Steph1710
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Gender:
Female
Birthday:
October 17
Location:
England
Occupation:
Architectural Historian

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Steph1710

Member, Female, from England

Probably too much info, but I've just had my first period in over two years, and suddenly my T is 99% gone. What has happened!? Hormones? Oct 19, 2020 at 3:04 PM

    1. Steph1710
      Steph1710
      Probably too much info, but I've just had my first period in over two years, and suddenly my T is 99% gone. What has happened!? Hormones?
    2. Steph1710
      Steph1710
      last night in bed I experienced T so low it wasn't even audible in a silent room. Absolute bliss. First time that's happened since having T
      1. bethadtr, GBB, alanisnotadj and 15 others like this.
    3. Steph1710
      Steph1710
      Since developing T, my ability to concentrate and write seems to have gone down hill. Anyone else experienced this?
      1. Steph1710
        Steph1710
        @ASilverLight I'm glad it's not just me. My ability to write essays quickly, seems to have gone. I'm really struggling with word structure. I managed to take and pass my exams though, and that was when I first developed T. Such an awful debilitating condition.
        Oct 1, 2020
    4. Steph1710
      Steph1710
      First head cold since developing T. Let's see how this one plays out. :-/
      1. Christiaan, Kriszti and Emgee like this.
      2. Steph1710
        Steph1710
        T has increased slightly, but not to an alarming level. I actually expected it to become a lot worse than this. Perhaps I got lucky.
        Sep 25, 2020
        Nadia231 and Emgee like this.
    5. Steph1710
      Steph1710
      Woke up & had complete silence for 15 minutes today. First time that's happened in a good couple of months. Fingers crossed it's a good sign
      1. Tara Lyons, bethadtr, BILZER and 11 others like this.
    6. Steph1710
      Steph1710
      Just had a proper diagnosis for my pulsatile tinnitus! And it can be fixed! :D
    7. Steph1710
      Steph1710
      I hate showering. It's the only real thing that spikes my T - wish I had a bath to use. :(
      1. Lucifer, LilSass, aot and 3 others like this.
    8. Steph1710
      Steph1710
      T in left ear, has for the first time, randomly changed. It was a constant high pitched tone - now it's a very low hum. Super quiet though
      1. Steph1710
        Steph1710
        T still changed. Went back to its normal tone yesterday, but today it's completely different again...almost non-existent. Siting in a completely quiet room, window's closed and it's barely there. Hope this lasts. I got to this stage last time, then an ear infection landed me back at the beginning. Went from 1.5/10 to 8/10 over night.
        Sep 10, 2020
        Gareth Davies and LilSass like this.
    9. Steph1710
      Steph1710
      I've learnt my T is incredibly fluctuating. Yesterday I woke up & couldn't hear it at all. Today I woke up & had to use sound enrichment.
      1. Steph1710
        Steph1710
        And today it's hardly there again.
        Sep 5, 2020
    10. Steph1710
      Steph1710
      I travel through Europe regularly. If I were to pass through your country, would any of you want to meet up? I'm not a murderer btw. ;)
      1. Jaka, Lucifer, aot and 2 others like this.
      2. View previous comments...
      3. Jaka
        Jaka
        If you pass by Slovenia tell me! :)
        Aug 21, 2020
        Steph1710 likes this.
      4. Steph1710
        Steph1710
        Actually @Jaka, I have a whole road trip mapped out for Slovenia. So 100% yes! I will tell you :D
        Sep 3, 2020
      5. Steph1710
        Steph1710
        @Julien87 I can't start a conversation with you. Can you start one with me please
        Sep 3, 2020
    11. Steph1710
      Steph1710
      Oh dear. I have developed hyperacusis. This shit be paaaainful!
      1. View previous comments...
      2. Tara Lyons
        Tara Lyons
        Aug 3, 2020
        Steph1710 and LilSass like this.
      3. LilSass
        LilSass
        Hey Steph! How are you doing now? I'm in Ontario, but I lived in Vancouver for a few years when I was in my 20s. I have yet to stock up on supplements but will let you know. :)
        Aug 5, 2020
      4. Steph1710
        Steph1710
        Hi @Tara Lyons, how are you getting on these days? How's everything with your ears? Mine have been up and down. Some days are good, some are bad.
        Sep 4, 2020
        LilSass likes this.
    12. Steph1710
      Steph1710
      Can you habituate to multi tonal T? My left ear is a faint single tone but right ear is many tones & drives me nuts.
      1. aot likes this.
      2. View previous comments...
      3. just1morething
      4. just1morething
        just1morething
        @Steph1710, Did you have an ear infection in your right ear? I had a barotrauma in my left ear.
        Jul 27, 2020
      5. ASilverLight
        ASilverLight
        I personally think yes, it might just take longer.
        Jul 27, 2020
        Christiaan likes this.
    13. Steph1710
      Steph1710
      Wish my right ear would ShUt tHe F*#k Up!!
      1. Steph1710
        Steph1710
        My left ear I might reward, as it's been behaving for a couple of weeks.. Well done left ear.
        Jul 24, 2020
        aot, Kriszti, Lucifer and 1 other person like this.
    14. Steph1710
      Steph1710
      When you go to sleep, wake up & fall asleep again - the T goes CrAzY! Won't be doing that again.
      1. View previous comments...
      2. Steph1710
        Steph1710
        It's never happened to me before. I think it's probably because I had a dreadful night's sleep and I'm feeling pretty sick today... That never helps
        Jul 17, 2020
      3. TheDanishGirl
        TheDanishGirl
        Weird - mine gets a bit lower-
        Jul 17, 2020
        Steph1710 likes this.
      4. Steph1710
        Steph1710
        Well mine usually does so I can only put it down to being restless when I fell back asleep the second time. :-/ hopefully I'll sleep better tonight.
        Jul 17, 2020
    15. Steph1710
      Steph1710
      T is 1.5 out of 10 today. However my spike 2 weeks ago was a good 8/10 Nothing covered it. Thankfully it's gone completely back to baseline
      1. View previous comments...
      2. Steph1710
        Steph1710
        @ASilverLight I know what you mean. My T has hit a 3 again today because i woke up and fell back asleep two hours later. Yesterday it was lovely and quiet. Today it's pissing me off. If it stopped bloody fluctuating, I'm sure I could get used to it.
        Jul 17, 2020
      3. ASilverLight
        ASilverLight
        @Steph1710 I can easily deal with my 'baseline'. But even laying in bed with plugs I notice changes all the time. It's so exhausting
        Jul 17, 2020
        Steph1710 likes this.
      4. Steph1710
        Steph1710
        Mine has been all over the place today. It’s actually quieter now it’s evening, which is unusual.
        Jul 17, 2020
        ASilverLight likes this.
    16. Steph1710
      Steph1710
      So I've hit my 3 month mark of T. Guess I'm out of the acute stage?
      1. View previous comments...
      2. Tanni
        Tanni
        Agree with @tbuzz89. The 3 month timeline from acute to chronic is given for ALL conditions - insomnia, nerve pain etc. But it doesn't mean anything. They just have to have a cut off point. But people recover well after this time, for all sorts of conditions. I wish they wouldn't distinguish between acute and chronic -- less people would panic and assume the worst if they did away with it.
        Jul 13, 2020
      3. ASilverLight
        ASilverLight
        I agree that the chronic label gets given too easily and too often. It doesn't help a person's state of mind and this can negatively influence the healing process. Besides, sometimes issues are ignored and once those are treated, others can improve too.
        Jul 13, 2020
        Steph1710 and Tanni like this.
      4. Steph1710
        Steph1710
        Thanks guys. Your messages really made me feel a lot better :) I have good days and bad days with my T. Some days I think screw it, I've got this - and other days I feel completely defeated. But I know you all know how it goes. X
        Jul 16, 2020
        AnxiouslyWaiting likes this.
    17. Steph1710
      Steph1710
      All you wonderful people! My spike is almost back to baseline. Thank you all for your care & support on this forum. I'd be lost without you.
      1. View previous comments...
      2. Steph1710
        Steph1710
        @Shelbylynn thank you. I’m so pleased. First proper spike was actually hell. Hope you’re doing well?
        Jul 9, 2020
      3. Steph1710
        Steph1710
        @Christiaan yeah we have big wasps here, and hornets. We also have the great Asian hornet on rare occasions. Our weather is becoming hotter and more wet, so bigger and different species are arriving. Ahhhh! (Side note: I actually love bugs and insects - just no wasps in confined spaces haha)
        Jul 9, 2020
      4. AnxiouslyWaiting
        AnxiouslyWaiting
        Hi @Steph1710, glad to hear your spike has subsided. Did you do anything specific or did you just wait it out?
        Jul 17, 2020
    18. Cass
      Cass
      I'm a college-aged woman like yourself so I was intrigued by the similarities and was hoping to talk to you about the specifics of your tinnitus sounds and the changes you've been experiencing (if you're comfortable with it) to compare and contrast, see if we're experiencing some of the same things. (3 of 3)
      1. Steph1710 likes this.
    19. Cass
      Cass
      I've gone through the insane diagnostic process that I'm sure you're familiar with - MRI's, MRV's, plenty of eye exams, lumbar puncture, etc., and at the end of all of that, it was still inconclusive as to whether or not I actually, technically have IIH. (2 of 3)
      1. Steph1710 likes this.
    20. Cass
      Cass
      Hi Steph, hope you're doing okay. I was interested to read in one of your posts that you mentioned having idiopathic intracranial hypertension. I was interested to hear this because my doctors at one point believed I may have it too! (fun stuff... lol) (1 of 3)
      1. Steph1710 likes this.
      2. Steph1710
        Steph1710
        Hi Cass! Sorry I haven't been responding to messages recently (having a mini crisis) I'm feeling much better now so hopefully I can answer some questions. Did you want to PM me? Probably easier than trying to squeeze it all into messages on here. :) <3
        Jul 4, 2020
        LilSass likes this.
      3. Cass
        Cass
        Hi yes, DM's would be ideal! Feeling a bit stupid though - how do I go about sending one? Still not entirely familiar with the site's format lol
        Jul 14, 2020
    21. Steph1710
      Steph1710
      Cried this morning brushed myself off & forced myself to sit with everyone at breakfast. Now feeling better even if spike/new sound is crazy
      1. Tweedleman, Emgee, Christiaan and 3 others like this.
      2. View previous comments...
      3. Steph1710
        Steph1710
        @Eloy
        Jul 4, 2020
      4. Steph1710
        Steph1710
        @Eloy Resendez Jr thank you so much for your sweet message. You're so right! T can absolutely knock you down. I had such a rough week when my T spiked, but I decided to carry on as normal as I could. I had to remind myself that if I beat T once before, then I could sure as hell, beat it again. :) thank you so much for your support. And as always, I hope you & the family are happy & well. God bless you. <3
        Jul 4, 2020
        Eloy Resendez Jr and LilSass like this.
      5. Steph1710
        Steph1710
        @LilSass hello gorgeous lady. Thank you so much for your message. Everyone on here has been so kind & supportive. Sorry to hear about your migraines. Mine have been horrendous too recently. I have a funny/frustrating story to tell you, about my experience with the hospital this week. I'll PM you. It might be of benefit to your situation. <3
        Jul 4, 2020
        Eloy Resendez Jr and LilSass like this.
    22. Steph1710
      Steph1710
      Past few months T lowered to an unnoticeable volume. Then I used a topical skin cream & suddenly T spikes so I can hear it over things again
      1. aot likes this.
      2. View previous comments...
      3. Steph1710
        Steph1710
        @Bill Bauer Hi Bill! Just letting you know that luckily it turned out just to be a spike and not a new tone. Or at least there doesn't seem to be a new T. The spike has almost gone back to baseline. It's becoming hard to hear unless I plug my ears or listen to it again. It's crazy to think it can fluctuate so much. It goes from near enough silent, to so loud I can hear it over everything.
        Jul 4, 2020
      4. Steph1710
        Steph1710
        Even the car isn't loud enough to mask the sound. I think the culprit might not have been the skin cream, but instead an ear infection from swimming. I used some non ototoxic ear drops from my doctor (who also suffers with T) and it seemed to do the trick. Thanks again for your help Bill. Please come to England so I can meet you/take you round cool places.
        Jul 4, 2020
      5. Bill Bauer
        Bill Bauer
        I am glad to hear your good news. After experiencing countless spike none of which ended up being permanent, I learned to not get too upset about spikes and to wait a month before getting worried. Don't worry about it getting loud. The fact that it gets to near silence so soon after your onset, means that it is likely that eventually it will be gone or nearly gone.
        Jul 4, 2020
        Tara Lyons and Steph1710 like this.
    23. Steph1710
      Steph1710
      Had an hour of absolutely no T. Not even a faint hiss. Then I had a moment of fleeting T, and my normal sounds came back. So strange :-/
      1. Mymlan, Emgee, HopeforAll and 5 others like this.
      2. ASilverLight
        ASilverLight
        It's happened to me a few times. I continue to have such quiet T in the morning but just getting up makes it louder.
        Jun 24, 2020
        LilSass and Steph1710 like this.
      3. LukeYoung
        LukeYoung
        Think it’s a good sign though
        Jun 24, 2020
    24. Steph1710
      Steph1710
      T is lowering so much I don't really hear it in the day. The louder multi tonal sound has gone too! So glad. That one bugged me. :D
      1. Mymlan, HopeforAll, Tavia R and 6 others like this.
      2. View previous comments...
      3. Steph1710
        Steph1710
        Thank guys. It's really strange. I'm sat here in a deadly quiet room and I can hear it still in my left ear (ear it originally started in) but the right ear has no sounds at all. Which is strange as I used to hear multiple tones, loudly from that ear. The left ear has also changed tone. It's no longer a high pitched beep, but a very faint mid-range sound. If that one goes too, then I'll actually be T free!
        Jun 21, 2020
        LukeYoung likes this.
      4. Tavia R
        Tavia R
        HELL YES! So glad to hear that! Take it slow with noise exposure for a little while, I know when I have a really good day I get careless and hurt myself so I don't want the same for you.
        But oh I'm so happy for you!
        Jun 22, 2020
        Steph1710 likes this.
      5. Steph1710
        Steph1710
        @Tavia R thanks girl! :) yeah, I still listen to music, though with good sound filtering earplugs. And of course not as loud as I would like. I think/know I've been incredibly lucky with my T journey. I only had some very mild H, but that soon went. How's life for you atm? You getting there slowly? Still getting the migraines? I've got one right now - feel like I'm gunna chunder :-/ probably ought to go lay down.
        Jun 22, 2020
    25. Steph1710
      Steph1710
      3 48 hour exams back-to-back completed! - I smashed them! Just swam 32 lengths in a river too. Damn life with T is still so awesome!
      1. View previous comments...
      2. Steph1710
        Steph1710
        Do you only study French? Or I take it, it's just one module on your course.
        Jun 21, 2020
      3. Eloy Resendez Jr
        Eloy Resendez Jr
        That’s what I’m talking about @Steph1710, you can be wise and jam at the same time. Way to take down those test. Love architecture, I loved drawing for a living. Almost became an architect until the economy took a dump back in 08. Now I inspect buildings for a living. Glad to hear life is good for you. Love, love your positivity.
        Jun 22, 2020
        Christiaan likes this.
      4. Christiaan
        Christiaan
        @Steph1710 , it's the entire study programme at the university of Utrecht. Luckily for me they have more than only a clear cut focus on language modules: economy, art-history, history, language sciences (analyses) and the like. Maybe it's interesting for you if you can follow a minor abroad
        Jun 23, 2020
    26. Steph1710
      Steph1710
      Right! Emergency question! I've been given some new allergy eyedrops and for the life of me, I can't work out if the ingredients is ototoxic
      1. View previous comments...
      2. Julien87
        Julien87
        Jun 8, 2020
        Autumnly and Steph1710 like this.
      3. Julien87
        Julien87
        Also on page 612. And if I understand correctly, the grade is : 3. Drugs vertigo-generating (there is no mention of ototoxicity). So, it seems fine actually, doesn't it?
        Jun 8, 2020
        Autumnly and Steph1710 like this.
      4. Steph1710
        Steph1710
        Jun 8, 2020
        LilSass, Autumnly and Julien87 like this.
    27. Steph1710
      Steph1710
      Not that anyone cares but I'm logging out for 2 weeks whilst I sit some very important exams! Stay safe & well everybody! <3
      1. View previous comments...
      2. Bill Bauer
        Bill Bauer
        Good luck on your exams!
        Jun 4, 2020
        Steph1710 likes this.
      3. Steph1710
        Steph1710
        Hey guys! Thanks for the luck! Hopefully it paid off. I'll find out on the 1st of July.. Eeek! Exciting! The exams went very well and I feel confident.
        Jun 20, 2020
        Kriszti and Bill Bauer like this.
      4. Bill Bauer
        Bill Bauer
        How many more years of studying do you have left before you graduate?
        Jun 20, 2020
    28. Steph1710
      Steph1710
      Brother-in-law told me he's had T since childhood, & it's so loud he hears it's constantly. I've known him 6 years & he's never mentioned it
      1. View previous comments...
      2. Steph1710
        Steph1710
        @Kriszti don't be like that. T is difficult and very different for each one of us who has it. How long have you had T? I'm sure those people you know with T, have had it a lot longer than you. You'll get there. Time is our greatest healer... And if it doesn't heal, remember we have treatments in the pipeline! <3
        Jun 1, 2020
        aot and Kriszti like this.
      3. Steph1710
        Steph1710
        @Kriszti what I meant to say is never be ashamed of yourself. Having T is life altering at best. If I could hug you, I would. Just remember, I'm sitting here with T as I type this. You're not alone. X
        Jun 1, 2020
        Kriszti, Jaka and aot like this.
      4. Lilah
        Lilah
        I don't know anyone personally who has loud T.
        Jun 2, 2020
    29. Steph1710
      Steph1710
      Swam for the first time in over 2 months last night! It significantly lowered my T. It was even low all night. Happy Steph! :)
      1. View previous comments...
      2. Steph1710
        Steph1710
        Cheers Bill. I tried to add a picture of the sign saying about the freezing water I go in, but it doesn't let you add pictures in the comments. Anyway, look the place up. It's beautiful. And if you haven't already been, then you must! The place is Valle Verzasca in (Ticino). I have to travel to Italy for projects and I always stop off here. One of my favourites. There and the black forest in Germany - Triberg.
        May 30, 2020
        Bill Bauer likes this.
      3. Bill Bauer
        Bill Bauer
        I've never heard of Valle Verzasca, and I see that it's spectacular. It really is unusual - I've never seen anything quite like it. I heard of black forest, and always wondered where might be a good place to experience it. Thank you so much for the tip!

        I've been to Italy many times and it always feels like all I got to see was just the tip of the iceberg.
        May 30, 2020
        Steph1710 likes this.
      4. Steph1710
        Steph1710
        @Bill Bauer ah Germany is my favourite! Not sure why, but I absolutely love it. The black forest is amazing, as are the German alps. I do a road trip through Germany every year. I know the best spots if you ever want more tips on where to go. Just PM me Bill.
        Jun 1, 2020
    30. Richard M
      Richard M
      Hi Steph, I also developed tinnitus right after taking doxycycline in March. Could I ask what dosage you took? I took 200 mg Doxycycline in one dose, threw it up 30 minutes later because I felt nauseated, then two days later took a second dose of 200mg Doxycycline. Tinnitus started the next day.
      1. Steph1710 likes this.
      2. View previous comments...
      3. Steph1710
        Steph1710
        Unfortunately six months is along time to be on them and I think the damage was accumulative. Because you were on them for two days, I would say you've got a very good chance of healing :) How loud would you say you T is? And how are you feeling?
        May 28, 2020
      4. Richard M
        Richard M
        Thank you for the info and encouragement! I'm feeling alright. My T isn't too bad, 3/10 normally, 5/10 at worst. T is not consistent, changes in tone frequently and sometimes it seems I can't hear it at all. Fans and background noise can mostly drown out the ringing. My Doc thinks I have "eustachian tube dysfunction" with inflammation unrelated to doxycycline and says to continue taking claritin and flonase.
        May 28, 2020
      5. Richard M
        Richard M
        All in all i'm feeling alright. 6 months is definitely a long time for you to be on doxy but with a relatively low daily dose sounds like you've got lots of hope for good outcome too. Thanks again and take care!
        May 28, 2020
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  • About

    Gender:
    Female
    Birthday:
    October 17
    Location:
    England
    Occupation:
    Architectural Historian
    Tinnitus Since:
    08/04/2020
    Cause of Tinnitus:
    Antibiotics - I think