Drone Draper

That is the plan. I’ve got a decent chunk set aside for a mortgage. Will probs dip into it for Neuromod.

I've seen a few people mention this recently. I would find it torture having nothing to listen to but the cacophony in my ears all night - there's no way I would be able to sleep.

I get that. I think this will vary greatly from person to person and tinnitus to tinnitus. I couldn't wear plugs initially for this reason. We need a cure for this damned thing already.

sitting in silence shit faced love it

Thanks. it could definitely be worse, but it is still hard to deal with at this current level.

i get a little down when i see people my age with earphones. even though they are causing damage

Haha definitely!!

I know. I think a lot of it was a sort of "tough love" situation. I didn't find her overall attitude very helpful, being perfectly honest.

are you done visiting them, or are you going to try again to see if you can find one who will know about them

Good question. I don't think much good will come from going to a fifth one locally, certainly not without asking about Neuromod first. Maybe I will do that to save time. Other than that, obviously I'm watching the Neuromod thread and am subbed to their newsletter. Hopefully they will name someone I can physically get to with ease.

what kind of cock tease

... im so vulgar... im sorry

After tossing salad, there was only one way to go.

My only hope are an actual treatment. At this point, It is about 99,99999% sure my T won't ever fade.......I need a miracle.

There will be a treatment in the near future, and eventually a cure that will fix hearing loss. I'm probably not going to be around to see the latter, but I have hopes for the former.

the cure for hearing loss is the pinnacle for all of us... and when that day comes... we can hit some weed and listen to rock without fear

No, come on. It's just a silly random thought.

lol..oh boy

Where did it go??

#jealous but pleased for you

Give it time and don't get overconfident with your ears. Keep protecting them from loud noises.

Thanks for the well wishes. @New Guy - I've got some musician plugs fitted, they'll be here in a few weeks. Until then I'm using silicone disposable ones for loud environments like the gym.

Awesome, enjoy! :)

Thanks. X

Oh boy!..lol

@OnceUponaTime - hmmm. odd. I'll try messaging you.

Also why can’t it be a disease with many causes? Is this distinction really that important?

Dot worry, you dont have to message me. I just wanted to ask you if the steam inhaler was still working and if you add anything to the water like camphor or essential oils???

I've never used the EarPopper. I see it's got some good reviews, I'll try it. Apparently it's only in one ear, which makes sense because that's the bad ear and they both have the same level of hearing loss.

Yeah EarPopper works good but you need to swallow water while using it. Then it blows out both of your e-tubes. Both of my ears crack now when I swallow which is normal for me.

Thanks for the head's up. I'm on my way to buy it based on the good reviews I've seen. If this can fix the ETD in my bad ear, I've got a sneaking suspicion I could have mild T that I can easily acclimate to like a bluepill normie.

Thanks ladies! I'm hoping we can all get better.

Yesterday mine was super quiet, today it’s like eeeeeeee. Wish I could figure out why! But I do think stress and distraction play a big role and that anyone who is under 18 months still has a good shot at it going away

I just wish it was a bit more logical. I've had spikes at times where I've done nothing wrong in terms of noise/diet/sleep and it's quite frustrating.

Yeah...I texted you. See your text

Can you see our conversation or PM me?

Let me try.

I can’t send you one either

Its your fault.

Don’t blame me, I’m just a drone.

Both. I'll spring for custom if need be.

I'm not in UK but I imagine any audiologist can make em for you

Yeah, I've seen one locally that does them just now.

Betaserc? Fuark. I've heard it's better for the vertigo and dizziness.

Thanks for the tip @Jiri . I used to think socialised medicine was awesome, but the more I learn, the more I think I'd like to live somewhere with private healthcare for now.

Same here. I've asked a GP and an ENT consultant here in the UK about it, and they don't believe in it and turned down my requests for it. Still, we don't know if it would have helped or not. Got to try and keep moving on.

I have to give you props, man. I'm three months in and going stir crazy dealing with this. I want this noise to go. Respect to the people who have had this for a long time and stayed sane.

I wouldn’t say stayed sane I’ve been in a mental hospital twice. Thank fuck something is coming to help

Oh fuuuu. Hurry up, NM.

Yeah, totally. It's annoying yet sad. Also dangerous for us to be able to exist in this world with so many morons around.

what can audiologists do for us? audiometry is ancient technology and what else is there?

True. I know it's dated tech, but I think for people like myself, who progressively have developed NIHL, it would be a good way to alert people before it got out of hand. I know it wouldn't be perfect, but it's better than the standing is now. We see the dentist every 6 months even if we don't have any issues, so why not the audiologist?

Google " Defoo " and do it.

Thanks @OnceUponaTime , I try to be positive or at least sarcastic. There's a lot of negativity on this board, which is fine in the sense that people should have a place to voice their anger and frustration. I try not to do so myself, but this disease is so bad I can't say I always can.

She's in a better place now. I truly will miss her. We had good times, like the time I was born, but it's over now.

The sad reality... truly unfair!

My nephew caused t in my other ear after screaming in it cos he could see it was winding me up. Still love the little monkey and it went after a few months

I think the scream of a child will be fine in a healthy ear, eventually.

It does happen. Hope it settles soon.

Give it some time. My spikes are completely random it seems, but mine always fluctuate wildly

How loud is your T in general? What do you hear it over?

It settled a little bit, it's still it's regular loudness.

My T is about 40db, I would say. I can hear it in quiet and busy rooms, but not a crowded large room (e.g. train station) or traffic.

(That's to the tune of "Oh Christmas tree")

Unfortunately I was sent back to my nightmare, but earlier on as people boarded the plane that crashed. FML, brain, y u do this? I have a fear of flying and a fear of tinnitus, why do you keep doing this to me?

I understand, too. I know some are trying to get on disability. To be honest, the disability money isn't enough for me, I need a stable salary.

I live in Australia where disability is quite a substantial weekly amount however unless you are ex military I think your chances of getting it for tinnitus are slim.

Yeah, I think it's very tough here. I would rather have a menial security or night porter job than have to deal with all the paperwork.

Yeah, they have to stay in. And I don't think you can do things like change volume. I do like how fuss-free they are otherwise.

What brand and type of hearing aids are you using at present? Are you happy with them?

Using some Widex ones. They are behind the ear. I don't mind them.