Suicidal

That's not true. People with no limbs and awful depression and suicidal ideation have overcome their mental problems and turned a new page, living happy lives.

 

Did they have an ear piercing noise following them around 24/7 equivalent to permanent Chinese water torture?

I’d gladly lose a leg or arm as opposed to this crap. I’m sure doctors would be more empathetic instead of here’s a brochure and get used to it. Shrug.

 

I'm exactly where you are .... I've got too many noises to mention .... weirdly ambulance and police sirens have over recent months made it worse .... i can escape the noise by driving but its through the driving that I've encountered all the emergency sirens .... life enjoyment currently is zero I'm not accounting for minus - i was one of the people who would say you can beat this come on .... however not no more sadly I'm now one of these people who think ill join you if possible ... its not so much death that scares me its even though it will be my turn naturally one day its as other people have said messing up and being a vegetable for the rest of my life as sadly i know if i was a vegetable with no means to smile to communicate to do thing for myself ... my family selfishly would keep me alive because just for that reason that I'm alive!!!!

 

Guys you are not alone with your thoughts-
Can truly understand you.

I also bought a rope and already tested several times how it feels to finish life.

It’s awful and you immediately notice how much you rather want to be alive. Uuughh
But I often wish I could finally make it true to End this torture which I can’t express in words. Of course there are different ways too, but hanging seemed the best for me. After a few seconds I should fall asleep.

my sounds are screeching and beeping sounds, which I since 1.5 year cannot habituate. It’s impossible for me with these kind of sounds.
I hear the nerve firing of my brain, stopping and starting. It’s called Typewritter Tinnitus... It’s not constant and so you have continues perception of something going on in your brain. I have classic tinnitus since 20 years, but this symptom is 100x severe.

Each day means surviving another day. But I cry almost daily due to the agony. Absolute Nobody can help me - I am alone. It’s a nightmare never ending.

I already asked my wife to make an appointment at euthanasia in Switzerland. She cried.. but it’s like it is. As you say, the brain has some damage or malfunction which the scientists don’t find.

For me...my last chance is Lenire. I tried everything and almost all medications- nothing helps longterm.

If lenire will not help, I hope I will have the strength to end this suffering.

BUT, each person and brain is different. Perhaps you will belong to the lucky ones after 6-12 months.
If not, god forgive us...

 

My heart goes out to you man. I am 19 months in and struggle daily. Some days are worse than others but no day is ever really "good".

 

I am sorry you feel this way too.

You think sirens made you worse? I hear sirens a lot where I live. Unfortunately, I live too close to a busy intersection and a hospital is nearby.

I don't know if I got worse from that. It is too difficult to avoid all sounds and noises in the city. I don't have money to move. I don't want to worry about these things anymore. I am tired of it.

I stopped wearing foam plugs because of canal irritation and ear pain. I have muffs but they are uncomfortable. I thought of getting custom plugs but now wearing any kind of earplug will make the tinnitus tones even more pronounced.

I feel like this is all pointless.

 

Nonsense.

 

I am sure he interviewed a number of limbless people or is parroting government propaganda.

 

We shouldn't have to be like this without anyone trying to help. I am talking about government support. As long as we are suffering, there should at least be a support system. People tell us to hang on but obviously it's not as bad or they would feel similarly. No one else can feel or hear the tinnitus. At least, people missing a limb has something visual. People with tinnitus suffer without anyone having a clue.

 

I feel you, and to be honest, I don't know on Lenire that much, Frequency Therapeutics on the other hand, is a different story.

Results should be out pretty soon on FX-322, and if all goes well, Tinnitus and hearing loss in general is going to be a thing of the past.

 

I don't want to live anymore neither. Not this way. I’m 25 years old and I’m really fucked up.

Don’t want to live the rest of my life like that. I just don’t.

 

@PeteJ bro you could wake up tomorrow and the tinnitus could be gone or maybe it's only bad 50% of the time. The first 3 months was hell for me. I lost weight, couldn't pee and only slept 75 hours in 3 months. Six months in and my tinnitus went from constant to only being annoying 50% of the time... You said you're jaw is messed up. Go to dentist and give fitted with a TMJ splint.

 

@PeteJ,
I understand the mental torture tinnitus can cause and lack of concentration for even the simplest tasks like reading.

I have Meniere's Disease and it left me with sever bilateral tinnitus and hearing loss and my tinnitus blasts away and never stops and I struggle with concentration and memory, reading and course work.

I have to take medication to help me sleep but struggle.

The only thing that gives me a little bit of relief taking the edge off my tinnitus are my duel purpose hearing aids with maskers.

Could hearing aids be an option for you?

love glynis

 

Bad comparison.
Yes missing limbs are bad, but it is not ACTIVE 24/7, "can't sleep, can't relax" kind of torture.

Also, there is a great support system in place for people with visible disabilities.

With tinnitus it is the exact opposite.
The support is next to zero, while the sufferer's get their intelligence insulted over and over again by clueless medical "professionals" most of whom think it's either funny or no big deal.

 

They can have phantom limb syndrome.

 

Yes that is true.
But it is my understanding, that phantom limb pain is usually intermittent and in most cases it goes away with time.

If Tinnitus was also intermitent, it would be a bearable condition, since you get a bit of a break and some rest.
That way you have a chance to collect yourself for another attack.

The very problem with Tinnitus is the fact, that it gives you ZERO breathing room and ZERO time to recover.
I can't immagine that there are too many conditions out there worse, than not being able to get a break from brutal torture, even just for couple of minutes.

The permanency, continuity and complete inescapability is the game changer here.
Coupled with lack of any real treatment options, this is the main issue with Tinnitus.

 

I don't blame you. When mine is bad it's really bad. Mine is especially bad today. Death doesn't sound very appealing either. Are you trying Lenire? Did you contact them at all? When I'm doing good my noise resets upon awakening.

 

Because hearing aids mask the tinnitus or because they amplify environmental sounds?

 

People are trying to help man. They are just bogged down in clinical trials.

 

Mine is intermittent, and is bearable.

 

They amplify sounds. It's probably not a good option if you have hyperacusis?
I don't know what it does for tinnitus.

My hearing loss is supposedly mild but there is a major dip at 4 kHz. I don't understand these audiograms at all.

Anyway, hearing aids are really expensive. I quit my job because of tinnitus. If tinnitus disappeared or became mild, I would take a quiet job but how do you work with severe tinnitus?!?

 

Huh?
How does that help?

Lenire seems to want minimal hearing loss and too high a pitch eliminates you too.

I suspect I am not a candidate.

 

My hearing aids replace the frequencies I've lost set by a computer that with amplification help my tinnitus.

If I'm in a quiet place I have the option to use white noise but find I don't use that much as my tinnitus is the same but louder.

Hope that helps,
love glynis

 

There's other stuff like FX-322, OTO-313, OTO-413, etc. that could help us.

 

My tinnitus is extremely bad non stop iv had it 17 months,it's completely destroyed me,apart from that my partner of 16 years left me who lives with my daughter,and I'm struggling everyday now with this punishment,and iv studied suicide books etc. Iv had different meds but I just cannot live like this it has made me into a pathetic sole,my head is battered,an attempt at suicide seems the only way out I cannot cope with my head being drilled anymore,I don't believe even neuromod will allow me to escape this noise

 

Tinnitus destroyed me. I was hooked on opioids for a long time to make me forget this horrible pain.

 

Tinnitus causes you physical pain? Ears? Or?

 

Can I pick it up at the store now?

 

The tinnitus noise is so loud and high pitched but I wish I had another way to describe it.

Several tones but I don't know if it's multiple tones but a set of around three? There are at least three different ones. But, what I think is one could be multiple layers. I am not sure.

But, the speed of the tones is "fast" - like cicadas. One tone pauses for split seconds every now and then. I don't want to concentrate on the nature so much but the high pitch and volume makes it difficult not to.

I don't have much hope it will reduce so I see suicide as the only way to stop it.

I suspect that the high pitch and volume will eliminate me from any chance the Lenire device would help.

 

No. But you can buy some of the ingredients from lab supply companies. The main thing to stop us from administering them to ourselves is the great challenge in safely injecting ourselves in the eardrum.