Steph1710
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Old hag
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Jun 5, 2020 at 3:26 PM
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Apr 13, 2020
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Gender:
Female
Birthday:
October 17
Location:
England
Occupation:
Architectural Historian

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Steph1710

Member, Female, from England

Not that anyone cares but I'm logging out for 2 weeks whilst I sit some very important exams! Stay safe & well everybody! <3 Jun 2, 2020 at 1:59 PM

Steph1710 was last seen:
Jun 5, 2020 at 3:26 PM
    1. Steph1710
      Steph1710
      Not that anyone cares but I'm logging out for 2 weeks whilst I sit some very important exams! Stay safe & well everybody! <3
      1. Lucifer, Kriszti, Emgee and 3 others like this.
      2. View previous comments...
      3. LilSass
        LilSass
        Best of luck! :)
        Jun 2, 2020 at 7:05 PM
      4. Kriszti
        Kriszti
        Good luck, Steph!
        Jun 2, 2020 at 7:52 PM
      5. Bill Bauer
        Bill Bauer
        Good luck on your exams!
        Jun 4, 2020 at 7:23 AM
    2. Steph1710
      Steph1710
      Brother-in-law told me he's had T since childhood, & it's so loud he hears it's constantly. I've known him 6 years & he's never mentioned it
      1. View previous comments...
      2. Steph1710
        Steph1710
        @Kriszti don't be like that. T is difficult and very different for each one of us who has it. How long have you had T? I'm sure those people you know with T, have had it a lot longer than you. You'll get there. Time is our greatest healer... And if it doesn't heal, remember we have treatments in the pipeline! <3
        Jun 1, 2020 at 7:58 PM
        aot and Kriszti like this.
      3. Steph1710
        Steph1710
        @Kriszti what I meant to say is never be ashamed of yourself. Having T is life altering at best. If I could hug you, I would. Just remember, I'm sitting here with T as I type this. You're not alone. X
        Jun 1, 2020 at 8:22 PM
        Kriszti, Jaka and aot like this.
      4. Lilah
        Lilah
        I don't know anyone personally who has loud T.
        Jun 2, 2020 at 1:50 AM
    3. Steph1710
      Steph1710
      Swam for the first time in over 2 months last night! It significantly lowered my T. It was even low all night. Happy Steph! :)
      1. View previous comments...
      2. Steph1710
        Steph1710
        Cheers Bill. I tried to add a picture of the sign saying about the freezing water I go in, but it doesn't let you add pictures in the comments. Anyway, look the place up. It's beautiful. And if you haven't already been, then you must! The place is Valle Verzasca in (Ticino). I have to travel to Italy for projects and I always stop off here. One of my favourites. There and the black forest in Germany - Triberg.
        May 30, 2020 at 9:19 AM
        Bill Bauer likes this.
      3. Bill Bauer
        Bill Bauer
        I've never heard of Valle Verzasca, and I see that it's spectacular. It really is unusual - I've never seen anything quite like it. I heard of black forest, and always wondered where might be a good place to experience it. Thank you so much for the tip!

        I've been to Italy many times and it always feels like all I got to see was just the tip of the iceberg.
        May 30, 2020 at 11:10 PM
        Steph1710 likes this.
      4. Steph1710
        Steph1710
        @Bill Bauer ah Germany is my favourite! Not sure why, but I absolutely love it. The black forest is amazing, as are the German alps. I do a road trip through Germany every year. I know the best spots if you ever want more tips on where to go. Just PM me Bill.
        Jun 1, 2020 at 8:00 PM
    4. Richard M
      Richard M
      Hi Steph, I also developed tinnitus right after taking doxycycline in March. Could I ask what dosage you took? I took 200 mg Doxycycline in one dose, threw it up 30 minutes later because I felt nauseated, then two days later took a second dose of 200mg Doxycycline. Tinnitus started the next day.
      1. Steph1710 likes this.
      2. View previous comments...
      3. Steph1710
        Steph1710
        Unfortunately six months is along time to be on them and I think the damage was accumulative. Because you were on them for two days, I would say you've got a very good chance of healing :) How loud would you say you T is? And how are you feeling?
        May 28, 2020
      4. Richard M
        Richard M
        Thank you for the info and encouragement! I'm feeling alright. My T isn't too bad, 3/10 normally, 5/10 at worst. T is not consistent, changes in tone frequently and sometimes it seems I can't hear it at all. Fans and background noise can mostly drown out the ringing. My Doc thinks I have "eustachian tube dysfunction" with inflammation unrelated to doxycycline and says to continue taking claritin and flonase.
        May 28, 2020
      5. Richard M
        Richard M
        All in all i'm feeling alright. 6 months is definitely a long time for you to be on doxy but with a relatively low daily dose sounds like you've got lots of hope for good outcome too. Thanks again and take care!
        May 28, 2020
    5. LilSass
      LilSass
      Hey Steph! Hope you had a good day! :)
      1. Steph1710 likes this.
      2. Steph1710
        Steph1710
        Hey gorgeous! Sorry I don't message much. I'm okay thank you. The sun has been out, so I've been cooking on fires, swimming in the river and playing guitar with my sister (who's my best buddy) and my friends, under the stars... Well that's in the evenings because during the day, I've been studying for exams! Ahhh! How are you holding up? You a nature girl like me? You live in my dream country ya know! X
        May 28, 2020
      3. LilSass
        LilSass
        Doing good! Sounds like your living the dream. Good luck on your exams!
        May 28, 2020
        Steph1710 likes this.
    6. Steph1710
      Steph1710
      Like so many others with T - I damn miss music! when I remember I can't listen to it again, a piece of my soul dies. :'(
      1. LilSass likes this.
      2. View previous comments...
      3. Eloy Resendez Jr
        Eloy Resendez Jr
        ....I found what you mentioned about your brother in law amazing, I've heard that from several people myself. I've got a guy at work who has had it since 14 yrs of age and the dude walks around all day with no worry's. Pisses me off sometimes, ha, ha, I'm kidding. Actually those are the stories that just continue to give me hope. Anyway if you don't mind I'd like to pm your later or tomorrow.....
        Jun 1, 2020 at 9:47 PM
        Steph1710 likes this.
      4. Eloy Resendez Jr
        Eloy Resendez Jr
        ....I saw on your profile that your into historical architecture. I studied Architecture in college worked in the field for 12 years before I became an inspector, anyway just curious about that background. Heading out to dinner with the family now, talk to you later.
        Jun 1, 2020 at 9:52 PM
        Steph1710 likes this.
      5. Eloy Resendez Jr
        Eloy Resendez Jr
        @LilSass, Sarah! Good luck to you my friend I hope all goes well for you at the Doctors appt.
        Jun 1, 2020 at 9:54 PM
        Steph1710 likes this.
    7. LilSass
      LilSass
      Hope you're okay :)
      1. Steph1710
        Steph1710
        Hey Sarah, I'm fine thank you. T was annoying me yesterday and is doing so today a little bit. It's more annoying when it gets louder after being good for a day or so. How are you today. Btw, you just have to click comment to reply, instead of writing a new post on a profile :) xx
        May 22, 2020
    8. LilSass
      LilSass
      Hey Steph! How are you doing today? :)
      1. View previous comments...
      2. Eloy Resendez Jr
        Eloy Resendez Jr
        No kidding @LilSass! You would think right? We can put a man on the moon, but can't cure tinnitus.
        May 22, 2020
        LilSass and Steph1710 like this.
      3. Steph1710
        Steph1710
        @LilSass yup, no cure. And yes, I take NAC, magnesium, vitamin B complex and curcuming everyday. Did you enjoy your walk? I've just gotten back from mine. It was windy so blocked out my T quite nicely :)
        May 22, 2020
        LilSass and Eloy Resendez Jr like this.
      4. LilSass
        LilSass
        Yeah, it feels good to tire myself out a bit! Being outside seems to make it less intrusive. Have u noticed any improvement yet? :)
        May 23, 2020
    9. LilSass
      LilSass
      No worries! Best of luck with your studies and if you want to chat about whatever, just shoot me a message. BTW I lived in Barrow-in-Furness for four years (2000-2004). Do you live near there? :)
      1. Steph1710
        Steph1710
        Nope - I'm like the opposite part of the country. I'm in the East Coast of Suffolk :)
        May 22, 2020
    10. LilSass
      LilSass
      Hey Steph! Do you get many quiet days? Mine is quiet today as well - Let's enjoy it! :)
      1. Bill Bauer likes this.
      2. Steph1710
        Steph1710
        Hey Sarah! Sorry for not messaging yet, I've been in lectures this morning and I'm currently working on an article that I keep putting off. I have only started to have quiet days recently. It's so lovely to just sit in peace, especially when I'm working. I have a feeling more quiet days are to come. Glad yours is also behaving today :)
        May 20, 2020
        Bill Bauer likes this.
    11. Steph1710
      Steph1710
      T is so low today that I can't hear it. Even with my earplugs in, it's so quiet, I keep forgetting it's there - Long may this continue.
      1. Julien87
        Julien87
        great news =)
        May 20, 2020
        Steph1710 likes this.
    12. Steph1710
      Steph1710
      T is crazy after a run!
      1. Eloy Resendez Jr likes this.
      2. View previous comments...
      3. Steph1710
        Steph1710
        careful with our bodies. We also both have an extremely rare muscle disorder too, called Paramyotonia. Because of this, we have to do a tonne of stretches and warm up before any exercise. We're also careful to run on trails when we can, instead of pavement. And of course, our running shoes are high impact and we use sport tape to support joints where & when necessary
        May 23, 2020
        Bill Bauer likes this.
      4. Steph1710
        Steph1710
        Hopefully developing T is the only bad thing to happen in my 30s :-/
        May 23, 2020
        Bill Bauer likes this.
      5. Bill Bauer
        Bill Bauer
        Up until now, I haven't heard of using sport tape to prevent running injuries. Thank you for the information.
        May 23, 2020
    13. LilSass
      LilSass
      Sounds good! Enjoy your run. :)
      1. LilSass
        LilSass
        Hope your migraine isn't too bad! :)
        May 20, 2020
    14. LilSass
      LilSass
      My migraines are very much related to neck/shoulder/back muscle pain - I've been seeing an Upper Cervical Chriopractor for two months and Physio for almost one month. It is really helping as I've been able to reduce my migraine medicine to only 0-2 times per week (vs 4-5)!
      1. Steph1710
        Steph1710
        I'm now off for run Sarah.. (I'll have a banging migraine afterwards, I always do) but I'll message you after that privately so we don't have to communicate in little boxes hehe. X
        May 19, 2020
        LilSass likes this.
    15. LilSass
      LilSass
      I've been on a bunch of supplements since before this developed (Mg, Q10, B2, B12, D, probiotics) on the advice of my Naturopath and Neurologist. May try the curcumin (I've now become a real pill popper!) I started Butterbur with Feverfew a couple of months ago for migraines.
    16. LilSass
      LilSass
      Yes, it is shit! I have known about it for some time now but never, ever thought I would have to deal with this. Just when I felt that I was getting so close to managing my migraines better. I'm trying to stay busy as well (working from home atm), but still, don't feel the same as I did before.
    17. LilSass
      LilSass
      If I'm totally honest, neither am I! I was misdiagnosed with otitis media (fluid behind the eardrum) until February, then thought it was TMJ, so actually, I thought it would be gone by now. Slowly trying to accept that I have to deal with this, not an easy thing to do.
    18. LilSass
      LilSass
      My name is Sarah BTW
    19. LilSass
      LilSass
      Hi Steph,

      I'm new to the forum! I feel that my tinnitus has also been caused by ototoxic drugs, specifically my acute migraine medicine and ibuprofen. It's been about six months and I think I've mostly exhausted my internet search in terms of finding any kind of solution, other than finding ways to deal with it. Anyway, I just wanted to connect with you and see how you are coping. :)
      1. Steph1710 likes this.
      2. View previous comments...
      3. Steph1710
        Steph1710
        What I've been trying to do is keep as active as possible, and be as positive as I can. Although developing T is shit, this is actually quite a positive time to get it, as there are loads of possible treatments just around the corner it seems. Give it five years, and who knows - hopefully we'll have something to help. Luckily I sleep perfectly fine at night. My T doesn't bother me.
        May 19, 2020
      4. Steph1710
        Steph1710
        Also as many people will tell you - you must protect your ears at all cost!! Invest in silicone earplugs and over ear defenders. Stay away from noise. Your ears have been compromised and you might have a chance at healing them, but you must baby them for a long time. Also get on supplements like NAC, magnesium, vit B complex, zinc and curcuming. They might help in repairing/protecting your ears.
        May 19, 2020
      5. Steph1710
        Steph1710
        That's all the advice I can offer really. How are you feeling mentally about it? It's a shock to the system to know life has changed. It can be damn distressing. All of us on here know this. <3
        May 19, 2020
    20. Steph1710
      Steph1710
      Right folks, can anybody tell me what ear defenders/muffs are the best for noise cancelling? Earplugs make my ears itchy if over used.
      1. aot and Lucifer like this.
      2. View previous comments...
      3. Steph1710
        Steph1710
        @Bill Bauer cheers, I'll have a look at the X4A & X5A. Funny what you said about the supermarket incident - with the little girl finding your "look" more interesting than the Halloween costumes. :) Thank goodness I'm not a self conscious person. I can imagine it's horrid for people who are. I've told everyone I know that I have T now; and I'll be wearing ear protection from now on. They've all been understanding.
        May 21, 2020
      4. Bill Bauer
        Bill Bauer
        Do what you fear and your fear will disappear. :)
        May 21, 2020
      5. Juan
        Juan
        Once a teenager approached me when I was wearing the massive Optime III earmuffs to ask me what were those "cool inalambric headphones" haha
        May 21, 2020
        Bill Bauer likes this.
    21. Steph1710
      Steph1710
      Woke up last night to silence. No T. Plugged ears. Still no T. Sitting in quiet room now - can only just hear T if I concentrate. :-/
      1. Charburchar, Jaka, SoundB0und and 7 others like this.
      2. View previous comments...
      3. Jaka
        Jaka
        @Steph1710 Japanese grammar is quite simple. The words may be difficult to learn since they are very different from everything except maybe Korean. If you got an ear for languages it is relatively easy to learn since there are relatively few irregularities in standard polite Japanese (compared to some other languages). Forget about reading/writing though :)
        May 19, 2020
      4. Jaka
        Jaka
        @Steph1710 The language itself is part of the fun. With all politeness levels and whatnot :) Otherwise Japanese people are far more afraid of making mistakes when speaking English than foreigners fumbling with Japanese. But they are very tolerant of mistakes that you may make. Their calligraphy is also stunning and learning to read/write is fun but way harder since you need to memorize a lot of "kanji"
        May 19, 2020
      5. Tara Lyons
        Tara Lyons
        Lucky. You must have a mild case. I have not heard silence in 4 months.
        Jun 1, 2020 at 11:34 AM
    22. Steph1710
      Steph1710
      My spike I’ve had for the past few days has dropped back to baseline. Thank goodness cause it was driving me nuts!
      1. Kriszti, aot, Julien87 and 2 others like this.
      2. Bill Bauer
        Bill Bauer
        Keep this experience in mind, the next time you get a spike (and those are probably inevitable). Tell yourself to not get upset and to wait, as it will likely go away in a couple of days [or months, for serious spikes].
        May 16, 2020
        Steph1710 likes this.
      3. Steph1710
        Steph1710
        @Bill Bauer cheers. I will definitely keep that in mind. I really protected my ears when I went out yesterday, which I believed helped. I even managed to mostly enjoy a social situation.
        May 16, 2020
        Bill Bauer likes this.
    23. Steph1710
      Steph1710
      After 5 weeks of developing T, I'm finally booking an appointment with ent just to see if there's any hearing loss/wax/damage etc.
      1. aot likes this.
      2. Steph1710
        Steph1710
        Or not. Doctor said ent is still shut but he will look at my ears instead. Bit annoying because I want a hearing test done...
        May 15, 2020
      3. aot
        aot
        Beware of ear irrigations and microsuctions. Lots of people have had bad experinces with those. Manual removael is safer.
        May 15, 2020
        Bill Bauer and Steph1710 like this.
      4. Steph1710
        Steph1710
        Apparently ears are fine and clean. No need for wax removal. :)
        May 15, 2020
        Bill Bauer and aot like this.
    24. Steph1710
      Steph1710
      Someone dropped a load of cans out a cupboard next to where I was sitting. T so loud in the ear facing where they smashed on the worktop :(
      1. Bill Bauer
        Bill Bauer
        I know how you must feel. It is easier said than done, but try to not worry about it, unless it doesn't start fading after a month or so. It is reasonably to assume that it will be temporary...
        May 14, 2020
        MBH, aot and Steph1710 like this.
      2. Steph1710
        Steph1710
        Thanks Bill. T is really scary :( life changes once you have it. If I knew it wouldn’t change or ever get any louder, I could carry on as normal. It’s the not knowing which makes T so much worse.
        May 14, 2020
        Charburchar, aot and Julien87 like this.
      3. Bill Bauer
        Bill Bauer
        When T doesn't go away after its onset, it is natural to expect T spikes to not fade. But for some reason, most people find it difficult to screw up so much that they end up with a permanent spike. Having said that I am all for trying to minimize the number of shocks that cause temporary spikes, as they can't be promoting healing.
        May 14, 2020
        Steph1710 likes this.
    25. Steph1710
      Steph1710
      Mourning my old life these past few days. I can't help but feel everything is a bit shit with T.
      1. Zugzug, aot, high frequencies and 5 others like this.
      2. View previous comments...
      3. Lucifer
        Lucifer
        @Steph1710 I had T for 3 years now. Hopefully FX-322 can skip some phases so we can all be cured.
        May 13, 2020
        Steph1710 likes this.
      4. Zugzug
        Zugzug
        For me, the moments I miss the most are the average ones. Like grocery shopping, talking, driving.
        May 13, 2020
        Steph1710 likes this.
      5. Steph1710
        Steph1710
        @Zugzug driving is the biggie for me.I used to love driving with my music on and window undone... guess those days are behind me.
        May 13, 2020
        Zugzug likes this.
    26. Steph1710
      Steph1710
      My T literally disappears when I lay down then starts as soon as I move my head or sit up. Does anyone else experience this?
      1. Lucifer likes this.
      2. View previous comments...
      3. Jaka
        Jaka
        If by laying down you mean going to sleep and waking up. This is probably caused by inhibitors in your nervous system. Some people get silence in the morning when they wake up and T starts when they get up.
        If you literally mean that when you are laying in horizontal position when awake, then I bet that your T is caused by something related to blood vessels or blood pressure.
        May 12, 2020
        Steph1710 likes this.
      4. Jaka
        Jaka
        I bet that your T is somehow connected to the medical condition that is causing your PT. And I have high hopes that when you will be able to do the procedure to fix it, that your T will also get better.
        May 12, 2020
        Steph1710 likes this.
      5. Steph1710
        Steph1710
        @Jaka let's bloody hope it's related. Yeah when I lay flat, the noise in both ears ceases. But if I move slightly, it starts again. But like I said, at least it allows me to have a decent night's sleep
        May 12, 2020
        HeavyMantra, Jaka and Kriszti like this.
    27. Steph1710
      Steph1710
      So I originally had T in the left ear. That's now pretty much gone but instead I now have two tones in the right ear. T is a dickhead!
      1. all to gain
        all to gain
        Yeah, that sums it up pretty well. I can't believe that i'e had this thing for 11 months already.
        May 11, 2020
        Steph1710 likes this.
      2. Steph1710
        Steph1710
        @all to gain yeah it goes quick which is good because it won't seem long to wait until we have some sort of treatment. Five years flies by! Has yours gotten better or worse in that time?
        May 11, 2020
      3. all to gain
        all to gain
        It's got worse due to an MRI and other noise exposure.
        May 11, 2020
    28. Steph1710
      Steph1710
      pulsatile T has decided to become annoyingly loud. Nothing like hearing your own heart beat roaring in your ear alongside screeching T.
      1. Shelbylynn likes this.
      2. View previous comments...
      3. all to gain
        all to gain
        May I ask where the stent is to be placed?
        May 11, 2020
      4. Steph1710
        Steph1710
        @all to gain in the main artery, left side of neck. Any reason you ask? <3
        May 11, 2020
      5. all to gain
        all to gain
        I recently started hearing my heart beat in my left ear, but only when I am lying down. It immediately stops when I change position. I presume mine is down to my arteries shrinking, but there is no build up of plaque. Can you hear your heart beat constantly? Is it a big operation to put a stent in the neck?
        May 11, 2020
    29. Tara Lyons
      Tara Lyons
      You can even text me if you want. I will send you my number in private, trust me I feel your pain!
      1. Steph1710 likes this.
    30. Tara Lyons
      Tara Lyons
      It’s a nightmare and I’ve def felt suicidal. Can’t believe this. Why is this happening is my main question. If I knew what the 100% cause was I’d feel a lot better but I don’t.
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  • About

    Gender:
    Female
    Birthday:
    October 17
    Location:
    England
    Occupation:
    Architectural Historian
    Tinnitus Since:
    08/04/2020
    Cause of Tinnitus:
    Antibiotics - I think