PortugalTheMan

Guess what's worse.
The worst would be both of it.

I am also super sad. But I don't know why. My T is not that bad today. I'm just so tired from this, I wanna be normal.

We will be happy eventually. The other people you see might have other problems We are unaware of. We are alive and breathing...thats something to be grateful for. I know it's hard to find the silver lining but we have to hang on to ever piece of positivity weather it's true or not.

Best type of docs are the ones that have tinnitus..only they understand.

This one didn't happen to happen. But he said that at the age of 27 I can't have this :) he says that he will surely disappear. @Sayeed

That's great news! Did he give you a timefame or any other info?

I have different sounds throughout the day. Always changing. Never the same. It hasn’t ever settled. Hope you’re okay x

@Steph1710 but how are we going to get habituation to this if it keeps changing?

We look like a time bomb ahahaha every day is a surprise!

I'll take that. Calmer is always better and it's progress.

True, right there with you!

Have you been protecting your ears from noise?

@Bill Bauer I'm at home work, that is, I spend my days at home. at the end of the day i will always run in the park then i have the noise of nature and a bit distant from the cars. I have hearing protectors but I have not yet been in a situation that I have been forced to wear.

My medication right now is 10MG of Brintellix (vortioxetine)

Traveling has been my reason to live. I hope I am wrong!

As for the reason I am pessimistic about the future, I don't live in a free country (none of us do), so I can't spell it out. All I can say is: Read the news...

@Bill Bauer
for the news that I see today, yes you will be able to travel in Europe, as long as you have the vaccine! https://www.nytimes.com/2021/04/25/world/europe/american-travel-to-europe.html

@Steph1710 which area of england do you live in? :) i also liked going to scotland !

@Christiaan thank you. I've already put them on my list :) the price is relative here in Portugal the minimum wage is 600 euros!

That's how it starts...

Also we have not yet seen any results from the extended audiograms measuring above 8 kHz.

@Keith Handy I was glad that there was a pill to stop the noise for at least 9 hours to sleep :) that says a pill says a device! :D
sometimes I think that I am still dreaming and that this noise is not real!

I am even more scared that it is scientifically certain that it will increase with my age, and I am still only 26.

Hes got severe T apparently

@Tezcatlipoca yeah, he just gets on with it. Actually, it was listening to him make jokes about it, that helped me change my reaction to mine. Obviously we don’t want people to think we’re not suffering, but at the same time, until we have a treatment, we have to do whatever we can to make it easier for us - and if making light of it helps him, then so be it!

But the music is inspiring:D. William should have said that he suffered but that he could move on, I think the message is different that way :)

@Bill Bauer if so, i offer a dinner with everything you are entitled to!

Like I said, let them know how difficult it is for you right now, and tell them you’re having to rebuild your life bit-by-bit, but you’ll get back to normal- you just need to take some time out to figure it all out.

@Steph1710 I think I am managing to make people see how I am suffering. I will start from tomorrow to change my mornings, because it is the most difficult time.

That is a very nice sentiment, I agree. May they have all the health and drive to deliver us the help we need.

Whoever said that has never had any chronic health issues, and are a terrible human being.

I hear it from my family. because they heard ENT saying that I have nothing. then they ridicule my condition

Tell them to fuck off. Or, better, just give them a pair of headphones reproducing some 14 kHz sine wave and then crank the volume up a bit. I bet they would immediatly understand

I agree, but if you discover something for this symptom and then manage to optimize the side effects so that it is a cleaner medicine it was already a start of hope.

Our life with these noises and static is out of control, we don't know if tomorrow is worse, when we wake up in the middle of the night we can't rest anymore.

Well, they could always improve on Lenire by a lot, maybe it will become like a super tinnitus removal machine or something in the future? xD

I am sincere to you, at this moment I think more of a machine or drug to stop tinnitus than a cure for hearing loss.

Who has hearing loss and has no tinnitus is blessed !! :)

I say this because I don't have a hearing loss until 8khz xD