Shelbylynn

@Jupiterman So i still use db readers when appropriate or if i'm nervous about a place, and i wear plugs if I feel uncomfortable with the noise level. And I still won't go to clubs or indoor concerts. I am considering outdoor music events.

@Strawberryblonde Aboslute life savers for me tbh! And honestly I think I would have done very well on them years ago but that's because I have preexisting mental health issues rather than just T :)))

@Joe Cuber thank you! and I honestly can't thank you enough for your support in the early days because it honestly made all the difference for me. I really needed that logical and safe reasonable voice.

I don’t know what’s best but I use Decibel X, although I’m trying to refrain from using any. Just creates more anxiety and paranoia

Decibel X is supposed to be a good one. Not sure how well its calibrated though.

Most useful decibel meter I've found so far is Grandma Damocles.

Just carry her around with me, and if a place is too loud, she lets me know.

https://encrypted-tbn0.gstatic.com/images?q=tbn:ANd9GcRa4bPOmW4Q3f3a-P4N-ukvIUwsj8P-gdlIyw&usqp=CAU

@Shelbylynn If tinnitus wasnt such a burden or it didnt exist i would say go get that IG tik tok money

@Shelbylynn i had to do a double take, im like oh crap tinnitus done got Wednesday too God dam lol, fun fact did you know alot of A listers got tinnitus too but for some reason dont really care to spread awareness..

@KoolKat haha if there is money in looking like her then i should definitely bank on it.

I've heard that's one weird movie. Recommend or no?

@tpj It's probably the weirdest, longest movie I've ever seen. I don't think I could recommend it though because it's pretty avant garde but it was hilarious.

Hi Sarah! Pleasure to meet you! Glad to have a tinnitus friend so near!

Ahhh, thank you! Glad somebody appreciates it! Oh yes, Hard Candy was difficult! But something that really left an deep impression. Love ones like that.

Take all the time that you need. It's a struggle but I think with time things can improve. It's just hard to keep up the hope. <3 Im sorry to hear that. Sending you healing

@Joe Cuber Hi! Long time no see! Yes it's working much better than I could have ever imagined. I'm honestly kicking myself for not tying it sooner. :))) Thanks for all your help and assurance that helped lead me here.

@Joe Cuber Yes! I notice that although it's still present, it's almost like I can't hear it because my brain finds it completely unimportant and uninteresting. I think it's starting to want to filter it out more as time passes. But I don't think it's any quieter in reality? unless i am Physically healing .

@Joe Cuber Yes I am! I am still trying to figure out how long I want to take these, but I really don't mind them at all. I think I have a neurotic disposition as well as prior mental illness that just made tinnitus a more agonizing condition for me. Now w/ my mental health under control it's much better. I don't think my neurotype would allow habituation before.

Get some filtered earplugs to wear outside

Filtered ear plugs definitely take the edge off any potential or unexpected loud noises.

@kingsfan I am fine but I really hate that guy Lol. Also love your icon pic .

Hello! Thanks for checking up on me that’s really sweet of you. I’m doing very well! It has been SO HELPFUL. My anxiety has reduced so much like 70%. (Prob part of why I’ve been MIA) Has not effected my t. (YAY) I feel so much better. I’m going to increase to 75mg from 50

I will let you all know how that goes. Hopefully better and doesn’t effect t. So far hasn’t. None of my daily meds have (lisinopril) (allergy meds)

Glad to hear your getting on well with your meds. Your mental wellbeing can certainly make or break you with this condition. Cheers!

Didn’t change it

Lol. Love It!

I've been minding a kitten recently and it's a really nice distraction from problems. Might just keep it!

Hope it works out well for you!

Hope it goes well.

@makeyourownluck it did thank you so much!

@kingsfan like idk how stable/unstable healthy/unhealthy my t is with that level of noise even though I absolutely have fam who have t who don't do any caution with their hearing. I just can't really risk it considering this is how I got t. However I NEVER used hearing protection... but like I said no way. I wish it was an outdoor thing with room. Even that would be better.

Yea none of those venues are very large. They are larger than an average club show though, but those speaker stacks are pretty scary. The ticket price is also scary - lowest I see is $155 for GA, $200 for Mezzanine.

@kingsfan Good thing I'm broke rn then.

@Shelbylynn Honestly not doing too bad right now. I can't tell if it is back to baseline. I did not wear plugs to the party but I spent most of the time outside (according to my Apple Watch it was averaging out outside to like 83 decibels). I came into the house for a bit, noticed how it was a bit too loud, and left after like 8 minutes. ...

... I checked my watch data and at one point it apparently peaked at 104 decibels. It was mostly in the mid 90s range though. I'm scared this caused some damage but I can't really do much atm. I kinda want to avoid parties/drinking because I tend to lose my fear of tinnitus when I am tipsy. Idk if you can relate to that lol

@diegooo Well that's good, you're likely alright then. Yeah I can definitely understand. I kind of avoided parties for a while because it tends to be loud but for ones I made it and just use the bathroom for breaks or step away at times.

@Lurius It's been helping me mentally a lot! I feel a lot more relaxed and happy. It get fleeting moments of feeling the way I did pre t. Free. Sort of peaceful. I think it's essentially just being free of anxiety of a worsening or the obsession with it.

@Strawberryblonde That's great. I try to do this as well, sometimes successfully other times not so much.

@Shelbylynn same here, especially when I get a spike from god knows were.

@Joe Cuber thank you for the support!!

I still have yet to NAC. Maybe it's time.

Been taking some as well as B12, honestly at least they'll protect you from further damage in the future. And I've noticed my ears feel more stable.

@in_LA Maybe I should start with some B12 as well.

I have palinacousis and I'm supposed to see Canons in September over here in LA, and my gf is unwilling to accept that I may not be able to go. My issue has turned my life upside down, music is my life, and having to hear it at below average volume saddens me. Colorless is completely accurate.

@in_LA Hey, music is a huge passion of mine so I completely understand. It's a devastating blow. Your feelings are completely warranted.

@in_LA I feel like I'm still in a tailspin and confused about how to proceed from here and I got two 2 years ago. IDk, if it feels like an identity shock. I hope we can both find ways to let music back in our lives safely.

You'll be alright @Shelbylynn.

Just make sure you're always wearing hearing protection outdoors, and always have ear defenders nearby you when you're at home.

I've been ok, surprisingly more quiet than last year so far. I live in a more secluded area that is farther from other houses (not much but better) so It's a LOT better and reduced volume due to that. The illegal ones aren't being set off right next door like last year.

Definitely gotta be weary once the sun goes down cause that's when people set them off! I haven't been outdoors in the evening in a few days because of it though.

@El BUZZ Mine too. If I sleep in it makes it a lot more tame, if I don't get sleep or get really tired it seems louder. could be perception but it does affect it for me.

Lack of sleep definitely makes mine louder the next day. Mine also gets louder as the day goes on, so is at it's loudest when I go to bed.

I believe in brain plasticity, hopefully in 6 more months your T will be softer, definitely do whatever you can to keep yourself at a baseline, suplements may help you. Mine has gotten softer over time, I always took ginko and magnesium, and helped keep it at a baseline.

I don't think it's anything to worry about as long as it wasn't for hours at a time.

Shelby, you need to not worry so much about whatever comes your way. Anxiety and constant worry will probably do way more damage than every little sound. I say this with the best intention. Obviously don't go to a metal concert unprotected but try to lower your shoulders and worry less. If something is insanely loud you can take measure, but every small thing is not worth fussing over. Hope you have a nice day.

Thanks everyone for chiming in :) I don’t typically wear plugs driving anyways even though my cabin is fairly noisy online cause I don’t drive long enough to warrant it

@Shelbylynn yeah it’s crazy. I’m starting to notice ear trauma can cause pain just around anywhere in the head, neck, jaw etc. I get pain near my temple and jaw/ear area. I think you’re at a point where you just need to play it cool and don’t blast your ears lol. Heed the warning

@Wrfortiscue trust me me too !! I really can’t be around anymore blasts

Mine took 2 months, I would have good days, bad days. Have you gotten a hearing test yet?

Oh my god another Burgular alarm Went off by me this morning and I walked right next to the box. If my t survives this then I will truly believe I have stable t