Croaker
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Apr 18, 2024 at 10:17 PM
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Croaker

Member, Male

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I wish I could have a dog. Jul 31, 2023

Croaker was last seen:
Apr 18, 2024 at 10:17 PM
    1. Croaker
      Croaker
      I wish I could have a dog.
      Jul 31, 2023
      2. SarahMLFlemmer
        SarahMLFlemmer
        Puppy?
        Aug 1, 2023
    2. Croaker
      Croaker
      Inner ear H symptoms (stabbing/palinacousis) respond only to rest. Middle ear issues respond better to mood/sound exposure/supplements.
      Jul 17, 2023
      1. Lucifer likes this.
    3. Croaker
      Croaker
      Almost 3 years into H. Minimal improvement during past year. Still vulnerable to setbacks. Need WFH/quiet job but no relevant skills.
      Mar 20, 2023
      1. Tiles and Lucifer like this.
    4. Croaker
      Croaker
      H is better after two years. still using plastic dishes and wearing earpro when cooking/cleaning/when my parents forget to use inside voices
      Jul 25, 2022
      1. Joe Cuber, NYCGuy, Wrfortiscue and 1 other person like this.
    5. Croaker
      Croaker
      My H is somewhat better. Haven’t kept up with research after FREQ/OTIC failure, too depressing.
      Aug 6, 2021
      1. GoatSheep, Vassili, danielthor and 2 others like this.
    6. Croaker
      Croaker
      Just got the first dose of the Pfizer vaccine. Soon I’ll be free to rejoin society... oh wait.
      Mar 26, 2021
      1. Watasha, Marin, Lucifer and 5 others like this.
    7. Croaker
      Croaker
      Best day for H in a long time. Consumed 40g of kava yesterday.
      Dec 31, 2020
      1. HeavyMantra, GBB, buttercake and 3 others like this.
    8. Croaker
      Croaker
      I would have gone bonkers long ago without my green tea. Thank goodness for the Japanese.
      Dec 14, 2020
      2. View previous comments...
      3. Croaker
        Croaker
        No but it tastes great, the ritual of making it is fun, and it reminds me of better times.
        Dec 15, 2020
        starrynights, Steph1710 and GBB like this.
      4. twa
        twa
        I had green tea today for the first time in 3 years. I had loud T all afternoon.
        Dec 15, 2020
      5. HeavyMantra
        HeavyMantra
        Tea has been my saviour this past year.. Although I've mainly been drinking pu'erh and Yunnan white tea. Come spring though, I'll be drinking sencha again.
        Dec 15, 2020
        Croaker likes this.
    9. Croaker
      Croaker
      Woke up during a REM cycle last night, VS was crazy. The center of my vision was red with faint weird lines. Gone in the morning.
      Dec 10, 2020
      1. Bill Bauer likes this.
      2. weab00
        weab00
        my VSS is always crazy after first waking up, wonder what the explanation is
        Dec 10, 2020
      3. Orions Pain
        Orions Pain
        I see little white x shapes everywhere if I wake up at night :(
        Dec 10, 2020
    10. Croaker
      Croaker
      Anybody with Pain H/VS tried Kava?
      Dec 9, 2020
      2. Croaker
        Croaker
        I just ordered a couple varieties from kalm with kava. Supposed to be a good vendor, better than the supplements etc.
        Dec 9, 2020
    11. Croaker
      Croaker
      My T has been constantly changing since my H setback. Sounds like dial up tones right now
      Nov 10, 2020
      2. vermillion
        vermillion
        Yeap. Same
        Nov 11, 2020
    12. Croaker
      Croaker
      Anybody with H tried hallucinogens? A heavy experience with LSD 5 years ago taught me to respect them but I’m still curious
      Nov 6, 2020
      1. 100Hz likes this.
      2. View previous comments...
      3. GBB
        GBB
        Nov 6, 2020
      4. TrevorSanders
        TrevorSanders
        I swear VSS is way more common than people think. All of my close friends see static when looking at a blank wall.
        Nov 6, 2020
      5. weab00
        weab00
        @TrevorSanders Do they get negative afterimages, blinded night vision, light sensitivity, blind spots, intense static, flickering vision, and more? Everyone has a certain amount of visual noise, but certainly not visual snow syndrome.
        Nov 6, 2020
    13. Croaker
      Croaker
      I believe I can see the future, cause I repeat the same routine
      Nov 3, 2020
      1. Marin and ShaunR like this.
      2. Marin
        Marin
        Everyday is exactly the same ☹️
        Dec 3, 2020
      3. Marin
        Marin
        Gawd I miss listening to music!!!
        Dec 3, 2020
        Croaker likes this.
    14. Croaker
      Croaker
      How am I supposed to recover from this setback when chewing any food irritates my ears?
      Oct 29, 2020
      1. GBB, Lucifer, aot and 1 other person like this.
      2. View previous comments...
      3. xyz
        xyz
        What has happened? Somewhere I read that you have improved. The crunchy crackling food I avoid also or my eardrum spasms.
        Oct 29, 2020
        Croaker likes this.
      4. Croaker
        Croaker
        I made the mistake of speaking with my normal voice for too long. Thankfully, the irritation from eating is not as bad today. So I hope I can still improve instead of being stuck in a permanent setback.
        Oct 29, 2020
        xyz likes this.
      5. Bill Bauer
        Bill Bauer
        It ought to improve. Most T and H spikes are temporary spikes.
        Oct 31, 2020
    15. Croaker
      Croaker
      it’s been said many times before but it sucks to wait years for something that already exists in a lab.
      Oct 28, 2020
      1. weab00, TrevorSanders, Lucifer and 2 others like this.
      2. TrevorSanders
        TrevorSanders
        I seriously don't understand why T sufferers can't try research drugs as long as they pass phase 1 trials.
        Oct 28, 2020
      3. weab00
        weab00
        Oct 28, 2020
    16. Croaker
      Croaker
      rotting away in my room, watching my family age. can’t even use my normal voice to talk to them.
      Oct 27, 2020
      1. Taw, Lucifer, 100Hz and 4 others like this.
      2. ShaunR
        ShaunR
        Know the feeling mate. I've died on the inside. I keep smiling and living and working for my kids
        Oct 27, 2020
        Croaker and Nadia231 like this.
      3. Gabriel5050
        Gabriel5050
        Bro, if I were physically there I'd give you a long hug and a pat on the back.
        Oct 27, 2020
        Croaker likes this.
      4. weab00
        weab00
        Yup that's how it is these days. Really want to move off the grid but would need to support myself with a farm. I like @GBB 's idea of moving to a South American hut.
        Oct 27, 2020
        Steph1710 likes this.
    17. Croaker
      Croaker
      sometimes my ear spasms when I bump into something and I expect noise, even if it doesn’t actually make a sound.
      Oct 25, 2020
      2. Croaker
        Croaker
        it also happens (rarely) when I scratch an itch on my leg. so many crossed wires in my brain
        Oct 25, 2020
      3. Nadia231
        Nadia231
        My ears spasm with every tiny sound, when I chew crunchy stuff and even when I scratch (touch) my face, cheek or earlobes... Doesn't make sense
        Oct 25, 2020
        Croaker likes this.
    18. Croaker
      Croaker
      OTO 413, SPI 1005, XEN 496 are the drugs I’m feeling for H. Synapses, inflammation, Kv7 channels... at least one should work.
      Oct 24, 2020
      1. Gabriel5050, serendipity1996, aot and 1 other person like this.
      2. View previous comments...
      3. Michael01
        Michael01
        In my humble opinion I think that FX-322 and OTO 413 are the closest to being released as SPI-1005 is still going through phase 2 testing. The other ones seem much closer to being released.
        Oct 24, 2020
        Lucifer and Croaker like this.
      4. Croaker
        Croaker
        @Michael01 SPI 1005 is a wildcard because of its relevance to Covid. If it’s successful in current testing it could be approved pretty quickly.
        Oct 24, 2020
        Michael01 and Steph1710 like this.
      5. Michael01
        Michael01
        Hopefully it is approved,even though it's a wildcard. Anything to kill this hellish thing that's ruining my life.
        Oct 24, 2020
        Steph1710 and Lucifer like this.
    19. Croaker
      Croaker
      sometimes, repetitive sounds like distant sirens or crickets stick in my ears for a while. not loud but very disturbing.
      Oct 21, 2020
      1. Steph1710 likes this.
      2. Croaker
        Croaker
        Actually I think it’s just a changing T tone... it sounds similar to very distant crickets. mixed with a car alarm. hard to keep track of all the noises in my head
        Oct 21, 2020
    20. Croaker
      Croaker
      Always get an eerie feeling when I notice that the grammar elves have worked their magic on my posts. “Did I say that? Is any of this real?”
      Oct 18, 2020
      1. serendipity1996, Steph1710, aot and 1 other person like this.
    21. Croaker
      Croaker
      5 months since H started. Better in some ways but no end in sight.
      Oct 7, 2020
      1. Nadia231, aot and Lucifer like this.
    22. Croaker
      Croaker
      fleeting T is becoming really common. it's happened 4 times today
      Sep 28, 2020
      2. View previous comments...
      3. Bill Bauer
        Bill Bauer
        Some people (myself included) think that this might be our bodies' way of attempting to recalibrate and get rid of T.
        Sep 28, 2020
        Mymlan, Steph1710 and Nadia231 like this.
      4. Steph1710
        Steph1710
        Sep 28, 2020
        Bill Bauer likes this.
      5. Mymlan
        Mymlan
        I started having daily episodes with fleeting T about 3 months ago.
        Oct 1, 2020
    23. Croaker
      Croaker
      I wonder why alcohol helps with H fullness/ache. is it affecting the trigeminal nerve, relaxing tmj, distracting the brain?
      Sep 15, 2020
      2. Croaker
        Croaker
        not endorsing abuse. alcohol is a powerful drug. but a pour of whiskey is definitely helpful sometimes.
        Sep 15, 2020
      3. ShaunR
        ShaunR
        Same here that and a cigar
        Sep 15, 2020
        Croaker likes this.
    24. Croaker
      Croaker
      crunchy ear + eustachian tube feeling stuck open sometimes = trigeminal problem. how do we get that nerve to chill out...
      Sep 14, 2020
      1. Daniel Lion likes this.
      2. Croaker
        Croaker
        my tmj is worse on that side as well. and it’s where my t started after plopping my head on my pillow. but t spread to my other ear a few days after onset... so it’s in the brain too.
        Sep 14, 2020
    25. Croaker
      Croaker
      house-shaking thunder for hours now. huddled up with my old dog, not sure who’s more disturbed
      Sep 9, 2020
      1. Daniel Lion, Steph1710, sleepingsiren and 1 other person like this.
    26. Croaker
      Croaker
      I keep hitting a “ceiling” in my H recovery but it seems to have slightly increased over these 4 months.
      Sep 2, 2020
      1. Bill Bauer and aot like this.
    27. xyz
      xyz
      How are you doing? Is your H improving?
      Jul 14, 2020
      2. Croaker
        Croaker
        Improvement in some ways, the fullness is uncommon, but the pain is about the same. I took a break from here since the research results we’re all waiting on won’t be released for a while. Thanks for asking.
        Aug 11, 2020
      3. xyz
        xyz
        For me too. Probably takes a while for this to improve.
        Aug 11, 2020
        Croaker likes this.
    28. Croaker
      Croaker
      Tried lipo flavonoid only because a family member gave me a bottle. Ran out yesterday, T is spiked today. Placebo is a funny thing.
      Jun 26, 2020
    29. Croaker
      Croaker
      It’s fun to follow the SpaceX streams and Starship build updates. Tangible progress in a stagnant world. It distracts me for a time.
      Jun 15, 2020
    30. Croaker
      Croaker
      I’m a prisoner in my body. Had H for 40 days now. Can’t survive years of this. Have to remind myself that some symptoms have faded slightly.
      Jun 9, 2020
      1. Lucifer and BBakkers like this.
      2. BBakkers
        BBakkers
        It's shit, but will get there!
        Jun 9, 2020
        Lucifer and Croaker like this.
      3. Croaker
        Croaker
        Yes, somehow. Too many things I want out of life to give up yet.
        Jun 9, 2020
        Kriszti, Lucifer and BBakkers like this.
      4. BBakkers
        BBakkers
        Exactly. So keep on fighting and hopefully in years you can look back at how well you handled the most shittiest situation.
        Jun 9, 2020
        Croaker and Lucifer like this.
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  • About

    Gender:
    Male
    Tinnitus Since:
    01/2019 T, 04/2020 H
    Cause of Tinnitus:
    Headphones/Car Alarm/Immune Response?

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