Orions Pain

If my t was even remotely maskable that would be such a weight off my shoulders

It’s weird to think about how some people get to just wake up with no tinnitus or other ear issues/pain. My days are full of pain

I think one of my worst sounds is the one that sounds like a wooden flute, hollow wind sounds

This sounds dramatic but not being able to listen to music has left a huge void in my life. It brought me so much happiness for years

Depersonalization becoming more and more intense lately. I’m having a very difficult time

How did I get here

PTSD

Seeing stories of people feeling better at the 1 or 2 year mark is so depressing. Happy for them of course. Sad that’s not my reality

Sometimes feels like I’m too far gone for any potential future treatment to help. Too much going on

I miss the way life felt when nothing was wrong with my health :(

I feel like the “buffer” mechanism between silence and moderate/loud sounds is broken. When I’m in silence my ears fill with pressure

Pain is getting to the point where I am unable to work and my job is getting increasingly more demanding

The deep inner head noise is reduced but my ear is playing a Morse code ringing and whistling omg

Left ear having a weird wind sensation, like fullness, and like something is blowing inside of it. T barely audible but this can’t be good

Sick of family members who think all health problems are solvable with a “specialist”

I wish I could press a button and die right now. No more suffering. I don’t want to be part of this life any minute longer

Reached a point where I have 24/7 pain

Been a vegetable these last few days, can’t do anything but stay in bed. Everything is spiked

Had to increase med dosage last night and woke up feeling like I’m on a boat, leaning to the side and scary to walk

Extreme suffering

I’m only in my 20s. I can’t imagine a lifetime of this I really can’t. Each day is so hard. It’s so loud and my ears are SO sensitive

Been getting fleeting tinnitus but VERY low pitched wroooo sounds that feel like intense vibration pressure on my ears/brain

I know I sound like a broken record but I can’t believe this is my life. Pain H combined with severe T is such a curse

I know that life is unfair but knowing that people with 50x my noise exposure have no ear problems drives me crazy

Forever stuck on how it’s even possible for noise to activate nerve pain

Living with this is so exhausting. All I have to look forward to is sitting in pain and listening to my tinnitus. Every. Day. It never stops

Every day since 2019 has been exhausting

My tinnitus is mainly deep in my head but if I touch one of my ears in the canal area it triggers high pitched ear tinnitus. Why

That normal, healthy feeling feels like it was a lifetime ago

Sounds like someone is vacuuming my brain