Lucifer
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Location:
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    1. Lucifer
      Lucifer
      The next 3-6 months are going to be the longest wait for FX-322 results for age-related and severe hearing loss trials :’(
    2. Lucifer
      Lucifer
      What FX-322 results are we waiting for: Phase 2a Day 210 - End of May, Phase 1b Age-related - June, Severe hearing loss - Q3
    3. Lucifer
      Lucifer
      I just hope the next set of Phase 1b trials for FX-322 are positive. My fear is the severe hearing loss trial show negative outcomes.
      1. Lucifer
        Lucifer
        If these set of trials are positive this will prove that the single dose works and weekly dosing was not effective. I think if they were to do multi dosing again they should space out dosing between 1-3months
        Mar 28, 2021
        Keith Handy likes this.
    4. Lucifer
      Lucifer
      I pray to God that the Day 210 results in May and the age-related and severe hearing loss results in June show meaningful improvements.
      1. Keith Handy, Tweedleman, JPGL and 8 others like this.
    5. Lucifer
      Lucifer
      I don’t feel too good. I hope 210 day results are looking positive for FX-322 but I don’t think it will happen even with the +ive anecdote.
      1. Steph1710, starrynights and Anniz like this.
    6. Lucifer
      Lucifer
      I’m excited and nervous at the same time for FX-322 Phase 2a clinical trial results coming out next month.
      1. Anniz, Jcmc, Qin Shi Huang and 12 others like this.
    7. Lucifer
      Lucifer
      1 month and a half to go for Phase 2a FX-322 Day 90 readout. I hope this drug saves my life and future.
    8. Lucifer
      Lucifer
      I hope when FX-322 gets breakthrough therapy status that they can release it out into the market after Phase 2a is completed. I hope 2022.
      1. Anniz, Keith Handy, JPGL and 7 others like this.
    9. Lucifer
      Lucifer
      I hope 2022 will be our year when FX-322 comes out. The waiting is killing me inside.
      1. Anniz, TomS97, JPGL and 10 others like this.
    10. Lucifer
      Lucifer
      @katri I’m also trying to be positive as well. I was never really a positive person before T and H but hope that changes when FX-322 is out.
      1. Anniz, TomS97, JPGL and 4 others like this.
    11. Lucifer
      Lucifer
      I pray to God that FX-322 is our hope and saviour.
      1. Anniz, TomS97, JPGL and 8 others like this.
    12. Lucifer
      Lucifer
      When I’m cured of H and T I want to be a better version of myself. I want to live where my hopes and dreams are not trap inside a box.
      1. Anniz, TomS97, JPGL and 4 others like this.
    13. Lucifer
      Lucifer
      @Orions Pain I hope the pivotal phase for FX-322 is much shorter so maybe we may have a chance at getting FX-322 shots for Christmas.
      1. Anniz, JPGL, twa and 6 others like this.
    14. Lucifer
      Lucifer
      I can’t believe it’s been over a year since Allan passed away. I still think about him often. Wish he had the opportunity to try these drugs
      1. Anniz, JPGL, Steph1710 and 10 others like this.
    15. Thuan
      Thuan
      What medication did you take to resolve your ear infection? My T was also caused by ear infection but I used neomycin ear drops...I have always wonder if the neomycin was the cause of my permanent T or if it was the infection...

      My niece recently got an ear infection (but she didn't tell me till too late) and now she has T but she used amoxicillin for her medication.
      1. Anniz likes this.
      2. Lucifer
        Lucifer
        Sorry I forgot to reply to this. I took Amoxicillan. I have taken it for other issues and hasn’t had any effect on my tinnitus.
        Aug 1, 2020
        LilSass likes this.
    16. Lucifer
      Lucifer
      I can’t believe someone in the FX-322 thread pulled out the “white privilege card” as a valid reason for not posting the podcast 2 every1
      1. Anniz and serendipity1996 like this.
      2. ASilverLight
        ASilverLight
        We know white privilege is a very real thing but it does not apply to this. It's legit one week, everyone is still getting it. Plenty of creators on the Internet do this too - early access is extra content for those who pay them. It's only fair lol
        Jul 23, 2020
        Lucifer, Tanni, Gabriel5050 and 2 others like this.
      3. Lucifer
        Lucifer
        @ASilverLight Yea it definitely did not apply to this. Didn’t think a stupid comment like that would ever have been said about that so im shocked.
        Jul 23, 2020
    17. Lucifer
      Lucifer
      What surprises me is that musicians that have tinnitus can still tour but if we were to expose to noise we will be worse even with plugs
      1. Anniz, Kriszti, Christiaan and 2 others like this.
      2. View previous comments...
      3. ASilverLight
        ASilverLight
        @Tanni same here. Sometimes it's barely there, sometimes it's terrifyingly loud. This can happen within the same hour. Number of tones fluctuates between 3 and 8 also. No fun
        Jul 19, 2020
        Keith Handy likes this.
      4. Emgee
        Emgee
        Some of us are just unlucky. My bandmates who were at the same band practice that contributed to my T are still rocking and rolling. It’s just unfair.
        Jul 19, 2020
      5. Lucifer
        Lucifer
        @Tanni @ASilverLight @Emgee. They must have the kind of tinnitus that doesn’t fluctuate or either quickly goes back to baseline.
        Jul 19, 2020
    18. Lucifer
      Lucifer
      @Orions Pain just saw your post and I also get jealous too. Many of my friends who finished Uni got a job and then theres me.
      1. View previous comments...
      2. Lucifer
        Lucifer
        @Tweedleman me too. I had just got my first job and then hyperacusis hit me and lost everything. The longer I wait for a cure the less likely I will ever find a job with my Uni degree.
        Jul 7, 2020
        katri, Steph1710 and Christiaan like this.
      3. Orions Pain
        Orions Pain
        I feel you :( i was barely getting started with my career and feel like my entire life has just gone down the drain
        Jul 7, 2020
        katri, acute, aot and 4 others like this.
      4. ASilverLight
        ASilverLight
        I didn't finish uni yet but I was going to go back. Now I just see all my friends finishing up and moving out etc and I'm stuck because of my ongoing health issues including T. So frustrating
        Jul 7, 2020
        katri, acute, Lucifer and 3 others like this.
    19. Lucifer
      Lucifer
      OTO-313 Phase 1 clinical trial results were positive and actually reduces Tinnitus. OMG
      1. Anniz, katri, twa and 4 others like this.
      2. aot
        aot
        GIVE. IT. TO. ME.
        Jul 7, 2020
        Steph1710 and Lucifer like this.
      3. Steph1710
        Steph1710
        SAY WHAAAAT!!!!
        Jul 7, 2020
        Lucifer likes this.
    20. Lucifer
      Lucifer
      Before you got tinnitus & hyperacusis were you a light sleeper? I wonder if those of us who are if we were more susceptible in getting T & H
      1. Anniz likes this.
      2. View previous comments...
      3. TheDanishGirl
        TheDanishGirl
        I'm not sure if I was a light sleeper, but I've always been easily woken up. Even the faintest bump and I get woken up.
        Jul 5, 2020
      4. Kriszti
        Kriszti
        No, not really. I had sleep issues when more stressed than normally, but I lived with my sister in the same room for years and had very different schedules and I was very rarely waken up by her. Also, our room is next to the kitchen in our flat, living with roommates, so there is always noise. Made it hard to fall asleep, but after that it was mainly fine.
        Jul 5, 2020
      5. Emgee
        Emgee
        Used to be an extremely heavy sleeper. Now, I wake up multiple times a night with T and H.
        Jul 5, 2020
    21. Christiaan
      Christiaan
      That's one very epic profile pic Lucifer:) Where's it from?
      1. Anniz and Lucifer like this.
      2. View previous comments...
      3. Christiaan
        Christiaan
        Freaking annoying isn't it? Didn't they say something like settling for less patients and go on with the trial regardless? Or was it Susan Shore's? Oh well, there's no better picture that captures our mood as accurately as that pic ATM
        Jul 2, 2020
        Lucifer likes this.
      4. Lucifer
        Lucifer
        @Christiaan Yes they stated that there was only a small delay and that they can still continue with the with the clinical trials with less patients. This is for FX-322
        Jul 2, 2020
        Christiaan likes this.
      5. Christiaan
        Christiaan
        Ah thanks. Well, just hope for our sake they will keep their word and that the clinical trials website is hopelessly outdated concerning ongoing recruitment. But it's hard to tell these days
        Jul 3, 2020
        Lucifer likes this.
    22. Steph1710
      Steph1710
      Your profile picture has me in stitches! XD Haven't seen that video in years!
      1. Anniz and Lucifer like this.
      2. Steph1710
        Steph1710
        Just found a video of it remixed to Eye of the Tiger ... I'm dead.
        Oh! Just found out his story is really sad :-/
        Jun 28, 2020
        Lucifer likes this.
      3. Lucifer
        Lucifer
        I had no idea he passed away. I changed the picture cause I felt bad that he passed away.
        Jun 28, 2020
        Steph1710 likes this.
      4. Steph1710
        Steph1710
        Yeah I felt bad for laughing at him. Poor guy. :(
        Jun 29, 2020
        Lucifer likes this.
    23. Lucifer
      Lucifer
      I want FX-322 and OTO-413 to be released NOW.
      1. Anniz, Keith Handy, Steph1710 and 6 others like this.
    24. Lucifer
      Lucifer
      When FX-322 seems so close but yet so far :’(
      1. View previous comments...
      2. ASilverLight
        ASilverLight
        Really hope it gets here sooner rather than later and that those with normal audiograms can still get treatment... because we all know those ain't perfect. Also, dang, Dire Straits. Telegraph Road is gonna be one of the first songs I'm gonna enjoy as it's meant to be if/when we get cured...
        Jun 13, 2020
        Christiaan and Lucifer like this.
      3. Lucifer
        Lucifer
        @ASilverLight Me too. I don’t want to wait. I still believe even if your audiograms look normal there is still damage to your hair cells. Since FX-322 regrows IHC’s, OHC’s and synapses where hair cells are loss this should solve most of our issues.
        Jun 14, 2020
        Keith Handy and ASilverLight like this.
      4. ASilverLight
        ASilverLight
        @Lucifer exactly! No one has ever been safe from dangerous noise. Unfortunately it takes just one too many times, or an unfortunate combination of factors, to develop this beast.
        Jun 14, 2020
        Lucifer likes this.
    25. Lucifer
      Lucifer
      1. Steph1710
        Steph1710
        That kid is everything haha
        May 23, 2020
        threefirefour and Lucifer like this.
    26. Lucifer
      Lucifer
      Life is so unpredictable.
      1. View previous comments...
      2. Lucifer
        Lucifer
        @Croaker Haha, I saw it and it made me laugh so I decided to change it lol.
        May 22, 2020
        Steph1710 likes this.
      3. Steph1710
        Steph1710
        @Lucifer I was gunna comment on how much I love the profile picture :p haha
        May 22, 2020
        Lucifer likes this.
      4. Orions Pain
        Orions Pain
        Unpredictably crappy :(
        May 22, 2020
    27. Lucifer
      Lucifer
      Can’t wait to get cured from this shit condition. Once I’m cured I’m going to throw a big party and celebrate like theres no tomorrow.
      1. View previous comments...
      2. Bill Bauer
        Bill Bauer
        Are you sure the loud party won't give you a new T that will be harder to cure that time?
        May 22, 2020
        Steph1710 likes this.
      3. Steph1710
        Steph1710
        @Bill Bauer haha Bill! Don't be such a grumpy old git (that's an English saying) you'll be invited to the party too - and don't worry, I'll be handing out ear protection, just in case ;)
        May 22, 2020
        Lucifer likes this.
      4. Emgee
        Emgee
        Count me in!
        May 28, 2020
        Lucifer likes this.
    28. Lucifer
      Lucifer
      Can’t wait to get FX-322 injected in my ear. It’s going to be a long wait before it comes out.
      1. View previous comments...
      2. Steph1710
        Steph1710
        Not that anyone asked, but I live in England. You should come visit! I'll show ya around :)
        May 22, 2020
        Lucifer likes this.
      3. Steph1710
        Steph1710
        New Zealand is my dream place to live. I'm such a beach bum, so I'd have to have a place on the coast where I can surf. I Iive on the coast of England atm.
        May 22, 2020
        all to gain and Lucifer like this.
      4. Lucifer
        Lucifer
        @Steph1710 That would be good. I’m definitely keen to visit England one day. I could also show you around NZ as well.
        May 22, 2020
    29. Lucifer
      Lucifer
      R.I.P Audion Therapeutics :’(
      1. Daniel Lion likes this.
      2. View previous comments...
      3. Lucifer
        Lucifer
        @Steph1710 I could be wrong but from the results that were released it sounded like they were going to drop the whole project and start from scratch even though there was some improvement in Phase 2.
        May 14, 2020
      4. Steph1710
        Steph1710
        Why would they do that!? I don’t understand...urgh I had my hopes riding on this. I don’t know of any other treatments that are in the pipeline. I’m very new to T and still trying to catch up on the latest to do with finding possible cures.
        May 14, 2020
      5. Lucifer
        Lucifer
        @Steph1710 it could be possible for Audion to do a Phase 3 though. There still FX-322, OTO-413 and Hough pill. There are others but these are the ones I only know. FX-322 and OTO-413 should come out at the same time. FX-322 will allow to regrow hair cells and restore synapses where there was hair cell loss. OTO-413 restore synapses.
        May 14, 2020
        Steph1710 likes this.
    30. Lucifer
      Lucifer
      I love the TRT arguments with Michael Leigh. I get a joy out of them for proving him wrong all the time without him posting a valid argument
      1. Keith Handy likes this.
      2. Lucifer
        Lucifer
        No valid argument = Michael Leigh can’t face the facts that he is WRONG and I’m right.
        May 13, 2020
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    Gender:
    Male
    Location:
    Clown World
    Tinnitus Since:
    -
    Cause of Tinnitus:
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