asey20
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asey20

Member, Male, 26, from Toronto

It's been a while since I've been here. Are things looking better for tinnitus treatments since a year ago? Any major updates? Dec 11, 2022

    1. asey20
      asey20
      I'll be gone for a long while. Just wanted to update by saying my T is a lot better and goes away almost completely sometimes.
      1. aot
        aot
        Congrats!
        Sep 20, 2020
        LilSass and asey20 like this.
      2. Kriszti
        Kriszti
        Glad to hear you are better, and take care!
        Sep 20, 2020
        asey20 likes this.
      3. all to gain
        all to gain
        Great stuff. Now protect those ears and don't be careless.
        Sep 20, 2020
        asey20 and Steph1710 like this.
    2. asey20
      asey20
      Does T becoming higher pitch mean it's getting better? What about lower pitch?
      1. HeavyMantra
        HeavyMantra
        I think the only thing that can be said about that is that changing tones/pitch can be good. Unrelenting, constant tinnitus with the same tone/pitch is probably less likely to change/get better. But changing tinnitus might not mean anything.
        Sep 7, 2020
      2. Bill Bauer
        Bill Bauer
        There is something to what HeavyMantra is saying. T being relentlessly at the same level and pitch is the worst. Nevertheless, on its way to "can hear it only in quiet rooms" stage, T goes from high pitch to a buzz, to a high pitch hiss and then to a low-pitch quiet hiss. So I would say that when the pitch is higher, it's not a good sign, whereas if the pitch gets lower, it's a great sign and a major milestone.
        Sep 8, 2020
        GBB likes this.
    3. Steph1710
      Steph1710
      Hey Asey! How's your T today? Has it settled since the onset? I've had T since April this year. Mine varies day-to-day. Never becomes better, never becomes worse. It destroyed me to begin with, and still annoys me now - but I have at least 99% of my life back. It definitely gets easier. :) Just can't use headphones anymore.
      1. Strawberryblonde, LilSass and asey20 like this.
      2. asey20
        asey20
        I would say there has been some improvements. However, I experiencing so many other symptoms it's hard to know anymore. It has definitely gotten better tho.
        Sep 6, 2020
        Bill Bauer and Steph1710 like this.
    4. asey20
      asey20
      Received a free google nest mini with my Spotify premium account. "Hey google, play relaxing nature sounds." Nice! Just what I needed.
    5. asey20
      asey20
      I wanna stick around for the research, but sometimes I stray to other sections and get depressed. I may have to leave TT.
      1. View previous comments...
      2. asey20
        asey20
        @Diesel that's a good idea. I should still probably spend less time on this site as well.
        Sep 1, 2020
      3. all to gain
        all to gain
        Sep 1, 2020
      4. Gabriel5050
        Gabriel5050
        @all to gain you can go on the research section and create a bookmark in your browser. Or you can Google tinnitus talk research news.
        Sep 1, 2020
        all to gain likes this.
    6. asey20
      asey20
      Just wanna say I had a dental appointment a few days ago and my tinnitus hasn't spiked. I took precautions tho. :)
      1. Tanni, Bill Bauer and Lucifer like this.
      2. all to gain
        all to gain
        What precautions did you take?
        Aug 31, 2020
      3. Gabriel5050
        Gabriel5050
        What precautions?
        Aug 31, 2020
      4. asey20
        asey20
        I took NAC and magnesium a few days before. The dentist didn't drill for more than 10 seconds at a time.
        Aug 31, 2020
        all to gain likes this.
    7. asey20
      asey20
      TIL, they can fix a damaged nerve by removing it, graft onto it and put it back, giving sensation back, but they can't cure tinnitus.
      1. Bill Bauer
        Bill Bauer
        What do you want them to do - remove the brain, fix tinnitus, and put the brain back in?
        Aug 29, 2020
        lucy_snow and asey20 like this.
      2. asey20
        asey20
        Aug 29, 2020
        Bill Bauer likes this.
      3. Bill Bauer
        Bill Bauer
        If they remove the brain, T Will in fact fall silent and it will stay silent even after they put the brain back in!

        We're onto something.
        Aug 30, 2020
        lucy_snow and asey20 like this.
    8. asey20
      asey20
      Even if I am making progress, I can't help but feel sad. :( What do I do?
      1. LilSass and aot like this.
      2. View previous comments...
      3. Watasha
        Watasha
        It takes time. Focus on healthy habits consistently. Emotional reasoning is no help. Feeling sad is not a reason to not go for a walk, etc. Turning sadness around is like doing a 180 with a cruise ship, it just takes time. I'd also recommend spending a "limited" amount of time giving back on something. Write your representatives and request funding for research.
        Aug 25, 2020
        Bill Bauer and asey20 like this.
      4. asey20
        asey20
        @Watasha Well I haven't allowed this to prevent me to stop going for a walk. It's one of my joys rn. I also am trying to give back to people i various different ways rn.
        Aug 25, 2020
      5. asey20
        asey20
        I guess I'm getting better everyday, but it's a very slow process.
        Aug 25, 2020
    9. asey20
      asey20
      Yesterday was shitty, but I heard silence today! Gonna try to think about T less now and get my life back.
      1. Bill Bauer, Kriszti and aot like this.
      2. asey20
        asey20
        It's super depressing though when it gets louder at night. I need to learn how to function again.
        Aug 24, 2020
    10. asey20
      asey20
      Today my T was 97% gone for a while. It was amazing feeling. If it stays permanently like that I'm basically cured. I really needed that.
    11. Shizune
      Shizune
      that you in japan?
      1. asey20
        asey20
        Yeah
        Aug 20, 2020
      2. Shizune
        Shizune
        That's cool. Which area? I was able to go earlier this year before all this bs struck. I hope you can go back again one day (because I don't know if I can)
        Aug 20, 2020
      3. asey20
        asey20
        Aug 21, 2020
    12. asey20
      asey20
      I must've messed up somewhere to be here. I wish I could go back in time and fix it.
      1. WillBeNimble
        WillBeNimble
        Same.
        Aug 19, 2020
        Bill Bauer likes this.
      2. sensualmosquito
        sensualmosquito
        Feel you there.
        Aug 20, 2020
        Bill Bauer likes this.
    13. asey20
      asey20
      Kept getting fleeting T today. Tinnitus is louder now after a few days of mostly quiet. Idk if good or bad sign. Disappointed...Or not. lame
      1. Bill Bauer
        Bill Bauer
        Ignore the daily trend. What matters is the monthly trend. Few quiet days early on is a great sign.
        Aug 18, 2020
        asey20 likes this.
      2. asey20
        asey20
        Aug 18, 2020
      3. asey20
        asey20
        Thank god. I woke up and it's quiet again. It was so loud last night.
        Aug 18, 2020
        Bill Bauer likes this.
    14. asey20
      asey20
      I had a few "silent" moments today. Gentle hissing is almost silence...
      1. Bill Bauer, aot and Kriszti like this.
      2. asey20
        asey20
        It's not a fluke. My tinnitus is actually reducing after a month.
        Aug 17, 2020
        Bill Bauer likes this.
    15. asey20
      asey20
      Are we all being delusional or is some relief (treatments) coming within the next 5 years?
      1. Lilah, ShaunR, Orions Pain and 2 others like this.
      2. View previous comments...
      3. Bill Bauer
        Bill Bauer
        My uneducated guess is that there is a 35% chance of something that might work for T being released sometime over the next 5 years.
        Aug 16, 2020
        asey20 likes this.
      4. all to gain
        all to gain
        I'm 50-50! Some days I think it's delusional, other days I think our saviour (or at least a little help) is around the corner.

        You are still very new to this. Protect your ears and stay away from loud noise and ototoxic medications.
        Aug 16, 2020
        Bill Bauer and asey20 like this.
      5. asey20
        asey20
        @Bill Bauer Those aren't bad odds. Guessing the odds of something being released the next decade is even higher.
        Aug 16, 2020
        Bill Bauer likes this.
    16. asey20
      asey20
      Well officially 1 month with tinnitus. Guess it's not going away.
      1. View previous comments...
      2. asey20
        asey20
        @sleepingsiren at least if I could pick my noise. Thanks. I hope it goes away too, or we make it to a future where there is better treatments.
        Aug 14, 2020
      3. asey20
        asey20
        I'm just really depressed. There is this girl I like that I see being in my future. I just don't know how stable I can be or want to ruin her life because I lose it. :( I used to look to the future but I don't anymore. If this could go away or get reduced and more manageable I think I'd be able to look ahead again.
        Aug 14, 2020
      4. Bill Bauer
        Bill Bauer
        Trust me, it would have been 1000 times more exhausting if it were to be super loud 100% of the time.
        Aug 14, 2020
    17. asey20
      asey20
      The problem is that it's not just a noise, it's a sensation.
      1. ASilverLight likes this.
      2. View previous comments...
      3. asey20
        asey20
        Aug 12, 2020
      4. GBB
        GBB
        What sensation do you have? I feel like nails on chalkboard/tickling in my ears for 45 days and it's driving me nuts.
        Sep 8, 2020
      5. Bill Bauer
        Bill Bauer
        If you've had it for more than 3 months, it will probably stay. Until that time there is still hope that it is temporary.
        Sep 8, 2020
    18. asey20
      asey20
      So hard to stay positive when everyones battle with T is different. I've been having near silent mornings last 2 days. It will fade.
      1. Bill Bauer, Tanni and Christiaan like this.
    19. asey20
      asey20
      Going to focus on myself and stop updating. I hope that someday it will go away, get lower and stop bothering me or there will be treatment!
      1. Tanni and Adaś like this.
    20. asey20
      asey20
      Woke up at 5am and it's so loud. Honestly, I don't think this will get better. I'm exhausted.
      1. View previous comments...
      2. Bill Bauer
        Bill Bauer
        > However it's just been pretty loud the last 24 hours and I'm having a tough time telling if it's getting better or not.

        You need to wait for several months to be able to tell whether it is getting better. Ears heal very slowly.

        I believe that HeavyMantra's experience isn't common. It is also possible that eventually the fraction of the good days will keep increasing, but of course nothing is guaranteed.
        Aug 6, 2020
      3. asey20
        asey20
        @Bill Bauer It is true that I seem a bit better after waking up right now. I'll try and be patient and find a way to deal with my anxiety I guess.
        Aug 6, 2020
      4. Bill Bauer
        Bill Bauer
        The daily trend has too much noise and is meaningless. Focus on the monthly trend.
        Aug 6, 2020
        Christiaan likes this.
    21. asey20
      asey20
      I can no longer gauge the sound of my T. Don't know if it's getting quieter or not or if I'm making progress. Pretty tired of this.
    22. asey20
      asey20
      Turns out it actually is getting quieter. Can barely hear it in the car anymore. I will keep doing what I'm doing. Less anxious now.
      1. View previous comments...
      2. asey20
        asey20
        Aug 5, 2020
        Bill Bauer and sensualmosquito like this.
      3. sensualmosquito
        sensualmosquito
        Thats what I'm periodically noticing too. It'll be a while before things improve. It takes forever. Im only 2 months in right now myself.
        Aug 6, 2020
        asey20 likes this.
      4. Bill Bauer
        Bill Bauer
        When it comes to forecasting one's likelihood of recovery, what matters is the monthly trend and the global lows. What happens on any given day (e.g., a spike) isn't important.
        Aug 6, 2020
        asey20 likes this.
    23. asey20
      asey20
      It's been 3 weeks now. Is there any reason to be optimistic that it will go away or there will be treatments in the future?
      1. View previous comments...
      2. asey20
        asey20
        @Bill Bauer i hope so. I'm having trouble coping sometimes. It seems to fluctuate a lot, however I can't tell if that's just because I'm not focusing on it or it actually is changing.
        Aug 4, 2020
        Bill Bauer likes this.
      3. Gabriel5050
        Gabriel5050
        Yes and yes.
        Aug 4, 2020
        Bill Bauer, CroakyBat and asey20 like this.
      4. asey20
        asey20
        I'm glad you guys are optimistic. Let's hope good things happen for all of us via treatment or time!
        Aug 4, 2020
        Bill Bauer likes this.
    24. asey20
      asey20
      Seems like noise doesn't spike my tinnitus. I guess that is good news. Still not trying to cause damage.
      1. aot and Lucifer like this.
      2. Bill Bauer
        Bill Bauer
        The next 2-3 years or so you will likely be vulnerable. You might not be getting temporary spikes, but that doesn't mean you won't get a permanent spike.
        Aug 4, 2020
    25. asey20
      asey20
      Not sure if it's getting quieter or I'm dealing with it better. I'm sure it's both. One step at a time I guess. It may even go away someday.
      1. Tanni likes this.
      2. Bill Bauer
        Bill Bauer
        Habituation happens when one is about 2-3 years in. So your T is probably getting quieter.

        A common outcome is getting to the "can hear it only in quiet rooms" stage. Of course some people report hearing complete silence.
        Aug 3, 2020
        asey20 likes this.
      3. asey20
        asey20
        That's good news then. Let's keep the progress going. Sleep has been helping and I'm starting to sleep better. Even if this goes away I will I'll stay on this forum to support the cause.
        Aug 3, 2020
    26. asey20
      asey20
      Surprisingly, my T is bothering me less today. It is quieter albeit still noticeable sometimes. Healing maybe? I hope. :)
      1. Bill Bauer likes this.
      2. asey20
        asey20
        Nights are still bad but at least I get some bliss in the mornings now.
        Aug 3, 2020
    27. asey20
      asey20
      Went to ER and the doc had T. Told me he just doesn't think about it. Guess I'll just have to live with it then and hope it gets better.
    28. asey20
      asey20
      Starting to forget what true silence sounds like. I still feel like I have some silent moments thought idk if my brain is tricking me.
    29. asey20
      asey20
      Woke up today with T almost non existent in left ear (even with ears plugged). Not sure if right ear got better too. Still getting bad sleep
      1. View previous comments...
      2. tbuzz89
        tbuzz89
        This is a good sign. You're going to experience ups and downs but from everything people say on here, the early fluctuations are a good thing.
        Aug 1, 2020
        asey20 likes this.
      3. asey20
        asey20
        I hope so
        Aug 1, 2020
      4. asey20
        asey20
        Isn't it strange how it can become barely noticeable in the morning but gets worse. Especially the more that I think about it. Must be a sign that I can eventually get this under control to a point where I'll barely notice it.
        Aug 1, 2020
    30. asey20
      asey20
      This is pure torture. If my right ear could just stop a reach the same level as my left ear I would be fine. I can't sleep.
      1. View previous comments...
      2. asey20
        asey20
        I also noticed that my left ear gets louder when I plug it in but my right ear doesn't really get louder anymore. Idk what any of this means or if its good signs. I guess its good that there isn't tones really present and its mostly static sounds and sensations.
        Aug 1, 2020
      3. asey20
        asey20
        Anyways, thanks guys for the support. It's been helpful and I don't think I could make it without the support. Sometimes I cannot really hear it and I feel normal again. I guess this is good and hopefully this continues to be the case.
        Aug 1, 2020
      4. Tanni
        Tanni
        Yes, Tinnitus generally does fluctuate A LOT at the start. That's totally normal and expected. As time goes on, it will generally settle down and lessen, if not disappear. Try to only read the success stories on this site if the support forum is making you anxious, and give it time.
        Aug 1, 2020
        asey20 likes this.
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  • About

    Gender:
    Male
    Birthday:
    Jul 2, 1997 (Age: 26)
    Location:
    Toronto
    Occupation:
    Computer Science
    Tinnitus Since:
    July 13, 2020
    Cause of Tinnitus:
    Not sure.
    一日一歩。One step at a time.

    Elon Musk's neurolink will cure tinnitus.
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