@NYCGuy I had multiple scans & seen multiple doctors over the past 3 years. I’m now finally on the waiting list to have two operations for my vascular PT, which until three weeks ago, they told me didn’t exist. Only a neuroradiologist can properly read the scans. And also, MRA and MRV aren’t good enough to detect PT. It has to be an angiogram with contrast dye to actually see the tiny blockages in the veins.
If I had just listened to the doctors who thought they could read the scans, and hadn’t pushed for a CT scan, then I wouldn’t be getting the help I need.
I mean, yours might well be caused by TMJ, but don’t just take what the scans or doctors say if it’s causing you problems. Also, I just pressed behind my ear, & it also stops the PT. But remember the main vein that drains the blood from your brain, does run behind the ear.
I am missing the sigmoid sinus bone which holds that vein in place. One of my operations is to encase the bone again to divert the sound away from my ear drum. The vein is right next to the ear and that’s why I can hear the sound. I am also having a stent to open up a narrowed vein. All this makes me laugh. I can’t believe they were telling me for three years that my scans were normal- lol.
@Steph1710 I know what you mean that's why I went with the main doctor in NYC, Dr Arthos Patsalides who is the one who start the stent surgeries in the US. He saw my scan and saw nothing.
He said in 6 months we may do MRI Tricks is a new type of MRI great for this type of issues or Angiogram, but he said there is chances they don't find anything. He focus on Venous sinus stenosis, IIH or DAVF
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