Stanlex
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Stanlex

Member, from A world where everything sounds funny

An update. I was diagnosed with TMJ. Wearing TMJ splint for 3 weeks, so far the only symptom that got noticeably better is ear fullness. Sep 19, 2021

    1. Stanlex
      Stanlex
      Some dude here said long time ago that he made himself hair combing machine to mask tinnitus. Wondering how he is doing now.
      1. Damocles, Kriszti and Keith Handy like this.
      2. Keith Handy
        Keith Handy
        Probably bald.
        Jun 1, 2021
        Damocles, Steph1710 and Christiaan like this.
      3. Steph1710
        Steph1710
        @Keith Handy ffs Keith! You never fail to make me laugh. Ha!
        Jun 2, 2021
    2. Stanlex
      Stanlex
      Just asking. If T is caused by TMJ disorder, it can never fade on its own and there are no supplements for it?
    3. Stanlex
      Stanlex
      while(true) play('e'); //tinnitus.exe
    4. Stanlex
      Stanlex
      Anyone have white noise tinnitus?
    5. Stanlex
      Stanlex
      When I plug my ears it sounds like fire in fireplace
    6. Stanlex
      Stanlex
      Holistic medicine in a nutshell: You have tinnitus? Let's treat your ankle.
      1. NTV, Wrfortiscue, Keith Handy and 3 others like this.
      2. Jebbis
        Jebbis
        At this point I'd be willing to try it
        May 29, 2021
      3. Stanlex
        Stanlex
        @Jebbis they ask you 100$ for a session and they will give you herbs to treat the ankle and tell you to do some stupid chore like pour some garlic oil on your ass everyday for 6 months and tinnitus will fade.
        May 30, 2021
    7. Stanlex
      Stanlex
      Could I have gotten tinnitus from asymptomatic covid? (I only had a sore throat during onset)
      1. Tezcatlipoca
        May 28, 2021
      2. Kriszti
        Kriszti
        Absolutely :(
        May 28, 2021
    8. Stanlex
      Stanlex
      Just wondering can someone have hyperacusis and hearing loss at the same time?
      1. serendipity1996 likes this.
      2. View previous comments...
      3. Keith Handy
        Keith Handy
        It seems to be a form of overcompensation. It detects something is missing and turns everything up needlessly.
        May 27, 2021
      4. serendipity1996
        serendipity1996
        @Stanlex - the theory is that the brain attempts to compensate for hearing loss by turning up the volume ie central gain.
        May 27, 2021
      5. Tezcatlipoca
        Tezcatlipoca
        Hyperacusis is most likely a symptom of HL
        May 27, 2021
    9. Stanlex
      Stanlex
      What about those anti tinnitus lasers on aliexpress lol
      1. PortugalTheMan and Sayeed like this.
    10. Stanlex
      Stanlex
      What is the difference between muffled hearing and hearing loss?
      1. GBB
        GBB
        If there is any difference, and this is based on my subjective reading, muffled hearing is a form of hearing loss that may be transient. I've seen people report it going away, however that is no guarantee.
        May 25, 2021
    11. Stanlex
      Stanlex
      Anyone have serious explanation why HBOT is 3x more successful if sufferer hopes it will work than it won't? (Source: one study)
      1. Tezcatlipoca
        Tezcatlipoca
        Placebo, and it doesn't mean more successful, it means the patient thinks they've improved
        May 25, 2021
      2. Stanlex
        Stanlex
        @Tezcatlipoca but what is also interesting is that it had 40% efficacy for those people who had neutral expectations and only 20% for those who thought it is snake oil.
        May 25, 2021
    12. Stanlex
      Stanlex
      I read that ADs have much higher efficacy if patient is convinced it will help them. If only it worked for Ginkgo and tinnitus :D
      1. Steph1710 likes this.
      2. View previous comments...
      3. Tezcatlipoca
        Tezcatlipoca
        @Stanlex it can't, the placebo effect eventually wears off. Tinnitus from placebo is a whole different deal.
        May 23, 2021
      4. Sayeed
        Sayeed
        I read an article a while back that I'm trying to dig up. Placebo effects are very powerful and real.
        May 23, 2021
      5. Stanlex
        Stanlex
        @Sayeed I read that ADs have efficacy 65% if you stay positive that they will do shit and 35% only if you won't. So "thanksimcured" advices ironically cure people lol
        May 24, 2021
    13. Stanlex
      Stanlex
      Is it even worth to do TRT in 2021 or use in-ear maskers 24/7 until a cure is found? Since TRT takes 2 yrs and a cure may be in 5-10 years
      1. Guywithapug likes this.
      2. Jebbis
        Jebbis
        I think its entirely up to you to decide what is worth it, as everyone experiences this condition differently. I think its important for you to find a realistic path to well being that fits you and your tinnitus. Truly hoping for your relief, friend.
        May 23, 2021
        kuromi likes this.
    14. Stanlex
      Stanlex
      These articles in news like "Do you suffer from ringing in ears? You will get rid of it with X!" Like if tinnitus was acne.
      1. Lurius
        Lurius
        Sometimes I wish that X was a sawed-off shotgun in my mouth.
        May 18, 2021
        Bill Bauer likes this.
      2. Bill Bauer
        Bill Bauer
        Americans are fortunate to have that as an option...
        May 19, 2021
    15. Stanlex
      Stanlex
      It is not just the tinnitus noise. It is also about ear fullness and headaches which make me feel everyday like I was hit by a truck.
      1. LilSass, Steph1710 and Keith Handy like this.
      2. Sayeed
        Sayeed
        If it was tinnitus alone it would be sooo much easier.
        May 18, 2021
        LilSass and Steph1710 like this.
      3. Keith Handy
        Keith Handy
        Any combination of things is worse than any one thing, but I'd gladly push through all this fatigue in exchange for normal sound; be less inclined to do the opposite.
        May 18, 2021
        Steph1710 likes this.
      4. Steph1710
        Steph1710
        Oh same! I have PT as well as “normal” T. The PT is caused by too much spinal fluid in my brain, squashing the transverse sinuses and not letting the blood drain properly. I know about headaches - bastard things!
        May 18, 2021
        kuromi likes this.
    16. Stanlex
      Stanlex
      It's so bad there is no way how to objectively scan cochlea for noise damage. Hearing loss test is super ancient way to do it.
      1. Tezcatlipoca
        Tezcatlipoca
        Don't tell that to some people of this forum!
        May 17, 2021
      2. Stanlex
        Stanlex
        @Tezcatlipoca I stopped giving a f about some people on this forum. When someone thinks he is God and tells everyone their T is noise induced no matter what just to make them buy expensive TRT, shame on them.
        May 18, 2021
    17. Stanlex
      Stanlex
      Everytime when they talk in TV about some super rare chronic disease they say X needs money to go to operation in some big city. Why not T?
      1. Tezcatlipoca
        Tezcatlipoca
        Because this problem can't be solved with an operation.
        May 17, 2021
      2. Jebbis
        Jebbis
        Because it's more like "x needs money to go to another country and receive experimental stem cell treatment"
        May 17, 2021
        Steph1710 likes this.
      3. Stanlex
        Stanlex
        @Tezcatlipoca don't catch me by words. My point was that for most diseases there is some very expensive treatment that most can't afford but here it is not.
        May 17, 2021
    18. Stanlex
      Stanlex
      ENT had no idea what I am talking about when I told him about my dysacusis symptoms. At least my audiogram test came back clear yay!
      1. LilSass likes this.
      2. Stanlex
        Stanlex
        I would like to specify, for some people that like to tell me I am a troublemaker, that I didn't tell him exactly "I have dysacusis". I just described my weird symptoms. Unfortunately, he didn't tell me anything about it. I feel so sad and hopeless. :(
        May 17, 2021
    19. Stanlex
      Stanlex
      If I ever get better from T and D and ear fullness, I will jump on optimism and productivity wave so HUGE that nobody will stop me...
      1. Vassili and Keith Handy like this.
      2. Keith Handy
        Keith Handy
        SAAAAME. I will be a cannonball shooting out of a cannon (proverbial, without the blast sound of course).
        May 16, 2021
        Stanlex likes this.
    20. Stanlex
      Stanlex
      Weird how characters in GTA shoot with shotgun all the time (up to 160dB) and never get tinnitus.
      1. aot, kuromi and Zugzug like this.
      2. aot
        aot
        They get Prednisone when they respawn at the hospital.
        May 16, 2021
        GCS, kuromi, Stanlex and 1 other person like this.
      3. Stanlex
        Stanlex
        @aot and intratympanic Dexamethasone as well.
        May 16, 2021
        aot likes this.
    21. Stanlex
      Stanlex
      I really want to thank everybody for their supportive wishes and messages today.
      1. Steph1710
        Steph1710
        We totally have your back on here @Stanlex. We know how shit this condition is. It’s okay to feel so down and out about it. I sure as hell did in the beginning! But honestly, don’t let it beat you. Knuckle down and study for those exams. If you can pass them with T, then you’re a true boss! ;)
        May 15, 2021
    22. Stanlex
      Stanlex
      Did the THI quiz. Got more than 80 points = cathastrophic handicap. Almost 3 months after onset. No, it does NOT get better.
      1. View previous comments...
      2. Stanlex
        Stanlex
        @Steph1710 I love your attitude towards the T. I know it is possible to study with this. I did that in the first month without problem. The problem came in next months when I fell to huge depression and apathy because it is not getting better. Also I'm nervous from planned doc visits and can't really focus on studying.
        May 15, 2021
        Steph1710 likes this.
      3. Tanni
        Tanni
        @Steph1710 No, I think your posts are f*#&ing great ;) You write like I imagine you talk. Well done on passing your exams so soon after T onset - very inspirational. I would have struggled, but you're proof it can be done.
        May 15, 2021
        Steph1710 likes this.
      4. Steph1710
        Steph1710
        @Tanni thank you :) <3 Put it this way, I hadn’t studied for over two and a half years to give up three months before the end. Plus, it would have been a complete waste of money.
        May 15, 2021
        Tanni likes this.
    23. Stanlex
      Stanlex
      Going to ENT next week with long term clogged ears and possibly tinnitus. Scared as hell he will find nothing wrong. Wish me luck please.
      1. martinberryhorse and kuromi like this.
      2. View previous comments...
      3. Stanlex
        Stanlex
        @Sayeed I am searching now for specialized tinnitus clinics even outside my country. I also plan to visit some ENTs who say they specialize on treating T. I don't care about money in this phase
        May 17, 2021
      4. Stanlex
        Stanlex
        @Sayeed I also want to visit some tinnitus clinic that does not offer TRT, because I fear they would lie to me it can't be treated and only way is TRT because bussiness. But if I will be completely examined and all will be good then maybe I try TRT but I hope I won't reach that point.
        May 17, 2021
      5. Sayeed
        Sayeed
        Try an otologist maybe? I'm assuming you have already been down neurologist path?
        May 17, 2021
    24. Stanlex
      Stanlex
      I start getting scared I will have to live with this horrible painful unhabituable tinnitus for life.
    25. Stanlex
      Stanlex
      I was playing with my right ear and got a fleeting tinnitus in that ear. Coincidence? I think not.
    26. Stanlex
      Stanlex
      For the past 24 hours I've been exposed to many unpredictable unavoidable very loud noises. So far so good, but I wait for a week at least.
      1. kuromi likes this.
      2. Bill Bauer
        Bill Bauer
        If you don't get a spike the morning after the exposure to the noise, it is safe to assume that you will be ok.
        May 15, 2021
        anotherforumuser and MBH like this.
      3. Stanlex
        Stanlex
        @Bill Bauer ok it looks like my T is still the same. I survived MRI, loud trains, trucks etc. I dare to start using headphones at this point.
        May 15, 2021
        anotherforumuser likes this.
    27. Stanlex
      Stanlex
      One of my last hopes is being diagnosed with ETD or I will fall into hell of uncertainty of idiopathic tinnitus.
    28. Stanlex
      Stanlex
      My tinnitus strengthens everytime I laugh. It's like devil reminding me "Hey, didn't you forget to suffer?"
      1. Bill Bauer, Tanni and Sayeed like this.
      2. Tezcatlipoca
        Tezcatlipoca
        It's probably the movement upsetting the inflammation
        May 12, 2021
    29. Stanlex
      Stanlex
      RIP to every new sufferer who googles "tinnitus treatment" and gets results like mindfullness, yoga, meditation...
      1. Bill Bauer and Keith Handy like this.
    30. Stanlex
      Stanlex
      Starting to thing 80% of my dysacusis is just my paranoia and the suspicious noises really exist.
      1. Bill Bauer and Keith Handy like this.
      2. Keith Handy
        Keith Handy
        If the tones are only there in certain places, near certain machines, they do exist; just not that prominently.
        May 12, 2021
        Stanlex likes this.
      3. Stanlex
        Stanlex
        @Keith Handy this is actually good idea to cope. It feels better knowing that you just hear some freqs louder than other people instead knowing that you hear bullshit tones.
        May 12, 2021
        Keith Handy likes this.
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  • About

    Location:
    A world where everything sounds funny
    Tinnitus Since:
    2019 - mild, 03/2021 - the real shit
    Cause of Tinnitus:
    Something that cannot be identified by 21st century tech
    A 19 year old boy who got massive tinnitus without a reason that destroyed his life.