kingsfan

@Juliane premature ventricular and atrial contractions

@kingsfan oh :-( As if you did not have enough to worry about. So sorry.

@kingsfan - I am so sorry to hear that …. Add that to the list of things I did not know about before T

Some peace of mind for all of use would be priceless

That's what I think I have. I have a static sound and can almost feel it. Depends on how bad it is. In the beginning it felt like I had poprocks in my ear. It's the eeee tone that drives me nuts. Funny how we all have different tolerances.

@BellaMia Well I've had 3 years to get used to the couple of pure tones I have. They still get unbearable when I'm out and about.

Same. I just want to go back to the day before my birthday when I didn’t catch covid and didn’t have long covid. I’ll do anything to go back to December 17th.

It’s crazy how that works. Know a guy that went crazy because of T. Since he got vertigo he told me that his T with V would be nothing

Yeah, the breaks don't do much. I tried.

@gameover I took a break, I can't remember exactly when or how long, probably around Sep '22 - May '23, and when I came back some of the people I talked to had left.

That’s a horrible feeling. I so wish I could not relate to that … but I do. You are not alone. Thank God for this place

@kingsfan I feel like us people who are blessed with tinnitus will have to deal with these oscillations for the rest of our life, that is just the nature of the beast. The condition is just so complex, and no one seems to really understand. Considering there are people who get T from medication and despite having no acoustic trauma or noise exposures it still gets worse.

@Ryan Scott Yeah, I had prepared myself for this from the very beginning, but the rate at which I keep worsening is beyond my expectation. I only get a short time of any sort of habituation before I have to start over.

Now I reminisce of being able to enjoy movies and music without so much noise in the mix.

@kingsfan I totally agree man, mine has progressively got worse over the first year of having it. If I could go back to how it was at first I think it wouldn't really bother me all that much. But I think the reason mine was so more noticeable for the first few months is from the steroids reducing inflammation.

Long covid is a nightmare, it’s worse than tinnitus so far

Either zicam is very effective for me, or my immune system has been good at catching illness before it gets out of hand, or I just haven't actually been ill at all...

(3) Car Stereo Volume Observations:

- Pre-T: 32.
- Post-T: 16.
- 1 month post: 10.
- 3 month with 19snr earplugs: 14.
- Currently( with 26snr earplugs): 10.

Maybe you're just worried about making the T worse, so you're turning things down to safer levels to make sure T isn't aggravated?

Does the world actually sound louder to you?

@HearingHell I mean when first I cut the volume in half that was the case, but a few weeks later I noticed that volume felt loud when it used to be feel almost too quiet to enjoy.

I think sound is out to get me. I was at the supermarket yesterday putting bags of shopping in my boot (trunk) and out of ALL the cars that an alarm could go off on is the one opposite me with NO ONE even near it to set it off. Sound is definitely out to destroy me.

@RunningMan I applied to a data annotation company, was accepted, passed all the assessments and then was never given any work.

It's all automated so there is no one to contact. Has been incredibly frustrating bc it would have been some much needed relief. Didn't pay enough to get back out on my own but would have stopped me hemorrhaging money.

@crescentsky Not real lucrative, but I may have to try it...

it's worth trying out. i have heard ppl have successfully used it and turned it into a full time business.

One can only hope

When going through hell, keep walking

@Juliane =(

I feel the same about needing anxi-anxiety meds. I actually have one (lorazepam) but I only take it occasionally since it's a benzo, so that doesn't really manage things. Had side effects from ADs. Maybe need to try alternative like Buspirone.

@kingsfan I'm really sorry of your current struggles. Do you have any ability to access a social worker, who maybe able to help lessen the burden to do with job placement? or maybe has other ideas in your vicinity?

I also take benzo's, and sometimes kratom. About ending it.. :( sadly.. i sometimes think about it too, or feel like.. hope it will end (not by my own cause). The only rule i feel about self conclusion, is to never be impulsive about it, and never while under influence. Take time, go day by day.. trying to go easy.. please may time make things better

You could not have known. You were just trying to live

@Juliane I should have known. I had been there before. I knew the layout. But last time was in the morning, I think before they started working on cars.

I should have ran out at the first drill blast, but my social anxiety just kept me frozen, too afraid to embarrass my self

I understand. But you cannot change your reactions always. I don't think you have done anything wrong

@Juliane I'm just not sure how I'll habituate to this. My T was already variable where I'd have days that were wasted on just trying to survive and then productive days.

For the past 3 weeks, besides the temp relief from prednisone, even my best T days are now only equal to my previous worst T days.

I've had anxiety most of the time since my tinnitus increased about 2 years ago. Some days worse than others and only occasional benzo use after AD's never helped. Life definitely isn't the same.

@kingsfan I am so sorry to hear that. Worsenings are devastating and I don't have anything clever to say. I just hope you improve

Ears full after having a simple conversation without earplugs.

:( This disorder is relentless.

or it’s more effective for you.. because there’s more tinnitus to get rid of.

Same here :-(

@cjbhab As my tinnitus gets louder, 6db reduction means less and less. Could be constrained from gaining potentially quiet tinnitus to only less severe, but still severe tinnitus.

@4Grace That is what I fear some people think of me. So priviliged most people are to not have any idea what T is like....

@cyberspace I accidentally deleted the post you commented on, can't think clearly, but if you look down through my profile you'll see the progression of events starting from being exposed to an impact drill at the auto mechanic shop.

@4Grace I knew all about tinnitus even before mine spiraled out of control, and still had no idea what it could become. There is no possible way anyone who hasn't experienced it first-hand will ever understand, so I really don't blame them.

Good to see you atleast got one of the ‘better’ outcomes from steroids. Get some respite I suppose.

Hope your spike will still settle soon though.

@ZFire Yea it didn't silence my tinnitus, just changed it to fairly loud static which I considered a vacation from what I'm normally subjected to.

:-(

@Tryn2BHopeful doctors will usually say that taking for less than month doesn’t need a taper, but the standard regimen for SSHL is 60mg for 7 days then a week of taper which seems to contradict the whole “not needing a taper”

Yeah its funny, when I went in for my follow-up for the other issue the doc saw what was prescribed and the first words out of her mouth were... and they didn't prescribe you a taper?!? Then she kinda just said well it should be ok... My T had started already at this point, albeit not as intrusive as it is now. I have just lost faith in doctors, but I need them to help me through this hellscape.

@Tryn2BHopeful it can be a real hit or miss with doctors. Unfortunately we suffer when it’s a miss.