LostinTX

@LostinTX I hear mine all the time it never stops. When I go to the grocery store all the noise of the machines makes mine louder when I’m finished.

Yes. It would definitely be a huge help to the community (not to mention, yourself) . As long as you can tolerate a few MRIs (which they definitely will do). I think the MRI part is generally keeping most people away, though.

If its close why not try it

Car rides are the worst.,wish I didn’t have to drive and I know I definitely couldn’t do a long distance drive.

no, I haven't been back to the dr in a month or so :(

Some improve years later but it’s probably just the brain accepting it I don’t know

Is your Tinnitus in both ears and head or just your ears? @LostonTX

SGB is lidocaine and steroid in your stellate ganglion block in your neck. The Korea treatments are acupuncture needles in the side of the face and around the ears with lidocaine

I'm the same. Stopped hrt till further hormonal/adrenal results available. A kinesiologist said its borrelia .. inflammation .. and low estrogen contributing to my t. Restarted lyme herbs .. adrenal herbs .. nutrients .. probiotics ... still unchanged :(

Did you stop ldn? If so, why? I'm still thinking I'll try it once I get all tests back

@DebInAustralia yes I took a break from LDN. I do feel it was a little louder on it for me possibly? I am happy with the HRT for now not experiencing any more night sweats, hot flashes or insomnia. I take my night meds and sleep a solid 6 to 8 hours now. I just hate waking up with T lol. I have made so much improvement since last summer though, it makes me hopeful it will continue to get better. fading.

I’m going through metapause. Had blood work done last year. I can’t remember the month. The last time I had a period it was a lot heavier was benever like that before. My periods were light and the. Like spotting and then to not having one for a couple years.

There's also a promising drug for breast cancer in the works. That one seems really effective killing early cases of C. The world of medicine is fascinating in its success but frustrating in the amount of time it takes to achieve it.

Interesting.. mine is the opposite. Amps up when external noise goes down.

I believe so

@BrOKeN_1 isn't is strange how it's all different for all of us?

I replied on it. I am seriously thinking about ordering Flupirtine though

@LostinTX thats natural product .. i worry about the eye shit with other

@Hottopic29 yeah I hear ya! I did also get coenzymated B-1 today after reading up on that too. I am just so hesitant to believe in the salicylate induced studies especially when it's a few days of that and then they administer something fast. I want to see studies they killed the shit with gentamycin for weeks on end and then administered something.

Treatment hopefully soon!

It's easier to get peoples attention with something they can see. Hearing loss and T while ironically not silent is invisible. That's why its important to support the efforts already in play and spread awareness as much as possible.

@LostinTX what did the coenzymated-B1. What did this do to you?

@AfroSnowman I thought I saw in a thread you had tried Lenire and it had helped some?

@ThomasF I'm sorry to hear that. I don't have hearing loss either and ironically have never had even an ear infection as a child or an adult :/ My job relies on my ears so I have had an extremely difficult time with this. It was insanely loud for a year and now I can still constantly hear it but would say it's the high end moderate. Still praying for more improvement. This can't be my baseline :(

@LostinTX what is a SGB block?

and today I'm once spiking again. Can't win

@Travis Henry is in Texas... i was telling him about this it may help with his Pain issues .. where in texas can he look into this

I wanna try cyclobenzaprine soon. Gotta find a doc for it. Also interested in the SGB by a lone star pain clinic in Fort worth. Any info or advics you can give is welcomed. T AND H are killing me

I'm in Dallas.

I think the barometric pressure has something to do with it also. Has anybody taken trazodone before? I started taking it then I quit thought it was making T louder. Started it again, but also started sound therapy again with open ear earbuds and didn’t know if that was making it louder. So not doing either one now just sound therapy on my phone and my sound machines.

Your really taking it head on! I like it. Keep kicking a!!

@Hottopic29 I'm sorry to hear that. It was pretty severe for me for over a year. You will get there with time and giving your body things to heal from inflammation.

@Travis Henry I take (cyclobenzaprine) Flexeril-I take it for my back and it helps me sleep also.

I'm thinking you will be so distracted you won't notice it

Sounds lovely!

Happy you getting out doing stuff .. the beach will mask the T

after 2 days I stopped the thyroid med

I cant even go to work anymore

@Hottopic29 I can’t work either my T is so bad and I think I have hyperacusis also. How bad is your T?

@Rockman I have to use the speaker phone. Mine is so bad, I wish I could go back to work to.

I've tried. It won't happen to them is what they think

One time on the bus to school I passed by a local secondary and all the kids were filling in for class. At least 40% had earbuds in.

@Safari1999 that's sad. T has seriously impacted my life and now I won't let my 12 yr old son wear gaming headphones. He hasn't pushed back much because he saw me at my worst and suicidal at onset. They seriously need to run PSA's on TV about the impact on young people

I literally thought the same thing when I saw this yesterday

the researcher will give you a pamphlet about everything for informed consent. I read thru everything and then decided it was worth the risk as adverse events were minimal. I don't know why more people aren't sharing. I didn't want the study compromised so i shared because I thought recruiting was over from what the clinical trial site says

I know a story who I will not name who made his H worse

When my cat was a kitten I would hold it at night while I slept. Now, as an adult, it loves to be held.

@kingsfan my husband is a big guy that loves to bottle feed kittens and cuddle them falling asleep lol :)

@LostinTX aww that made me smile :) Your husband sounds great!

Good!

@LostinTX Hey friend.. was thinking about you was going to message about this and searched cyclobenzaprine and you showed up .. lol .. how did this experience go does It lower or help any

I think it does make it lower, at least that was my experience at onset and a friend of mine that also takes it for her T. It's not my script but my mom's so I try not to take much but it def helps sleep

Yes.

I am still concerned about side effects. I would like to have improvement in the loudness of the noise that I hear. My T is really severe 24/7.

the only side effect I had was slight pain in my ear and my ear canal itched inside for 2 days.

My situation was so bad that I figured I had nothing else to lose, so in the words of Hamilton "I'm not throwin away my shot" was going through my head on replay lol

LostinTX what was the trial you are talking about the Oto 313 and the FX 322 suppose to do with people with Tinnitus?

A.H.M. I also have severe high frequency hearing loss but not in the speech frequency mine is higher so it makes my tinnitus louder. Mine is in both ears and my head buzzing-static like electricity. Where did y’all have to go to get that done and did it help you? I know a lot of the ones I look up are so far away. I’m in NC.