Comments on Profile Post by Drone Draper

  1. TheDanishGirl
    TheDanishGirl
    Why can't you listen to music? Do you have severe hyperacusis?
    Mar 22, 2019
    Drone Draper likes this.
  2. Drone Draper
    Drone Draper
    I don't like listening to music on headphones anymore - I feel like I have to crank it up to hear it well enough and I'm paranoid it'll make the T worse. I can't listen to speakers in the office because it's a shared room.

    How are you holding up? I have seen some of your statuses lately, I feel for you :(
    Mar 22, 2019
  3. TheDanishGirl
    TheDanishGirl
    Oh I see. But can't you listen to low level music at home? I really think it is such a shame if you can't enjoy some music every now and then :( Just keep it fairly low, you certaintly won't make T worse.

    I'm okay as of now, even though I am getting very impatient waiting for Neuromod. Thanks for the sympathy.
    Mar 22, 2019
    Drone Draper likes this.
  4. TheDanishGirl
    TheDanishGirl
    I don't use headphones anymore btw. Too risky with T even at lower levels. In the beginning I thought I could NEVER live without my headphones, but today I don't miss them at all. I only miss silence :/
    Mar 22, 2019
    Drone Draper likes this.
  5. Drone Draper
    Drone Draper
    Yeah, I listen to music at home on speakers - lowish volume. Certainly nothing like I used to.

    I totally agree about Neuromod and the drug trials. Patience is a virtue unlike any other. I often hear about how people want to cure their T and enjoy music again. I would be quite happy to never hear music again if it meant no T.
    Mar 22, 2019
    TheDanishGirl likes this.
  6. Drone Draper
    Drone Draper
    I used to lament not having headphones to listen to. Like, if I left home without them, I'd be annoyed that I had to listen to the outside world when I walked somewhere.
    Mar 22, 2019
  7. TheDanishGirl
    TheDanishGirl
    For me, music = life, without it = no life. I could never live without music, no way! I listen to music 70-90% of the day.
    Mar 22, 2019
    Drone Draper likes this.
  8. TheDanishGirl
    TheDanishGirl
    But if my T was very severe I would choose the switch No T/no music, cause for me severe T is totally unlivable. Same with H. But it would be a very depressive sad life without music.
    Mar 22, 2019
    Drone Draper likes this.
  9. Drone Draper
    Drone Draper
    Music is/was my life. I am hoping to get back to listening and playing again. I actually picked up some musician earplugs yesterday! I probably won't ever play live again, but I will definitely get back into playing.
    Mar 22, 2019
    TheDanishGirl likes this.
  10. TheDanishGirl
    TheDanishGirl
    I am happy to hear you will still keep music in your life, even if at a more low/moderate level. I am sure it will do you good.
    Mar 22, 2019
    Drone Draper likes this.
  11. Drone Draper
    Drone Draper
    I often read stories of others' on here and I'm thankful that my tinnitus has not kept me from working or living a kind of normal, but boring life. No more going out to loud venues. I'm hoping Neuromod will help those who use it and that we can one day fix hearing loss.
    Mar 22, 2019
    TheDanishGirl likes this.
  12. TheDanishGirl
    TheDanishGirl
    Yeah, I'm thankful that mine isnt worse, cause it could be worse, but it still brings me down, cause I am a fun/loving person who likes gatherings/parties and other semi-loud events and I can't do those anymore because of H mostly, but also T.
    Mar 22, 2019
    Drone Draper likes this.
  13. HeavyMantra
    HeavyMantra
    It's hard but quitting music is not an option for me, perhaps moreso now than ever.. I look forward to buying some really good speakers that are good for low level listening. Yesterday I was editing music all day without my tinnitus taking away any joy from it
    Mar 22, 2019
    Drone Draper and TheDanishGirl like this.
  14. TheDanishGirl
    TheDanishGirl
    And I miss silence, which was something I vent after everyday, before T. I can still vividly recall the feeling of being in silence: the pure calmness and serenity it brings. Just beautiful.
    Mar 22, 2019
    HeavyMantra and Drone Draper like this.
  15. TheDanishGirl
    TheDanishGirl
    I havent had a single day of silence since this started. If I got one like @Allan1967 did recently I am sure the feeling of relief would feel so overwhelming for me, that I'd cry my eyes out.......maybe one day......one has to have hope
    Mar 22, 2019
    Drone Draper likes this.
  16. Drone Draper
    Drone Draper
    I've had a few days of near silence, probably ones where the T was masked by street/work sounds. I think I would just start laughing and crying if I had silence, most definitely.
    Mar 22, 2019
    TheDanishGirl likes this.
  17. TheDanishGirl
    TheDanishGirl
    Yes, I have also had the odd rare day of low T that could only be heard in a silent room. Those were great and the relief were heavy, so total silence would be the most amazing feeling of relief.
    Mar 22, 2019
    Drone Draper likes this.
  18. Drone Draper
    Drone Draper
    99% of T fading stories that I have read happen gradually, but I have read ones where it was like the flick of a switch. I will take either!
    Mar 22, 2019
  19. TheDanishGirl
    TheDanishGirl
    My only hope are an actual treatment. At this point, It is about 99,99999% sure my T won't ever fade.......I need a miracle.
    Mar 22, 2019
    Drone Draper likes this.
  20. Drone Draper
    Drone Draper
    There will be a treatment in the near future, and eventually a cure that will fix hearing loss. I'm probably not going to be around to see the latter, but I have hopes for the former.
    Mar 22, 2019
    TheDanishGirl likes this.
  21. GSC
    GSC
    the cure for hearing loss is the pinnacle for all of us... and when that day comes... we can hit some weed and listen to rock without fear
    Mar 22, 2019
    Manny, MBH and Drone Draper like this.