Barry098

Hanging in there @Damocles I’m trying a new strategy out. Power of positive thinking. We’ll see how it goes!

Whatever works, until we have something solid, @Barry098.

I’m not holding my breath on a cure…that’s why I’m trying my best to find peace with this through total acceptance and surrender.

Thanks @Joe Cuber I realized that I might have sent the wrong message so just wanted to clarify. I’m done with being a tinnitus sufferer. Not going to let it impact my life from now on.

Man that's awesome, I love your mindset and attitude

@Joe Cuber to be honest, My friends got tired of hearing me complaining so I stopped vocalizing my T issues and kept it inside then I got tired of listening to my internal complaints so I just decided to be done with the whole thing. Not sure if it is so simple but I’m going to give it a try.

Love the sky photo. Just beautiful.

My pulsatile tinnitus is loud today. No idea why. My heart rate isn’t up or anything. :-/

same

@AnthonyMcDonald I can find things that mask it for a little while but my brain seems to try and elevate the T signal above everything, so I can’t get more than a minute off relief before my brain outsmarts the masking sound.

@Steph1710 not sure anything you could have done merits this treatment

@ThomasF I hope in my next life to be a bird...

@Barry098 honestly, with all my health issues, I must have done some awful. Perhaps I was a killer in my past life.

@Steph1710 Yea I thought tinnitus was just hearing ringing when in silence. I never learned, even from reading about it, that it was more than that. So I thought I just had to watch out for hearing loss, since I already had ringing in silence.

@kingsfan I don't mind the ringing in silence too much either. It's the ringing over everything else that makes me feel queasy.

@kingsfan what do you find most distressing about your T?

LOL

@Barry098 the pillow is for smothering purposes only. Do you want me to smother you with it? Good effective way of getting to sleep. Cost effective too.

And that, ladies &gents , is the way
@Steph1710 takes your breath away.

Sleep vs no sleep really changes mine! One of my few things I know makes a difference

Me too! If I’ve had a bad night’s sleep, my T is noticeably worse for it.

This is good. Congratulations.

I hope she doesn't give them a TRT pamphlet and tell them to continue destroying their ears...

No…she’s seen the hell I’ve gone through so she’s very sympathetic and caring.

Really hate to be "that guy" but have you considered this to be maybe psychological?

Might be…but it is also physiological too. My whole body is vibrating at the frequency of my tinnitus.

@AnthonyMcDonald got talked into subbing (last minute) for a musician who didn’t show up to a gig. Normally I would have said hell no but, I’m tired of not doing the things that I love out of fear of my T getting worse. I’m going to live my life and learn to live with the consequences of screaming tinnitus because it’s never going to get better anyway and I’m tired of hiding from it.

@Stacken77 ears are screaming again today, so I guess they finally realized that I insulted them the other night!

Sorry to hear that @Barry098. Yeah, it usually catches up on the end. Hang in there brother!

When the Doctor acts as though you're wasting their time however it adds insult to injury as direct a relationship that idiom has to the situation aside. I'd much rather Doctors treat T like its a symptom of a condition and refer patients to communities like this to connect them to resources and information.

@ThomasF It's really insulting when they are the ones that made it worse and they blow it off.

I am trying to “learn to live with it again,” right now I’m more in the “learning to exist with it” phase though. I just wish I had something to goto other than a pair of white knuckles…

I wish i knew,@Marshall .

@aura Really, just came back out of the blue one day? That is a really creepy...So, even if we beat this curse, it is still just hiding in the shadows waiting to pounce one day...

We need a permanent solution for this problem! This is incredible that we are all suffering like this and have no coping mechanisms other than, "masking" which doesn't work for me and Xanax which helps a little but can't be used everyday. Wow, shame on the medical establishment for not putting all of their effort into finding a cure for the most awful torturous disease which has ever been unleashed on humanity...

Sort of similar, but I had this same thought when Covid started in the US. As weird as this sounds, I welcomed Covid as my life was slowly becoming unlivable with how often I was on the run (so I thought).

I wish I could go back and slap myself in the face for thinking that. Being on the run is what keeps someone like myself alive. Now I barely enjoy my weekends because of severely reactive T.

Me too! I woke up this morning with T so silent I thought it disappeared lol.

What kind of electrocution do u usually have? My T is electrical and hurts often. @Barry098

My whole body feels like it’s ringing most mornings @Jerad…it feels like electricity running through my body

Diphenhydramine seems to help with both sleep and stopping the body jitters…wonder how long it is safe to take this stuff…

Man right with you

Tinnitus is such a cruel affliction…

How are you feeling @Steph1710 ? Over COVID now?

I really dig John Lennon’s “Nutopian International Anthem” myself.

Finally got a chance to check it out @Monkee Man …really great track! Short and sweet!

Yes . My God

I'm in pure hell right now with tinnitus and hyperacusis. I don't have a clue how to manage it.

@Travis Henry just hang on and know that with time it will get easier. My ears are pretty much screaming 24/7, but I hardly notice them except for first thing in the morning when I wake up.

That's good. Its not the habituation we wanted... its the habituation we got. Annoying Not Destroying.

Well said @BrOKeN_1. Other than still waking up every morning with my body trembling, I am doing pretty well. Sure wish I could figure out the waking up part though. It’s so uncomfortable feeling like I am being woken each morning with a hot poker!

I have days where it’s loud and Im super happy and it doesn’t bother me at like I can really relax. And some days it’s loud and I just don’t have the time for it and can’t sit still