asey20

Mine's the reverse. Zero issues with my right ear but my left ear is left with 5% of leftover tinnitus that won't seem to leave, lol.

You've seen tremendous improvement with your tinnitus, and I'm sure the same will happen with your VS. I know how difficult it is to keep positive about things when reality seems to unforgiving, but you will get through this!

@kuromi Thanks for the encouragement. Yeah I tend to forget the amount of progress I have made with everything, but overall I am grateful. Hopefully I'll continue to see improvements in everything. It will be even better if there will be more treatment options and even cures in the future. I'm hopeful because tech has advanced so quickly.

@asey20 I'm honestly the same way, so don't worry about it. I sometimes have to stop and put things in perspective to see how far I've personally progressed when I think about it too much. Keep your head up!

Good luck with it. Let us know how it goes :)

@TheDanishGirl It went well. No side effects so far, just a sore arm.

@asey20 Yayy! thats good to hear. Hope your second shot will go just as smoothly.

Sometime in March. I really hope the results for Phase 2a clinical trial are positive. I’m not sure what I would do if additional doses don’t work to reach deeper in the round window.

I've been patiently waiting for oto-313 trial recruitment to start.

You're fortunate to improve this much. So just avoid hurting your ears in the future :)

@Gabriel5050 Thanks. Unfortunately I still have to deal with visual snow, but I'm way better off than 6 months ago.

Hi! How is your visual snow now?

great news!

This is your second improvement. Sounds like you could be experiencing healing. You are 7-8 months in, correct? Many people start to experience improvements at 9-10 months. You are young, which helps the healing process.

@twa tbh I'm surprised. Didn't think it would improve much more.

That's great! Is this progress for your T?

@twa Yes. It's also progress on my visual snow syndrome. Things slowly get better but there are also times it regresses and I lose hope.

How did you find this out? I had a high reading the other day also.

@twa i went back to the Opthalmologist. The tech did the readings again and it was now 18 in left and 22 in right. After my eyes were dilated, the Opthalmologist checked my eye pressure again (holding my eyelids open since I have trouble keeping them open during these tests) and he said it was 14 in both eyes and normal.

He also looked at the OCT results I did last visit and said the optical nerve is normal and overall everything is normal. No family history of glaucoma as well.

@Steph1710 maybe we both got covid? Sorry to hear that you are going through those things as well.

I'm actually classified as 'extremely vulnerable of becoming seriously ill' if I do catch it. But last year I ended up having a problem with my lungs. I was put on antibiotics and steroids to fight some sort of virus, which they said wasn't covid - I'm still thinking it could have been
. I haven't been right since. Nothing like not being able to breath :( are you thinking covid has something to do with your eyes?

@Steph1710 Not particularly. I will find out tomorrow what the Opthalmologist thinks about my eye pressure. However, I doubt I'll have glaucoma but there is a good chance I'll be considered a glaucoma suspect and put on eye drops to reduce eye pressure. We will see tho. However I don't think that was necessarily caused by covid. Probably just stress and bad habits.

I certainly did not realize how trivial many of my concerns were before onset. Just don't lose hope. Happiness will return eventually. It does suck that the period in which you must wait it out is indeterminate, but life always brings change.

@TheDanishGirl Yes I do. Why?

Just curious. I have lots of them too, and they give me so much anxiety :( My eye pressure has been examined and its normal though. Very scary that you maybe are getting glaucoma. Im sorry for you.

@TheDanishGirl it is what it is. My life sucks Ahah

I don't think it's a good idea to think about odds like this. If you want to turn it around, the odds of experiencing this symptom to the point of distress where you need support or medical attention is also quite small.

Our view on this matter is biased, because on this forum we only read people whose tinnitus remained with time. It does go away for many people, who generally don't come here.

@Julien87 that may be true

Could be jaw, if there is inflammation in the TMJ. Also there can be inflammation in the ear that is not seen. Those of us with arthritis or RA are familiar with inflammation in synovial joints, tendons, ligaments, etc. that can have an effect without many visual manifestations, but can definitely impair function.

When the rich get this disease.

The reason why I think there are regenerative treatments around the corner is because of the use regenerative therapies in other areas of medicine with success. Stem cells and platelet rich plasma are currently be used to treat the spine and other joints. Regenerative medicine is no longer science fiction.

Anyone here feeling confident about Susan shores device? Really hoping we see at least treatments as opposed to cures before 2027. There’s too many existential threats out here to wait that long.

Oh man and just like that... A fleeting T moment in my left ear causes my tinnitus to go haywire... Fascinating. Truly amazing.

This is something I wonder about very frequently, especially for cases that just spawn seemingly out of nowhere. I have to wonder if it's just a case of your mind just focusing on it and maintaining focus for no discernible reason other than to cause distress.

@Drachen literally. It became so loud but I can't hear it again!

Asey! Don't be so down on yourself. :( your posts have always been so positive! Life isn't what I expected either. I've gone from perfect health, to being overwhelmed with problems. I was climbing mountains - now I can barely leave the house because I can't breath properly, on top of a number of issues. If I lived closer to you, & covid wasn't a thing, I would come hang with you.

We could suffer together. Luke is right - hang on x

@Steph1710 thanks, but I've just given up. My brain is exhausted. I miss my old self. It's hard to stay positive when I don't know if this will ever get better. I even found the person I want to marry but I'm afraid that I'm not good enough for her due to all my problems. I'm just tired of this.

Sometimes theres a delay when symptoms appear. Before your tinnitus onset when was the last time you did something loud like attending a club or concert etc?

@Lucifer I'm not sure. Like 6-8 months prior.

The reason I think this is because my ear will hurt or it will feel a tingling sensation across my ear and to my face. Probably was a virus or something. I also don't necessarily have my Tinnitus get louder when I plug my ears. Idk it's strange. Tbh, not sure if there will be a treatment.

Hope you've been keeping well!

Well that's brilliant news. Hope you're doing okay asey? Don't know if I've seen you on here for a while.

Amazing news! And so pleased to see that you are doing so much better. Keep it up :)

@Steph1710 I'm doing well. Still not the same as before but maybe eventually ahah. I'm just glad that there is no major issues! Hopefully time heals things nicely. I haven't been on here lately cause I found it better for my mental health to distract myself from these issues. However, I still lurk here sometimes.

Are you doing anything in particular to help your recovery?

@anark thanks. I have it for 5 and a half months now. Started seeing big improvements around 4 months.

@twa not really. Just time. Improved greatly after my MRI, however was super loud during my MRI. Have never heard sounds like that before. Tbh, I kinda just woke up one day after that MRI and noticed it had improved a lot.

It is getting better - you are getting the lows that most people wait years for.

Mine is fuzzy when I wake up too. :)

Eventually it will (mostly) go away for good, but that won't happen for months.

Wow! I'm 3 months in, that would be great to have silence. I had one lower day and it was encouraging.

Thanks @Steph1710. I'd appreciate that hug. Hopefully we both improve lots!

I hope that knowing that this is most likely temporary and that you won't be listening to it 40 years from now is making it easier for you to handle it.

By the way, please feel free to share your feelings here! I apologize for sounding unreasonably aggressive. I guess I got to express My feelings truthfully. I am convinced that you are going to eventually get better. I don't say this to everyone here! Those setbacks Are scary and frustrating, but they are to be expected.

Not even a joke. Audiologist was so nice. We even spoke about how it could be TMJ disorder and to discuss it with doctor. Doctor walked in, dismissed me right away. Must've gotten referred to wrong one. Well hopefully I continue to improve.

Sadly, the way it goes is that a good ENT is one that doesn't recommend dangerous tests unnecessarily.

No, most of them are like that. This explains the results of the poll below:
https://www.tinnitustalk.com/threads/poll-was-the-advice-you-got-on-this-forum-more-useful-than-your-ents-advice.28006/