Jerad

@Jerad ahhh shite, I'm sorry man, didn't realize you were suffering from both T and pain H. That sounds like hell :( Hopefully there's some kind of underlying physical issue that can be remedied causing this. I know it's apples and oranges, but that was the case for me, and I was stubbornly convinced I had irreversible cochlear/nerve damage for like a year.

@Tweedleman thanks for reaching out. Ya, it’s hell, for sure. How did u improve? Did u take a supplement, med, or do a therapy? I have intrusive t and loudness h. No pain h, but the intrusive t causes pain sensations.

This strongly indicates a form of reactive neuralgia;Sphenopalatine Ganglion Neuralgia, worsened by tension and inflammation. Try Holy Basil Tulsi tea, Spearmint tea and check out Blackseed oil and/or Oregano oil (Takes time to work). Icepacks to back of head/mastoid areas. Deep breathing. -important-

And it sux because if I didn’t have the hissing/zaps, I would be at peace with my t. Rest of it is tolerable, even the low frequency, vibrating hum.

I seem to have this zing after acoustic reflex test just sound like a knife rubbing half a rimof glass once in awhile

@Hottopic29 does the zing cause a feeling of pain too? Like a shrill pain sensation?

mine is such a strange one, came from a very very clogged ear for 2 months like...i had only one ear clogged ,t in both ears even i had only one clogged... i cant understand if is inner ear as i didnt have ears problems whatsoever..sensibility..nothing,,,im afraid was hypoxia in the middle ear..which goes directly in brain steam dysfunction...

there is an efferent specific loop for mechanoreceptors in the middle ear, was dry inflammation from an external mold in the ear canal..they kept giving me sprays only saying is ETD..is like a fizzing thing in the brain...when bad just goes in a full steam hissing that takes over the whole brain

@Ela Stefan sorry to hear that. Do u feel physical pain sensations with the T? Mine wouldn’t be near as bad if it were just a sound. Unfortunately it’s a sensation too where I feel sharp zaps and painful sensations. I think the frequency is so high and shrill that the stupid brain interprets it as painful cuz in real life encountering that sound would be unpleasant. I also have severe hyperacusis.

@DebInAustralia thanks for the suggestions and checking up on me! Have you tried either of those yet? I’m still having a rough time. T feels like electrical currents and zaps. Yesterday was a better day, but today is bad again. If the better days were the norm, I’d feel like this all wasn’t so bad. They’re not unfortunately.

hi Jerad. youre welcome! we are in this together. I have taken chinese skullcap before (lyme), tried it again (t) but didnt take it for long. Think after reviewing data on its ability to drive down neuroinflammation, i will have another crack at it. i just thought id mention it because i know you are hesitant to try the ldn. this might be worth looking into as it also has an effect on pro inflammatory brain cytokines

https://www.sciencedirect.com/science/article/pii/S0753332220311094

have a look at the section under MICROGLIA

it downregulates microglia which are responsible for releasing proinflammatory mediators; including tnf alpha

Our brain*. I have a close friend who had SSHL - one ear almost deaf, only hears a few low tones and she got no tinnitus. Neither does she understand what it means to have it... Me, on the other hand, with no hearing loss even at ultra high freqs...

A shining light in such darkness is that the research associated with sch projects is shared in the scientific community and can be picked up by new people. Even a step back is still a step forward.

Or rather a "set back is a step forward"

@ThomasF good point - very true. Xen1101 for example wouldn’t probably be in development if it weren’t for trobalt. So developers learn from others and build upon that. Hopefully a new effective drug will be developed soon that has funding & the proper channels to push it fwd

Are you still considering LDN?

@DebInAustralia I’m thinking about it, but I’m kind of scared because every time I spike, it causes a permanent worsening. And I’ve seen stories of bad spikes with LDN. Seen great success stories, too, though. T has gotten bad & I can’t afford another worsening, even though I’m kind of desperate for relief. Not sure what to do. How about you?

When ur desperate with bad T tho, u kinda are in a situation where there’s a lot more to lose by not trying, ya know?

There might be ppl in the acute stage that coulda taken trobalt for 3 weeks and been permanently relieved of disaster. And 3 wks use probably would be safe in most situations, even with a hard drug.

I mean, it’s no diff than chemo - look how hard that is on the human body. Tinnitus at its worst can be a life ending monster like cancer so ya I think they shouldn’t have pulled trobalt but rather kept it in use for brief weeks only treatments (for acute)