TomK
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  1. Rogi Cetpla
  2. SarahMLFlemmer
  3. scared8
Gender:
Male
Birthday:
Jun 4, 1953 (Age: 70)
Location:
Minneapolis MN
Occupation:
retired

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TomK

Member, Male, 70, from Minneapolis MN

I always thought, because of what I had been hearing, that the senior years would be the golden years. Oct 25, 2023

    1. TomK
      TomK
      I always thought, because of what I had been hearing, that the senior years would be the golden years.
      Oct 25, 2023
    2. TomK
      TomK
      Peace is an awesome thought. No noise just peace.
      Oct 18, 2023
      1. L along the way and SarahMLFlemmer like this.
      2. SarahMLFlemmer
        SarahMLFlemmer
        Ugh. Amen.
        Oct 19, 2023
        L along the way likes this.
      3. Nick47
        Nick47
        @TomK I see the meds are working. That's great. What caused your tinnitus? Does it react to external sound?
        Oct 21, 2023
      4. TomK
        TomK
        My Tinnitus started like 8 years ago from loud machines and loud music, it has a blend of hyperacusis as well, where I cannot stand many sounds because they make my T rise.
        Noise outside doesn't affect me much. Music does, my refrigerator is very bothersome. At times I watch tv with no sound while I read the closed captioning, tv does make me crazier!
        WEIRD.
        The meds are still working pretty good so far.
        Oct 23, 2023
        Nick47 likes this.
    3. TomK
      TomK
      Holy Moley Rocky when is the world gonna calm down? My T takes a back seat...
      Oct 9, 2023
      2. SarahMLFlemmer
        SarahMLFlemmer
        The world has to be in chaos for the Anti-Christ to come in "the name of peace." One world religion, one world government. But it'll be a trap. True peace is found only in Christ. It'll calm down when the true King returns. ❤️
        Oct 10, 2023
      3. SarahMLFlemmer
        SarahMLFlemmer
        You asked! =P Glad you're having a "good" T day.
        Oct 10, 2023
    4. TomK
      TomK
      Keep the stress down in your lives for less tinnitus. Prop your head up when lying down to keep the blood flow minimal in your head.
      Sep 29, 2023
      1. SarahMLFlemmer, Juliane and sakrt like this.
    5. TomK
      TomK
      I'm on Gabapentin, Carbamezepine, and Dicyclomine for bad tinnitus > high stress made my tinnitus bad even on those meds I listed above.
      Sep 29, 2023
    6. TomK
      TomK
      Stress is a killer when you have chronic severe tinnitus!
      Sep 29, 2023
      1. PennyCat and sakrt like this.
    7. TomK
      TomK
      I'm scared because the meds might stop working and put me back into Hell. I'm scared because tinnitus is evil. T wants us dead.
      Sep 22, 2023
      2. View previous comments...
      3. kingsfan
        kingsfan
        Gabapentin helps mine to a degree. I don't take it for extended periods because I'm also afraid it will stop working if I do.

        @Ryan Scott I got mine from an ENT at the University of California, Irvine Medical Center
        Sep 23, 2023
      4. TomK
        TomK
        I had an MRI on my brain, the inner workings of my ears and no tumors were found which could be causing the tinnitus.
        Doc hooked me up with the meds, he said he's heard they lower tinnitus so try em out. I have 3 refills.
        Sep 23, 2023
      5. SarahMLFlemmer
        SarahMLFlemmer
        I'm sorry this is so hard.
        Oct 10, 2023
    8. TomK
      TomK
      The thing about the meds lowering my T is HOW LONG WILL THEY WORK? How long until I'm back in Tinnitus Hell!
      Sep 21, 2023
      2. View previous comments...
      3. Jupiterman
        Jupiterman
        If they only lower T for a few weeks, where's the benefit in taking them?
        Sep 21, 2023
        SilverFox and sakrt like this.
      4. TomK
        TomK
        I've been taking them for two weeks, they're working now , i will keep you all up to date.
        Sep 22, 2023
        tpj and RunningMan like this.
      5. TomK
        TomK
        I've been taking them for two weeks and am pleasantly surprised.
        yes indeedy my T is lower.
        I hope the meds keep doing lowering my T. They could wear off after a few more weeks. I hope not!
        Sep 23, 2023
    9. TomK
      TomK
      The meds I spoke of yesterday lower my T immensely, Carbamazepine, Dicyclomine and Gabapentin taken together does the trick at least for now
      Sep 20, 2023
      1. Joe Cuber and stacey like this.
      2. sakrt
        sakrt
        What are the possible side effect risks in long run, do you know? Esp. W/ all 3. @TomK good that it's helping!
        Sep 21, 2023
    10. TomK
      TomK
      Neurologist told me to take these after he did an MRI on my brain looking for tumors causing my T. Carbamazepine, Dicyclomine and Gabapentin
      Sep 19, 2023
      1. cjbhab and SarahMLFlemmer like this.
    11. TomK
      TomK
      I have been using these drugs to lower my tinnitus > Carbamazepine, Dicyclomine and Gabapentin and because of it my T has dropped lots!
      Sep 19, 2023
      1. SarahMLFlemmer, Strawberryblonde, Wrfortiscue and 3 others like this.
      2. RunningMan
        RunningMan
        So it takes all 3? How long have you been taking them?
        Sep 19, 2023
    12. TomK
      TomK
      The more I do the worse my tinnitus gets because of physical activity, the blood pressure rises as I do things, the tinnitus follows along.
      Sep 8, 2023
      1. Juliane likes this.
      2. MindOverMatter
        MindOverMatter
        @TomK Thats very common, but its only temporary. In the long run, physical activity outplays the down in such regard. This also gets better with time, as you just stop to care much about those temporary fluctuations.
        Sep 8, 2023
        Juliane and SarahMLFlemmer like this.
    13. TomK
      TomK
      Good morning tinnitus sufferers :(
      Sep 7, 2023
      2. SarahMLFlemmer
        SarahMLFlemmer
        Morning. ❤️
        Sep 7, 2023
    14. TomK
      TomK
      The really high tones that run through my head at times and disappear are a nice change from the standard bat out of hell noise I live with.
      Sep 5, 2023
      1. SarahMLFlemmer likes this.
    15. TomK
      TomK
      My zest for life is fading away because of my severe Tinnitus, ask a Doctor what to do about it? Lol!
      Sep 5, 2023
      1. sakrt and gameover like this.
      2. SarahMLFlemmer
        SarahMLFlemmer
        Hang in there. Gratitude in every day is key!!
        Sep 6, 2023
    16. TomK
      TomK
      Get your flu shot people!! Who knows it might cure your tinnitus, the doctors can't! Doctors want big dollars to talk to you. Lol!
      Sep 4, 2023
    17. TomK
      TomK
      Doctors can tell you to avoid noise and keep the volume down, and that is about all they can do. Why waste your money on a doctor they quack
      Sep 4, 2023
    18. TomK
      TomK
      Another very noisy weekend with my evil friend , tinnitus. I had a neurologist appt last week, says there is nothing he can do for my T.
      Sep 4, 2023
      1. tpj likes this.
      2. tpj
        tpj
        Evil is exactly what it is.
        Sep 5, 2023
        gameover likes this.
    19. TomK
      TomK
      Scientists haven't done a thing for us tinnitus suffers. HELLO SCIENTISTS!
      Aug 31, 2023
      1. sakrt likes this.
    20. TomK
      TomK
      Our government is on the wrong side of the medical world when it comes to tinnitus. They should research T and not ignor it.
      Aug 31, 2023
      1. Juliane, sakrt and Christiaan like this.
    21. TomK
      TomK
      I blame the US Government for not giving a rats ass about tinnitus. The US Government is not on our side.
      Aug 31, 2023
      1. Juliane, sakrt and gameover like this.
    22. TomK
      TomK
      Piss and moan about something there is no cure for or a medication made to lower the noise? Hell yes!!
      Aug 31, 2023
    23. TomK
      TomK
      Two days in a row with very loud hissing that's driving me over the cliff of no return unless some God heals my audio cortex. Noise sucks!
      Aug 30, 2023
      1. tpj likes this.
    24. TomK
      TomK
      If you're poor or can't afford a tinnitus doctor, I am so sorry. I know the feeling of being a lesser than. Do your best to lower your T.
      Aug 25, 2023
      2. DeanD
        DeanD
        Who do you mean by 'tinnitus doctor'?
        Aug 25, 2023
        TomK likes this.
      3. TomK
        TomK
        In Minnesota there are two Tinnitus Clinics, one in Edina and one in Burnsville. They're people pretending to be doctors is all I can think of.
        $500 per visit. Rip off Doctors!!
        Aug 26, 2023
        SarahMLFlemmer likes this.
      4. TomK
        TomK
        They use talk therapy...
        Aug 26, 2023
    25. TomK
      TomK
      I f I was a wealthy man I could go to the Tinnitus Clinic in Edina where they charge $500 an hour to speak with a tinnitus doctor. SCAMMMMMM
      Aug 25, 2023
      1. SarahMLFlemmer likes this.
    26. TomK
      TomK
      Scientists haven't done a thing for us tinnitus suffers. HELLO SCIENTISTS!
      Aug 24, 2023
      1. 4alien2 likes this.
      2. Anomalous
        Anomalous
        Scientists need funding in order to do anything and there's very little funding in tinnitus research.
        Aug 24, 2023
        TomK and Utdmad89 like this.
      3. Anomalous
        Anomalous
        Tinnitus is the number one disability for american veterans. Meanwhile the US spends monstrous amounts of money on its military evey year, more than the next ten countries combined.
        Aug 24, 2023
        TomK likes this.
      4. Anomalous
        Anomalous
        If just a tiny fraction of a percent of that money had been spent on funding tinnitus research scientists would be jumping at the opportunity to bring millions of people out of disability.
        Aug 24, 2023
        tpj, TomK and stacey like this.
    27. TomK
      TomK
      If they can send rockets into space, they can find a cure for tinnitus, or a medication that lower the noise.
      Aug 24, 2023
      1. sakrt, jimvee and stacey like this.
    28. TomK
      TomK
      Today is going to be a hissssssssing kind of depressing day.
      Aug 24, 2023
    29. TomK
      TomK
      I found an ear doctor who knows what tinnitus is and what drugs make T worse. This doctor is a neurologist. I trust him more GP or ENT Dr's.
      Aug 23, 2023
      1. ECP likes this.
    30. TomK
      TomK
      I found an ear doctor who knows what tinnitus is and what drugs make T worse. This doctor is a neurologist. I trust him more GP or ENT Dr's.
      Aug 23, 2023
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  • About

    Gender:
    Male
    Birthday:
    Jun 4, 1953 (Age: 70)
    Location:
    Minneapolis MN
    Occupation:
    retired
    Tinnitus Since:
    2013
    Cause of Tinnitus:
    Loud machines, music, partying in front of band PA systems.
    CNC Machinist for 11 years and Former Drug and alcohol counselor for 26 years. I ran 4 halfway houses for 10 years as well.

    Tinnitus is the most aggravating thing I have ever come across in my life. It gets so bad I have suicidal ideations.
    How can I live with VERY LOUD HISSING IN MY HEAD DAILY?
    I am alone because of T. I can't go visit people and tell them to quiet down or shut up the kids. So I sit here and watch closed caption TV all by my lonesome.
    I put on sound-proof headphones and live under my rock.
    I'm sick of seeing ENT's, Docs period. They can't do shit.
    The actual T clinics here in Minneapolis want $500 cash up front before they will talk to you.

    I am thinking about "living in van down by the river" and smoking fat joints of ganja until it's ok to come out of my van.

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