@BrOKeN_1 I appreciate this man. I’ve been afflicted with T my whole life, and for 20ish years what you just described is how I managed (and even forgot I had T).
The recent changes (TTTS, Hyperacusis w/pain), have sent me back to square one, so I’m just having a difficult time accepting this as my new norm.
When I’ve noticed improvement in the past is when I stop monitoring it.
@Matt G I used to. But now, like @BrOKeN_1 said, when I wake up and I do feel disappointed that the T is there, I just quickly busy myself and soon the feeling goes. Hope you feel better soon! X
@Matt G don't cancel your trip! What has gotten me through the bad times, is trying to live life as normal as possible - even if I’m depressed whilst doing it. Pushing myself to go out still and do things and speak to people got me through the dark times.
@Steph1710 i totally agree with you. I went to Florida with my buddies last summer about a month after I developed reactive T/new tone, and it did seem to help out my mental health.
Just kind of nervous about this new mild pain H. Probably just gonna pop a benzo and see how it goes lol
@Matt G I have mild H, and I’ve found the best way for me to stop it becoming too much of an issue is to carry on protecting and pretend it isn’t there.. as strange as thy sounds. I tell myself that my ears aren’t really sore and burning lol.
@Steph1710 you’re right. I actually am going to carry on and go on my trip anyways and just protect basically the whole time.
I am going to be with one of my loud friends, so protecting will be a must for most of the trip. I really appreciate your view point and how someone in a similar situation would react. I’ll update you once back :)
Definitely protect with your pain H. I have this condition. I was fairly functional up until about a month ago. From some very minor noise exposures at “safe” levels I am now in protection 24/7.
I went to a record store playing music at around 65-70dB and it set off my pain that had been dormant for awhile. Then more minor exposures to music at home in the 50dB range aggravated it and it has progressed to this level of debilitation.
Not trying to scare you. Just saying safer is better. I wasn’t wearing earplugs at the record store. If I would have been or if I would have just left then I wouldn’t be where I am now. I believe we live in the same city from your previously posted location. I am in Northwest Columbus
@Steph1710 so I am back from the trip. It was a short one. I had a great time. Cali was actually colder this weekend than Ohio
Quite honestly, I was surprised at what I could handle, however I think I may have exacerbated the problem a little. TTTS & reactivity seems worse and experienced some radiating jaw tingling/coolness for the first time. Jaw tingling/coolness didn’t last tho so that’s good at least.
@GoatSheep not scaring me whatsoever. I really appreciate your insight. I am not protecting 24/7, but moving forward I am getting much more serious about protecting while out. I’ve seen similar cases to mine improve, and worsen. Based on what I’ve seen, most people that have been successful in recovery have walked a fine line of protecting and not protecting.
Also, @GoatSheep no shit you live in Columbus too? I think I know which record store you are talking about…
Anyways, we should definitely keep in touch throughout the next months/years. It would be great to have a friend in town that understands and wouldn’t mind doing quite hobbies together once this all passes over. Feel free to DM me.
Oh I didn’t mean you should protect 24/7. I meant I’m in 24/7 protection because my worsening is that severe from things I wouldn’t expect. I’m honestly in shock at how bad I’m doing. I’m almost homebound at this point and getting pain whenever I don’t have protection on within minutes. I’m probably in for a long haul of recovery now sadly.
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