bethadtr

@Bill Bauer i did in the beginning, and have noticed it less over the months. I had another acoustic trauma about 4 months in which is now fading again slowly, but it bothers me less overall!

@Steph1710 I’m optimistic for you! You seems to have experienced some great fading. Here’s to better times and a cure! :) x

@bethadtr give it time, it will most likely go away...

Happy Winter Solstice Beth!! And Happy Yuletide! x x x

@aot no I took them out in the store as it was really quiet, obviously not the smartest idea! :(

@Bill Bauer no spike as of yet, mine normally take a few days to appear though weirdly. Thank you though!

Did it go away?

I think it's just the way it is. My tinnitus is different sounds and volumes every day, all throughout the day. It's never the same. *hugs*

@Steph1710 hope youre doing ok Steph! X

@bethadtr I'm actually doing a lot better than I was a month ago. T has been very quiet, apart from a week's spike from mountain biking. I went over loads of trails and it wasn't good on the ears. Way too much vibration. :(
Has your T settled down after this weird tinny thing they did? Xx

Yes

My T presented itself during a Friends episode (earbuds in ofc): No one told you life was gonna be this way. How ironic. :(

@Kriszti omg !! That’s crazy, isn’t it weird that it happened like that? Guess we have to see the the humour in it some how

Well mine started after cleaning the bathroom, listening to a podcast about happiness and being still and at one with yourself. Haha. F*#king brilliant! I still say antibiotics weakened my ears, and then listening to the speaker in a small and echoey room really finished them off.

@TrevorSanders in envious I wish I had it since birth because then I wouldn’t question it! Has yours stayed the same over the years?

Is it getting worse for you, or just your reaction to it? Mines stayed The same for 18 years

@orbiter12 no it’s gotten worse, my closed eye hallucinations are hell and I’m struggling to sleep. Feels like I’m travelling through space when I close my eyes :/

Take NAC

If you don't experience a spike when you wake up tomorrow (or earlier), you ought to be ok. Most spikes are temporary spikes. For now it makes sense to assume that in the long run you will be ok.

Hey Beth, I know it doesn't help, but I've unfortunately had a few people laugh/scream near my ears, and definitely a couple of naughty dogs bark right next to my head - and I was actually okay. Have you noticed a spike yet? Best to try not to focus on what happened, because you might worry over nothing and make it intentionally worse. Sending love x x x

That's not a good development.

There is still a reasonably high chance that eventually you will be back to your static T. Do you have any idea what might have caused this change?

@Bill Bauer accidental loud noise exposures over the months I guess, people shouting too close to me :(

I have the same concern, psychiatrist wants to put me on some AD because of depression caused by H. I'm terrified of it worsening, T, H, VSS, and any other underlying condition I have. Also the side effects like anhedonia, sexual dysfunction, and weight gain scare me. Psychiatrist was acting like none of these side effects exist.

Please consider what your doctor has advised regarding AD, because tinnitus can seriously affect a person's mental and emotional well-being if not managed. Please click on the links below and read my articles.

Michael
https://www.tinnitustalk.com/threads/can-antidepressants-and-other-medications-help-tinnitus.18466/
https://www.tinnitustalk.com/threads/tinnitus-and-mental-health.21978/

I agree. I blamed musicians the most even though they do have tinnitus they don’t even explain the severity of it and no wonder why no one takes tinnitus and hyperacusis seriously. I hope one day theres someone out there that will tell people about the severity of these conditions. It’s not a joke.

Can't beat yourself up about something you didn't know would happen.

I think about all the times I'd blast my AirPods riding on the NYC subway back and forth to work everyday, and for six years! Never had a problem before this year. Never thought twice about it, and at the time, was never warned. I still struggle and blame myself but it's not your fault.

Uhhrr!!! My worst fear. Hope your okay.

My eyes are doing the same things as they did the last time before my VS came on, (eye-twtching, headache, blood shot eyes) and I just have this gut feeling :( @Steph1710

Well I don't want to jinx myself because I don't have VS, but I do suffer from red eyes (which I absolutely hate), eye twitching, and headaches. So I can sympathise Beth. :( sending massive hugs your way. Just to think we were probably healthy this time last year. <3

@Steph1710 it’s just so odd, so hard to know what tomorrow will bring with incurable conditions :( I’d do anything to go back 5 months ago, I didn’t know what suffering was like. But in a way, we aren’t unhealthy, in fact getting VS & T has made me healthier... don’t see yourself as un well, just see it as part of you. Thanks Steph, hope you’re ok <3

I still have fleeting T quite a bit, but not as much as I was having it. A month or so ago, I was having fleeting T regularly through each day. I probably only have it twice/three times a day now.

Thanks guys

@Bill Bauer What makes you say that?

You are very lucky! Hope it completely goes down to your baseline

Yay! Good grief. <3

That is awesome Beth! glad to see someone recovering from a spike!

I notice that as hyperacusis and T gets worse, so does my VSS

I've had VSS for years. I think I just notice it more, because it's still really mild. I also assume this is because I'm just tired all the time more than any other reason.

I actually don’t think so. When you have spikes, does the VS increase at the same time?

Hi Beth. Trust me, it will go down again. It's going to take a while, but it seems your T journey has been pretty similar to my own (I've read your posts). I had only a static hiss and unfortunately experienced a terrible spike after an ear infection (I think) but after 4/5 months, it has almost gotten back to baseline. It takes ages sometimes. Don't stress too much.

My best advice is to carry on as you were before, even though the sound is so intrusive, and eventually it will start fading without you realising it. <3

@Steph1710 Hi Steph. Thanks for the reassuring words, I really appreciate it. I’m hoping it fades over time I really do, I have VS too so I’m worried my T worsening will affect that too, but I could just be overthinking. Just so disheartening when I was finally accepting my T and getting back to normal, I guess recovering is never linear! Thanks again. Hope you’re well <3

Don't give up! Most spikes are temporary!

Is it bilateral? How does your T increase? Is it gradual or like a sudden permanent spike? Mine has been horrible for 9 weeks since huge spike :(

@Bill Bauer she is, although I don’t think she realises how sensitive my ears are - no one understands T until they get T I guess. It was an accident of course, but I am just so upset. My T is mild and I protect my ears all the time, all for it just to be gone in a second.

@dan nothing as of yet but my ear is hurting badly and the pressure is there, give it a few days and I can just feel a pure tone coming on over my usual mild static. So worried :(

dont worry you're young and beautiful, everything will be great. You think you know what being at wits end is, but luckily for you, you dont and lets hope you never do...

dancing in bars is not something to miss...

Hey Beth. Same thing happend to me today. No effects yet, but I'm nervous. Do you take any supplements?

@aot hey man, oh no fingers crossed you’ll be ok. Mine was right next to my ear so I was expecting it :( it took 2 days for mine to show up. I do! I take a lot but mainly magnesium, zinc, B2, B12 & D.

It will most likely be temporary. If it doesn't get better after a month, THEN there might be a good reason to be worried about it.

I've had the same thing in my head for a number of years. It does get better eventually,but not overnight. I'd advise you to see a neurologist and have your head thoroughly checked out.

Give it at least three months, or even a year or two. Only then you will have a better sense of what the long run hold for you.

I have but many people describe it as a sound, I can feel my actual pulse throbbing on my temples, like a bad headache. But this has been going on for 3 days now non stop, I can’t hear it unless I put my head to a pillow, idk if it’s normal or not? @Steph1710 x

Is it normal? I’ve had it before for moments when my pulse has become elevated for some reason, but this has been non stop. I can literally feel my pulse twitch in my temples, but I can’t hear it as such. It feels like my head is throbbing like a headache, it’s driving me nuts ;( @ASilverLight

I don’t have it nonstop so I dunno about that, but I definitely get the feeling too

You will recover from it. I have made loads of mistakes since developing T. My biggest was thinking I'd be alright driving without ear protection - turns out I was wrong! I've recovered from it though. <3 it's all a learning game from now on.

You’ll recover. My T used to spike because of anything and I’d be scared to go outside without earplugs due to random car alarms or bikes etc. I never wear earplugs for anything anymore apart from loud bars and my T is the same. Also your T can fluctuate randomly for reasons other than noise so don’t be so hard on yourself

@Steph1710 hi Steph. What do you use when you drive? Just earplugs? I use earplugs when I drive and shower.

I noticed this type of thing early on, or when I’d have an unexpected spike. Weird little temporary pure tones that went away. Keep protecting those ears, you’re still in recovery.

For the past year or so I had been believing that if T doesn't begin fading within the first 3-6 months, it will likely never fade. Recently I read a post by someone whose T began fading after 9 months. So don't panic, and just give it time. This is what you do in case of a sore throat or a cut. The only difference is that ears take a lot longer to heal. Try to be patient...

Thank you so much. Sending love to you too ❤️

atleast your T isn't bad.Personally I would sacrifice my vision for my hearing

I too have bad visual snow, floaters and light sensitivity, I basically got both T & VS from Pregabalin. My brain over time got used to VS much more than with T. I wear glasses, watch out for bad lighting and try to control my environment. VS gets bad when its dark outside for me. It gets better with time for most, but eyes have more hope than ears. New laser surgeries coming out for floaters and possibly VS.