twa
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Gender:
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Location:
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Occupation:
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twa

Member, Female, from US

I'm one week out from surgery. T/H have been stable. I've had some lower T with the extra sleep I've been getting by recovering at home. Mar 10, 2024

    1. twa
      twa
      Watched "Nomadland" last night. It was good, but very sad. Need something upbeat now!
      1. LilSass
        LilSass
        Did you watch 'Love and Monsters' yet? Very funny and cute :)
        Apr 29, 2021
      2. twa
        twa
        @Lil Sass, I looked for it on Netflix and didn't find it. I'll try Prime.
        Apr 29, 2021
        LilSass likes this.
      3. twa
        twa
        @LilSass I watched Love and Monsters last night. Such a cute movie and funny too! I needed something like that!
        May 3, 2021
        LilSass likes this.
    2. twa
      twa
      Has anyone taken a four hour car trip with T/H? I have two nieces graduating and it would be nice to go to their graduation celebrations.
      1. martinberryhorse likes this.
      2. View previous comments...
      3. martinberryhorse
        martinberryhorse
        I do every other week with earplugs and it hasn't been an issue for me.
        Apr 28, 2021
        twa likes this.
      4. Steph1710
        Steph1710
        I drove for 8+ hours to Scotland. I wore earplugs with headphones over the top. I was absolutely fine. X
        Apr 28, 2021
        twa likes this.
      5. twa
        twa
        @Steph1710 Love Scotland! We've been to Edinburgh, the Highlands and Loch Ness. Good to know that you did well on a long trip.
        Apr 28, 2021
    3. twa
      twa
      Looks like rain in north Texas! I'd better get that walk in! What is your goal for today?
    4. twa
      twa
      Day 7 home with dizziness. Going to watch the movie of the year, "Nomadland", walk outside and work on an educational resource.
      1. LilSass, Steph1710 and Guywithapug like this.
      2. twa
        twa
        Took a walk with the dog, not an easy feat with a headstrong pup and dizziness.
        Apr 27, 2021
        LilSass likes this.
    5. twa
      twa
      Good night all, praying for a better day for all of us tomorrow.
      1. View previous comments...
      2. Vassili
        Vassili
        I think it will subside, it has to. I haven't had any vaccines yet but who knows...maybe in May. I am doing OK, trying to be busy to avoid thinking too much about everything. Good thing is that I am still recovering and I have the strength to move on with my life. Everything will be OK, I believe in that.
        Apr 27, 2021
        twa likes this.
      3. twa
        twa
        I believe that too. Glad you are continuing to recover and heal. Sounds like your headaches are better too. So happy to hear about your improvements!
        Apr 27, 2021
        Vassili likes this.
      4. Vassili
        Vassili
        Yes, headaches are much better, but still daily. My daily dosage of headaches. LOL Plus often it feels like mild, even pleasant (?!) at times, heat all over my head. Weird stuff. ))
        Apr 27, 2021
        twa likes this.
    6. LilSass
      LilSass
      I just watched 'Love and Monsters'. It's funny with a lot of action, romance, etc. Very cute film and I didn't fall asleep or think about t. <3
      So glad to hear you're doing better Teresa. Stay strong!
      1. twa likes this.
      2. twa
        twa
        @LilSass, thank you friend. I appreciate the support. The dizziness has been tough. Hit a rough patch today with feeling dizzy, emotional and discouraged. My PCP said generally these things run their course and I could take an antihistamine or Dramamine. It took the otologist's office 4 days to call me back with the same info they gave me 4 days ago. Smh.
        Apr 26, 2021
      3. LilSass
        LilSass
        I feel for you! I had some dizziness for about a month or two when the t started and I can honestly say it is the worst. That's coming from someone who deals with chronic pain and migraines. Hold on, this too shall pass. *hug*
        Apr 27, 2021
        twa likes this.
    7. twa
      twa
      Movie suggestions?
      1. View previous comments...
      2. Bill Bauer
        Bill Bauer
        @Steph1710 Any recommendations?

        By the way, another horror movie that you might not have seen that I still remember was
        https://www.imdb.com/title/tt0808276/
        The premise is that of Halloween but it was done well. Or at least that's what I thought when I watched in about 13 years ago.

        You've watched the French films Martyrs (2008) and Inside (2007) and Irreversible (2002), right?
        Apr 27, 2021
        twa likes this.
      3. Bill Bauer
        Bill Bauer
        Apr 27, 2021
        twa likes this.
      4. Bill Bauer
    8. twa
      twa
      Day 6 at home: boredom is kicking in. I tell my son it's good to be bored, it encourages creativity.
    9. twa
      twa
      I can hear the birds tweeting from inside my house. First time all year I've been able to hear them.
    10. twa
      twa
      Day 5 of steroids. Still dizzy, but better. Trying to hydrate, take supplements and rest. Staying home is the toughest part of all of this!
      1. Bill Bauer likes this.
      2. Zugzug
        Zugzug
        Cutting salt helps a lot. Mood swings are totally normal; the key is to accept them. Also, a temporary sleep aid doesn't hurt if they cause insomnia.
        Apr 26, 2021
        twa likes this.
      3. twa
        twa
        @Zugzug thanks for the suggestions. I do pretty well on low salt intake, I'm on the AIP-Paleo Diet. Mood swings have been normal for me these last 7 months. Both my husband and I are on steroids right now, his for his back and me for the dizziness. Ugh.
        Apr 26, 2021
    11. twa
      twa
      So I've been watching a few movies while at home with this dizziness. The Silence on Netflix is pretty good and not too intense!
      1. Steph1710, Lucifer and Bill Bauer like this.
    12. twa
      twa
      After 4 days of steroids, starting to get shaky. I was concerned about the side effects, although it's nice to have energy!
    13. twa
      twa
      Still dizzy this morning, day 4 of steroids. Trying to stay busy and active while at home. Beautiful, sunny day in Texas!
      1. Steph1710 likes this.
      2. Sayeed
        Sayeed
        Love the positivity..
        Apr 25, 2021
        twa likes this.
    14. twa
      twa
      So, the ringing changed to the sound an airplane engine makes as your enter the plane before take-off.
      1. Bill Bauer
        Bill Bauer
        I think people refer to this as white noise. It is an improvement over the high pitch tone and if you used to have a high pitch tone, then this means that you are healing.
        Apr 25, 2021
        twa and Steph1710 like this.
      2. twa
        twa
        Apr 25, 2021
    15. twa
      twa
      I forgot how much steroids cause your appetite to increase!
      1. Steph1710 and Lucifer like this.
      2. Steph1710
        Steph1710
        Yup! Since I’ve been on steroids for my lungs, I’ve put on a stone and a half. :-/ It’s impossible to lose it too - so frustrating.
        Apr 25, 2021
        twa likes this.
      3. twa
        twa
        @Steph1710, 3 pounds in a week for me! I lost almost 30 walking, swimming, logging in MyFitnessPal and eating AIP-Paleo during the quarantine.
        Apr 27, 2021
    16. twa
      twa
      Still dizzy, but much better. Day 3 of steroid pack. I walked briefly outside this morning with my family, just in case I lost my balance.
      1. NTV, aot, Steph1710 and 1 other person like this.
      2. Bill Bauer
        Bill Bauer
        Wonderful!
        Apr 24, 2021
        twa likes this.
      3. Diesel
        Diesel
        Glad to see you’re improving
        Apr 24, 2021
        Bill Bauer and twa like this.
      4. twa
        twa
        @Diesel I read somewhere you were a new dad. How old is your baby?
        Apr 28, 2021
    17. twa
      twa
      So interesting side note. I started a steroid yesterday for dizziness and today my hyperacusis is better.
      1. Tinker Bell
        Tinker Bell
        That’s great! How is the dizziness? I’ve been wondering how you’re feeling.
        Apr 23, 2021
        twa likes this.
      2. twa
        twa
        @Tinker Bell, much better! Thanks for asking. The steroid started working one hour after I took it, just amazing!
        Apr 23, 2021
        Tinker Bell and LilSass like this.
      3. Tinker Bell
        Tinker Bell
        That is wonderful!
        Apr 24, 2021
        twa likes this.
    18. twa
      twa
      The extreme dizziness has lead me to a place of gratitude for all the good things in my life. I had lost focus on the blessings of mobility.
      1. LilSass and MrCrybaby like this.
    19. twa
      twa
      @Forever hopeful, so sorry about your experience with the MRI. Do some self care, if you can. A hot pack, warm bath, quiet time, Netflix.
      1. aot and Tanni like this.
      2. Forever hopeful
        Forever hopeful
        Thank you.
        Apr 23, 2021
        twa likes this.
      3. Forever hopeful
        Forever hopeful
        I am sorry to hear you are still not feeling well.
        Apr 23, 2021
      4. twa
        twa
        Apr 23, 2021
    20. twa
      twa
      So with all the dizziness, I threw up several times today, sorry for the TMI. The tinnitus got very low, almost quiet after each time.
      1. aot likes this.
      2. View previous comments...
      3. twa
        twa
        @Diesel, thank you. Interesting...I wonder why this occurs??? I said hmm, I recognize this. This is what quiet sounds like! I was too miserable to enjoy it and moments later the T was running again.
        Apr 23, 2021
      4. Diesel
        Diesel
        I have noticed that my T is quiet on days where I fast as well, so I assumed it was because I was simply empty of nutrients as well. Could also be a nervous system issue from being sick?
        Apr 23, 2021
        twa likes this.
      5. twa
        twa
        I have often thought my T and H are related to a nervous system issue.
        Apr 23, 2021
    21. twa
      twa
      Extremely nauseous and dizzy. I have Mezclizine and Ondansetron. Any experiences with these meds?
      1. Forever hopeful
        Forever hopeful
        I’m so sorry to hear you’re going through this. I took meclizine years ago when I had a bout of vertigo. I had no issues with the medication.
        Apr 22, 2021
        twa and Bill Bauer like this.
      2. twa
        twa
        @Forever hopeful, thanks so much! The dr also called in a steroid. I was very hesitant to take it. I started it and it has helped I believe.
        Apr 22, 2021
        Steph1710 likes this.
    22. twa
      twa
      What helps dizziness? Suggestions please.
      1. View previous comments...
      2. Bill Bauer
        Bill Bauer
        Yes. Google "Epley maneuver". The body can be manipulated to let the gravity guide the crystal back to where it belongs.

        Even if the chance that this is what is causing your dizziness is low, it's a good idea to do that maneuver, as the worst that can happen is that you lose some time.
        Apr 22, 2021
        twa likes this.
      3. Bill Bauer
        Bill Bauer
        I experienced developing vertigo and dizziness recently. I had been taking a large dose of antibiotics and after three weeks I got those symptoms. When the symptoms persisted Weeks after I stopped taking those antibiotics, I got very concerned. Luckily after about a month I felt better...
        Apr 22, 2021
        twa likes this.
      4. twa
        twa
        @Bill Bauer, thanks so much. You're a cool guy! Thank you for taking the time to help me today. I have been distraught, dizziness is nothing I've ever experienced.
        Apr 22, 2021
        Bill Bauer likes this.
    23. twa
      twa
      Dr called in a steroid for the dizziness, don't want to take if being caused by the Pfizer vaccine. I want to avoid steroids. Thoughts?
      1. View previous comments...
      2. Steph1710
        Steph1710
        @twa prednisone is what I take. I find it to be very helpful for a number of things. X
        Apr 22, 2021
        twa likes this.
      3. twa
        twa
        @Steph1710, it is a Prednisone taper pack, 10 mg each. 5 the first day and so on. I've made it through 2 out of the 5 tabs today.
        Apr 22, 2021
      4. lucy_snow
        lucy_snow
        @Steph1710 Have you ever tried to take methylprednisone instead of prednisone? I'm used to take prednisone, but my doc suggested that methylprenisone can cause less side effects. But I'm still not sure should i switch.
        May 18, 2021
    24. twa
      twa
      Woke up dizzy this morning. This happened 4 weeks ago when I had strep & liquid in both ears. I was afraid to drive the kiddo to school.
      1. twa
        twa
        Any help or suggestions?
        Apr 21, 2021
    25. LilSass
      LilSass
      Saying prayers that this subsides for you quickly
      1. twa, Lilah and Steph1710 like this.
      2. twa
        twa
        @LilSass, thanks so much for the prayers. I appreciate them! Hope you are feeling better. :-)
        Apr 21, 2021
        LilSass likes this.
    26. twa
      twa
      I have had high pitched ringing since my 2nd Pfizer shot 11 days ago. Please consider if you have already loud tinnitus.
      1. Bill Bauer
        Bill Bauer
        For now you can still hope that it will be temporary. If it doesn't fade after 3-12 months, it would then make sense to worry about it becoming permanent.
        Apr 20, 2021
        twa likes this.
      2. Steph1710
        Steph1710
        So sorry Twa. I’ve already thought about this, and I’ve decided against the 2nd shot. However, it’s more to do with my lungs than my ears. The first shot screwed my lungs up for two months. Anyway, I sincerely hope the ringing subsides. I’ll keep you in my thoughts <3
        Apr 20, 2021
        twa likes this.
      3. twa
        twa
        @Bill Bauer, yes praying so. It has not stayed in a high pitched ring for this long. @Steph1710, thanks so much for the good thoughts. Hope you are feeling better with your lungs. I used to get bronchitis very easily, especially when I was teaching. Quarantine has been good in that respect, I haven't been sick other than strep/ear infection with mild symptoms.
        Apr 21, 2021
    27. twa
      twa
      So this happened to me once in the fall and just now. I can see clearly without reading glasses to read the computer or my phone.
      1. Keith Handy, aot and Steph1710 like this.
      2. twa
        twa
        It has gone back to usual as it did in the fall.
        Apr 20, 2021
    28. Sayeed
      Sayeed
      Hi there... I find your post very helpful.. You are very positive and genuinely seem to care.. I am new here. Just put of my first post. Would love your feedback.
      1. twa likes this.
      2. twa
        twa
        @Syed, thank you for the post. I appreciate the encouragement. I read your post about which foods are best to eat for tinnitus. I am not sure about salicylates in foods. I am following an AIP diet or Autoimmune Protocol. The goal is to reduce inflammation in the body. I figure that could only help with tinnitus and hyperacusis. I have been ringing for 3 days straight. I was having static throughout the day.
        Apr 18, 2021
    29. SaraK18
      SaraK18
      I recently had noise induced hearing loss and tinnitus...about 7 months ago. It is improving, but I'm concerned about getting the vaccine with this condition. Have you had the covid vaccine, and if so, did it hurt your ears or increase tinnitus at all?
      Thanks,
      Sara
      1. twa likes this.
      2. twa
        twa
        I will be 7 months next week from an acoustic trauma. I did get both vaccines. I’m not sure but I did get an ear infection right after I had the first vaccine. I don’t think I had an increase then. I had the second shot last Friday. Something has caused an increase, I’ve been ringing for two days straight. I was getting static a lot. *Update- I've been ringing since my second shot.
        Apr 17, 2021
      3. SaraK18
        SaraK18
        Thank you for sharing your experience. I hope it subsides soon.
        S
        Apr 18, 2021
        twa likes this.
    30. Forever hopeful
      Forever hopeful
      Horns are so loud. I hate that. He could have just waved.
      1. twa and Bill Bauer like this.
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  • About

    Gender:
    Female
    Location:
    US
    Occupation:
    Education
    Tinnitus Since:
    2017- mild /Sept. 2020-moderate
    Cause of Tinnitus:
    meds/acoustic trauma