joconne16

Woke up one morning in 2004 with distortion in left ear. Over the course of coming months developed sever hyperacusis and Tinnitus.

Gradually improved to full recovery but have been plagued by mysterious bouts of distortion (voices sound like robots and deep voices sound like monsters) that will unpredictable wax and wane. Distortion starts slow then builds worse over weeks or months.

I have gone years without attacks but recently have been dealing with another one now. Tinnitus is hissing high pitched and every day sounds (birds chirping, refrigerator running, music sound out of tune and very bothersome.

ramps up my sympathies nervous system. I involuntarily wake up early and am easily started.

move been to best ear docs in the world. Jasterboff, UCLA (Dr Baloh), James Andrews in LA, The House clinic. No one really can give an answer other that cochlear hydrops but that’s very vague in terms of cause and treatment.

Tried everything..diuretics, TRT, allergy testing, prednisone, anti-virals, chiropractic, TMJ, even all kinds of supplements and alternative medicine. Probably have spent $100k on treatment but here I am again, afraid of sound, wishing they cut just cut my hearing nerve and give me peace (although I’ve heard that doesn’t make T go away).

I’m a wealth of info if you have questions. I’m here to tell you the body adjusts. You WILL get through this! I can’t tell you how many times I’ve considered suicide at my depths but you just keep going and either you acclimate or improve. It’s ok to hide in your dark place because you’re scared but hope cannot be lost. You’re loved. We’re all one connected organism and the strength you’ll gain and the discovery of how resilient you are will be a gift that this monster will bless you with. Take each day and remember, breath.