Anniz
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Jul 25, 2023
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Anniz

Member, Female, from UK

Anyone else have geniculate neuralgia? it just feels like a big joke. tinnitus, and now permanent ear burns and sharp ache from nerve damage Jul 24, 2023

Anniz was last seen:
Jul 25, 2023
    1. Anniz
      Anniz
      My mom and dad have had tinnitus 20 years. They have been my greatest support. They understand and they know how scary it feels. Love them
      1. LilSass, Ylva, Lilah and 3 others like this.
      2. View previous comments...
      3. Anniz
        Anniz
        @Tezcatlipoca T lowered for them to a level that they can say "it doesn't bother me." They have to remain careful, as noise exposure (long car drives) can still spike it, but within a day it still always comes down and because of the years of experience, they do not worry about temporary spikes. It always comes down eventually. I agree, we will overcome!
        Mar 2, 2021
        starrynights and Tezcatlipoca like this.
      4. Steph1710
        Steph1710
        This is a beautiful post. Your parents sound amazing! Bless them both. :) I also totally agree with their advice - they clearly know tinnitus very well. You’re in good hands @Anniz. I hope yours settles down too. I’m sure it will. I had super loud T to begin with, and mine no longer bothers me. You’ll get there. <3
        Mar 3, 2021
      5. Anniz
        Anniz
        @Steph1710 Thank you for the encouraging words! I am grateful for them indeed, of course hoping everyday that we all have freedom from this. Now when I visit them, I don't have to be in the room worrying if someone will do a loud noise.. We all just want to enjoy that quiet volume TV. :) Bless your heart Steph. <3
        Mar 3, 2021
    2. Anniz
      Anniz
      Multiple tones, more in the left ear. Some tones are "jumpy" they keep dissapearing appearing multiple times in a second. Most are constant
      1. Anniz
        Anniz
        Noticed some people call that "morse code". Good word choice there. At least it's not unknown!
        Mar 2, 2021
        Steph1710 likes this.
      2. Steph1710
        Steph1710
        You’ve just described my tinnitus perfectly. Don’t worry, even I’ve managed to 90% habituate to all these random beeps, tones, and pitches. And I’m the most noise sensitive person around! :)
        Mar 3, 2021
        Anniz likes this.
      3. Anniz
        Anniz
        @Steph1710 The first days I was extremely sensitive to sound as well.. still am but the sensitivity seems to be fading. Sound is tolerable level currently. Sometimes louder. I also have a thing called Semi-Patulous Eustachian Tube, where I can hear my own voice ridiculously loud. This is occasional though like after excersise.
        Mar 3, 2021
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  • About

    Gender:
    Female
    Location:
    UK
    Tinnitus Since:
    03/2021
    Cause of Tinnitus:
    Low volume music producing with headphones for years