nour123
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nour123

Member, Male

It is louder when loud tv or loud streets . Before my injections , i can predict when it get worse or not . Now i can not preddict Jul 18, 2016

nour123 was last seen:
Aug 23, 2016
    1. nour123
      nour123
      It is louder when loud tv or loud streets . Before my injections , i can predict when it get worse or not . Now i can not preddict
    2. nour123
      nour123
      Yes . . . It changes and is worse when loud sound is there
      1. Elgringo32
        Elgringo32
        And we had only 2 injections...But i think that the results would have been the same.
        Jul 17, 2016
      2. Elgringo32
        Elgringo32
        Do you have some spike with fans ?
        Jul 17, 2016
      3. Elgringo32
        Elgringo32
        Is it more intrusive than before ?
        Jul 18, 2016
    3. nour123
      nour123
      I think you are thinking or listening to your Tinnitus all the time. Am i right?
      1. Elgringo32
        Elgringo32
        Yes. My T is always reactive to fans or some other sounds. Therefore it is difficult to forget.
        Jul 16, 2016
      2. Elgringo32
        Elgringo32
        Is it reactive your T ?
        Jul 17, 2016
    4. nour123
      nour123
      Yes i have reaktive T. But my experience tell me that the only therapy is to forget the T and never try to think or concentrate on it
    5. Elgringo32
      Elgringo32
      Hi Nour123 how are you ?
      1. nour123
        nour123
        I am trying now not to listen to my tinnitus and not to think about it . . . it is louder than my preinjection tinnitus . . . I don't know if it is changing or not
        Jul 14, 2016
      2. nour123
        nour123
        How r u? What did the doctor says?
        Jul 14, 2016
      3. Elgringo32
        Elgringo32
        Hi nour yes for me it is louder to my pre injection as well. The best as you say is to try to forget it but it is hard.
        My doctor told me that it should improve. Do you also have the reactive tinnitus ?
        Jul 15, 2016
    6. nour123
      nour123
      i forgot about my tinnitus for 2 months before injection it was nothing . i am not beliving that after the injection it is all now worse
    7. Elgringo32
      Elgringo32
      Do you feel like having electricity that goes in and out your brain each minutes ?
      1. View previous comments...
      2. nour123
        nour123
        but as i read oddv hat overall improvement at the end of study
        Jun 25, 2016
      3. Elgringo32
        Elgringo32
        Yes we have to wait and see until the end of the study.
        Jun 25, 2016
      4. Elgringo32
        Elgringo32
        Hi nour123, how are you ?
        Any improvement ?
        For me it is still worse. Fuck tinnitus.
        Jul 4, 2016
    8. Elgringo32
      Elgringo32
      Hi Nour how are you ?
    9. nour123
      nour123
      when did you ask your doctor ?
      1. Elgringo32
        Elgringo32
        On tuesday next week. And you ?
        Jun 23, 2016
      2. Elgringo32
        Elgringo32
        Are you going to ask your doctor ?
        Jun 24, 2016
    10. nour123
      nour123
      ok . what is your Facebook?
    11. nour123
      nour123
      i hope too .... i didn't hear my tinnitus before ...why I did go to this trial !!!?
      1. View previous comments...
      2. Elgringo32
        Elgringo32
        Now we live in a nightmare
        Jun 22, 2016
      3. Elgringo32
        Elgringo32
        Doctor told me this could improve my hyperacusis as well. But everything is worse now.
        Jun 22, 2016
      4. Elgringo32
        Elgringo32
        Do you want to exchange on facebook ?
        Jun 22, 2016
    12. nour123
      nour123
      Are you still hoping to go back to baseline ?
      1. Elgringo32
        Elgringo32
        yes and you ?
        Jun 22, 2016
      2. Elgringo32
        Elgringo32
        But for the moment I pray to have not it worse.
        Jun 22, 2016
    13. nour123
      nour123
      did you talk to your ent doctor ?
      1. Elgringo32
        Elgringo32
        Not yet I meet him 28th of June. and you ?
        Jun 22, 2016
      2. Elgringo32
        Elgringo32
        I can't believe that it could be worst at the end. AM101 should then never be marketing, so why do they have continued the trial?
        Jun 22, 2016
      3. Elgringo32
        Elgringo32
        But now for sure it is an every minute battle with this sheet in our brain.
        Before I had some rest. Now no more.
        Jun 22, 2016
    14. Elgringo32
      Elgringo32
      Me it is much louder than before also.
    15. nour123
      nour123
      it was fluctuating initially..... but it is about a week or more constantly loud tone
    16. nour123
      nour123
      I Don't know .... it's just louder und constant all the time
      1. Elgringo32
        Elgringo32
        It is not fluctuating ?
        Jun 21, 2016
    17. Elgringo32
      Elgringo32
      in fact my tinnitus is fluctuating a lot depending of something I don't know yet: High frequency ? High sound ? electronic device ? electricity ?
      Do you have the same feeling.
      1. Elgringo32
        Elgringo32
        I think it is the hyperacusis which is more sensitive.
        Did you have hyperacusis before ?
        Jun 21, 2016
    18. nour123
      nour123
      is it changing by you from day to another ??
      1. Elgringo32
        Elgringo32
        It is not changing it is my brain which try to adapt with a lot of difficulties...
        Jun 21, 2016
    19. nour123
    20. Elgringo32
      Elgringo32
      How is your tinnitus ? Is it very high frequency tinnitus ?
    21. nour123
    22. Elgringo32
      Elgringo32
      Hi nour, what is your feeling ? Will our situation improve ?
    23. nour123
      nour123
      yes it is the same
      1. Elgringo32
        Elgringo32
        I do not understand how this could be worse for many of them whereas this drug should improve our Tinnitus.
        Jun 20, 2016
    24. Elgringo32
      Elgringo32
      Mine is very intrusive. Before I was able to manage it at work now it is everywhere and I have some trouble to sleep. It is the same for you ?
    25. nour123
      nour123
      I feel like it is loud in house ...louder than ever ....it is like loud and constant..
      1. Elgringo32
        Elgringo32
        Ok did you had some small improvement or nothing ?
        Jun 20, 2016
    26. Elgringo32
      Elgringo32
      Hi Nour123, i did no try to call the doctor. Anyway I have the one month appointment the 28th June. I will ask her. Did your tinnitus is fluctuating and much louder when you watch tv ?
    27. nour123
      nour123
      what did the doctor say ? I think they don't know anything
      1. Elgringo32
        Elgringo32
        Hi, from your side did you discuss this with your doctor ?
        Jun 20, 2016
    28. Elgringo32
      Elgringo32
      I Will ask my doctor if some other participants had the same very bad side effect. Fluctuation is still a nightmare. I am in the same situation like you. Before I was able to manage now it is crazy and tinnitus is unmaskeable.
    29. Elgringo32
      Elgringo32
      Hello nour123 do you have some improvement ?
    30. nour123
      nour123
      yes ... it
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  • About

    Gender:
    Male
    Tinnitus Since:
    02/2016
    Cause of Tinnitus:
    unknown or acoustic trauma
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