That's an awesome idea. Let me know if there is anything I can do to help for the video. The more people that learn how awful this condition can be the more awareness we could raise and the better chance we all are for getting a cure or treatment. Best of luck and great idea for sure!
Right, maybe what I should have said was do something cross site, like Dtube or Vimeo, limiting it to one site may make it harder to get the message out.
Also look up sounds similar to Yours to add to the video as an example to give folks a feel for what it's like, quote key research sites to put facts out, get this community to back You maybe not financially but in other ways, even if as witnesses they could be assets.
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