Tavia R
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Last Activity:
Jul 13, 2020
Joined:
Apr 21, 2020
Messages:
55
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151

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Gender:
Female
Location:
Utah

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Tavia R

Member, Female, from Utah

4th of July has always been my favorite, I'm in love with fireworks. But I hate it now! I can't get away from the noise or pain! Jul 6, 2020

Tavia R was last seen:
Jul 13, 2020
    1. Tavia R
      Tavia R
      Well...I guess I do have a lot of cute sundresses. That, at least, is going pretty well for me ;)
      1. Bill Bauer, Orions Pain and Steph1710 like this.
      2. Orions Pain
        Orions Pain
        Girl, same. Looking forward to wearing them indoors while I sit in silence lol
        May 9, 2020
        Bill Bauer and aot like this.
      3. Steph1710
        Steph1710
        Me too! Got some nice jumpsuits actually.
        May 9, 2020
        Orions Pain likes this.
    2. Tavia R
      Tavia R
      What I want: sundresses, rock music, a boyfriend. What I have: H, T, migraines, a panic attack that just needs to get over an done with
      1. Lucifer
        Lucifer
        I know how you feel it so limiting. I just hope FX-322 comes out asap.
        May 9, 2020
      2. Steph1710
        Steph1710
        If I could, I would blast my rock music again. Probably didn't help my T in the first place. What bands you like?
        May 9, 2020
    3. Tavia R
      Tavia R
      In pain but I’m at a dinner party right now. Putting on a smile and pulling through. Also, kinda boring- can’t hear anything with earmuffs
      1. Bill Bauer likes this.
    4. Tavia R
      Tavia R
      Woke up in pain this morning, it's going to be one of those days. Not depressed as hell, but ain't no ray of sunshine either. Holding up
      1. LilSass and aot like this.
    5. Tavia R
      Tavia R
      Neurologist finally called me! ENT has been treating me for migraines up to this point because of CoVid crap. Appointment on wed the 13th!!!
      1. Bill Bauer and Steph1710 like this.
    6. Tavia R
      Tavia R
      Semi trucks- just no. I was doing so good this morning until that one caught me off guard. Still feeling it.
    7. Tavia R
      Tavia R
      nails on a chalkboard a new definition. Problem is, I can't cross the other side of the creek to find the source - private property (2/2)
    8. Tavia R
      Tavia R
      My quiet place has been infested by a new noise. There's a loud, high pitched squeaking - like an old gate needing oil. It gives... (1/2)
    9. Tavia R
      Tavia R
      and just turned around and got in the truck. It was my new ear muffs, highest NRR on the market! Like christmas came today XD (2/2)
    10. Tavia R
      Tavia R
      Y'all when the amazon delivery guy pulled up I got so excited I was skipping to meet him. Scared him so bad he dropped the packaged... (1/2)
      1. Steph1710 likes this.
      2. Steph1710
        Steph1710
        Haha! What earmuffs did you buy?
        May 6, 2020
        aot likes this.
      3. Tavia R
        Tavia R
        3M PELTOR X5A Over-the-Head Ear Muffs, Noise Protection, NRR 31 dB from amazon. They're on sale right now for half off
        Also, I look like Princes Leia wearing them because they stick so far off the sides of my head, but ooooh I love them.
        May 7, 2020
        Steph1710 likes this.
    11. Tavia R
      Tavia R
      Doc says cardio's gonna trigger huge migraines to begin with, but in the long run will prevent them. Day 2: Scared will be like yesterday
      1. Steph1710 and aot like this.
      2. Steph1710
        Steph1710
        @Tavia R do they know why you have migraines? Have the checked for raised pressure in your head? Probably worth it. X
        May 6, 2020
      3. Tavia R
        Tavia R
        I haven't heard about raised pressure? If anything, my doctors keep getting after me to eat more salt and guzzle water, I have low blood pressure and get dizzy because of it. Thanks for the input though :D
        May 6, 2020
      4. Steph1710
        Steph1710
        @Tavia R check it out. Honestly. I didn't even know it was a thing. They done a ctv scan where they put dye in your body and check for blockages. Anyway it showed raised pressure in my head. Have you had a scan yet? X
        May 6, 2020
    12. Tavia R
      Tavia R
      My own body giving me jump scares XD People pay good money to walk through haunted houses, and here I am getting scared to death for free.
      1. Bill Bauer, Steph1710 and aot like this.
      2. aot
        aot
        I feel that. My VS was like that some days ago. Woke up and had a bunch of crazy shapes everywhere. Back to baseline now, but it sure was scary.
        May 6, 2020
    13. Tavia R
      Tavia R
      Oh my hell, thought I was gonna die! My T suddenly stopped the high whine and dropped to a low tone. Why's it gotta scare me like that!?
    14. Tavia R
      Tavia R
      I get to inform them I'm actually getting worse, but my coping mechanisms and ability to 'get over it' are improving by the day too :D (3/3)
      1. Steph1710 likes this.
    15. Tavia R
      Tavia R
      ears or head and just calmly proceed with what I was doing. Everytime I have follow ups with doctors they comment I'm looking better..(2/3)
    16. Tavia R
      Tavia R
      Growing up I was such a cry baby, I had the lowest pain tolerance ever. Now, I'll be having a sudden stabbing pain somewhere in my...(1/3)
    17. Tavia R
      Tavia R
      Mosiah 9:18 And the Lord did hear our cries and did answer our prayers; and we did go forth in his might
      1. aot likes this.
    18. Tavia R
      Tavia R
      Doc is talking about trying botox shots to treat my migraines. Let's hope it doesn't come to that, we have a few more things to try first
      1. Steph1710 and aot like this.
      2. Steph1710
        Steph1710
        I'm having a lumbar puncture for my migraines. Have you had an CTv scan? I had one and it showed I have raised ICP. Only found out a couple of months and I've suffered with migraines for years.
        May 4, 2020
      3. Tavia R
        Tavia R
        I haven't heard anything like that, I will definitely make a note to bring all those up to my doctor - anything to avoid botox. Thank you! Good luck with your own hell, punch satan for me
        May 6, 2020
        Steph1710 likes this.
      4. Steph1710
        Steph1710
        Hahaha! I didn't even see your last comment! "punch Satan for me".... dying! I will, don't you worry ;)
        May 13, 2020
    19. Tavia R
      Tavia R
      so much. Just the healthy coping mechanisms. I think everyone out there, struggling with T/H or not should see a therapist. Saves me (4/4)
      1. LilSass and aot like this.
    20. Tavia R
      Tavia R
      where I’ll do my therapy. Keeps the anxiety under control. I don’t know how I’d be managing this without a therapist, she teaches me...(3/4)
      1. aot likes this.
    21. Tavia R
      Tavia R
      serving as my pink noise therapy. I’m finding it’s really helping having such a positive connection with that place to chose it as... (2/4)
      1. aot likes this.
    22. Tavia R
      Tavia R
      The creek that runs through our back yard has always been my favorite place - I live in a swim suit in the summer. And now, it’s... (1/4)
      1. aot likes this.
    23. Tavia R
      Tavia R
      I struggle coping with the fact that people have two sides. I guess I'm too young and naive to understand that people can love and hurt you.
    24. Tavia R
      Tavia R
      She screamed. My sister. She screamed. Why would she do that? Why would anyone on this earth that loves me do something like that to me?
      1. View previous comments...
      2. Steph1710
        Steph1710
        @aot the door slamming in my house is the worst! And cupboards! I get so annoyed and remind them constantly but it just doesn't sink in. I'm sure if they heard/felt what we did, then they'd be a bit more considerate.
        May 2, 2020
        Tavia R and aot like this.
      3. aot
        aot
        My mother does, @Steph1710. She has Menire's, which makes it even more frustrating.
        May 2, 2020
      4. Tavia R
        Tavia R
        @aot I understand the feeling, my mother needs hearing aids but not badly enough that she’s ever bothered enough to go get them herself. I keep trying to get her to get them, maybe then she’d be able to hear just how loud she always is.
        @Orions Pain Yes they can, it’s confusing when they love you right?
        May 3, 2020
        aot likes this.
    25. Tavia R
      Tavia R
      my little brother - love him to death - my family is the most important thing in the world. But I also have to protect myself from them(2/2)
    26. Tavia R
      Tavia R
      Explaining H to a 6 year old is really hard. He really is trying, but he’s just too young to understand. I want a relationship with... (1/2)
    27. Tavia R
      Tavia R
      surprised (it's supposed to be a very painful piercing) I'm like listen lady I'm in here for migraines causing H I'll take this anyday (2/2)
    28. Tavia R
      Tavia R
      So I got both my daiths pierced, the lady was so surprised I didn't even flinch. She was like, "wow, you're tough" she was so...(1/2)
    29. Tavia R
      Tavia R
      Just found out they nominated me as a speaker at high school graduation! I'm in the top 20 in my class with gold and blue cords.
      1. aot
        aot
        Congrats!
        May 1, 2020
    30. Tavia R
      Tavia R
      HYPERACUSIS IS RUINING MY LIFE AND THERE IS NOTHING I CAN DO ABOUT IT! All I can do is tell a bunch of strangers that hurt as bad as I do
      1. RishRamsey likes this.
      2. RishRamsey
        RishRamsey
        I am really sorry to hear this. I am in the same boat, like you, and not much older than you. H is literally ruining my life and I can't help but think how much longer I have. I am fighting every day to probably get a few more years under my belt before I call it quits.
        Just letting you know you are not alone.
        May 1, 2020
      3. RishRamsey
        RishRamsey
        Just reaching out to say that I feel your pain. Exactly in the same boat as you. H literally eating away at my life, and I can't help but think how short my life would be (I am not much older than you).
        So you're not alone. I know hearing this doesn't help your own pain, but maybe it gives you some hope that you're not alone.
        May 1, 2020
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  • About

    Gender:
    Female
    Location:
    Utah
    Tinnitus Since:
    Born with condition
    Cause of Tinnitus:
    Born with condition-recently diagnosed/treated for migraines
    “Life, although it may only be an accumulation of misery, is precious, and I will defend it.” - Mary Shelley, voiced by Frankenstein’s monster