Separate names with a comma.
Speak for yourself. Silence or nothing.
@Lurius I am speaking for myself. When it gets to insane brain r*pe levels silence is a joke lol
Agreed, @AnthonyMcDonald. This noise is pretty much the only thing I've been listening to for all waking hours for 1½ years, and that's fine. Stability, however, as we've already discussed, is key to habituation and a "normal" life.
I agree with you guys. True silence will probably never happen so you’ll never be happy lurius. I had stable straight tone tinnitus before and it was a breeze. The brain truly would ignore it
@Wrfortiscue Do you also tell little children that Santa Clause is a pedophile? I'm never taking anything you say seriously from this point on.
@Lurius That's a ludicrous statement. We're just people who have gone through absolute hellish tinnitus and can compare it with single tone mild/moderate tinnitus. Silence for us isn't important.
What is a ludicrous statement is to predict the future by telling me that I'll never be happy again. How the fuck does he know? Answer: He doesn't.
And please don't turn this into a pissing contest. You have no idea what my or anyone else's tinnitus is like.
@Lurius I guess my statement came out harsh lol. just don’t want you to need absolute silence in order to move on. I believe you can live a happy life if you allow yourself to not fight it, that’s what I meant to say
@Lurius , Stop trying to put silence up on some pedestal. It’s no wonder why you still haven’t habituated 4 years later with that binary “silence” or bust mentality of yours. It’s disadvantageous for you.
You should listen to what severe T sufferers (@AnthonyMcDonald , @Stacken77 , @Wrfortiscue )here are saying. A slight volume reduction in T or the removal of reactivity could go a long way in improving QoL for them. Silence be damned. Have some perspective bro.
Spot on @AnthonyMcDonald . Silence isn’t the end game for people like us. @Wrfortiscue , nothing you said was harsh. Not sure why he’s getting triggered by you (of all people) lmao.
@ZFire yeah he mistook what I said but you understood lol. It is what it is
Silence is overrated. BUT.. @Lurius is triggered because @Wrfortiscue comment made it seem like SEVERE stable tinnitus is easily tuned out. I completely disagree with that statement.
Was your T severe before worsening @Wrfortiscue?
I think it’s best not to generalise. Some women go through child birth with no pain relief, others shit themselves and need epidurals etc.
Everyone’s lived experience is valid. We are all wired differently.
I think @Wrfortiscue is sound. No disrespect. Just my point of view.
@makeyourownluck ok context is sometimes lost so I guess I explain better.
Lurius said silence or nothing. To me that means unless he plugs his ears and hears absolutely nothing, then he will constantly be bothered. Me talking about straight tone tinnitus was not trying to compare, but give an example how someone can truly live with stable tinnitus and the brain tunes it out.
This means you don’t need silence, just low and stable enough. I could hear it over conversations wasn’t crazy bad never really spiked.
Thus if he needs silence to be happy, given that most chronic sufferers never truly get silence, I made an assumption that he will not truly allow himself to be happy if he is only seeking silence or bust.
Somewhere it all got lost in translation. I think with tinnitus we need to compromise to move forward, that’s it.
I love me some compromise.
@ZFire I can't believe what I'm seeing here. You're actually BERATING me on a forum where people come for help, because I didn't "habituate" to a condition with no cure? An event that is largely triggered by random factors like genetics? Are you mentally ill?
Berating no one, just showing you a different perspective. The essence of what I’m saying is that by desiring “silence” and yearning for it, you hinder your ability to adapt to a certain degree. Doesn’t matter if the T is mild, moderate or severe in this context. But when someone has sophisticated forms of tinnitus such as reactive tinnitus, wanting “silence” becomes the least of their concern. Main point here
If I offended you in some capacity, then I apologize. I assure you though, I don’t have any ill will towards you. It’s just the way I speak sometimes.
I see @Wrfortiscue, fair play. I’m probably a bit sensitive to the stability/severity debate. Obviously fluctuating T is more difficult to deal with, but it irks me when people imply that stable T, regardless of severity, is easy to deal with.
@makeyourownluck yeah no way, imagine 150+db stable t? yeah no thanks
What if you could only choose one:
1. Your tinnitus decreased, but you are still susceptible to spikes and worsening.
2. Keep your current tinnitus, but it will never worsen even without ever using protection or avoidance again.
@kingsfan as awful as it is currently, option 1 will eventually lead to me getting the same levels again. So option 2 all the way.
@kingsfan I'd choose option 2, because it's the key to more or less boundless freedom.
Well obviously 2. But life doesn’t quite work like that. Both options are purely hypothetical, and kind of unrealistic once you get to a certain level.
I would say I’m largely stable. But a recent alarm brought back distortions and a low vibration in my ‘good’ ear. These incidents are unavoidable.
@kingsfan's options were hypothetical, eh?
Well I never.
And here I was about to wire him my savings.
Anyway, as per usual @Stacken77 and @Anthony McDonald nail it. Some people, after only a year and a half of this f*ckery, have worked out what some people after almost a decade still haven't. WORSENINGS, and the seemingly limitless potential for tinnitus to increase in volume, is what makes this illness the "silent killer" it is.
After 13 years of this torture, I'd settle simply for lack of reactivity* (that is to say: routinely having spikes triggered by sound that is not even considered to be harmful to the human ear).
That is how low your standards for quality of life drop, when ethereal pain is all you have come to know.
So in answer to @kingsfan's question.
Of the few treatments currently in development for tinnitus, all of them would fit option 1, which is a shame, for the same reason the boiz have already highlighted.
Meanwhile I have always dreamed of an otoprotective drug that might address option 2. These at this point, are beginning to look more realistic than any treatment that could reduce tinnitus.
@Damocles Maybe I have a monkey paw =)
On a serious note, most of my worsenings have been new tones rather than current ones becoming louder. I think everything has been hanging on by a thread and is rapidly deteriorating. I'm really racking up quite the orchestra. FML
I'm sorry to hear this @kingsfan.
I managed to eliminate quite a few new tones steadily over time by avoiding significant additional traumas.
Unfortunately I achieved this by giving up a lot of my social life, so there's that, if it "helps"...
@Damocles I have no social life, except a kid.. and now I'm around my family a lot if/until I can get back on my feet.
But I don't like sitting at home. I wonder if hiking and camping is safe. I could at least adhere to those.
Hiking should be fine. Just pack some ear defenders for if you cross one of those feathered ear assassins that hit insanely high pitches.
@Damocles I was hiking a lot last summer. The mountain bikers are the main offenders. Some of them wear bells, I guess to scare bears and mountain lions away.
@Damocles stop being such a gob shite. If you want to have a dig, say it to be directly. You behave like a child.
My point was that out of the 2 potential scenarios, option 2 was the obvious answer, but completely unrealistic.
I already mentioned I was sensitive to the severity debate, and the question seemed like a reframed version of ‘your tinnitus isn’t that bad unless you permanently worsen to every single noise... Go out and enjoy your life you lucky thing!’
So fed up of reading that shit here. It feels like an echo chamber rather than a support forum.
I think we all can agree that wanting silence becomes a low priority for most people with tinnitus, but more so for people with severe and sophisticated forms of tinnitus. That’s largely to due the fact they’ve experience some of the worse of the worse that tinnitus has to offer, that any positive change be it a volume reduction, a tone or 2 going away, or the removal of reactivity can make all the difference.
That’s the whole point of this discussion here. We’ve gotten sidetracked.