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Flowergirl

Member, Female

Stress is a monster Jul 11, 2023

Flowergirl was last seen:: Jul 11, 2023

1. Flowergirl
  Not sure why but for some unknown reason I started going about life as if my right ear isn't screaming all the time. Trying something new.
  
  Jul 19, 2022
  1. CRGC, NYCGuy, Wrfortiscue and 2 others like this.
  2. Flowergirl
    So...that's been working fairly well but there's still some days I rather stay home & quiet.
    
    Nov 3, 2022
2. Flowergirl
  Almost a month since I checked in but I think about you all the time.
  
  Jul 19, 2022
  1. sakrt and Steph1710 like this.
3. Flowergirl
  Dizzy headed today, haven't had that in a long time.took a meclizine( sp?)not helping.T is hovering at a 7.just f'ing nonstop. :/
  
  Jun 30, 2022
  1. Guywithapug, NYCGuy, Joe Cuber and 1 other person like this.
  2. Flowergirl
    @Joe Cuber. Last nite I was at wits end then woke up today it's been light all day WTH
    
    Nov 1, 2022
    
    Joe Cuber likes this.
  3. Flowergirl
    @Joe Cuber lol I had to look up somatic I do think for me it's neck related also weather and stress and sleep related. I cant seem to figure out a pattern
    
    Nov 1, 2022
4. Flowergirl
  T & H are flaring up & down. I sleep awhile then wide awake awhile, day& nite. I can't figure out what to do. feels like I've hit the wall.
  
  Jun 29, 2022
  1. sakrt, NYCGuy and Joe Cuber like this.
  2. Flowergirl
    No I have terrible sleep habits-knowing I pay for it. This is crzy but I have a 6 yr old cat who wakes me up between3-6a.m. I get up from a sound sleep to give him a bite of food then barricade flimsy door so he can't bother me again scratching on door. Husband doesn't budge it's on me.
    
    Jun 30, 2022
  3. Flowergirl
    Yes. If supper was before 11 pm and I was asleep by 11 pm & toughen my heart & lock Leo cat out till a.m.
    
    Jul 1, 2022
    
    NYCGuy likes this.
  4. Flowergirl
    I slept for hours on & off all day. Did not help. Getting a shot in shoulder next week for pain. Hoping for at least a break from T. I'm pushing thru which is more than I did for 2 yr. But still missing out on life today.
    
    Jul 1, 2022
    
    sakrt and NYCGuy like this.
5. Flowergirl
  Thank you for being a shelter from the storm.
  
  Jun 27, 2022
  1. NYCGuy, sakrt, Damocles and 1 other person like this.
6. Flowergirl
  Oh Lord thank You for the days that it's been tolerable. I will get through today. I believe You've got my back.
  
  Jun 26, 2022
  1. sakrt, NYCGuy, aura and 6 others like this.
7. Flowergirl
  Its so weird sometimes T is so loud in R ear, I can like throw my voice & hear bass notes inside my head, hum the scale & end up on L ear
  
  Jun 26, 2022
  1. NYCGuy and Guywithapug like this.
  2. View previous comments...
  3. sakrt
    @Flowergirl No, maybe confused me to someone else. I believe carotid blockage can be evaluated even by simple ultrasound. I'm sorry you're struggling, and do relate. Anything, to help cope, which the reality really, is we have to do it ourselves too.
    
    Nov 1, 2022
    
    Flowergirl likes this.
  4. Flowergirl
    @sakrt I was scheduled for a CT calcium scoring scan today & forgot not to drink coffee so had to reschedule you're right it shows plaque.
    T was rough a few days then all the sudden I woke up with a 2 and it's been a 2 all day.
    Learning to ride the roller coaster... If u know you're going to get a break usually after a 9 day then it helps to keep from losing it.
    It took maybe 2 yrs before that started happening.
    
    Nov 3, 2022
    
    sakrt likes this.
  5. sakrt
    @Flowergirl Not been able get break unfort. :( but opposite, worsening, unbearable. Quite emotionally draining trying to cope to (alike Theezy's). A vicious loop-cycle, my loud T. also exacerbates the H. vibrating and pulsing also down to feet nearly 24/7. It's really good yours fluctuates to getting "2" on days. *fingers crossed*
    
    Nov 4, 2022
8. Flowergirl
  I said FU to T & went to a get together. the whole d@m time I was smh b/c my right ear was screaming so loud but my left ear had fun.
  
  Jun 25, 2022
  1. NYCGuy, LilSass, Wrfortiscue and 2 others like this.
9. Flowergirl
  Does anyone ever have a super loud tinnitus day but somehow still goes out & has fun & gets thru it? Feeling so thankful right now.
  
  Jun 18, 2022
  1. NYCGuy, Wrfortiscue, Steph1710 and 2 others like this.
  2. View previous comments...
  3. Steph1710
    Hi @sakrt. I am/was a climber so I know all too well about elevation sickness. I’m staying in Cusco for two days before I go up Machu Picchu, so I can acclimatise. I like the idea of a portable oxygen canister. Thanks for the tip. :) Will definitely be photo spamming TT.
    
    Jun 19, 2022
    
    Flowergirl, ZFire and sakrt like this.
  4. ZFire
    @Steph1710 Fossil hunting you say? A conservator and now a paleontologist. Wow you do it all
    
    Jun 20, 2022
    
    Flowergirl, sakrt and Steph1710 like this.
  5. Flowergirl
    @Steph1710 I can't imagine traveling right now much less adventure. I'm so very happy for you.I'm just now after 2 1/2 yr pushing myself to go out close to home. You are an inspiration
    
    Jun 26, 2022
    
    ZFire and sakrt like this.
10. Flowergirl
  Thank you whoever likes me out there. "You like me, you really like me" lol
  
  Jun 17, 2022
  1. sakrt, ZFire, Steph1710 and 4 others like this.
  2. Damocles
    Just remember us, "the little people", when the Tinnitus Talk fame and fortune (/likes) start going to your head.
    
    Jun 17, 2022
    
    sakrt, ZFire, Flowergirl and 1 other person like this.
  3. Flowergirl
    Hahaahaa. We will raise the survivors flag together and drink expensive champagne & we will all be celebrated !!!
    
    Jun 18, 2022
    
    sakrt, Steph1710, ZFire and 1 other person like this.
11. Flowergirl
  @NYCGuy 3 yr I have T from mild to severe + hyperacusis. have changed my life. Seeking help.Toughing it out Sending.group hug &prayers
  
  Jun 17, 2022
  1. Steph1710, Wrfortiscue and Ken219 like this.
12. Flowergirl
  A year ago had vertigo attack husband called 911. Dx with Menieres. Seen countless ENTs. No help. That's my story. The end?
  
  Jun 15, 2022
  1. Guywithapug, NYCGuy and Wrfortiscue like this.
  2. View previous comments...
  3. Flowergirl
    Short answer:No I just don't know how to post in one paragraph @#$&$#@
    
    Jun 17, 2022
  4. Lurius
    My tinnitus also came after vertigo attacks. Both times. Recovered 100% from the vertigo. Also from the tinnitus first time. Not so lucky 2nd time.
    
    Jun 17, 2022
    
    Flowergirl likes this.
  5. Flowergirl
    @Lurius WTH. I feel guilty b/c it's not a fatal disease. But this some crazy stuff. I hate to hear this about you. :-/
    
    Jun 18, 2022
13. Flowergirl
  Was told fluid in ear would reabsorb. By Feb bilateral hearing loss & tinnitus. ENT#1 said it was age related. Get used to it.T worsened.
  
  Jun 15, 2022
  1. NYCGuy and Wrfortiscue like this.
14. Flowergirl
  Hearing came back.I was dx with Graves autoimmune 2014. Then Dec 2018 I had a bad cold & said I was losing my hearing.
  
  Jun 15, 2022
  1. NYCGuy and Wrfortiscue like this.
15. Flowergirl
  I had a dizzy spell & my eyes were flipping back in my head for some time. That day I rear ended a stopped car. I lost my hearing for awhile
  
  Jun 15, 2022
  1. NYCGuy likes this.
16. Flowergirl
  After seeing my 6th or 7th ENT last week I've decided what brought on T for me was the airbag when it explode & the smell of gunpowder 2013
  
  Jun 15, 2022
  1. NYCGuy likes this.
  2. Flowergirl
    I'm now thinking the explosion burned off the hairs they talk about in your ear
    
    Jun 17, 2022
17. Flowergirl
  Many of you mention white noise and/or hearing aids/s. None have helped me. Nothing overcomes the high pitched screaming. Bummer.
  
  Jun 15, 2022
  1. NYCGuy likes this.
18. Flowergirl
  I can start the day 'ok' but a nap is reset back to loud T. Wonder why? Also I see weather related posts. I often think that's a trigger.
  
  Jun 15, 2022
  1. sakrt and NYCGuy like this.
  2. Ken219
    If you ever figure it out let me know. Same for me!
    
    Jun 17, 2022
    
    Flowergirl likes this.
  3. Flowergirl
    @Ken219 won't it be something if any of the medical research helps us. When that happens we should have one really huge celebration.
    
    Jun 18, 2022
    
    sakrt likes this.
19. Flowergirl
  Scanning lots of posts today. We are all all over the place. Hard to find a common thread among many. I saw someone mention nap brings on T
  
  Jun 15, 2022
  1. NYCGuy likes this.
20. Flowergirl
  listened to the podcast of the $1million donor & the MD. If you did too, please message me what it all mean?. Thx! Btw Hyperacusis sux too.
  
  Jun 13, 2022
  1. NYCGuy, Wrfortiscue, ThomasF and 1 other person like this.
21. Flowergirl
  Habituation therapy appt in June. Just have to keep trying. Any input always much appreciated. Thank you.
  
  May 24, 2022
  1. Rockman, makeyourownluck, ZFire and 2 others like this.
  2. Wrfortiscue
    Keep trying <3
    
    May 24, 2022
    
    Steph1710, Rockman, makeyourownluck and 2 others like this.
  3. Flowergirl
    I didn't go. Have decided I have depression based on a real time live discussion on zoom. Waiting to get a therapist. Seems they're in short supply. Hate to say it but truth is I think these past few years have affected my mental health so I'm gonna get help.
    
    Jul 19, 2022
22. Flowergirl
  Getting neck scan tomorrw. Osteoporosis showed up some years ago. Hoping there's a connection with neck issues & screaming ear.
  
  May 24, 2022
  1. ZFire likes this.
  2. Flowergirl
    Husband says it's just chiropractor manipulation im wasting $ but PCP says I should get MRI
    
    May 25, 2022
23. Flowergirl
  Good grief I feel so clunky trying to move around on this board.but after spending the last 4 hrs here I'm getting better (I think :-)
  
  May 24, 2022
  1. ZFire likes this.
24. Flowergirl
  Re the podcast & comment by member @2noist. Re the electric stimulation research. I'm pretty sure those of us with Menieres are excluded.
  
  May 24, 2022
  1. ZFire likes this.
25. Flowergirl
  @LilSass ty so much for your post!I've been thinking about my neck for a few days & asked my pcp to refer me to a spine/neck clinic.
  
  May 10, 2022
  1. Rockman, Wrfortiscue and Steph1710 like this.
  2. LilSass
    Hi @Flowergirl ! I didn't have a lot of time to respond, but I'm glad you found the link helpful. I had great success with UCC, to the point where I was 95% pain free. Seven months after the vax and I am still living in hell. Pain/migraine every single day. WTF happened? Still working with UCC to try to get back to that place. Wishing you good health! <3
    
    May 12, 2022
    
    Flowergirl likes this.
  3. Flowergirl
    @LilSass So sorry to read this! healing wishes! I had migraines since age 10,finally went away, outlived 'em I guess. In the end I found if I took 4 ibuprofen at once &went to bed that worked. Now 3 yrs of screaming T. life passing me by. On rare days I live a normal day.
    
    May 24, 2022
26. Flowergirl
  Alone because it's hard to make myself leave my quiet place
  
  May 9, 2022
  1. Damocles, Barry098, tracyNYC and 3 others like this.
  2. LilSass
    https://hearinglosshelp.com/blog/atlas-adjustments-alleviate-menieres-disease/
    
    May 9, 2022
    
    Flowergirl, Guywithapug and Steph1710 like this.
27. Flowergirl
  Alone too much
  
  May 9, 2022
  1. Steph1710, Damocles and NYCGuy like this.
28. Flowergirl
  If a member says they're feeling suicidal, is there a moderator or clinician or researcher, anybody that can reach out to that person?
  
  May 9, 2022
  1. makeyourownluck, NYCGuy, AnonymousPie and 2 others like this.
29. Flowergirl
  New
  
  May 9, 2022
  1. sakrt, Damocles, makeyourownluck and 6 others like this.
  2. ZFire
    Welcome.
    
    May 9, 2022
    
    sakrt, Damocles, Barry098 and 4 others like this.
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About

Gender:

Female

Birthday:

August 30

Tinnitus Since:

12/2018

Cause of Tinnitus:

Not sure / prob a virus

Just heard about CGB today wanting to learn about it.
Was turned down for trials OTO 313 bc I’ve had it too long + diagnosed with Menieres last June.
Some days almost unbearable.
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Flowergirl

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