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@Johan_L Again, thank you very much for sharing this compelling information. I entirely agree with her on her TTTS points. These periods of...
@Johan_L Thanks for sharing! In what way(s) did your ENT evaluate your middle ear for inflammation? Was he looking for erythema ? Dilated...
@Rojo Glad to hear you have an appointment with Jastreboff. Keep it! He has treated many patients with Category 4. Follow his advice closely....
@Johan_L The majority of people with hyperacusis get better with time. Try not to put a time table on it. Recovery can be fast for some and slow...
@Adriel93 I probably should have said when my tolerance for sound decreases, I have more pain symptoms. Hope that clears it up.
Hi @Adriel93 As @Juan stated, pain radiating to temples, around eyes, cheeks, jaw, scalp and neck are all associated with hyperacusis. I have...
@Juan Thank you so much for sharing your thoughts. Yes, this is very helpful for me to hear. I have a similar approach to this as you......
@Juan Thanks for the advice. 18 months is very new? Feels like it’s been eternity at this point. I’m sorry that you’ve had such a bad case of...
@Juan 18 months now. Pretty severe, with a LDLs ranging from 60-70 at 1 kHz to 40 at 8 kHz. Lots of mild improvements followed by setbacks, so not...
@ozgeA Exactly. I think these symptoms are all interrelated, at least for me and probably others.
@Juan I have many increased sensitivities since my hyperacusis began. Light is one of them. Sound sensitivity is the most pronounced, by far, and...
@Juan Yes, I do. I experience increased photosensitivity, pain around eyes, and get migraines, associated with hyperacusis. These are amongst...
@Layla23 Levetiracetam (generic Keppra) should cost less than a tenth of what you were quoted out of pocket cost, which likely is brand name. Ask...
Hi @Natashasewast I am sorry to hear of your nightmare too. Thank you for asking about me. It has been about 7 months since the referenced post. I...
Hi Andrew, I’m sorry to hear about your struggles! A number of us have pain with hyperacusis and it can be a tricky variable to deal with. It...
