Sointu
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Sointu

Member, Female

But on the other hand my tinnitus has got worse (the loud humming/roaring part) in the long run. Hyperacusis is luckily better. Apr 12, 2024 at 7:45 AM

Sointu was last seen:
Apr 15, 2024 at 8:24 PM
    1. Sointu
      Sointu
      But on the other hand my tinnitus has got worse (the loud humming/roaring part) in the long run. Hyperacusis is luckily better.
      1. aab likes this.
    2. Sointu
      Sointu
      I have recovered from severe hyperacusis to the point I no longer use earplugs outside most of the time and tolerate sound again better.
      1. tpj, Ngo13 and aab like this.
      2. View previous comments...
      3. Sointu
        Sointu
        I had noxacusis at first after acoustic trauma for months. Then my H has been more like loudness hyperacusis slowly when time has passed
        Apr 12, 2024 at 10:04 PM
        aab likes this.
      4. Sointu
        Sointu
        I had to use earplugs when I left my home for a long time. I stopped doing that last summer/autumn..
        Apr 12, 2024 at 10:06 PM
      5. Sointu
        Sointu
        Also not pushing myself too hard helped with noxacusis. It was important not to push my limits too much.
        Apr 12, 2024 at 10:07 PM
        aab likes this.
    3. Sointu
      Sointu
      A small kid screamed loudly like less than one meter away from me next to my ear at grocery store.
    4. Sointu
      Sointu
      I never knew ultrasonic bird repellers exist but my gosh these are torture machines for a person who can hear sounds they make and has T
      1. Kiyomi likes this.
      2. TheCapybara
        TheCapybara
        I'm only now realizing this is what I heard quite a while ago (before onset dysacusis) working delivery in a certain neighborhood when I walked past one of the houses there. Those things should be forbidden.
        Mar 20, 2024
        Sointu likes this.
    5. Sointu
      Sointu
      There was loud ultra ultrasonic/high frequency repeller at place I went today to keep birds away. It felt so uncomfortable in my ears.
      1. Kiyomi likes this.
    6. Sointu
      Sointu
      My tinnitus feels like something is covering my ear and there is an echo chamber, seashell type of loud roaring that is driving me nuts.
      1. Kiyomi likes this.
    7. Sointu
      Sointu
      My tinnitus spike caused by syringing and microsuction did not calm down in the end. I cant habituate to this awful roaring tinnitus sound
      1. aab likes this.
    8. Sointu
      Sointu
      Why does my own voice sound so quiet... Why do I have roaring seashell sound in my ear with a weird echo effect. Why does music sound bad..
      1. View previous comments...
      2. TheCapybara
        TheCapybara
        @HearingHell Sorry to hear you're also dealing with dysacusis, it's a hearing issue I never knew even existed until I got it but I guess that goes for everyone. I hope one day it'll just kind of disappear but after almost two years I don't know if that'll still happen lol.
        Jan 24, 2024
        Sointu and HearingHell like this.
      3. Sointu
        Sointu
        @Tryn2BHopeful I havent done audiogram for 1,5 years. Going there soon. I have had 25 db-10 db losses in some frequencies in the past.
        Jan 24, 2024
        Tryn2BHopeful likes this.
      4. Sointu
        Sointu
        @HearingHell I am sorry to hear that. I have had audiogram that has been considered as normal hearing (going to get my hearing checked out after this latest 24/7 loud roaring) and still I have these awful distortions
        Jan 24, 2024
        HearingHell likes this.
    9. Sointu
      Sointu
      I regret ear syringing and microsuction so much. ENT did syringing three times and then microsuction.
      1. gameover likes this.
      2. cyberspace
        cyberspace
        Microsuction shattered my life.
        Jan 24, 2024
        gameover likes this.
      3. Sointu
        Sointu
        I @cyberspace Sorry to hear that :( I am so angry I have struggled for months after that stupid procedure. I believe it caused some hearing loss
        Jan 24, 2024
    10. Sointu
      Sointu
      Today I almost got a panic attack when I thought this roaring tinnitus does not stop and this would be new normal.
    11. Sointu
      Sointu
      Seashell tinnitus and loud roaring in my ear. I hear the weird seashell distortion even when I try to mask it. My hearing feels weird
      1. Nadia231 likes this.
    12. Sointu
      Sointu
      I dont care anymore about this life. Everything sucks with tinnitus. I am sick of trying to be positive and still struggle every day
      1. SilverFox, gameover and tpj like this.
      2. gameover
        gameover
        Sorry to hear that. I am only 1 year. My hope I will be any better is waning. Not with that amount of damage/loudness I have.
        Jan 13, 2024
        Sointu likes this.
    13. Sointu
      Sointu
      Almost 2,5 years of this tinnitus hell. Tinnitus has not got easier. Life sucks every day. I always make mistakes and make my T even worse
      1. BrOKeN_1, gameover and tpj like this.
    14. Sointu
      Sointu
      I felt like I managed with my tinnitus better but after microsuction I feel like I don't deal with t anymore.
      1. gameover and aab like this.
    15. Sointu
      Sointu
      I asked from ENT not to use microsuction because it is so loud but ENT thought there is no other solutions to remove impacted earwax :(
      1. gameover likes this.
      2. TheCapybara
        TheCapybara
        I'm sorry Sointu, my ENT insisted on doing microsuction too. I hope your spike goes down soon. :(
        Nov 7, 2023
      3. MindOverMatter
        MindOverMatter
        Usually impacted wax can be softened with ear drops, and then carefully removed manually with a curette. Anyhow, what's done is done. I've been there myself, and the situation can not be reversed. But your condition can get better, and for most this is a spike. Not permanent worsening. Try not to beat yourself up about it @Sointu , and let time heal you.
        Nov 7, 2023
        Sointu likes this.
      4. Sointu
        Sointu
        In the future I am definitely not making the same mistake ever again. Thanks @MindOverMatter for tips and @TheCapybara for your kind words!
        Nov 7, 2023
    16. Sointu
      Sointu
      I have horrible tinnitus spike after ENT first trying to syringe then microsuction the impacted earwax away.
      1. gameover likes this.
    17. Sointu
      Sointu
      I hope my sudden pulsating tinnitus leaves after ENT removed impacted earwax that could be the cause. :(
      1. Sointu
        Sointu
        Yep. Pulsating tinnitus left (thankfully) after earwax removal but ironic is that overall my tinnitus is worse than before removal. It would be amazing if ENTs had tools that wouldnt be so loud.
        Nov 7, 2023
        gameover likes this.
    18. Sointu
      Sointu
      I still can't consentrate because of tinnitus. I have thought about starting to study again but I do not know am I able to do it.
      1. BrOKeN_1
        BrOKeN_1
        I say go for it. It's either find something else to do. Or put oll your energy into thinking about T. Do it safely but do it.
        Sep 22, 2023
        GG_Ear, Sointu and SilverFox like this.
      2. GG_Ear
        GG_Ear
        Yes I'm glad I have some quiet hobbies that interest me...I literally get so bored of listening to my baseline T that my brain finds something else more interesting to concentrate on... I think it helps that my T is moderate though and I no longer care about it (must be the fight/flight response to it gone). My reactive T/Sound distortions though are more difficult to deal with.
        Oct 21, 2023
        BrOKeN_1 and Sointu like this.
      3. Sointu
        Sointu
        I still deal with fight/flight response because of my T. I feel myself so much dumber after I got tinnitus and I struggle a lot with concentration. I can do a lot of stuff but studying and writing etc feel the most challenging thing for me still at the moment. I try but it is a constant battle
        Oct 21, 2023
        aab likes this.
    19. Sointu
      Sointu
      I feel like my hyperacusis has improved but at the same time my hearing feels worse
      1. aab likes this.
      2. View previous comments...
      3. Sointu
        Sointu
        Slowly my tolerance of sound improved within one to two years but at the same time I feel like I have started to feel more hearing issues with quality of sound. My ears still cant handle volumes such as parties and I get ear fatigue and even pain when pushing limits and my hearing fluctuates.
        Sep 22, 2023
        gameover likes this.
      4. Sointu
        Sointu
        At the same time when my hyperacusis has improved my hearing feels worse, the quality and things sound quieter and less clear. I still have hyperacusis too but like I said it is easier but I cant tolerate sound levels that many people normally do tolerate (I avoid movies, bars, parties). I have especially issues adapting to different sound levels and ear fatigue. I still have reactive tinnitus too.
        Sep 22, 2023
        gameover likes this.
      5. Sointu
        Sointu
        @TindalosKeeper And I feel like my hearing has started to feel worse at the same time when my hyperacusis has improved. Like I have gone from things sound super loud to things do not sound as clear anymore and even muffled and too quiet. But I still cant tolerate sound levels that some do.
        Sep 22, 2023
    20. Sointu
      Sointu
      I forgot to celebrate my second tinnitus anniversary.
      1. 4Grace and 4alien2 like this.
      2. SarahMLFlemmer
        SarahMLFlemmer
        Yey. =|
        Sep 17, 2023
        Sointu likes this.
    21. Sointu
      Sointu
      I feel like I have hearing loss even though my audiogram doesn't show it.
      1. 4Grace and Strawberryblonde like this.
      2. SarahMLFlemmer
        SarahMLFlemmer
        I wonder about me.
        Sep 14, 2023
        Sointu and Strawberryblonde like this.
      3. Strawberryblonde
        Strawberryblonde
        Hidden hearing loss you may have???
        Sep 14, 2023
        Sointu likes this.
      4. Sointu
        Sointu
        Sep 15, 2023
        4Grace likes this.
    22. Sointu
      Sointu
      Ffs. A hyperacusis nightmare bike ride: two loud leaf blowers and loud angle grinder near me.
      1. aab, 4Grace, ECP and 1 other person like this.
    23. Sointu
      Sointu
      Everything sounds quieter and more muffled. And this has lasted for weeks. I hope this just returns to normal. :(
      1. 4Grace likes this.
      2. kingsfan
        kingsfan
        If your hearing is muffled, go to the doc, stat.
        Jul 26, 2023
        Joshua Macleod likes this.
    24. Sointu
      Sointu
      During my latest spike I have had a feeling like I don't hear my own voice normally and I have lost hearing and I have ear fullness.
      1. 4Grace likes this.
    25. Sointu
      Sointu
      "oh i am sorry you have tinnitus, one person I know started drinking so much alcohol to cope with tinnitus and lost his health because ofit"
      1. 4Grace likes this.
      2. Jammer
        Jammer
        Sounds like they're taking the "slow" exit.
        Jul 23, 2023
        4Grace and Sointu like this.
    26. Sointu
      Sointu
      I know benzos and benzo tapering played a large part why I got tinnitus even though I got my tinnitus because of loud noise.
    27. Sointu
      Sointu
      I have tried to live my life and go to loud places too with ear protection and it has been a bad idea. My hearing issues just gets worse
      1. aab and 4Grace like this.
      2. View previous comments...
      3. Sointu
        Sointu
        @Wrfortiscue Yep. I would like to live my life as normally as possible and have fun but I know I always need to pay the price if I go to loud places
        Jul 23, 2023
        aab, 4Grace and Wrfortiscue like this.
      4. Sointu
        Sointu
        @Jupiterman In some ways I have felt happier after doing stuff more again, I have avoided going to some places for 2 years after getting T. But I have to seriously think is it worth it still.
        Jul 23, 2023
      5. 4Grace
        4Grace
        @Sointu I feel like we are alike to some degree. Any positive changes over the two years? My ears just seem to be getting worse.
        Sep 21, 2023
        Wrfortiscue likes this.
    28. Sointu
      Sointu
      I want tinnitus that is easy to mask, stays the same, that can be forgotten. Not this constantly changing T, sound distortion, reactive T BS
      1. gameover and Strawberryblonde like this.
      2. SarahMLFlemmer
        Jul 2, 2023
      3. Strawberryblonde
        Strawberryblonde
        The distorted gmhearing just reminds me that I've fucked my hearing up! If that's wasn't there things would sound "normal" . :(
        Jul 4, 2023
        Sointu likes this.
      4. Sointu
        Sointu
        Yep. The distortions just make my hearing feel so messed up and I am afraid the distortions get even worse :(
        Jul 12, 2023
        Strawberryblonde likes this.
    29. Sointu
      Sointu
      I feel like I can't deal with this anymore. Tinnitus steals all joy from my life.
      1. gameover, PennyCat and TheCapybara like this.
      2. TheCapybara
        TheCapybara
        I know it sucks Sointu, distortions are the worst. Hang in there okay?
        Jun 27, 2023
        Sointu and SarahMLFlemmer like this.
      3. Sointu
        Sointu
        Distorted hearing sucks. I cannot escape it even if I mask my T. I cannot forget it, I don't habituate to it. In the long run I feel like it has got worse. @TheCapybara I try to hang on, it is just so hard at the moment.
        Jul 1, 2023
        TheCapybara likes this.
      4. TheCapybara
        TheCapybara
        @Sointu I know, trust me. I've had it for a year now, and it takes a very long time to settle or heal and that's without setbacks. It reacts to less things now than it did before so I have some hope these high frequency distortions will go away for us one day.
        Jul 1, 2023
        Strawberryblonde and Sointu like this.
    30. Sointu
      Sointu
      More dental work and drilling. :(
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  • About

    Gender:
    Female
    Tinnitus Since:
    08/2021
    Cause of Tinnitus:
    Acoustic trauma (also maybe med withdrawal)