kingsfan

Sorry to hear that, lets hope it goes down soon.

I'm sorry bro :(

That's a Win!

Victory, enjoy the weekend buddy

Wooo!

Heh...read your reply too and was thinking "whats he talking about?" Im there also buddy. Low sleep, alien signals in my brain, shit is mixed up now.

I see. You have 2 tones and one is helped some by the pills. Im glad, yes, any relief is amazing. :)

@MaxRabbit oh no I have around 6 tones. it's hard to pinpoint exactly how many since some are overpowered by others.

Hey Im doing decent, knock on wood. Spike subsided a bit but is still hanging on... a little worse today than yesterday but still better than it was. I'm wary any noise will spike it back up though.

I just dont understand why we dont have stable tinnitus like seemingly everyone esle

Have u considered supplements, I sometimes feel, that as we get older our ear hair cells get worse, so I take supplements to at least try preserve what I have left over, quite a sad existence though lol

@in_LA

I've been taking supplements since nearly Day 1.

NAC
Vitamins A, C, E, D
Magnesium Threonate
Zinc
Fish oil
Circumin

@Wrfortiscue I did go to a funeral about 2 weeks ago and the organ and kids screaming were quite loud. I ended up putting in foam earplugs. I wonder if I just damaged my hearing more and the tinnitus was delayed.

I avoid everything, but I couldn't live with myself if I skipped that funeral.

@kingsfan even if you worsen because of that funeral you can’t blame yourself. I imagine it’s just a spike.

@Wrfortiscue I hope so. My exposure time was 2-3 hours, maybe more. I've never had that long of an exposure.

I use my 27dbs musician plugs. They work well bc it cuts out occlusion

@Wrfortiscue I think it's my left ear that's spiking, though sometimes it's in my head.

I wonder if I wear a foam plug in my left ear while driving, if that will stop me from spiking... or will hearing the road noise in my right ear still spike my left?

@Marshall I switch between 26db and 20db ACS customs. I prefer the 20db's as they allow the environmental sounds to mask my tinnitus a tiny bit. With the 26db I am assaulted by what seems like 80db ringing.

I felt very dismissed by him - never had a migraine in my life. Rarely get headaches. He was super late and fast and seemed to think the meds are a cure. Ive never heard of migraine meds stopping the T. Any feedback helpful!! Thank you and hope you are getting better!

@MaxRabbit Yes, his research is centralized around a migraine-tinnitus connection. He was also short with me, but he did give treatment options to try rather than telling me to just get used to it. I've been to a lot of ENTs in LA and Orange County and UCI is the only place that actually tried to help.

The nortriptyline helped with anxiety and depression - I was on the verge of suicide when I went to UCI - but I had to discontinue because I was getting increasingly worse heart palpitations from it (it raises your heart-rate).

The gabapentin didnt' help the tinnitus, but helped with anxiety from it. I take it from time to time like a benzo.

I have not had any intra-tympanic injections. I've taken oral steroids a few times, but I don't think it helps - only risks making things worse.

I do take lower dose steroids every so often to get my asthma under control. I don't think I've had any negative effects from that.

The only progress I make is through habituation/determination. I have never physically improved.

Going to stores, restaurants, etc has probably contributed to my worsenings, but I refuse to sit at home all the time.

Damn your last 2 entries pretty much describe me

Sorry, the shopping cart thing is sort of an inside-joke about my troubles with people slamming around shopping carts and my constant struggle trying to run into stores trying to avoid the cart area.

@MindOverMatter I think I have some. I'll try it out!

@kingsfan just before I developed T, my eye started twitching and lasted a good year. Luckily it doesn’t twitch anymore - it was sure as hell annoying though when it did.

@Steph1710 Mine does it on and off. Used to be the top eyelid. Then the bottom started and that's pretty much the default now. I used to think Flonase helped, but I can't take it anymore. It's never lasted more than a couple weeks though, so this is new.

I don’t remember what my dosage was, but it was a standard 7 day course. I remember my ears not feeling great after finishing, but I don’t think it was too detrimental. I’m hoping I won’t need it again any time time soon though.

It will be two years in September. I have recruitment with high frequencies. I also, naturally, have phonophobia. I just have many different type of loud ringing, static, hissing and other odd sounds and, since covid, reactivity.

I don't work as a web dev, but have been involved in projects. I think Express is really neat and powerful.

I'm leaning towards express since it is all javascript, which I am familiar with, but I'm having a difficulty getting any idea what kind of job opportunities it would bring vs Ruby.

I have decided on node.js/express

@MaxRabbit U are right nobody understands this. My husband just believes me b/c he's seen the changes in me. My cat Leo is super understanding he does not care if all I do is lay around the shack. (Old bluegrass tune) our old mobile home is paid for. I used to b*tch about living in a mobile home but now I know how lucky I am.

@MaxRabbit I was also living in orange county after splitting up with my fiance a couple years ago. I lived in south bay (hermosa/redondo beach area). I moved in with a roommate about 3 months into my tinnitus and didn't realize how much of an issue it would be. I mainly stayed in my bedroom and office - I had two smaller rooms while my roommate took the larger master bedroom.

Right, roommates are tough for this! I see how it went for you... Well had I caught you sooner you+ cat could have crashed with me+bun before deciding what to do. Seems though you are already doing better with the hairdryer post. :)

If you are worried its viral, or it could trigger a resurgence of a dormant infection, you could use Euphorbium compositum spray.

I trawled through almost every success story yesterday. Someone’s ENT suggested it.

https://www.karger.com/Article/Abstract/57223

May help a little.

It may very well be allergies and/or stress. My symptoms didn't feel any worse today where I expected them to get progressively worse. I'll see what tomorrow brings.

yea he had a whole entourage with him as well - an assistant and a bunch of medical students. He also has an audiologist that works with him as well as his PA. The PA was just for follow-ups and would consult with him. If you want real one-on-one time, then Dr Harrisson Lin is the doctor to make an appointment with. They are both colleagues, and great, but work differently.

Dr Djalilian seems to want to run tests and try migraine treatments, while Dr Lin will work more with medications such as Nortriptyline and Gabapentin.

Thank you for all the information! I am wondering (pretty sure I have hearing loss) if they work on brain pathways and other options. There is VNS that can possibly stop the sounds through electric stimulation, nerve stimulation, mushroom extracts, etc. I'm up for nearly any and all trials but medication (pure chemical) freaks me out. Really nervous to go but hope they can offer some options.

Yes, I have been to Dr Djalilian. He is doing tinnitus research and is very thorough. Most ENTs in the area will just brush you off. His colleague, Dr Harrison Lin, is also a great doctor. He suffers from menieres and tinnitus and so is very empathetic.

Lmao yup I haven’t switched on a light in my place in years. Philips hue bulbs rock. Haven’t had to replace some of mine for 6+ years.

@Joe Cuber Yea I meant 2300 miles. Whoops.

Always <3

I thought that was actually kingsfan. I am such a dope.

@Forever hopeful You can find a couple of real photos of me buried in that one photo thread.

Actually I am a bright red flowerin real life lol

I can't even imagine being responsible for a family with this mess. Maybe I'm lucky I got it so young.

Hope all is well with you. Stop exposing your ears to loud noises. Know when to leave a place. Praying for better treatments or cure!

@Ken219 I thought I'd at least be able to go to a restaurant with ear plugs in.

@kingsfan where are you thinking on moving?

@Ken219 I moved back in with my family after 17 years of living in California because I lost my job due to tinnitus.

@Barry098 I'm already hating it. Hopefully it will motivate me to get my life back together despite the overwhelming challenges.