Pinhead

This is so true. I feel like an Alien on this planet. I was so happy. I try so hard not to give a shit about this noise. It consumes me beyond words. It’s just to loud and worsens. I have not been able to enjoy anything. The last few days 24/7 stress. Trying so hard.

I was a manger for 23 years. Had to step away. Try all you. Can not to leave work. Besides the money work is a good and needed distraction. Not to say I did not feel like you do everyday when I was working.

How do you treat that nerve damage. I think I have nerve damage too due to high bilirubin in blood. Gilbert Syndrome.

This is just my conclusion after reading some things. I don’t have pain specifically in response to sound.

@Pinhead i think i have nerve pain / damage too but im not sure what to do about it. i thought tinnitus was just supposed to be a sound. id be managing better if it was but some days the pain and pressure is insane.

I hate to agree with you here. I had have tried everything too. Volume and reactivity is everything. I want so bad not to give a shit!!

That is why it is the worst kind of gaslighting when "tinnitus therapists" tell us that our mindset and mood define our T volume. Utter BS. It has nothing to do with it. If your T fades, and I sure hope it will, it can do so while you are thinking happy thoughts or wishing you had never been born. T is indifferent to our feelings, as are facts.

Have a Nice Life songs are always so harrowingly beautiful. Music sometimes detail my experiences & feelings better than words can. Post more songs that relate to you if you're up to it, I'd love to listen :)

My 2 year is May 1st.

Sounds like a good time; I wish I could join you.

May 14th is my two year worsening anniversary. Well done on reaching three.

My standard answer: Not good. Can't do much of anything about it, though. Not really living anymore.

:(

Sounds like it. Mine just got worse and worse. Then Noxacusis kicked in.

I started w/o H then I got it in one ear and then both ears and now I get pain @ certain sounds. And now every few days I get this pressure or fullness. It's a fucked up journey.

@Utdmad89 What was your progression like? I think I may just be 'hyper-aware', but it's incredibly hard to tell.

Yeah. For me that level of suffering makes it simply impossible and impractical.

@BB23 Why would you want to have kids first?? Seems that would not be a priority when suffering.

@Pinhead i find those self-help content useless as well.

@Utdmad89 @RunningMan I can't explain this to you, I was brought up differently. And we have a crowded extended family who would take care of things.. Also. I'm in constant physical pain with severe insomnia, that kinda puts some things into perspective. Or maybe I'm crazy from sleeping an hour a night...

Same.

i have been writing in a diary every time i experience SBUTTs for almost 6 months now. I would say I average 3-4 per day. 10% of days I get 0. On a real bad day i can get 8-9.
Big blasts of T for 5-20 seconds and dizziness. Trying to find causes for good and bad days.

@cjbhab Interesting, maybe I should do the same.

It might. I’m not very hopeful. We have no idea when it will arrive.

Sorry for spamming your account. I’m so scared of dieing it’s insane and I have past my ability to cope. Worsening is constant. Blasting screaming T. It’s not a life.

@Pinhead - I feel your story so much. I can’t be around a fan but I go for bike rides. Walks, no protection. Just one for the wind. I’m an idiot. I feel like I just want to live and deal with the screaming T. I’m worsening at every turn. I keep pushing but feel like I’m hitting the gas on that one way street to that brick wall.

I go through these roller coaster rides. Feel numb then once in a while I get an explosion of depression in my belly. I think I and disassociated with what going on in order to survive.

Don’t be sorry @4Grace . We are suffering together. I feel like we’re racing to a red light, too. It’s hard. I try my best to be a bit hedonistic, at least, and live like I’m dying. That helps me.

You may certainly get a bit of a spike. But a little whiskey can certainly take the edge off stress.

Options are definitely limited.