JPGL
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Apr 16, 2024 at 10:03 AM
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  3. Nadia231
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JPGL

Member, Male, from Spain

Benefactor

Regenerative therapies OTO-413,FX-322,what should never have failed, failed.Hope flew through the air, there is only suffering. May 1, 2023

JPGL was last seen:
Apr 16, 2024 at 10:03 AM
    1. JPGL
      JPGL
      Regenerative therapies OTO-413,FX-322,what should never have failed, failed.Hope flew through the air, there is only suffering.
      May 1, 2023
      1. in_LA, Lucifer, Damocles and 3 others like this.
      2. View previous comments...
      3. makeyourownluck
        makeyourownluck
        lol, @ZFire you sound exactly like my partner.
        May 7, 2023
        JPGL, in_LA and ZFire like this.
      4. sakrt
        sakrt
        As Warren Buffett also recently stated, of comparing AI to the creation of an atomic bomb. Aside to that depressing thought, I wondered if UoTX's specific MRI modality would be capable to measure T waves?
        May 8, 2023
        JPGL, in_LA and Damocles like this.
      5. in_LA
        in_LA
        I cried a little when I read the results
        Jul 28, 2023
        sakrt, Lucifer and JPGL like this.
    2. JPGL
      JPGL
      Yes @Damocles i keep up with the tinnitus research, it heps me to move forward Xenon,Auricle are very close, there is hope.
      Apr 13, 2023
      1. Sammy0225, Damocles and tpj like this.
    3. JPGL
      JPGL
      Thank you friend @Damocles it is comforting to knowbthat having had severe tinnitus you have been able to move on with your life despite it.
      Apr 13, 2023
      1. sakrt, Damocles and tpj like this.
    4. JPGL
      JPGL
      Thank you @Damocles give us hope, I read a publication of yours in ehich i think you said that it got better, was it?
      Apr 13, 2023
      1. tpj and Damocles like this.
      2. View previous comments...
      3. Damocles
        Damocles
        I've been coping well with it since then though. I'm able to work and study despite the noise, and have almost completed an intensive college course this year.

        Will probably be going to university this summer.
        Apr 13, 2023
        JPGL, tniuf, ZFire and 1 other person like this.
      4. Damocles
        Damocles
        Which means it hasn't killed me and I'm achieving my goals.

        Not to mention there are the Auricle device and the Xen pills coming in the near future.
        Apr 13, 2023
        sakrt, JPGL, tniuf and 2 others like this.
      5. Damocles
        Damocles
        So don't worry @JPGL. You will make it through this, I promise.
        Apr 13, 2023
        JPGL, tniuf, ZFire and 1 other person like this.
    5. Damocles
      Damocles
      No te rindas mi amigo. La ayuda está en camino.
      Apr 11, 2023
      1. JPGL and tniuf like this.
    6. JPGL
      JPGL
      @Nadia231 same thing i,m on medical leave from work i can,t sleep because of this brain noise, okay @elezy would be better if it was stable
      Dec 11, 2022
      1. Damocles, Nadia231 and NYCGuy like this.
    7. JPGL
      JPGL
      Hello @Nadia231 i sorry for the delay suffering a lot no i am not well at all getting worse this is terrible.how are you i hope you are well
      Nov 23, 2022
      1. Damocles and sakrt like this.
      2. Nadia231
        Nadia231
        Same... I'm really struggling, it gets worse for no reason the T is so loud and the H doesn't let me do anything.
        Nov 25, 2022
        JPGL likes this.
      3. Theezy
        Theezy
        @JPGL and @Nadia231 I’m in the same boat, really suffering today. I hope we can break this cycle of worsening. I could manage much better with stable tinnitus and H. Has your condition changed? And has anything at all helped?
        Dec 11, 2022
        Damocles, JPGL and Nadia231 like this.
      4. Nadia231
        Nadia231
        @Theezy I have been struggling since I got ear fullness and a T spike out of no where while at work 2 months ago. Then the H got so bad I can't even do things at home. I'm off work and suffering
        Dec 11, 2022
    8. JPGL
      JPGL
      Noticeable peak very intrusive tinnitus for no apparent reason last night i have not slept all night,very desperate.
      Oct 22, 2022
      1. Damocles and ZFire like this.
      2. ZFire
        ZFire
        Did you wake up to this intrusive tinnitus? Sometimes when I wake up in the middle of the night, my tinnitus will be blaring loud for 30 minutes or so
        Oct 24, 2022
        Damocles likes this.
      3. JPGL
        JPGL
        Thanks @ZFire and sorry for my late reply, yes the nights are difficult , and yes,i also wake up in the middle of the night with a horrible tinnitus .i don,t know why it increases, i mask it with sounds of water,rain.... i would give anything not to have this.
        Oct 29, 2022
        Damocles and sakrt like this.
      4. Nadia231
        Nadia231
        @JPGL how are you?? Any improvements? My T and H spikes as well for no reason. I doesn't matter if I protect my ears or not.. It just keeps worsening
        Oct 29, 2022
        sakrt likes this.
    9. JPGL
      JPGL
      @Joe Cuber thank you,loud tinntitus is even painful.I mask it with nature sounds.Yesterday i couldn,t resist it anymore and took mirtazapine
      Sep 28, 2022
      1. Joe Cuber and NYCGuy like this.
      2. View previous comments...
      3. Strawberryblonde
        Strawberryblonde
        I did last night @Joe Cuber. Feel so much better for it. Hope you did too? :D
        Sep 30, 2022
        JPGL and Joe Cuber like this.
      4. Strawberryblonde
        Strawberryblonde
        Deep sleep is good :).
        Sep 30, 2022
        Damocles, sakrt, JPGL and 1 other person like this.
      5. F-u-T
        F-u-T
        Have any of you tried Melatonin. Someone recommend it to me but I haven’t tried it yet.
        Oct 23, 2022
        Damocles likes this.
    10. JPGL
      JPGL
      No sleep tinnitus relentless and hellish suicidal. Anyone else here? What is the closest treatment we have? I need hope.
      Sep 22, 2022
      1. Joe Cuber and NYCGuy like this.
    11. JPGL
      JPGL
      When will there be a treatment,or better a cure?because they don,t release FX 322 and OTO 413 they would do the world a favor.
      Sep 22, 2022
      1. KoolKat and NYCGuy like this.
    12. JPGL
      JPGL
      until when are we going to be without a treatment for tinnitus-hearing loss ?.They move very slowly.This is insaneThey move very slowly.
      Aug 25, 2022
      1. Damocles likes this.
    13. JPGL
      JPGL
      Fellow tinnitus sufferers,there is a drug available called Etenercep Enbrel it is a TNF-ALFA blocker has anyone tried it for tinnitus?????
      Jul 15, 2022
      1. in_LA, Steph1710, NYCGuy and 1 other person like this.
    14. Ela Stefan
      Ela Stefan
      Hi, JPGL! How are you? May I ask..how does your t sound? Is reactive, just in the ears, can you mask it? Thank you!
      Apr 22, 2022
      1. Wrfortiscue likes this.
    15. Damocles
      Damocles
      ¿Cómo eres mi amigo?
      Feb 12, 2022
      1. DocTors_94, JPGL, NYCGuy and 1 other person like this.
      2. JPGL
        JPGL
        Thanks for asking getting worse,loud noise for no reason the nights are very difficult, hoping for something that will help us, a lot of strength to all, thanks friend.
        Feb 13, 2022
        Damocles likes this.
    16. JPGL
      JPGL
      2022 So many treatments that are on the way will any come out this year?We just have to wait with this disorder insufferable almost nothing
      Jan 5, 2022
      1. in_LA, GoatSheep, DocTors_94 and 6 others like this.
    17. JPGL
      JPGL
      una enfermedad cronica incurable,bastante incapacitante casi todos los dias abriendo este foro y no hay nada
      Oct 29, 2021
      1. in_LA, DocTors_94, NYCGuy and 3 others like this.
      2. Damocles
        Damocles
        Há algo aqui. Argumento trivial e insultos. ( ͡° ͜ʖ ͡°)
        Oct 29, 2021
        JPGL likes this.
      3. Nadia231
        Nadia231
        Este foro es más bien para darnos apoyo. Desgraciadamente no hay solución para esta tortura. Ánimo!
        Oct 29, 2021
        JPGL, Damocles and Exit like this.
      4. Exit
        Exit
        Oct 30, 2021
        JPGL, Nadia231 and Damocles like this.
    18. JPGL
      JPGL
      How is it possible that there is npthing or even relief for this torture-a disorder that prevents us from sleeping
      Oct 14, 2021
      1. in_LA, IntotheBlue03, DocTors_94 and 8 others like this.
      2. Wrfortiscue
        Wrfortiscue
        Because people rather have penis pills lol
        Oct 15, 2021
      3. Steph1710
        Steph1710
        Oct 15, 2021
        Exit, JPGL and Wrfortiscue like this.
      4. IntotheBlue03
        IntotheBlue03
        Unbelievable there’s not a goddamn thing out. Greed and incompetency is all it is.
        Feb 9, 2022
        JPGL, Damocles and GoatSheep like this.
    19. JPGL
      JPGL
      A drug that regenerates the cranial nerves and myelin will also be necessary, does anyone know if it is currently in trials ?
      Sep 16, 2021
      1. Damocles likes this.
      2. PortugalTheMan
        PortugalTheMan
        lo más cercano que tenemos a la regeneración de los nervios son las células madre.
        Sep 16, 2021
        JPGL and Damocles like this.
    20. JPGL
      JPGL
      Mucho ruido, tinnitus agotador, orando por un tratamiento o mejor una cura, antes de que se nos cronifique cada vez mas y mas
      Aug 16, 2021
      1. DocTors_94, Artem, Exit and 1 other person like this.
      2. Damocles
        Damocles
        Si.
        Aug 23, 2021
        Exit and JPGL like this.
    21. JPGL
      JPGL
      Sin poder dormir,torturador sonido horrible incesante empeorando de la nada,me parece el peor tinnitus del mundo ¿alguien mas se siente asi?
      Aug 13, 2021
      1. DocTors_94, Nadia231, Damocles and 1 other person like this.
      2. Ela Stefan
        Ela Stefan
        Me.All the time...can understand well your language..from telenovelas...I dont know that much to use it on writing. Whish I could give promises.....I used to think anything is possible in this world if you really want..and then some..
        Apr 13, 2022
    22. JPGL
      JPGL
      Tinnitus incesante se siente horrible en los oidos con falta de sueño gracias a esta mierda de condicion haciendo la vida muy dificil
      Aug 13, 2021
      1. Damocles and ALS like this.
    23. JPGL
      JPGL
      ¿cuando sera el dia en que tengamos un alivio o mejor una cura? ¿cuando?
      Aug 5, 2021
      1. ALS and Damocles like this.
      2. Damocles
        Damocles
        Agreed.
        Aug 6, 2021
        JPGL likes this.
      3. twa
        twa
        Yo no se, espero que tenemos algo rapido con el favor de Dios.
        Aug 6, 2021
        JPGL likes this.
    24. JPGL
      JPGL
      como el mundo medico puede tener tanta indiferencia ante este tortuoso trastorno,como es posible
      Jul 30, 2021
      1. DocTors_94, ALS and Kriszti like this.
    25. JPGL
      JPGL
      Sigo queriendo ser tratado con Fx-322,no pierdo la fé,siempre será mejor que Nada,que es lo que lamentablemente se nos ofrece
      Mar 24, 2021
      1. DocTors_94 likes this.
      2. PortugalTheMan
        PortugalTheMan
        Esperemos que seja bem sucedido!
        Jul 29, 2021
        JPGL likes this.
    26. JPGL
      JPGL
      Me quedo con lo bueno que esta por llegar; terapias de regeneracion auditiva,
      Mar 14, 2021
      1. FGG likes this.
      2. twa
        twa
        Si, estamos esperando para lograr el éxito de los tratamientos.
        Mar 15, 2021
        JPGL likes this.
    27. twa
      twa
      Hola @JPGL,¿Por cuanto tiempo tiene su auditiva tinnitus?
      Mar 9, 2021
      2. JPGL
        JPGL
        Hola twa,son ya 5 años resistiendo,noches sin dormir,torturado noche y dia por el sonido,me anima a seguir que algo llegara en el horizonte o que tal vez llegue el día que se mitigue o habitue.
        Mar 10, 2021
      3. twa
        twa
        Lo siento mucho, es muy dificil.
        Mar 15, 2021
    28. JPGL
      JPGL
      @Diesel-@FGG es una suerte teneros en el hilo FX-322 en mi opinion el más visitado importante y esperanzador de este foro.
      Mar 9, 2021
      1. Farida and Zugzug like this.
      2. Diesel
        Diesel
        Gracias, eres muy amable.
        Mar 10, 2021
        JPGL likes this.
    29. JPGL
      JPGL
      Esto es horrible y más horrible que no haya nada contra la perdida-auditiva tinnitus
      Mar 8, 2021
      1. OnceUponaTime likes this.
      2. OnceUponaTime
        OnceUponaTime
        Es peor que horrible. Espero te mejores y encuentres paz.
        Mar 9, 2021
        JPGL likes this.
      3. twa
        twa
        Sí, es la verdad.
        Mar 9, 2021
        JPGL likes this.
    30. JPGL
      JPGL
      Cuando habrá una cura tratamiento para la perdida auditiva-tinnitus.Que estemos huérfanos de tratamientos-medicamentos es inadmisible.
      Mar 8, 2021
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  • About

    Gender:
    Male
    Location:
    Spain
    Tinnitus Since:
    10/2015
    Cause of Tinnitus:
    Hearing loss? Noise? Stress? Unknown

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