Pinhead

people clapping is the worst sound in the world for me.

Same for me

That's so harsh.. pfff.. i pray we all can experience wellbeing again some day

That's the socially awkward part of chronic illness. I find myself avoiding people because I don't want them to ask what I've been up to. If I were brutally honest about how miserable I've been, they'd be taken aback, but if I pretended to be okay, I'd feel inauthentic. At least here, we can be fairly honest with one another about our struggles.

@Pinhead, that's the worst. I hope you will be able to work man. I'm not able right now, trying to survive on benefits. My whole life has changed, I've been destroyed basically. I would be grateful if I could find some remote stuff but so far, nothing.

@2049v It doesn't matter if it's remote. I was remote for a year and it made no difference in my ability to concentrate. I was fired from that job for not meeting metrics.

@Pinhead, Yes, I understand, you’re also right, but otherwise, I have almost no chance of working, the probability is close to zero. If I can find a remote job, at least I can manage by masking the fucking tinnitus somehow and, for better or worse, earn my own money.

I have no trouble falling asleep. Tinnitus tires me out completely.

:( i hope it will improve

Im sorry to hear that man. Correct me if I am wrong but did you mention you were into philosophy? If so do you have any particular favorites or ones you especially dislike? Hoping this look up for you soon friend.

@cullenbohannon Yes, more than just an interest. I have a graduate degree in philosophy. My specializations included Martin Heidegger, technology, postmodern thought, Deleuze, and more. Albert Camus holds a special place for me. His thinking is easy to approach and enact.

Impressive, I just read for fun but I have read much of Camus. Deleuze is very interesting to me but I will say there is something very difficult for me to pierce with him. I sometime feel I have some idea of what he is trying to get at, but in a very superficial sense. I like your taste and I am sorry you are suffering as much as you are.

❤️

That's why I take medication to sleep now. I hate it but I can't not sleep. Tinnitus sucks so bad.

I'm using meds for sleep too.. and still struggle a lot with getting to sleep. I've been feeling so much sadness lately about this whole situation. The pain, and it's just too ridiculous for words, really. The basic need of sleep, if it interferes with that.. all the time.. good heavens. I pray for healing.

I am so destroyed that I fall asleep with the blasting because the day is over. Everyday I pray for 10 pm so I can go into my bed. Blasting.

Me too. I get lost often. Alzheimers

Exactly. This is exactly why tinnitus and hyperacusis are among the worst conditions you can get. There's never a break! If they came and went like with migraines, I would not be bothered to complain about it. Such luxury conditions are not worth mentioning. In fact, I dare say that most people would not be able to endure T and H.

Migraines do give you somewhat of a break as you typically don't suffer from them every single day of your life, but they can be relentless. When I get them they tend to last for days or weeks at a time, but then they'll go away for an extended period of time. I'll never forget the Nov 2019. I had a migraine that entire month.

Migraines are no fun. But I will gladly choose my reoccurring migraines over shit tinnitus. At least I'll feel 75% content/per month. vs 100% under house arrest. They will never understand the constant 24/7 T/H/N/ETC.

Money can be used to reduce stress in a lot of ways but you'll notice no one that tells you to "reduce your stress" ever just forks over cash

That's because everyone thinks tinnitus is just some faint jingle bells or cricket sounds. I got recommended meditation. Yes, I will meditate with what sounds like a small airplane propeller in my skull.

You can drink!!! What a blessing. Must be something in that Jameson. Cheers with the Bourbon. Have one for me please.

@4Grace It's been up and down since then. For two days after the wedding I had SEVERE TTS or something, unlike any thing I've ever experienced in my life. The high-pitched shrieking has died down but it's still there. Now my tones are just more intrusive in each ear.

I am at this point too.

The problem is I can’t survive staying in. Also cannot survive ear plugs. The more I walk in the woods or exercise the worse I get. I’m in big trouble. Cannot go inside stores. Nothing. I tried. No limit worsening. Nightmare!!

I have been thinking of you and really hope you are okay. I am so sorry to hear this news.

So many people have T with no pain or worsening. Seems like everyone I know. Seems so much different for us.

One of my friends had bad T but he lives as if he does not have it. Wedding. Concerts. Everything. His does not change with movements food or sound. He can have a bucket of ice cream no change. Concerts. No change.,

@4Grace The friend you describe has mild T. A non-issue, I would say.