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Elgringo32

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nour123

Member, Male

It is louder when loud tv or loud streets . Before my injections , i can predict when it get worse or not . Now i can not preddict Jul 18, 2016

nour123 was last seen:: Aug 23, 2016

1. nour123
  It is louder when loud tv or loud streets . Before my injections , i can predict when it get worse or not . Now i can not preddict
  
  Jul 18, 2016
2. nour123
  Yes . . . It changes and is worse when loud sound is there
  
  Jul 17, 2016
  2. Elgringo32
    And we had only 2 injections...But i think that the results would have been the same.
    
    Jul 17, 2016
  3. Elgringo32
    Do you have some spike with fans ?
    
    Jul 17, 2016
  4. Elgringo32
    Is it more intrusive than before ?
    
    Jul 18, 2016
3. nour123
  I think you are thinking or listening to your Tinnitus all the time. Am i right?
  
  Jul 15, 2016
  2. Elgringo32
    Yes. My T is always reactive to fans or some other sounds. Therefore it is difficult to forget.
    
    Jul 16, 2016
  3. Elgringo32
    Is it reactive your T ?
    
    Jul 17, 2016
4. nour123
  Yes i have reaktive T. But my experience tell me that the only therapy is to forget the T and never try to think or concentrate on it
  
  Jul 15, 2016
5. Elgringo32
  Hi Nour123 how are you ?
  
  Jul 12, 2016
  2. nour123
    I am trying now not to listen to my tinnitus and not to think about it . . . it is louder than my preinjection tinnitus . . . I don't know if it is changing or not
    
    Jul 14, 2016
  3. nour123
    How r u? What did the doctor says?
    
    Jul 14, 2016
  4. Elgringo32
    Hi nour yes for me it is louder to my pre injection as well. The best as you say is to try to forget it but it is hard.
    My doctor told me that it should improve. Do you also have the reactive tinnitus ?
    
    Jul 15, 2016
6. nour123
  i forgot about my tinnitus for 2 months before injection it was nothing . i am not beliving that after the injection it is all now worse
  
  Jun 25, 2016
7. Elgringo32
  Do you feel like having electricity that goes in and out your brain each minutes ?
  
  Jun 25, 2016
  2. View previous comments...
  3. nour123
    but as i read oddv hat overall improvement at the end of study
    
    Jun 25, 2016
  4. Elgringo32
    Yes we have to wait and see until the end of the study.
    
    Jun 25, 2016
  5. Elgringo32
    Hi nour123, how are you ?
    Any improvement ?
    For me it is still worse. Fuck tinnitus.
    
    Jul 4, 2016
8. Elgringo32
  Hi Nour how are you ?
  
  Jun 24, 2016
9. nour123
  when did you ask your doctor ?
  
  Jun 22, 2016
  2. Elgringo32
    On tuesday next week. And you ?
    
    Jun 23, 2016
  3. Elgringo32
    Are you going to ask your doctor ?
    
    Jun 24, 2016
10. nour123
  ok . what is your Facebook?
  
  Jun 22, 2016
11. nour123
  i hope too .... i didn't hear my tinnitus before ...why I did go to this trial !!!?
  
  Jun 22, 2016
  2. View previous comments...
  3. Elgringo32
    Now we live in a nightmare
    
    Jun 22, 2016
  4. Elgringo32
    Doctor told me this could improve my hyperacusis as well. But everything is worse now.
    
    Jun 22, 2016
  5. Elgringo32
    Do you want to exchange on facebook ?
    
    Jun 22, 2016
12. nour123
  Are you still hoping to go back to baseline ?
  
  Jun 22, 2016
  2. Elgringo32
    yes and you ?
    
    Jun 22, 2016
  3. Elgringo32
    But for the moment I pray to have not it worse.
    
    Jun 22, 2016
13. nour123
  did you talk to your ent doctor ?
  
  Jun 21, 2016
  2. Elgringo32
    Not yet I meet him 28th of June. and you ?
    
    Jun 22, 2016
  3. Elgringo32
    I can't believe that it could be worst at the end. AM101 should then never be marketing, so why do they have continued the trial?
    
    Jun 22, 2016
  4. Elgringo32
    But now for sure it is an every minute battle with this sheet in our brain.
    Before I had some rest. Now no more.
    
    Jun 22, 2016
14. Elgringo32
  Me it is much louder than before also.
  
  Jun 21, 2016
15. nour123
  it was fluctuating initially..... but it is about a week or more constantly loud tone
  
  Jun 21, 2016
16. nour123
  I Don't know .... it's just louder und constant all the time
  
  Jun 21, 2016
  2. Elgringo32
    It is not fluctuating ?
    
    Jun 21, 2016
17. Elgringo32
  in fact my tinnitus is fluctuating a lot depending of something I don't know yet: High frequency ? High sound ? electronic device ? electricity ?
  Do you have the same feeling.
  
  Jun 21, 2016
  2. Elgringo32
    I think it is the hyperacusis which is more sensitive.
    Did you have hyperacusis before ?
    
    Jun 21, 2016
18. nour123
  is it changing by you from day to another ??
  
  Jun 21, 2016
  2. Elgringo32
    It is not changing it is my brain which try to adapt with a lot of difficulties...
    
    Jun 21, 2016
19. nour123
  yes
  
  Jun 21, 2016
20. Elgringo32
  How is your tinnitus ? Is it very high frequency tinnitus ?
  
  Jun 21, 2016
21. nour123
  i hope
  
  Jun 20, 2016
22. Elgringo32
  Hi nour, what is your feeling ? Will our situation improve ?
  
  Jun 20, 2016
23. nour123
  yes it is the same
  
  Jun 20, 2016
  2. Elgringo32
    I do not understand how this could be worse for many of them whereas this drug should improve our Tinnitus.
    
    Jun 20, 2016
24. Elgringo32
  Mine is very intrusive. Before I was able to manage it at work now it is everywhere and I have some trouble to sleep. It is the same for you ?
  
  Jun 19, 2016
25. nour123
  I feel like it is loud in house ...louder than ever ....it is like loud and constant..
  
  Jun 19, 2016
  2. Elgringo32
    Ok did you had some small improvement or nothing ?
    
    Jun 20, 2016
26. Elgringo32
  Hi Nour123, i did no try to call the doctor. Anyway I have the one month appointment the 28th June. I will ask her. Did your tinnitus is fluctuating and much louder when you watch tv ?
  
  Jun 19, 2016
27. nour123
  what did the doctor say ? I think they don't know anything
  
  Jun 18, 2016
  2. Elgringo32
    Hi, from your side did you discuss this with your doctor ?
    
    Jun 20, 2016
28. Elgringo32
  I Will ask my doctor if some other participants had the same very bad side effect. Fluctuation is still a nightmare. I am in the same situation like you. Before I was able to manage now it is crazy and tinnitus is unmaskeable.
  
  Jun 16, 2016
29. Elgringo32
  Hello nour123 do you have some improvement ?
  
  Jun 16, 2016
30. nour123
  yes ... it
  
  Jun 13, 2016
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Gender:

Male

Tinnitus Since:

02/2016

Cause of Tinnitus:

unknown or acoustic trauma
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