NYCGuy
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Gender:
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Location:
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NYCGuy

Member, Male, from NY

If anybody has any good ENT in NY,NJ or CT please let me know or send me a DM, struggling a lot and need help. Mar 2, 2023

    1. silentnight
      silentnight
      i appreciate the likes and attention that you're always giving my posts <3 hope you have luck with your TTTS as well!! a solution may still be out there for us!! =^^=
      1. JPGL, Flowergirl, sakrt and 1 other person like this.
      2. View previous comments...
      3. Mi1
        Mi1
        I have like a tensed feeling in my ears and around my ears.. will it go away?
        Jan 26, 2023
        NYCGuy likes this.
      4. NYCGuy
        NYCGuy
        @sakrt It can be reattached and saw many that happening when doing it with blade instead of using a laser. Santos only uses laser.
        Jan 26, 2023
      5. NYCGuy
        NYCGuy
        @Flowergirl I totally understand, please don't drink, you don't want to bring more harm your way. I suffer from tinnitus but had other health issues now and is hell to be honest.
        Jan 26, 2023
    2. in_LA
      in_LA
      Just dropping by to tell you, you're not alone bro! Hit me up for anything if you feel down.
      1. NYCGuy likes this.
      2. NYCGuy
        NYCGuy
        Sep 26, 2022
        in_LA likes this.
    3. Aschenherz
      Aschenherz
      Are you okay? Your Mood Badge is quite... frightened.
      1. NYCGuy
        NYCGuy
        Not well, I keep getting worse in my entire general health and having more things and is difficult. Is just an agony
        Sep 18, 2022
        in_LA and Strawberryblonde like this.
      2. NYCGuy
        NYCGuy
        Thank you got asking
        Sep 18, 2022
      3. Flowergirl
        Flowergirl
        I'm asking too. You've been a strong person to me. I felt you have my back.
        Nov 1, 2022
        NYCGuy likes this.
    4. Soraya
      Soraya
      Hi, how is your TTTS now? Do you suffer from neck pain and stiffness? Has anything helped your symptoms? Thanks
      1. NYCGuy likes this.
      2. NYCGuy
        NYCGuy
        Not doing good, yes suffer from severe neck and TMJ issues for 2 years. Doing nucca and PT so neck a little bit better but not great
        Sep 17, 2022
        Flowergirl likes this.
    5. NYCGuy
      NYCGuy
      I was prescribed cymbalta 30mg, anybody have any feedback? Is for my TTTS/MEM
      1. View previous comments...
      2. Rockman
        Rockman
        @NYCGuy how's the cymbalta treating you?
        Sep 4, 2022
      3. NYCGuy
        NYCGuy
        Sep 4, 2022
        Rockman likes this.
      4. Flowergirl
        Flowergirl
        is the Cymbalta helping @NYCGuy? I was just reading about it last nite. Someone else mentioned gabapentin. Also the drug Ebselen that I was turned down on for clinical trial has glutathione in it. It's available OTC.
        Nov 1, 2022
    6. Kjforever
      Kjforever
      Thank you so much for responding. So is ttts and mem the same thing? Have you ever been to a chiropractor? I went to one and he found sublaxation in my back which he believes causing the sound in my ear and gerd too.. Your positive comment that it will get better in time gives me hope. You are a wonderful person. Thank you really.
      1. NYCGuy likes this.
      2. View previous comments...
      3. Kjforever
        Kjforever
        I had 4 sessions of chiropractic care and will be doing for the next few months. So far, I can say that it improved my tinnitus, I only get like one or 2 thumps after burping. , but I noticed that I get ticking sound like that of a clock when laying down not sure if its because of my neck and spine is in the process of aligning. Sorry for my english but thought id give some update. Hopefully you are all well!!
        Sep 5, 2022
        NYCGuy likes this.
      4. NYCGuy
        NYCGuy
        So happy for you @Kjforever , you did regular chiropractor or type like upper cervical one?
        Sep 6, 2022
      5. Kjforever
        Kjforever
        Sep 7, 2022
    7. pamplemousse
      pamplemousse
      Hello, can I ask you about the people with MEM you talked to who got better? Did they do something like exercise more? Did some of them get surgery? My MEM comes and goes (for now) but I would feel a lot less anxious during episodes if I knew I could cut the muscles. hope you're doing well, have a good day!
      1. silentnight and NYCGuy like this.
      2. NYCGuy
        NYCGuy
        Some people do nothing and after time goes away. Other do magnesium and COQ10, other do potassium or vitamin B.
        Some many different causes it seems and surgery needs to be done for sure with laser to be successful. Even with surgery few still have the vibrations and end doing medications as Cymbalta
        Aug 28, 2022
        silentnight and pamplemousse like this.
    8. Kjforever
      Kjforever
      Hello. Do you get pulsatile tinnitus when you burp?
      1. NYCGuy
        NYCGuy
        I just started 15 days ago, so I can't be much help. I still suffer from MEM and is driving me crazy. Two days ago I had an episodes for 6 hours straight. Not getting better but worse for me at least @Kjforever
        Aug 26, 2022
      2. NYCGuy
        NYCGuy
        There is still hope, I talk to a lot of people and they get better with time as other don't and get surgery etc @Kjforever
        Aug 26, 2022
        Kjforever and pamplemousse like this.
      3. NYCGuy
        NYCGuy
        I have TTTS is thumps, I do have pulsatile tinnitus for over a year but that's totally different. I have Pulsatile Tinnitus, regular Tinnitus and now MEM/TTTS that's like ear vibrating and thumping after yawn,burp or stretch @Kjforever
        Aug 26, 2022
        sakrt likes this.
    9. NYCGuy
      NYCGuy
      Good week everyone's!
      1. in_LA, Joe Cuber and Jsm_Joestar like this.
      2. in_LA
        in_LA
        How was your Monday ? I called out for Tues and Wednesday, I've been a nervous wreck lately.
        Aug 23, 2022
        NYCGuy likes this.
      3. NYCGuy
        NYCGuy
        Hanging in there, I need to continue with work I can't have days off, my struggle is a night because my TTTS happens while I sleep mostly and during the day is not that bad @in_LA I hope the 2 days off helps, try to do something fun.
        Aug 23, 2022
        in_LA likes this.
    10. NYCGuy
      NYCGuy
      Last night ear vibrations, the MEM/TTTS didn't stop for a second, was not able to sleep. This new symptom is killing me.
      1. in_LA likes this.
      2. View previous comments...
      3. makeyourownluck
        makeyourownluck
        What about TMJ/neck massage? Relaxing the muscles around the ear may help a little, and even if it doesn’t, it feels nice.
        Aug 21, 2022
        in_LA and NYCGuy like this.
      4. NYCGuy
        NYCGuy
        Doing that, plus NUCCA and PT @makeyourownluck feel better but I have very severe neck and tmj issues
        Aug 21, 2022
        in_LA likes this.
      5. makeyourownluck
        makeyourownluck
        I see @NYCGuy, no doubt you know how these things go by now.

        Your anxiety will be increasing muscle tension. Try break the cycle somehow. Easier said than done I know. Do anything you find relaxing/distracting.

        Really hope it calms down soon.
        Aug 21, 2022
        NYCGuy likes this.
    11. NYCGuy
      NYCGuy
      Ear vibrations won't go away, no idea if MEM or TTTS
      1. Leeroy, in_LA and Wrfortiscue like this.
      2. View previous comments...
      3. NYCGuy
        NYCGuy
        hanging in there @in_LA , the thumps are less now thanks god.
        Aug 18, 2022
        in_LA likes this.
      4. silentnight
        silentnight
        @NYCGuy "EME"? What is that? I don't believe I recognize that abbreviation...
        Oct 2, 2022
        NYCGuy likes this.
      5. NYCGuy
        NYCGuy
        Oct 2, 2022
        silentnight likes this.
    12. Mal25
      Mal25
      I have a friend in NY who's knowledgeable want me to ask him about neurologist in NY or do you need a Neurotologist?? He knows alot. Anything to help bro
      1. NYCGuy
        NYCGuy
        That can be great. I think mine is cause by TMJ for sure @Mal25 I hope we get better soon
        Aug 8, 2022
    13. NYCGuy
      NYCGuy
      Does anybody knows good neurologist in NY, NJ or CT?
      1. in_LA and ZFire like this.
      2. View previous comments...
      3. ZFire
        ZFire
        @NYCGuy Dr. Maksim Shapiro, MD Neurology , located in NYU Langone Medical Center. I’ve believed he’s dealt with tinnitus patients. He seems well liked.
        Aug 8, 2022
        NYCGuy likes this.
      4. NYCGuy
        NYCGuy
        Aug 8, 2022
        ZFire likes this.
      5. NYCGuy
        NYCGuy
        Aug 13, 2022
        ZFire likes this.
    14. NYCGuy
      NYCGuy
      My ears are totally damage and never went to concert or loud environment. For sure is stress and TMJ but no idea what else to do.
    15. NYCGuy
      NYCGuy
      But today is on both ear and feel like a Morse code none stop, vibration is less but I can hear it on both ears now.
    16. NYCGuy
      NYCGuy
      I have weird ear vibration, first 4 nights was like butterflies in my ear that I can feel and hear.
    17. Mal25
      Mal25
      I be looking at them fake pressed percs like now I know if I took 4 of them and drank a lot of promethazine and threw in a couple hydrocodone I'd get outta here for good. But would it hurt is the question? And then heaven can I still go
      1. NYCGuy
        NYCGuy
        Please try everything possible, there are so many things to try to help us out. We have to keep fighting and not give up.
        Aug 6, 2022
      2. MaxRabbit
        MaxRabbit
        Agree. Of course its hard but everyday is closer to healing, a treatment or the cure. You aren't alone..no matter how bad it is - we all understand the hard battle you are in. Keep trying to figure out how to keep staying alive!
        Aug 8, 2022
        NYCGuy likes this.
    18. MaxRabbit
      MaxRabbit
      Hi NY. I'm lazy to read up. Can I ask what some of that 30K went to for treatment? I'm sorry youre here too. Life was never meant to be like this. Support and hugs from the other coast.
      1. NYCGuy
        NYCGuy
        Many expensive doctors, MRI, CT Scans, I went to Neurologist, TMJ specialist, several ENT, Pain doctor, Neck Pain, did NUCCA, Physical Therapy etc
        Aug 5, 2022
        Mal25 likes this.
      2. tniuf
        tniuf
        Didn't your insurance pay for these? Why not?
        Aug 14, 2022
    19. NYCGuy
      NYCGuy
      I ask my self 200 times, why we deserved this? Why there is no help? I spend over 30K and got zero answers or help at all.
      1. Sammy0225, Mal25, ThomasF and 5 others like this.
    20. NYCGuy
      NYCGuy
      4 days I started with my right ear vibrating, but is not a sound but most like a physical type of vibration, I LITERALLY LOOSING MY MIND
      1. Mal25 likes this.
      2. View previous comments...
      3. NYCGuy
        NYCGuy
        Aug 14, 2022
      4. tniuf
        tniuf
        Any chance that the vibration is a result of yiu accidentally irritating your ears, then goes away once you stop doing it?
        Aug 14, 2022
        NYCGuy likes this.
      5. NYCGuy
        NYCGuy
        No ar all, show at of the blue while sleeping. No idea what happen, but this thumping is driving me crazy @tniuf
        Aug 14, 2022
    21. NYCGuy
      NYCGuy
      I start with Pulsatile Tinnitus right ear, then high pitch loud on the left, then morse code on the right plus PT and dealing for a year
      1. Steph1710 likes this.
      2. View previous comments...
      3. NYCGuy
        NYCGuy
        @Steph1710 Those I can live with, I think somehow I got used it to it but the new vibrations on my good ear is driving me crazy.
        Aug 5, 2022
        Steph1710 likes this.
      4. Steph1710
        Steph1710
        @NYCGuy ah yes, the ol’ vibrations. Don’t worry, I have that too. Weird to think before 2018 I had no ear problems whatsoever. Those little bastards are buggered now. Seriously, life is a lil bitch. Hopefully you’ll get used to the vibrations too.
        Aug 7, 2022
        NYCGuy likes this.
      5. NYCGuy
        NYCGuy
        @Steph1710 how you described vibration? I can't find what is destroying my ears and I have so many issues and this last one the vibration is putting me on the edge.
        Aug 7, 2022
    22. NYCGuy
      NYCGuy
      I enjoyed the time here and got to know great people, I hope you all get better with time and the miracle happens.
      1. tpj, beefling, lusiol and 4 others like this.
      2. Wrfortiscue
        Wrfortiscue
        Hope you get better as well. Sorry nothing works right now
        Aug 4, 2022
        NYCGuy and BrOKeN_1 like this.
    23. NYCGuy
      NYCGuy
      Time for me to say goodbye to the forum after OTO-313. Lost all hope and I think this is now forever and there won't be a cure.
      1. JPGL and Wrfortiscue like this.
      2. View previous comments...
      3. Leila
        Leila
        I'm sorry your suffering has reached a point where it is overshadowing everything you've once considered worth living for. The other commenters are right, of course there is hope and of course there is a chance of improvement, but the tinnitus hell you're forced to live with is an unbelievable challenge as well - all day, every day -
        Aug 4, 2022
        NYCGuy likes this.
      4. Leila
        Leila
        and only you can decide whether this is just a temporary low or if you have truly reached your limits. I don't have to tell you to think this through carefully because I'm sure you already have. Whatever you decide I wish you all the courage in the world because one decision is as hard as the other, all the best!
        Aug 4, 2022
        NYCGuy likes this.
      5. JPGL
        JPGL
        OTO-313 WORKED,perhaps the study was defective, even so it is not a regenerative medicine, it is not regenerative, there are regenerative medicines,just around the corner, let,s not lose hope.
        Aug 4, 2022
        Steph1710 and NYCGuy like this.
    24. Flowergirl
      Flowergirl
      Idk how to give u a trophy on here so please accept this virtual trophy & feel better :-)
      1. Damocles, ThomasF, NYCGuy and 2 others like this.
    25. NYCGuy
      NYCGuy
      Had very closed contact with somebody with Covid, now I'm scared as hell.
      1. JPGL, Guywithapug, ZFire and 2 others like this.
      2. blamingeverything
        blamingeverything
        I've managed to avoid it thus far but I know it's inevitable.
        Jun 8, 2022
        JPGL, ZFire and NYCGuy like this.
      3. ZFire
        ZFire
        How are you feeling ?
        Jun 9, 2022
        Flowergirl likes this.
      4. Flowergirl
        Flowergirl
        I know 3 people with it right now. 1 has a headache 1 has what feels like a cold. The other is on the rebound. I think if u had shots it's not as severe. Don't be scared you are already tough as h*ll.
        Jun 17, 2022
        Barry098, NYCGuy and JPGL like this.
    26. ZFire
      ZFire
      You’ve ever been to Cheesequake state park NJ? Great hiking spot
      1. NYCGuy and Rockman like this.
      2. View previous comments...
      3. ZFire
        ZFire
        Hey @NYCGuy Went to high point yesterday. Its the best park I’ve been to thus far. I made to the high point monument and wow the view is gorgeous. Thanks for letting me know about this park.
        Jul 14, 2022
        MindOverMatter and NYCGuy like this.
      4. NYCGuy
        NYCGuy
        I'm so happy you enjoyed it @ZFire. I went few backs to green lake in upstate NY and WOW, IS BEAUTIFUL. The same with finger lake and Onedia lake, great fishing.
        Jul 15, 2022
        ZFire likes this.
      5. ZFire
        ZFire
        Yeah i saw the picture. Wow had no idea NY waters could be that blue.
        Jul 15, 2022
        NYCGuy likes this.
    27. RachLouise
      RachLouise
      Hey, i know that we share quite a few symptoms. Just wondering what you tried for your jaw issues?
      1. NYCGuy likes this.
      2. View previous comments...
      3. NYCGuy
        NYCGuy
        @RachLouise Seems my first message got deleted, I mentioned I did NUCCA and PT and vitamins, diets, etc but so far nothing has help me on the T. Nucca and PT did help with my TMJ and Neck pains.
        May 12, 2022
        Flowergirl likes this.
      4. RachLouise
        RachLouise
        Sorry if I'm not seeing your previous comments, I'm useless at this site. Did you try an occlusal splint?
        May 12, 2022
        NYCGuy and Flowergirl like this.
      5. NYCGuy
        NYCGuy
        @RachLouise just saw your last message. I didn't, I don't know if will help.
        Jun 18, 2022
    28. ZFire
      ZFire
      Yo, did you hear that really loud thunderstrike early this morning? Holy crap, I panicked. It shook the whole city. I have family in NJ and they told me they felt its impact too. Lighting struck atop the One World Trade Center. And I’m all the way uptown. I’m okay so far.
      1. NYCGuy
        NYCGuy
        I think we all did, but I heard a few of them but two were really really loud. I even disconnect my work computer just in case lol.
        May 3, 2022
        Damocles and ZFire like this.
      2. ZFire
      3. NYCGuy
        NYCGuy
        @ZFire I'm in NJ, to be honest next to Manhattan but it sound so so loud. I'm around in front of central park, when looking from NJ.
        May 3, 2022
        Damocles and ZFire like this.
    29. ZFire
      ZFire
      Haven’t seen you in a while.. how you doing?
      1. Rockman and Wrfortiscue like this.
      2. View previous comments...
      3. NYCGuy
        NYCGuy
        I'm so happy to hear you are doing better, this thing seems take long time to get use to it or heal itself, I have high hope at least one of the clinical trials will work for us. @ZFire
        Apr 26, 2022
        Wrfortiscue, Flowergirl and ZFire like this.
      4. NYCGuy
        NYCGuy
        Apr 26, 2022
        Wrfortiscue, Flowergirl and ZFire like this.
      5. Flowergirl
        Flowergirl
        @NYCGuy if you are getting along mostly without T during the day I'm so happy to know that.
        Jun 30, 2022
        NYCGuy and Wrfortiscue like this.
    30. NYCGuy
      NYCGuy
      Anybody here invest in frequency or OTO stocks?
      1. Wrfortiscue likes this.
      2. View previous comments...
      3. NYCGuy
        NYCGuy
        Mar 25, 2022
        Wrfortiscue likes this.
      4. Wrfortiscue
        Wrfortiscue
        Thanks man!
        Mar 25, 2022
        NYCGuy likes this.
      5. Sentinel
        Sentinel
        Yep, I've got OTIC and I'm probably gonna buy more given it's previous peak and just based off it's current price.
        Mar 25, 2022
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  • About

    Gender:
    Male
    Location:
    NY
    Tinnitus Since:
    10/2021
    Cause of Tinnitus:
    Neck, Jaw or Stress, who knows.