Brittany95

Great News! Get some sleep. Sleep changes everything..

I’m so happy to hear this!

@BrOKeN_1 thank you and it really does!! I can definitely look back on my good and bad T days based on sleep quality.

@Brittany95 oh no need to apologize I totally get it! I am so happy to hear that things are moving in the right direction for you. I hope that there is more continued success and positivity in your future :)

Unfortunately, things still seem to be progressing, and I have developed mild pain hyperacusis, as well as TTTS that is uncontrollable. Reactivity still basically the same, but “new tone” seems to be subsiding.

Mentally, I am in a much better place than I was last month, and that is half the battle. Building recovery plans when you are in a better headspace is so much easier.

@Matt G I’m sorry to hear about the hyperacusis and TTTS! But thats great you’re doing better mentally. I don’t know when my shift mentally was, but I know how much better things are when your mind is finally more accepting of this. And glad the new tone is subsiding! I had a new tone for 3 days that was like the noise you hear when someone in the car next to you has the bass cranked up. That was trash haha

I hope you will have a better time. Miss you.

Wow. Nice. I would like to sleep 11 hours as well.

When I don’t get sleep it gets way louder

@Shelbylynn Oh definitely! The next night I woke up about 3 times, and sure enough it was louder that day.

@Keith Handy it has definitely gone down and gotten better. I can sleep better and the sensitivity is less, so for that I'm extremely thankful. I'm just worried that since it's been here for a year now, I will never truly be rid of this noise and that's a hard pill to swallow at 26.

@BrOKeN_1 I'm sorry to hear you're in the same boat! And I definitely am. I really appreciate taking showers now because it's one of the few times I don't hear my T, and I feel it makes it somewhat quieter after I get out!

It's been with me for over 3 and I haven't given up :)

Now I'm going to test this on myself as well :P

Same here.

Yup. Super loud.

Miss talking to you, hope you're doing ok :)

Hang in there!

Congratulations!

@Keith Handy thank you Keith, same to you! @Wrfortiscue thank you! It seems a little higher today but I didn't sleep great (and I'm sick so everything is terrible lol) but it's still overall trending down :)

lol @Brittany95, that's f*cking hilarious.

Maybe they'll escort you everywhere from now now.

@Damocles Everyone should definitely have a tuba player or two following them! XD It was so much fun and the energy was great from them, but I was relieved when they turned left and we kept going straight lol

@Brittany95 same! I fly from England to Italy next Saturday. I’m pretty nervous about it. My dad was very kind and booked us seats near the front because they’re quieter apparently.

@ALS Crap, I was hoping to not have to wear earmuffs for a 3.5 hour flight. I'll definitely be bringing mine then! And my ears have had problems pre-T with planes where it would hurt and stuff as we were ascending and descending, so thank you for the warning on ear plugs :)

@Steph1710 omg, lucky!! I want to go to Italy (and England lol) so bad! Where are you going while you're there? And I hope it's a good flight for you! That's nice of your dad to do that. I'll try and get seats towards the front too (we have open seating on our airline)

Thanks :) It's actually been getting louder as the day goes on, which is so annoying. I just wish I knew why mine fluctuates with good day/bad day/good day etc. How have you been? Have your hearing aids come in/are they working?

Hearing aids is aquired on the 11th of October. I started working out on a regular basis and I upped my Lenire usage to 20 min a day. Both helped, so things have been better lately. Thinking about you, wish you all the best.

That's awesome to hear that's helping, and I'm sure the hearing aids will too! :) I've joined the gym with my sister and just ugh...how do you stay motivated to go haha. We're lucky if we go twice a week...!

Thank you! It was my first concert since pre-Covid. And funnily enough the last show I went to was Switchfoot! I hope you're doing good too bud :)

Love those groups, but my concert days are over. I went to a Lauren Daigle and JohnnySwim concert right before lockdown.

JohnnySwim! Are you a fan of Fixer Upper? They would be cool to see :) And I hope one day you can see shows again. NEEDTOBREATHE was amazing and it was my first time seeing them.

Thinking of you too, bud! I'm doing much better today, it's almost silent. Yesterday it spiked after seeing Shang Li in theatres (but with my ear buds in) but today it's quieted down. How are you doing?

It's been a lot of up and down lately, but I've also had good times in the last 2 weeks. I started going to the gym again. I will get a hearing aid soon.

Great to hear you've had some relief in the last few days!! And I hope the hear aid can give you even more relief :)