Drone Draper

When I first posted here, the BTA had a line on their website that said there wasn't a strong correlation between tinnitus symptoms and the reaction to it. Utter, utter lies.

There's a world of difference between dealing with light hissing and the cacophony of signals that were raging at me in 2018/2019. I remember sitting in a quiet meeting room with colleagues and I could hear an undulating alarm-style sound over their discussion. I thought "I can't possibly live with this".

I'm planning on putting together a video of sorts on my tinnitus experience, I will post it here when I do.

Nobody can guarantee that your tinnitus gets better, but it honestly can. I pray we one day have better treatments for this than hearing aids and masking sound pillows. Until such time, please keep the faith and please keep speaking with fellow sufferers.

I haven't used Lenire since Christmas though, it's so draining. The thing is so dull to listen to and I've moved offices, so I can't do it at work.

Does this mean that you don't think that Lenire is the reason for your improvement?

Good question. I think Lenire has helped, but it truly is hard to say how much. I have made massive lifestyle changes in the last 14 months, I've not been to a concert or nightclub in that time and I muff up in the gym.

He’s not on here as much anymore, but I chatted to him this week. He’s still improving, except for some bad moments. His T is a sort of white noise nowadays. He’s getting Neuromod, but his T got to such an improvement that he could wait till Neuromod was available more close to home.

Bob is right.

Your friends are buying tickets to a lottery that has a lifetime of torture as the main prize. Chances for the main prize are relatively low. Some might collect the collateral damage later in life.

I never heard about 'T' until I got it. Not sure people realise the severity of 'T' you can only warn them. on a selfish note the more the merrier it appears through the years research has stepped up for hearing problems. Lets hope they find an effective treatment

I had so many tones come and go. I think I'm at a stable point too finally.

The difference between wild fluctuation and a stable 'doooot' is night and day.

Before internet and didn't know to ask questions I went to an ENT that didn't even warn me about noise exposure I called him on it ask for my medical records he refused then I threaten to go to the state he sent me copies (back than it was a paper trail) He doctored the medical records warn to loud noise.

Ice Cube? Lol

You know it!

They use tools such as a curette to scrape the wax out. Go to images.google.com and search for "curette ear tool"

Bauer is correct. They use a curette, which is like a small loop and they scoop it out, essentially.

This is exactly MPP's mission in action, teaching people not to make the same mistakes. Mentally ill laymens on a tinnitus forum are more useful then anyone gives us credit.

100%! MPP >>>>> ALL>> Witchdoctor >> ???? >>> BTA.

haven't people being that for the past decade tho?

It covers your life in excrement. And there's nothing modern science can do.

@HeavyMantra - you should never spar martial arts with people who are wanting to go pro if you don't. I was going to work with bruises and black eyes like I was in Fight Club.

There's an MMA fighter called Renato Sobral, he recently said he can no longer walk in a straight line due to all the blows he's taken.

@Tanni - thanks. Hope you're well :)

Yes, brain trauma can lead to things like severe hormonal changes, personality changes, suicide, irrational violence. All with delayed onset up to several years.

Absolutely. The older I get, the more I worry when I see bad knockouts

You're right, you're right. I'm trying to be positive. I hope you are doing well, too.

https://m.imgur.com/r/traaaaaaannnnnnnnnns/cd1JmPI

It's been good so far, but we don't know what the future holds.

I could have a spike with quickly undulating T again, but I'm living life like Bill Bauer and coping. I've missed out on so many social events now, some of my friends are becoming strangers.

Always a great day when that happens tho

Indeed. When you play the game of corporate drones, you win or you die!

Gonna see if the spike goes down, which hopefully it will as it's only been a couple of weeks. If not, I suppose I'll have to go back on it. Some do say that Mirtazapine actually suppresses Tinnitus, so it may have been making it quieter all this time. No rush for you to come off it though if you're doing well with it - it is great for anxiety.

I'm sorry to hear that. I do get quite hungry, to be honest, I've gained about a stone since being on it. Some of that is muscle, but I can see my muffin top is bigger, lol.

Yes, when I went on I did read a case study where a guy was on, reported a lowering in tinnitus, then tapered off, reported an increase and now is on it for life, basically.


I don't know that I want to be on an antidepressant for life, but it's a single pill I take 1 hour before going to bed. It's not like an insulin shot or anything like that.

@Bob den Hartog - only acoustic! I want to bust this out at an open mic night, just to see the look on people's faces.

Yay, great news. I was wondering what had happened to you recently! :)

:( Don't weave us

How did T go down? Any clue?

I think

1. Radical lifestyle change. Used to hammer my ears with music at the gym, concerts and clubs. No more.
2. Plugging up in loud environments I can't or won't avoid like the gym.
3. Just giving my brain time to adjust to the new, lower sensory input. I think a sudden shift due to noise trauma was the cause of my T. I think my brain is getting used to it.

In turn - yes, yes, no. It's a much nicer room though.

While I'm not a corporate guy that tells me everything I need to know about where you stand. Sounds like you're doing ok and on your way up!

Haha. Honestly, aside from T, everything else has been moving in the right direction the last 6 months or so. I'm even going to get to do some fun stuff in the next months, like colleague and customer co-design workshops. Hope all is well with you, Sir.

I told my friends about my situation and they are aware of what tinnitus is now but they still seem to continue their normal life with headphones, club and concerts.. I feel like people doesn’t UNDERSTAND and CARE what Tinnitus is until it hits them.. it’s not just my friends but majority. People aren’t aware of how big of a role it plays in people’s life...

Wear ear defenders! I'm on team Pro Plug.

Was your T noise induced ?

Yes. Smidge of TMJ at play, also have some ETD in my bad ear (measured by tympanometry test), but by and large NIHL is the cause.

I noticed some crackling while I took few running steps outside. But I do have sinus problems anyway so..

I do have some EDT in my right ear, I just find it odd that the cracking is only when I run.

You should post a new thread with your achievement.

@Drone Draper I think they use MML i.e. minimum masking level to measure subjective tinnitus, it does count as a formal outcome measure. I find this useful in comparing T with those I know who have it IRL

So so true @Drone Draper

I've read on here about a girl with fire alarm T that went away after 10 years

Yes, I do. It's sometimes sharper, right now it's very hissy. Sometimes it is gone, but changed into something else. I wish someone could give a steer. The alarm is only in my ear with ETD (eustachian tube dysfunction), so I guess you could has k your ENT to dhe test on you.

Ouch!

That is very good. I still cannot work/hobby. Why I couldn't choose something else than music...would make this much easier.

Music is very important. I still can't really listen to music without worry. I'm thankful it's not my job.

In-house. Catering. So we try to make porridge a little less dull :)

That was deliciously clever.

It t-oats was, wasn't it :p