Give It Time. Tinnitus Gets Better.

Ah ye sorry AL 3! Wasn't my intention to turn you thread into a moan fest (loL), I apologize this was a complete wrong place to write what I wrote.... I just wrote because I did hte same thing like posted a positive thread and I'm so ashamed because Iruint my ears again and it all went bad... I don't really have like good reading habits..... sorryh

Can't edit or dleete that post of mine:|

 

It’s not easy I know. I feel sorry for new people in the first few weeks. It’s so devastating when you get it first. You hang on every word posted.. trawling every success story for some hope.
I’ve been through unbelievable hardship with mine but it does get better and yours will improve. The mind is very powerful and can play tricks.. stay positive I deal with loads of people with tinnitus and it will come right for you as it did with them..
I’m sure of it.. there’s always hope
If I can get back to my old self anybody can

 

Thankyou, that is most reassuring

 

sorry al3 - I know mate -
is there any way we could Skype - if so, whats your Skype address????

I have lost my logo for that email address ((

If no Skye can you post your email so I can email you???

Hope this is OK

 

P.s AL# - sorry for the negative post I was just in a tail spin - Ive spoken to a girl on this post who has helped my understand this a bit more and learn not to fear it-thats the key!!!!and I feel that this while not easy is they way to go....

I just wanted to also speak to you as your posts give me great hope and get me thru the day many times.

 

Hello @AL 3

This is my most recent thread. I'd love for you to read it and tell me what you think. A little bit of positivity surely goes a long way for me. Cheers!

https://www.tinnitustalk.com/threads/is-my-respiratory-system-causing-the-ringing-i-hear.32703/

 

Hi Hariz
Have you seen a specialist?
What did they say?
Sounds like ETD which can be treated very successfully

 

Hey steve. How are you doing..
hope all is good

 

im ok AL3 - is there any way we can chat???
Do you have Skype or an email address????

It would be great to chat personally as I love your posts - Im in Sydney AUST, and Im assuming your in the USA??

 

Nope I’m from Ireland
If you get an email address to me I’ll chat to you no prob. I’m not on Skype

 

mate just created a gmail address:

stevetttt2212@gmail.com

I will check it daily to see if your there mate

 

I have seen a doctor, she said ETD could be the cause/contributing factor. I have an appointment with an ENT at the end of the month. Hopefully all goes well and everything gets better.

 

AL3 - have not received email - Im sure it's the right one posted above)

many thx

 

al3 - the email address to get me is definitely

stevetttt2212@gmail.com

would be great to hear from you as your insights give me REAL HOPE!!

 

al3 check your email...cheers Steve

 

Hi Steve, I live in Victoria, so both Aussies. How is your T progress going? I am in early days, only 7 weeks but finding it a bumpy ride. Some better days, some bad ones.

 

Hi, what caused your T?

 

Ototoxic medication I think

 

How has it been so far, your T?

 

nearly 2 months

 

Hopefully it gets better. If you have stopped taking those meds, I think you'll improve and may even heal after some time. You might just need to watch your diet as well.

 

thank you, I hope you are right but today is a bad day - it can really get you down

 

Yeah, there are days like that. I've been there before. Just go through it, distract yourself, find a reason to smile. I'm also kind of having good and not-so-good days alternating, but just like almost anything in this world, this will be temporary. I believe in that fact.

 

Hi @dougwarby -- An acupuncturist I see told me that he's had the most success with patients whose tinnitus began with an ototoxic drug. He works on clearing out the liver and kidney meridians, which allows the body to expel these drugs, and their residual vibrations. I didn't notice much difference from his treatments geared toward my tinnitus, but I've since come to believe the ototoxic drug I took did some very strange things to the muscles in my neck and TMJ area, giving me my tinnitus. -- All the Best...

 

How does that work??

 

Don't really know. -- I experienced a lot of "muscle twitching" and muscle spasming immediately after taking the drug. This kind of twitching is apparently a known "side effect" of taking it. It pulled my somewhat problematic right knee so far out of alignment, that I don't anticipate it will ever fully recover. It did the same with other weak points: lower back, neck, right shoulder, right arm... I believe it did some kind of major spasm on my whole skull and TMJ areas as well. Though this is probably not responsible for all my tinnitus, I think it contributed a pretty high percentage of it.

 

What was the drug you took?

 

Promethazine (25 mg), also known as Phenergen. It's classified as an anti-cholinergic drug, meaniig it blocks acetycholine receptors in the brain and nervous system, including those in the inner ears. Most cold and allergy medications are anticholinergic drugs, and always have the potential to cause tinnitus. I read an account of a man who took a single dose of benadryl, and four years later was still suffering from the tinnitus it gave him.

 

Do you think you could give me a brief summary of what happens if we don't have enough acetycholine?

 

It's a pretty broad topic, but I'll mention a few things as to how I think it relates to tinnitus, and some of the things many of us experience as a result of tinnitus. Perhaps first to know, is that we couldn't move any muscle(s) in our body without acetylcholine. So it makes sense that if you disrupt the natural workings of acetylcholine with inhibiting drugs, you'll get some kind of reaction from muscles. In most cases, and in most people, it will relax them. But for others, it causes the opposite effect, which can bring on muscle twitching and excitability.

When I see how so many people with tinnitus get anxious, and have all kinds of things going on in their ears such as twitching, and pain syndromes, etc., I can't help but think their acetylcholine levels may be low. I've noticed that some people w/ tinnitus have benefitted from taking some kind of choline supplement--such as phosphytidal choline--or eating foods high in choline, such as egg yolks. I've noticed that if I eat an abundance of egg yolks, it has a calming, almost sedative effect on me. -- @ruben ruiz @humptydumpty69

Acetylcholine is also critical for forming memories. Anticholinergic drugs can easily cause a number of memory problems, including Alzheimer's and dementia. Many people, especially the elderly, are often prescribed several anticholinergic drugs, and almost unbelievably, they're only just now beginning to document the direct correlation between dementia and the number of these drugs taken. -- I sometimes wonder if the reason some people with tinnitus can't concentrate is because--in addition to the "distracting" tinnitus--their acetylcholine levels may be on the low side.

I recently read a story of a woman who was given an anticholinergic "patch" to wear on her arm before she want on a cruise ship, to prevent nausea. When she got back after three weeks, her excellent memory had deteriorated badly, and four years later had not improved. -- Here's a link to an article that gives a pretty good overview...

Discovery and Functions of Acetylcholine