Christiaan
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Christiaan

Member, Male, from The Hague, the Netherlands

Some say you get mentally stronger after 'surviving' a severe disease. I have to be honest I'm still crippled by PTSD after all those years Apr 7, 2024

    1. Mehmet
      Mehmet
      Hi Christiaan,

      How's your therapy going on? Any improvement? Which apps( iOS or Android or PC ) do you recommend as the best NOTCHED THERPY for tonal tinnitus( traffic accident,7990 Hz, for 25 years) I ve nearly no hearing loss. Kind Regards,
      1. Christiaan likes this.
      2. Christiaan
        Christiaan
        It's going smoothly, thank you @Mehmet ;) My tinnitus is lower than a few months ago. Hopefully it will continue to improve. About your other question: I've only used Adobe Audition. You can download it from the Adobe website. Let me know how if you have any questions
        Jul 27, 2021
    2. Christiaan
      Christiaan
      I actually forgot I have T while watching The Great British Bake Off.I should watch this show more often:P Matt Lucas, you've saved the day!
      1. twa, ALS, Daniel Lion and 4 others like this.
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      3. Christiaan
        Christiaan
        @Damocles Some of those Irish shows does seem unique and yet somehow old-fashioned in some ways. If you've seen Mrs. Brown's Boys, you'd probably think that they're stuck in the past. I mean, is it really a novelty to see a man dressed as a flamboyant granny + with all that slapstick humour. We've already survived the 90's by watching those kind of shows:)
        Jul 26, 2021
        Damocles likes this.
      4. Christiaan
        Christiaan
        Most Irish comedians are great. You'd probably like Jason Byrne , Dylan Moran & Chris O'Dowd as much as I do. I also love Dara O'Briain, but his accent is so thick, I always use subtitles to help me understand this guy XD
        Jul 26, 2021
        Damocles likes this.
      5. Christiaan
        Christiaan
        You mean THE Greg Davies? That magnificent beast is going to present Taskmaster? He would certainly be a nice addition to the squad. The problem is that I can't receive Channel 4 in the Netherlands, but I try to get a glimpse of the show on Youtube. Another thanks for this tip btw!
        Jul 26, 2021
        Damocles likes this.
    3. Christiaan
      Christiaan
      I would rather listen to Fran Drescher than sit through another TRT session #Thanks4nothingJastreboff
      1. Lurius and Stacken77 like this.
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      3. Christiaan
        Christiaan
        Oh yeah, sure @Lurius ;) What's the story? I only heard of Drescher's husband (who also happened to be the producer of The Nanny!) coming out as gay during their marriage. That sounds like an unbelievable Hollywood plot, but it's true to a T.
        Jul 20, 2021
      4. Lurius
        Lurius
        Unfortunately, Fran Drescher experienced a nightmare when burglars broke into her home, tied up her husband and raped her at gunpoint. It's one of the absolutely worst things I've ever heard happen to a celebrity like that. The only other thing I can think of that compares is the thing that happened to Jodi Foster (guy tried to murder President Reagan to impress Foster).
        Jul 21, 2021
      5. Christiaan
        Christiaan
        @Lurius this is indeed downright horrible. I still can't belief that someone goes through something like that.I've just read her story and it seems she has kept it for more than 30 years from the public.It's quite an incredible effort that she has channelised her horrific experience into something meaningful by going into comedy. And it's truly admirable that she remains resilient despite this horrific experience.
        Jul 21, 2021
    4. Mehmet
      Mehmet
      Thanking again for the messages in the forum, I would like to mention a series of books( Risale-i Nur) which Ive been reading for about 25 years since I started University. live in Ankara,Turkey. You may find any answer regarding Islam Religion,Beleif in God, Hereafter etc.
      http://www.erisale.com/index.jsp?locale=en#content.en.201.15
      1. Christiaan likes this.
      2. Christiaan
        Christiaan
        Thanks for your kind words @Mehmet . To be honest, I'm not much of a religious person, but I will certainly check your site and perhaps learn a thing or two about your religion. There's a lot I don't know about the Islamic religion and this is certainly a great way to get in touch with it:)
        Jul 19, 2021
        Mehmet likes this.
      3. Mehmet
        Mehmet
        You'll definitely find what you re looking for regarding religion. By relİgion I mean blief in single Allah.
        Jul 21, 2021
        Christiaan likes this.
    5. Christiaan
      Christiaan
      For anyone who lives in Ohio 11th district: don't forget to vote for Nina Turner. A true fighter for working class, environment & equality.
      1. buttercake and Tanni like this.
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      3. Christiaan
        Christiaan
        @Tanni It's indeed a shame that Labour has not shown effective opposition so far. It is actually quite telling that a famous footballer managed to convince the Tories to keep providing free school meals to children living in poverty or that Neville gained relatively more news coverage for his sharp remarks about BoJo's culture wars (e.g. ''taking the knee'')
        Jul 17, 2021
      4. Christiaan
        Christiaan
        than anyone from Labour. With the recent shake-up in Starmer's office, time will tell if they have learned their mistakes after the fall of the Red Wall. I don't know if you share the same idea, but I think it's a huge loss that they've sacrificed Angela Rayner after the Hartlepool loss. She seems to be more aligned to the (former)
        Jul 17, 2021
      5. Christiaan
        Christiaan
        traditional working class heartlands in England and has personal qualities that would make her a great leader some day. But for now, it seems that Blairite, London-centric centrists have won the war within the party
        Jul 17, 2021
    6. Christiaan
      Christiaan
      @Lurius It's really disheartening when you want to do something about it, only to find someone who doesn't support you in that effort.
      1. Kriszti and TheDanishGirl like this.
      2. TheDanishGirl
        TheDanishGirl
        Yes, it's heartbreaking @Lurius Of course if this doctor came down with what we have, he highly probably wouldnt find it too "experimental"
        Jul 14, 2021
        Christiaan likes this.
      3. Christiaan
        Christiaan
        It sure is @TheDanishGirl . I wish we had more of those medical professionals who have empathy and some capacity to imagine what we're going through.
        Jul 15, 2021
        TheDanishGirl likes this.
    7. Christiaan
      Christiaan
      I really hate those guys who ''upgrade'' their cars with sound-amplifying exhaust pipes. Another example of toxic masculinity, I guess.
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      2. Vassili
        Vassili
        We have lots of bikers in the Summer. I think the beach is a very noisy place during the season. Isn't the beach a place where you go to show yourself (or how you say overcompensate) and to look at others in the first place? You are complaining but why do you live there then?
        Jul 9, 2021
        Christiaan likes this.
      3. Christiaan
        Christiaan
        @Vassili . Yeah, every place has it's pros and cons. But the thing is, I love this place for the most part of the year. The ambiance is very relaxing and the people who live there are nice to each other. People also go to the beach to enjoy the sun, relax and enjoy each others company. But to me, it's a different ballgame when some people (especially young people from other parts of the country)
        Jul 9, 2021
      4. Christiaan
        Christiaan
        go there to make a lot of noise, show behavior like catcalling (which happens quite often) and just simply not being mindful of other people who are annoyed by they behaviour. Call me old fashioned, but I have a bit of a problem with people who fuck up the neighborhoud. Luckily, it only lasts a Summer. So that counts at least for something:)
        Jul 9, 2021
    8. Christiaan
      Christiaan
      @Lurius Caffeine might be the culprit (probably glutamate related).My T also spiked on coffee and Coke. Probably best to stay away from it.
      1. Wrfortiscue and Vassili like this.
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      3. Vassili
        Vassili
        Germania Inferior - is it something like weaker Germany? I may be wrong. You see, I don't drink Coke every day but I do drink 2-3 cups of coffee and I'm so glad that my T is not affected. So yeah, I'm a living legend, son. :D
        Jul 4, 2021
        Christiaan likes this.
      4. Christiaan
        Christiaan
        You're the man @Vassili;) And yep, that's one way of looking at it. It literary means weak, but in a more historical sense, the Romans used the term as an indicator for low lands where Germanic tribes lived (parts of Belgium & the Netherlands) as opposed to Germania Superior (the mountainous areas of Germany, France and Switzerland). Pjuh, that's enough history for today, don't you agree:)
        Jul 4, 2021
        Vassili likes this.
      5. Vassili
        Vassili
        You've wrote an awesome post. I like history. I had a thought that it could indicate low lands but I looked again at your previous post and wrote what I wrote. Knowledge is power. Superior power ahahhahahah. :P
        Jul 9, 2021
        Christiaan likes this.
    9. Christiaan
      Christiaan
      Belgium vs.Italy almost feels like the match of the century. Come on Red Devils, you can do this!
      1. Damocles, Vassili and buttercake like this.
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      3. Christiaan
        Christiaan
        He was also one of the few players who played professionally, if I'm not mistaken. Anyway, Russia is ok-ish. Physically strong, but they lack the players who are technically good. Andrej Arsjavin is one of those few players who is still greatly missed
        Jul 3, 2021
        Damocles and Vassili like this.
      4. Vassili
        Vassili
        I can see that you're a true soccer fan. You have lots of knowledge on the subject. That's great. When I was a kid I always played soccer with my pals but I never was a true fan. Now I just keep an eye on some sports news time after time.
        Jul 4, 2021
        Damocles and Christiaan like this.
      5. Christiaan
        Christiaan
        @Vassili Even more so, I actually was a hardcore fan for a local football team and went to tons of matches. Since having moderate T, I watch the game on TV but still miss the sweet smell of ambiance in the local stadium. Anyway, are Estonians more ice hockey minded? I thought Baltic states are big players in that area of sports
        Jul 4, 2021
        Damocles likes this.
    10. Christiaan
      Christiaan
      Went to the beach to relax a bit but two ambulances drove by with a blaring siren. Now my ears are burning + in pain. What a cosmic joke
      1. Damocles and aot like this.
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      3. Damocles
        Damocles
        btw, don't stress about it having done any harm though. Two ambulances driving by in the open air certainly doesn't sound like enough to have caused any permanent damage.
        Pretty sure in the unlikely event you develop a spike, it'll be very temporary.
        Jun 2, 2021
      4. Christiaan
        Christiaan
        @Lurius Thanks for the encouraging words. I'll try to live as normally as possible despite this setback. Glad to hear that you've managed to get rid of H. Some people are not that lucky.
        Jun 2, 2021
      5. Christiaan
        Christiaan
        @Damocles I hope you're right. I actually wore hearing aids during this recent incident and that is in hindsight not a smart move if you go to a busy place. I hope you don't live in a very crowded place. In The Hague, it can be extremely noisy at times. Especially when tourist arrive in late Spring/early Summer to visit the local Scheveningen beach, f. e.
        Jun 2, 2021
        Damocles likes this.
    11. Christiaan
      Christiaan
      @_nico_ I'm at a loss for words. FWIW,it saddens me greatly that you've arrived at that point.No one should be in that position like you are
    12. Christiaan
      Christiaan
      For Dutch /Flemish speakers, there's a special on the news about tinnitus today> tune to channel NPO 1 at 18.15
      1. Steph1710 likes this.
    13. Christiaan
      Christiaan
      @RingingMike Now it would indeed be a good time for our good old Leviathan friend to help us out.
    14. Christiaan
      Christiaan
      @Kriszti I've read somewhere that Dayvigo is considered a safe choice. Perhaps it's something worth a try?
      1. Kriszti
        Kriszti
        Thanks. :) I think it's not available in Europe.
        May 30, 2021
        Christiaan likes this.
      2. Christiaan
        Christiaan
        @Kriszti Via the grey market:) If you're in dire need for good sleep meds, you could talk to Hans from TT perhaps? He managed to get some Dayvigo that way.
        May 30, 2021
      3. Christiaan
        Christiaan
        @Kriszti oh and if that doesn't work out, you could always try mirtazapine, though I understand you still have worries about it. However, I can safely say that after one year on this med, I don't have any problem whatsoever (e.g. weight). It still works like a charm and I sleep generally 8/9 hours on it. Maybe it's worth a try?
        May 30, 2021
    15. Christiaan
      Christiaan
      I'm wondering how @all to gain @Autumnly are doing. Haven't heard from them for a long time. Hopefully they are doing great
      1. Steph1710, Kriszti and xyz like this.
      2. Lurius
        Lurius
        I'm good friends with Autumnly, but she's on a pretty long break from TT right now. The last time I heard from her was 1st of March.
        May 28, 2021
        Kriszti and Christiaan like this.
      3. Christiaan
        Christiaan
        Thanks @Lurius for keeping tabs with her. I could only imagine that some of us need a break from TT for a while. It can all be mentally exhausting at times
        May 28, 2021
        Kriszti likes this.
    16. Christiaan
      Christiaan
      A filmdirector in the NL just launched a site & documentary about the devastating impact of tinnitus. Kudos to Stefan van den Bosch!
      1. Pharz, Emgee, Tweedleman and 11 others like this.
      2. View previous comments...
      3. Christiaan
        Christiaan
        May 26, 2021
        aot likes this.
      4. TheDanishGirl
        TheDanishGirl
        Thats great!
        May 26, 2021
        aot and Christiaan like this.
      5. Tweedleman
        Tweedleman
        This is why I love you Dutchies <3
        May 26, 2021
    17. Christiaan
      Christiaan
      Even though my tinnitus has reduced significantly, I am still extremely annoyed by it. Multi tonal T is still devastating in many respects
      1. Tweedleman, kuromi, LilSass and 9 others like this.
    18. Christiaan
      Christiaan
      When all of this is over, I at least expect that every one of us will receive an honorary degree from the Royal Institute of Sufferology
    19. Christiaan
      Christiaan
      @Zugzug It's a crazy world to live in when we have someone who has no emphatic understanding of our suffering, yet has such strong following
      1. LilSass, 100Hz, Lucifer and 3 others like this.
    20. Christiaan
      Christiaan
      use TRT the right way. Some people are brainwashed by the TRT-Jatroboff gospel. If someone needs to be canceled, this guy deserves it 100%
      1. LilSass, Labyrinthine and Gabriel5050 like this.
      2. Christiaan
        Christiaan
        You're right @Gabriel5050 . It's inconsiderate of me to post a lot of messages in the profile post section.
        Apr 21, 2021
        Gabriel5050 likes this.
      3. Christiaan
        Christiaan
        In my short burst of infinite rage, I lost track of that. Sorry. I'll post something asap about this issue in a more constructive way. Hopefully we can put some ideas together in addressing the over importance of people who capitalise on the suffering of others.
        Apr 21, 2021
    21. Christiaan
      Christiaan
      people if they ‘’failed’’ his course & that TRT lacks empirical merits for severe T sufferers. And yet, she still maintains that I didn’t
      1. Steph1710 and Labyrinthine like this.
    22. Christiaan
      Christiaan
      I looked her in the eyes and said she can’t be serious. This man had only done the tinnitus community a huge disservice by victim blaming
    23. Christiaan
      Christiaan
      and that it will always get better if I follow TRT the right way. She mentioned Jastreboff as a credible authority in this field.
    24. Christiaan
      Christiaan
      Alright, so I just came back from an appointment with my hearing care professional. She said not to worry about tinnitus getting worse
    25. Christiaan
      Christiaan
      of people on TT here as well. I also hope that FX-322 will offer you the sweet relief that you so much deserve (as well as other peeps)2/2
      1. Guywithapug, Pharz, Steph1710 and 4 others like this.
    26. Christiaan
      Christiaan
      @Zugzug merci beaucoup for the encouraging messages. Your attitude towards life helps keep me going, and I dare to say for a lot 1/2
    27. Christiaan
      Christiaan
      and BDNF protocol (20-30%) could be an explanation for change in HF T,though still bothersome. Thanks for your kind-hearted message BTW 2/2
      1. Zugzug likes this.
    28. Christiaan
      Christiaan
      @Zugzug I think so. HA doesn't seem to influence the severity of my T. But anti-inflammatory, organic vegan diet (+/- 20% decrease) 1/2
      1. Zugzug likes this.
    29. Christiaan
      Christiaan
      Well...the hearing aids project has failed. My HF T is above 10 kHz apparently. Now just listening to notched music and see where it goes
      1. ASilverLight, Steph1710 and Zugzug like this.
    30. Christiaan
      Christiaan
      Gonna try some hearing aids tomorrow and see if it helps lower my T.
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  • About

    Gender:
    Male
    Location:
    The Hague, the Netherlands
    Tinnitus Since:
    2016
    Cause of Tinnitus:
    2016: headphones, 2020: worsened thanks to Rammstein