GBB's Recent Activity

  1. GBB liked ASilverLight's status.

    I'm just so done with it all. This condition is cruel and knows no mercy. We need a cure.

    Oct 30, 2020 at 11:09 PM
  2. GBB rated Juan's post Funny in the thread My Pain Hyperacusis Improved Significantly: Went to a Party without Earplugs and Still Fine.

    To me it does not sound as you have hyperacusis, since hyperacusis reacts to loud noise. For many people hyperacusis is caused by noise exposure...

    Oct 30, 2020 at 11:03 PM
  3. GBB rated FGG's post Informative in the thread Suicidal.

    I talked to one of the researchers at Autifony and she believes the drug works but was not specific enough to the ion channels needed. In other...

    Oct 30, 2020 at 8:25 PM
  4. GBB rated ASilverLight's post Agree in the thread Sound Pharmaceuticals (SPI-5557 & SPI-1005).

    I just hope any of these upcoming treatments put an end to reactive tinnitus. I'd do a lot to take a shower without spiking, or listen to music...

    Oct 30, 2020 at 6:15 PM
  5. GBB replied to the thread Suicidal.

    All one needs to do is go back to 2013/2014 on this site and read about how Autifony et al would cure them in a few years. If I didn't have...

    Oct 30, 2020 at 6:02 PM
  6. GBB rated dan's post Agree in the thread Can Tinnitus ACTUALLY Drive You CRAZY?.

    Tinnitus is totally reversible, they just haven't figured it out how yet... there's not much resources going into real tinnitus research......

    Oct 30, 2020 at 11:58 AM
  7. GBB rated Telis's post Funny in the thread Tinnitus Is Getting Worse!?.

    Don't worry about making your T worse...it is a non issue. Here2help...backed by Dr Nagler as knowing more than 99 % of experts states this......

    Oct 30, 2020 at 4:03 AM
  8. GBB Today marks 3 months. It's not as bad as it was at first, but so tired of this noise. Horrified I may be saying the same years from now. »

    Oct 30, 2020 at 3:43 AM
  9. GBB rated Jurger's post Agree in the thread Frequency Therapeutics — Hearing Loss Regeneration.

    Announcing trials is one thing, delivering sustained, predictable improvement that’s beneficial in day-to-day life is another. We’re not out of...

    Oct 30, 2020 at 2:45 AM
  10. GBB replied to the thread Can Tinnitus ACTUALLY Drive You CRAZY?.

    Yes, not suggesting anyone should take their life, particularly now with new technologies which seem poised to provide benefit.

    Oct 30, 2020 at 2:32 AM
  11. GBB rated funeralcry's post Agree in the thread Suicidal.

    I think the ability to feel at peace and relaxed is essential for human functioning. I feel like I have been cursed by an demon. They say...

    Oct 30, 2020 at 12:26 AM
  12. GBB rated Ken219's post Hug in the thread Can Tinnitus ACTUALLY Drive You CRAZY?.

    @Bartoli From the first day it was loud. I never measured the loudness. I hear it all the time. When I relapse, does it get louder? Maybe, but it...

    Oct 29, 2020 at 11:24 PM
  13. GBB liked Croaker's status.

    How am I supposed to recover from this setback when chewing any food irritates my ears?

    Oct 29, 2020 at 9:14 PM
  14. GBB replied to the thread Frequency Therapeutics — Hearing Loss Regeneration.

    Question - would having a gel osmose into the cochlea increase inflammation?

    Oct 29, 2020 at 8:41 PM
  15. GBB replied to the thread Hough Ear Institute's Hair Cell Regeneration Project.

    Might as well be $2,800 and Sun Wu Kong.

    Oct 29, 2020 at 7:53 PM
  16. GBB rated Piney's post Funny in the thread Hough Ear Institute's Hair Cell Regeneration Project.

    I’ve attempted to reach Oblato Inc several times to inquire about future trials. The internet states they have 1 employee, $28,000 annual budget,...

    Oct 29, 2020 at 7:50 PM
  17. GBB rated FGG's post Genius in the thread Frequency Therapeutics — Hearing Loss Regeneration.

    Some of those "facts" are (imo) wrong assumptions or not put in proper context. E.g. If word score improvements were due to a poorly controlled...

    Oct 29, 2020 at 6:11 PM
  18. GBB rated Greg Sacramento's post Informative in the thread Do We Understand How Benzos Affect Tinnitus?.

    @GBB -- Synthetic neuroactive steroids called phorones, increase levels of serotonin which activate the hypothalamus, limbic amygdala,...

    Oct 28, 2020 at 11:27 PM
  19. GBB replied to the thread RL648_81: Synthesis and Evaluation of Potent KCNQ2/3-specific Channel Activators.

    I was answering honestly - you asked if I was considering it - I said it would be more attractive if I didn't need to take if forever. Anything...

    Oct 28, 2020 at 11:22 PM
  20. GBB rated LindaS's post Hug in the thread Why Can't They Just Surgically Remove the Ear and Everything Else?.

    I cannot use sound enrichment to distract from the tinnitus noise. I get burning pain and the tinnitus gets louder. My hyperacusis seems to be...

    Oct 28, 2020 at 2:58 AM
  21. GBB rated dan's post Agree in the thread Suicidal.

    First off, why are we talking like this thing is hitting the market 100%? There is an old Russian proverb which says: Catch the bear before you...

    Oct 28, 2020 at 2:20 AM
  22. GBB replied to the thread RL648_81: Synthesis and Evaluation of Potent KCNQ2/3-specific Channel Activators.

    It would be more appealing if the effects could be cemented from a temporary regimen.

    Oct 28, 2020 at 2:10 AM
  23. GBB replied to the thread Rescue Hearing Inc..

    The more the merrier!

    Oct 27, 2020 at 10:47 PM
  24. GBB liked Ava Lugo's status.

    I feel like with reactive T, it’s making me even more deaf as it’s even harder to talk to people now as it interferes with conversation

    Oct 27, 2020 at 10:33 PM
  25. GBB rated GlennS's post Agree in the thread ForgTin to Forget Tinnitus: Reviews / Experiences? Does It Work?.

    I don't believe it. It seems like a more sophisticated self-medication approach along the lines of R David Case's Tinnitus Mix insofar as it was...

    Oct 27, 2020 at 10:31 PM
  26. GBB replied to the thread RL648_81: Synthesis and Evaluation of Potent KCNQ2/3-specific Channel Activators.

    Do you need to take Trobalt continuously? I've definitely seen stories on here where people have mentioned cessation or permanent improvement of...

    Oct 27, 2020 at 10:28 PM
  27. GBB rated anonymoose's post Winner in the thread Not All Tinnitus Is Created Equal — My Story.

    I wanted to share my story on the off chance that it helps someone with their tinnitus. In mid-July, I had a sudden onset of unexplained neck...

    Oct 27, 2020 at 9:51 PM
  28. GBB replied to the thread Can Antidepressants Inhibit Recovery from Tinnitus? Is There Any Evidence?.

    I’m only on 50mg - it’s helped me so far.

    Oct 27, 2020 at 8:51 PM
  29. GBB replied to the thread Suicidal.

    I've heard he only crossed the Rubicon because he couldn't hear all the senators shouting at him from the other side due to his tinnitus.

    Oct 27, 2020 at 2:50 PM
  30. GBB replied to the thread Has Anyone's Tinnitus Ever COMPLETELY Gone Away?.

    I've only ever heard that quoted from Jastreboff. Xanax is prescribed all the time and people are fine, especially when not taking it every day.

    Oct 27, 2020 at 2:48 PM
  31. GBB rated Juan's post Informative in the thread Study: Oral Prednisone vs. Methylprednisolone Injections for SSNHL.

    My understanding is they measured the hearing threshold (what participants in the study could not hear) after administering oral steroids to one...

    Oct 27, 2020 at 11:15 AM
  32. GBB rated StubbyJ's post Winner in the thread Has Binaural Beats Made Your Tinnitus Worse?.

    No, it did not. But, all my symptoms continue to improve with time.

    Oct 27, 2020 at 4:06 AM
  33. GBB rated Zugzug's post Informative in the thread Study: Oral Prednisone vs. Methylprednisolone Injections for SSNHL.

    I don't think the data analysis on the clinical trials website is very detailed. My understanding is they took every participant and measured...

    Oct 27, 2020 at 2:45 AM
  34. GBB replied to the thread Study: Oral Prednisone vs. Methylprednisolone Injections for SSNHL.

    I'm an idiot but I can't understand the outcome data.

    Oct 26, 2020 at 11:45 PM
  35. GBB replied to the thread Has Anyone's Tinnitus Ever COMPLETELY Gone Away?.

    Have you considered asking a psychiatrist for a Xanax prescription? You can't use it more than a few times a month, but it will give you a little...

    Oct 26, 2020 at 10:48 PM
  36. GBB rated Tara Lyons's post Agree in the thread Has Anyone's Tinnitus Ever COMPLETELY Gone Away?.

    Certain people on here make it seem like tinnitus never goes away completely. I get so discouraged. Like this is hard enough to deal with! I...

    Oct 26, 2020 at 10:23 PM
  37. GBB rated Katierachel7's post Funny in the thread Suicidal.

    I’m so sorry to read the comments and the feelings of utter despair and fear. These are normal reactions, but they are terrifying. I experienced...

    Oct 26, 2020 at 8:26 PM
  38. GBB replied to the thread Suicidal.

    Drug enthusiasts and my psychiatrist. Edit: I like having a time out period every week. I know I can't extend it beyond that. Looking forward to...

    Oct 26, 2020 at 7:45 PM
  39. GBB rated Chinmoku's post Hug in the thread Suicidal.

    Very poignant, @Christiaan, and indeed as @Kriszti says there is basically very little to no help. Even benzos don't work for me, at least at...

    Oct 26, 2020 at 7:01 PM
  40. GBB rated Zugzug's post Agree in the thread Suicidal.

    I'm truly sorry, from the bottom of my heart. With all of my suffering, I have been extremely fortunate in that my loved ones have treated me...

    Oct 26, 2020 at 6:57 PM
  41. GBB liked Zugzug's post in the thread Suicidal.

    Very well written post. Honestly, that takes a lot of courage. There's a part of me that wants to go public, but I am afraid of how I will react...

    Oct 26, 2020 at 3:52 PM
  42. GBB replied to the thread Can Tinnitus ACTUALLY Drive You CRAZY?.

    I mean you can do a lot before you kill yourself. My plan B would be to live in Central/South America in an open air home, as I hear mine outside...

    Oct 26, 2020 at 3:33 PM
  43. GBB rated Mister Muso's post Winner in the thread Why Are Hyperacusis Sufferers Such a Small Minority?.

    Loudness. I rarely get pain unless in a loud environment for a prolonged period. I can still get a feeling of fullness from loud sudden noises. I...

    Oct 26, 2020 at 3:08 PM
  44. GBB rated Jefferson Nunn's post Winner in the thread My ENT Offered Me a Spot in a Drug Trial for Ketamine Injections.

    I've had 4 rounds of Ketamine therapy for the Chronic Regional Pain Syndrome that I have. The pain is reduced by about 75% after those treatments....

    Oct 26, 2020 at 2:51 PM
  45. GBB replied to the thread Can Ketamine Infusion for Depression Worsen Tinnitus?.

    Where have you read that it raises glutamate? I've seen that it competes with glutamate, thereby blocking it from binding to NMDA receptors.

    Oct 26, 2020 at 2:50 PM
  46. GBB replied to the thread Can Tinnitus ACTUALLY Drive You CRAZY?.

    People kill themselves over it - if you consider that madness then yes. I don't think people lose their minds as in, they become babbling...

    Oct 26, 2020 at 2:46 PM
  47. GBB Tinnitus is bad today. No constant tones, just hellish irregular fast rhythm. Multiple asynchronous pulses per second in each ear. »

    Oct 26, 2020 at 2:43 PM
  48. GBB rated Christiaan's post Hug in the thread Suicidal.

    Ey everyone, I've promised to publish a story about my struggles with tinnitus and visual snow + warning others about the severity of these two...

    facebook-christiaan.png Oct 26, 2020 at 12:42 PM