Lucifer
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Lucifer

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I can’t believe someone in the FX-322 thread pulled out the “white privilege card” as a valid reason for not posting the podcast 2 every1 Jul 23, 2020

    1. Thuan
      Thuan
      What medication did you take to resolve your ear infection? My T was also caused by ear infection but I used neomycin ear drops...I have always wonder if the neomycin was the cause of my permanent T or if it was the infection...

      My niece recently got an ear infection (but she didn't tell me till too late) and now she has T but she used amoxicillin for her medication.
      1. Lucifer
        Lucifer
        Sorry I forgot to reply to this. I took Amoxicillan. I have taken it for other issues and hasn’t had any effect on my tinnitus.
        Aug 1, 2020
        LilSass likes this.
    2. Lucifer
      Lucifer
      I can’t believe someone in the FX-322 thread pulled out the “white privilege card” as a valid reason for not posting the podcast 2 every1
      1. serendipity1996 likes this.
      2. ASilverLight
        ASilverLight
        We know white privilege is a very real thing but it does not apply to this. It's legit one week, everyone is still getting it. Plenty of creators on the Internet do this too - early access is extra content for those who pay them. It's only fair lol
        Jul 23, 2020
        Lucifer, Tanni, Gabriel5050 and 2 others like this.
      3. Lucifer
        Lucifer
        @ASilverLight Yea it definitely did not apply to this. Didn’t think a stupid comment like that would ever have been said about that so im shocked.
        Jul 23, 2020
    3. Lucifer
      Lucifer
      What surprises me is that musicians that have tinnitus can still tour but if we were to expose to noise we will be worse even with plugs
      1. View previous comments...
      2. ASilverLight
        ASilverLight
        @Tanni same here. Sometimes it's barely there, sometimes it's terrifyingly loud. This can happen within the same hour. Number of tones fluctuates between 3 and 8 also. No fun
        Jul 19, 2020
      3. Emgee
        Emgee
        Some of us are just unlucky. My bandmates who were at the same band practice that contributed to my T are still rocking and rolling. It’s just unfair.
        Jul 19, 2020
      4. Lucifer
        Lucifer
        @Tanni @ASilverLight @Emgee. They must have the kind of tinnitus that doesn’t fluctuate or either quickly goes back to baseline.
        Jul 19, 2020
    4. Lucifer
      Lucifer
      @Orions Pain just saw your post and I also get jealous too. Many of my friends who finished Uni got a job and then theres me.
      1. View previous comments...
      2. Lucifer
        Lucifer
        @Tweedleman me too. I had just got my first job and then hyperacusis hit me and lost everything. The longer I wait for a cure the less likely I will ever find a job with my Uni degree.
        Jul 7, 2020
        Steph1710 and Christiaan like this.
      3. Orions Pain
        Orions Pain
        I feel you :( i was barely getting started with my career and feel like my entire life has just gone down the drain
        Jul 7, 2020
        acute, aot, Steph1710 and 3 others like this.
      4. ASilverLight
        ASilverLight
        I didn't finish uni yet but I was going to go back. Now I just see all my friends finishing up and moving out etc and I'm stuck because of my ongoing health issues including T. So frustrating
        Jul 7, 2020
        acute, Lucifer, Gabriel5050 and 2 others like this.
    5. Lucifer
      Lucifer
      OTO-313 Phase 1 clinical trial results were positive and actually reduces Tinnitus. OMG
      1. aot
        aot
        GIVE. IT. TO. ME.
        Jul 7, 2020
        Steph1710 and Lucifer like this.
      2. Steph1710
        Steph1710
        SAY WHAAAAT!!!!
        Jul 7, 2020
        Lucifer likes this.
    6. Lucifer
      Lucifer
      Before you got tinnitus & hyperacusis were you a light sleeper? I wonder if those of us who are if we were more susceptible in getting T & H
      1. View previous comments...
      2. TheDanishGirl
        TheDanishGirl
        I'm not sure if I was a light sleeper, but I've always been easily woken up. Even the faintest bump and I get woken up.
        Jul 5, 2020
      3. Kriszti
        Kriszti
        No, not really. I had sleep issues when more stressed than normally, but I lived with my sister in the same room for years and had very different schedules and I was very rarely waken up by her. Also, our room is next to the kitchen in our flat, living with roommates, so there is always noise. Made it hard to fall asleep, but after that it was mainly fine.
        Jul 5, 2020
      4. Emgee
        Emgee
        Used to be an extremely heavy sleeper. Now, I wake up multiple times a night with T and H.
        Jul 5, 2020
    7. Christiaan
      Christiaan
      That's one very epic profile pic Lucifer:) Where's it from?
      1. Lucifer likes this.
      2. View previous comments...
      3. Christiaan
        Christiaan
        Freaking annoying isn't it? Didn't they say something like settling for less patients and go on with the trial regardless? Or was it Susan Shore's? Oh well, there's no better picture that captures our mood as accurately as that pic ATM
        Jul 2, 2020
        Lucifer likes this.
      4. Lucifer
        Lucifer
        @Christiaan Yes they stated that there was only a small delay and that they can still continue with the with the clinical trials with less patients. This is for FX-322
        Jul 2, 2020
        Christiaan likes this.
      5. Christiaan
        Christiaan
        Ah thanks. Well, just hope for our sake they will keep their word and that the clinical trials website is hopelessly outdated concerning ongoing recruitment. But it's hard to tell these days
        Jul 3, 2020
        Lucifer likes this.
    8. Steph1710
      Steph1710
      Your profile picture has me in stitches! XD Haven't seen that video in years!
      1. Lucifer likes this.
      2. Steph1710
        Steph1710
        Just found a video of it remixed to Eye of the Tiger ... I'm dead.
        Oh! Just found out his story is really sad :-/
        Jun 28, 2020
        Lucifer likes this.
      3. Lucifer
        Lucifer
        I had no idea he passed away. I changed the picture cause I felt bad that he passed away.
        Jun 28, 2020
        Steph1710 likes this.
      4. Steph1710
        Steph1710
        Yeah I felt bad for laughing at him. Poor guy. :(
        Jun 29, 2020
        Lucifer likes this.
    9. Lucifer
      Lucifer
      I want FX-322 and OTO-413 to be released NOW.
      1. Steph1710, ASilverLight, aot and 4 others like this.
    10. Lucifer
      Lucifer
      When FX-322 seems so close but yet so far :’(
      1. View previous comments...
      2. ASilverLight
        ASilverLight
        Really hope it gets here sooner rather than later and that those with normal audiograms can still get treatment... because we all know those ain't perfect. Also, dang, Dire Straits. Telegraph Road is gonna be one of the first songs I'm gonna enjoy as it's meant to be if/when we get cured...
        Jun 13, 2020
        Christiaan and Lucifer like this.
      3. Lucifer
        Lucifer
        @ASilverLight Me too. I don’t want to wait. I still believe even if your audiograms look normal there is still damage to your hair cells. Since FX-322 regrows IHC’s, OHC’s and synapses where hair cells are loss this should solve most of our issues.
        Jun 14, 2020
        ASilverLight likes this.
      4. ASilverLight
        ASilverLight
        @Lucifer exactly! No one has ever been safe from dangerous noise. Unfortunately it takes just one too many times, or an unfortunate combination of factors, to develop this beast.
        Jun 14, 2020
        Lucifer likes this.
    11. Lucifer
      Lucifer
      1. Steph1710
        Steph1710
        That kid is everything haha
        May 23, 2020
        threefirefour and Lucifer like this.
    12. Lucifer
      Lucifer
      Life is so unpredictable.
      1. View previous comments...
      2. Lucifer
        Lucifer
        @Croaker Haha, I saw it and it made me laugh so I decided to change it lol.
        May 22, 2020
        Steph1710 likes this.
      3. Steph1710
        Steph1710
        @Lucifer I was gunna comment on how much I love the profile picture :p haha
        May 22, 2020
        Lucifer likes this.
      4. Orions Pain
        Orions Pain
        Unpredictably crappy :(
        May 22, 2020
    13. Lucifer
      Lucifer
      Can’t wait to get cured from this shit condition. Once I’m cured I’m going to throw a big party and celebrate like theres no tomorrow.
      1. View previous comments...
      2. Bill Bauer
        Bill Bauer
        Are you sure the loud party won't give you a new T that will be harder to cure that time?
        May 22, 2020
        Steph1710 likes this.
      3. Steph1710
        Steph1710
        @Bill Bauer haha Bill! Don't be such a grumpy old git (that's an English saying) you'll be invited to the party too - and don't worry, I'll be handing out ear protection, just in case ;)
        May 22, 2020
        Lucifer likes this.
      4. Emgee
        Emgee
        Count me in!
        May 28, 2020
        Lucifer likes this.
    14. Lucifer
      Lucifer
      Can’t wait to get FX-322 injected in my ear. It’s going to be a long wait before it comes out.
      1. View previous comments...
      2. Steph1710
        Steph1710
        Not that anyone asked, but I live in England. You should come visit! I'll show ya around :)
        May 22, 2020
        Lucifer likes this.
      3. Steph1710
        Steph1710
        New Zealand is my dream place to live. I'm such a beach bum, so I'd have to have a place on the coast where I can surf. I Iive on the coast of England atm.
        May 22, 2020
        all to gain and Lucifer like this.
      4. Lucifer
        Lucifer
        @Steph1710 That would be good. I’m definitely keen to visit England one day. I could also show you around NZ as well.
        May 22, 2020
    15. Lucifer
      Lucifer
      R.I.P Audion Therapeutics :’(
      1. Daniel Lion likes this.
      2. View previous comments...
      3. Lucifer
        Lucifer
        @Steph1710 I could be wrong but from the results that were released it sounded like they were going to drop the whole project and start from scratch even though there was some improvement in Phase 2.
        May 14, 2020
      4. Steph1710
        Steph1710
        Why would they do that!? I don’t understand...urgh I had my hopes riding on this. I don’t know of any other treatments that are in the pipeline. I’m very new to T and still trying to catch up on the latest to do with finding possible cures.
        May 14, 2020
      5. Lucifer
        Lucifer
        @Steph1710 it could be possible for Audion to do a Phase 3 though. There still FX-322, OTO-413 and Hough pill. There are others but these are the ones I only know. FX-322 and OTO-413 should come out at the same time. FX-322 will allow to regrow hair cells and restore synapses where there was hair cell loss. OTO-413 restore synapses.
        May 14, 2020
        Steph1710 likes this.
    16. Lucifer
      Lucifer
      I love the TRT arguments with Michael Leigh. I get a joy out of them for proving him wrong all the time without him posting a valid argument
      1. Lucifer
        Lucifer
        No valid argument = Michael Leigh can’t face the facts that he is WRONG and I’m right.
        May 13, 2020
    17. Lucifer
      Lucifer
      Just caught the TRT creeper laughing at my FX-322 post. He doesn’t believe cause he think TRT is a cure. Hope the ENTs don’t give FX to you.
      1. Paulmanlike and high frequencies like this.
      2. Steph1710
        Steph1710
        Who is this guy everyone is on about? I'm interested haha.
        May 13, 2020
      3. Lucifer
        Lucifer
        @Steph1710 Michael Leigh. He is the only one who laughs at some of our posts which aren’t funny but talking about research about cures such as FX-322 and others. I seen him done it with @serendipity1996 posts and others.
        May 13, 2020
        Steph1710 likes this.
      4. Steph1710
        Steph1710
        I did end up reading his posts in the research forum - bloody insulting indeed! I know everyone is entitled to an opinion but when it comes to Tinnitus people need to respect others and laughing at posts isn't acceptable! X
        May 14, 2020
        Lucifer likes this.
    18. Lucifer
      Lucifer
      When your the only person who think it’s funny - No need to name this person cause you all know who he is lol. I’ll give you a hint: TRT
      1. Paulmanlike, James1977 and Star64 like this.
    19. Lucifer
      Lucifer
      It’s hard to face reality.
      1. Star64, James1977, Kriszti and 3 others like this.
      2. Steph1710
        Steph1710
        It really is. I'm definitely feeling sorry for myself today and yesterday.
        May 9, 2020
        Lucifer likes this.
    20. Lucifer
      Lucifer
      @Zugzug Same. what did I do to deserve this. I still have no clue whether I’ll be alive or not tomorrow. I don’t want to wait for a cure.
      1. Tara Lyons and high frequencies like this.
      2. Steph1710
        Steph1710
        Hang in there. It's unbelievably shit. I know. <3
        May 9, 2020
        Lucifer likes this.
    21. Lucifer
      Lucifer
      I wonder if @JohnAdams still comes and looks at TT without logging on. I miss him.
      1. Star64, Bill Bauer and Daniel Lion like this.
    22. Lucifer
    23. Lucifer
      Lucifer
      Say NO TO BULLYING (2/2).
      1. James1977 and Steph1710 like this.
    24. Lucifer
      Lucifer
      It is now time to stand up for those who ML has disrespected by saying that TRT treatment didn’t work cause they were too negative (1/2).
      1. View previous comments...
      2. Bill Bauer
        Bill Bauer
        I know very little about TRT. I never looked into it, and never even considered trying it. But it seems to me that it might be helpful to Some people. I might be wrong, but some of Those people (and if I were in the group that could be helped by TRT, I would be part of this smaller subset) might not be able to benefit from TRT after all as a result of their mindset...
        May 3, 2020
      3. Lucifer
        Lucifer
        @Bill Bauer I do believe TRT helps with some people but to say to someone who did not have success with TRT by telling them the reason why the treatment didn’t work is cause they were too negative is NOT OKAY. These victims do not need rude comments from Michael Leigh.
        May 4, 2020
        Steph1710, Bartoli, aot and 1 other person like this.
      4. Bill Bauer
        Bill Bauer
        Makes sense. There is a difference between telling someone that it Might be the reason and telling them that it is most likely the reason or even that it has got to be the reason.
        May 4, 2020
        Bartoli and Lucifer like this.
    25. Lucifer
      Lucifer
      Audion Therapeutics you have let us down by not releasing Phase 2 results on April 30th 2020. Please prove us wrong and release them soon.
      1. aot and Steph1710 like this.
      2. View previous comments...
      3. Lucifer
        Lucifer
        @all to gain they should at least give us updates like Frequency Therapeutics have been doing. Maybe they can’t say too much due to the partnership with Eli Lily
        May 2, 2020
        all to gain likes this.
      4. all to gain
        all to gain
        It's funny (it isn't really..) but it was one of EL's drugs that gave me tinnitus...!
        May 2, 2020
      5. Lucifer
        Lucifer
        May 2, 2020
    26. Lucifer
      Lucifer
      I wonder what would happen if there was ever a virus that gave people tinnitus and hyperacusis. A cure would come out quicker.
      1. View previous comments...
      2. Kriszti
        Kriszti
        People report in some cases of COVID ear ringing, so maybe at least it would bring some better understanding what we are dealing with on a daily basis.
        Mar 29, 2020
        Lucifer and MBH like this.
      3. OnceUponaTime
        OnceUponaTime
        I said the same thing to a friend! Not that I wish this hell to anyone, but if it brings us a cure fast...hey.
        May 7, 2020
        Lucifer likes this.
      4. Lucifer
        Lucifer
        @OnceUponaTime the only time I ever wish it upon someone is when they don’t believe in peoples’ suffering on T and H. When they say it’s not a big deal and laugh at our suffering those are the people I wish it upon.
        May 9, 2020
    27. Lucifer
      Lucifer
      Do you guys think it’s criminal that musicians don’t warn their fans about how loud exposure can damage your ears and make you get T and H?
      1. acute, BBakkers, Autumnly and 3 others like this.
      2. View previous comments...
      3. Lucifer
        Lucifer
        @Tweedleman If they knew about tinnitus and hyperacusis they should have told their fans about it to raise awareness.
        Mar 14, 2020
        Autumnly likes this.
      4. Orions Pain
        Orions Pain
        At the eod, musicians are lab rats/puppets. They get used up and discarded by the industry just like we do.
        Mar 14, 2020
      5. TheDanishGirl
        TheDanishGirl
        @Tweedleman - For musicians? Why? that's messed up wishing that for them
        Mar 14, 2020
        Orions Pain likes this.
    28. Lucifer
      Lucifer
      I can’t believe Frequency Therapeutics are finally doing an interview now. I was definitely not expecting this. I am happy right now.
      1. Bill Bauer, serendipity1996 and aot like this.
    29. Lucifer
      Lucifer
      I would like to thank @Markku and @Hazel for running TT as it has been invaluable to me. I hope If a cure is out TT is still active
      1. aot
        aot
        Imagine how lonely it must a been in ancient times: A Roman comes home from a gladiator match, and is stuck with T. No TT, no CBT, no masking apps. Tinnitus sucks, but atleast we have each other.
        Mar 10, 2020
      2. Lucifer
        Lucifer
        @aot I’m glad we have each other. I don’t know anyone in real life who has tinnitus or hyperacusis so I felt alone but ever since I’ve been more active recently I don’t feel alone anymore and that others are dealing with the same issues I’m dealing with. When this is all gone I hope TT is still active as a way reconnecting with one another and look at all the rough patches we went through to know it’s all over.
        Mar 10, 2020
        Ctw and aot like this.
      3. OnceUponaTime
        OnceUponaTime
        It would be like an online museum... haha. :)
        Mar 11, 2020
        serendipity1996, Lucifer and aot like this.
    30. Lucifer
      Lucifer
      2 more months until Audion/Regain Phase 2 results come out
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  • About

    Gender:
    Male
    Tinnitus Since:
    2017
    Cause of Tinnitus:
    Ear Infection