterday's Acoustic Trauma.

    I totally understand. Some days, I feel like my life is over. I agree in regard to it being a form of hyperacusis. I really hope regenerative...

    May 31, 2020 at 6:32 PM
  28. Emgee commented on tbuzz89's profile post.

    T is unpredictable. Hope you improve over time!

    May 31, 2020 at 6:28 PM
  29. Emgee liked hans799's post in the thread Lenire — Bimodal Stimulation Treatment by Neuromod.

    Nah, that's not true. I have measurable hearing loss (though not much), no hyperacusis, and yet Lenire seems to be working for me. Actually...

    May 31, 2020 at 5:09 PM
  30. Emgee rated Lucifer's post Agree in the thread Frequency Therapeutics — Hearing Loss Regeneration.

    I also hope it helps with hyperacusis and tinnitus as well. Who would have known that these type of issues existed. I had no bloody idea. I feel...

    May 31, 2020 at 4:29 AM
  31. Emgee rated Pink Noise's post Hug in the thread Frequency Therapeutics — Hearing Loss Regeneration.

    Ah I see. I hope FX-322 can help us all. I'm pinning my hopes on that too. These 9 months have been hell. Making music without fully enjoying...

    May 31, 2020 at 3:33 AM
  32. Emgee liked aot's status.

    Tinnitus barely bothers me anymore, tbh. (Despite how much I complain.) If only I could get my VSS under control.

    May 31, 2020 at 2:27 AM
  33. Emgee rated HootOwl's post Hug in the thread Developed Severe Reactive Tinnitus After Yesterday's Acoustic Trauma.

    Hey, hang in there. I do think it is a form of hyperacusis, where the central gain for some frequencies is higher than others. I actually think...

    May 31, 2020 at 2:15 AM
  34. Emgee replied to the thread Developed Severe Reactive Tinnitus After Yesterday's Acoustic Trauma.

    Sorry to hear that. I am also suffering with reactive tinnitus. Mine is severe and has not improved either. Any consistent noise sets it right off...

    May 30, 2020 at 10:36 PM
  35. Emgee rated HootOwl's post Hug in the thread Developed Severe Reactive Tinnitus After Yesterday's Acoustic Trauma.

    Sad to say it has not :( Sometimes I’m really scared I’ll be left behind while everyone else gets fixed.

    May 30, 2020 at 10:33 PM
  36. Emgee liked tbuzz89's status.

    While I don’t feel sensitive to sounds, noticing my T is fighting against noise and gets louder around sound. This is torture.

    May 30, 2020 at 9:31 PM
  37. Emgee commented on tbuzz89's profile post.

    Does it go right back down after the noise stops or does it stay elevated?

    May 30, 2020 at 9:31 PM
  38. Emgee replied to the thread Developed Severe Reactive Tinnitus After Yesterday's Acoustic Trauma.

    Hi, @HootOwl. Has your reactive tinnitus improved at all?

    May 30, 2020 at 8:56 PM
  39. Emgee rated Chinmoku's post Agree in the thread Audion Therapeutics Trial.

    The fact that FX322 has regrown hair cells in explanted cochleas and the improvements seen already in phase 1 at low dosages cannot be denied....

    May 30, 2020 at 8:14 PM
  40. Emgee rated Alex0o_o0's post Funny in the thread Audion Therapeutics Trial.

    Get your synapse count up with Hough pill, grow some nice luscious locks with fx-322 ,reboot brain with some good ol' neuromodulation and you're...

    May 30, 2020 at 8:14 PM
  41. Emgee liked Juan's post in the thread Some Normal Background Noises (Fan, Water Tap) Make Tinnitus Worse?.

    That's some sort of reactive tinnitus. It's quite typical that it reacts to noises similar to white noise, fans, aircon, etc

    May 30, 2020 at 8:09 PM
  42. Emgee replied to the thread Some Normal Background Noises (Fan, Water Tap) Make Tinnitus Worse?.

    I have it too but for all consistent sounds: microwave, fans, AC, white noise, you name it. I can’t even watch TV. Do you know what caused yours?...

    May 30, 2020 at 8:09 PM
  43. Emgee replied to the thread Lenire — Bimodal Stimulation Treatment by Neuromod.

    Does anyone know how far along the Minnesota device is? I spoke with Dr. Shore and she said she expects the 2nd trial to be done by early fall....

    May 30, 2020 at 7:12 PM
  44. Emgee rated Chinmoku's post Informative in the thread Lenire — Bimodal Stimulation Treatment by Neuromod.

    From what @kelpiemsp mentioned Minnesota would do a brain scan to decide the setting for the neuromodulation. Susan Shore asks you about your...

    May 30, 2020 at 7:08 PM
  45. Emgee Really hope that future treatments can reduce reactive T. I’d be one happy camper. »

    May 30, 2020 at 5:50 PM
  46. Emgee replied to the thread Lenire — Bimodal Stimulation Treatment by Neuromod.

    Agreed. Though it is certainly disappointing that some users experienced adverse effects, it is at least assuring to see that neuromodulation does...

    May 30, 2020 at 5:44 PM
  47. Emgee rated Alex0o_o0's post Agree in the thread Lenire — Bimodal Stimulation Treatment by Neuromod.

    What I also see in these numbers is that neuromodulation has influenced (good and bad) the tinnitus of 64% of the participants. So it actually...

    May 30, 2020 at 5:25 PM