kingsfan

I now only use paper plates and bowls, and plastic cups. I don't entertain much anymore :(

@tracyNYC I do use paper stuff every now and them, but all the waste makes me anxious

Lately I'm feeling more p*ssed off than anything

@Forever hopeful Well I was being a depressed bum and didnt shower for 4, maybe 5 days and my hands, though still pruning, were starting to feel better. I showered today and they are back to being bad. I think my shampoo and bodywash irritated them. it seems like it's a skin issue.

I think they may be pruning because my fingers seem to have no grip - as in the skin is so smooth everything slips out of my grasp.

Carpal tunnel?

Sorry man same here. It seems if hyperacusis can’t stabilize it’s just nonstop worsening :(

I was always thrown by the word spike..my shit is just downhill all the time.

@MaxRabbit It's always a spike until it's not

Hopefully it rings off and doesn't come back on :)

@Strawberryblonde It worsens about every 6 months. Started out as tv static, then switched to a air-being-let-out-of-tire sound, now it's whistling.

It doesn't behave like the rest of my tinnitus. It never waivers, is always constant at the same volume and intensity, and no medications or other factors seem to change it in any way.

Sorry to hear that @kingsfan it's bloody awful the way T behaves.

@sakrt I'll have to look into it. I've been taking the smallest dose (100mg) once a day, every other day, for 2-3 doses then stopping for 5-7 days. It seems to lower my tinnitus immediately after it is removed from my system (36 hours or so), and the effect lasts about 12-24 hours (I'll have to monitor exactly how long it lasts). I wonder if it's some sort of slingshot effect on gabba production or what.

@kingsfan 100mg is low dose, so I think you'd be ok. Gabapentin is not a nice drug. Zero effect to T, but helps manage H. Brain-fog and numb. Do you get same side-effects?
@TheDanishGirl Gabapentin may help your spastic click-pain in middle ear. Maybe @kingsfan 's strategy, may help you too?

@sakrt Yea, if I take more than 100mg it gives me trouble with memory and brain fog. That amount also relaxes me, but makes me off balance and drunk feeling, so I stick to the minimum amount.

I'm thinking of opening the capsules and measuring half the dose daily and see what that does. It does have an effect, but only on certain tones - others it doesn't affect. It's all very strange.

@kingsfan yep, went to Animal Kingdom last December and paid extra for fast pass only to find out you have to reserve your times lot on each ride, which was already booked up or unavailable that day. Still was an awesome experience.

I used to go every weekend. We'd all go into the park and I'd run around and grab fast passes for every ride. Then we'd go see the shows and parades, then drink at the cove bar, then finally ride all the rides with our fast passes.

Hello and sorry you are still here...hoping you heal up and get on with life! Hugs and support.

Bro that sounds heartbreaking, yesterday I was supposed to be going to a concert, and was anticipating it since last year, had to give up my tickets.

Hugs!

Yup. I just had my car horn go off in front of me no protection and I nearly died in panic lol

Imagine the things you can do then.. sleep normally. Taking a nap. Read.. oh Boy.

Exactly. But I think if it truly got rid of our tinnitus I think through slow exposure without having any spikes or T coming back, we can regain some more normalcy and comfortability with sound. Maybe not like going to concerts or anything crazy but at least not living in anxiety around every day normal sounds.

@kingsfan I'm currently
unmedicated for my my adhd, as far I've heard it shouldn't interfere with your tinnitus, people with adhd can get hyper fixations, so if it helps with the fixations it might help you with obsessing less with the tinnitus. Everyone reacts differently to the medications so some might see a change in their tinnitus while others won't

@kingsfan I forgot, there's stimulant medications for adhd and there's also non stimulant, I would try the non stimulant first.

My son has ADHD and anxiety. He takes Stratera. People with co morbid anxiety or not candidates for stimulants.

What dose are you taking? Does it affect your tinnitus either way?

@tpj I normally take 1mg. Last night I took 3mg. It does not affect my tinnitus in any way.

Are they low frequency or high? I have low frequency pulsating humming/buzzing in my ears that can be both felt and heard.

@TheDanishGirl Have exactly this, and very severe atm making it so difficult to cope to. It's not understood by most people because I have acquired symptoms that parallels with SSCD.:( Words of encouragement from some here helps the struggling mind and pain.

@TheDanishGirl I have high and now some extended-high frequency buzzing, hissing, sirens with a buzzing/electrical feeling.

What @Wrfortiscue said. You’ve got this!

Relax and approach the job search systematically, there is always a bit of lag between looking for work and getting work

I've gotten 0 done and my tinnitus is louder than ever. I need some serious help but I have no idea where to turn. I suspect I may have always had ADHD and tinnitus is exacerbating it to non-functionable levels.

I haven't had a fever yet, just sore throat, swollen lymph nodes, and dry cough. It came on quick - overnight - which is not typically how my body responds to a common cold.

I'm waiting three days or so to use an at-home rapid antigen test I have. I'm really out of my element outside of southern california.

Ah, I messed up in asking..I meant did the UCI dr. recommend Feverfew? Its on the migraine supplement list and wanted to know if you tried it.. Im guessing you didnt! :)
Still sucks being sick...sorry.

oh i've never even heard of that. Such an odd name for a migraine med.

Feel better, lots of allergens in the air here in Texas.

@BrOKeN_1 run until I throw up mom's spaghetti

I went for a run yesterday and felt better about my T and H after. Too bad my knees hurt if I go more than once every 2-3 days

@BrOKeN_1 @kingsfan I was literally just listening to the “real slim shady”, so these comments made me so happy. XD

Crickets are relief, but yeah, they are loud as fuck.

If you can still hear the crickets..thats a nice thing!

Crickets spike the fuck outta my tinnitus gotta wear plugs when I go outside lmao

@twa How do you manage with studying? You were getting your masters or doctorate or something, weren't you?

I'm trying to study to move from being a front-end web developer to full-stack, but I cannot seem to get anything done.

Tones, tones..are we talking tones? Holy fuck do I have a chorus. How is it even possible for one damn ear drum to make so much fucking noise? It's got to be a neuro issue first and ear damage second. Its both ears here. WTF.

@kingsfan hey, I am working on my doctorate. I just passed my qualifying exams, so I'm now a candidate. It's hard and at times I think I'm doing too much with teaching college also. I have to really watch my stress levels. I think having a goal does help keep the focus off the T/H.

I have only used Peltor x4a and x5a. I liked both. I prefer to wear x4a with earplugs underneath. x5a are really big and bulky but probably better protection for an mri machine. x5a with a pair of foam earplugs will give around 37-38nrr of protection.

Earmuffs will fit tight, it's how they seal around the ear.

Yea, I dont or cant tolerate tight ear muffs. Trying to find a place between just normal headphones and protectors. Not to tight or heavy. Thanks for the advice.

Those two peltors, while fitting tight, aren't difficult to open nor do they snap. Just some moderate pressure against the head.

Hopefully your ears will have calmed down again by now!

@MaxRabbit You're still in the acute phase where fluctuations are quite common.

I'm becoming less and less active now that I spike so easily. Last year I did all kinds of stuff despite my tinnitus being really loud.

@Leila The last two days have been difficult. Hopefully it settles down and I can just use the experience as another data point, rather than a life-changing event.

@Wrfortiscue I have found that it, with me at least, it doesn't even matter if it only rises in volume the most minuscule amount, my brain picks up on it and it becomes unbearable.

The biggest problem I have been having is I keep getting these new tones that come when I spike and then leave when it all settles down. After covid it started in cycles of about once a month, then every couple of week, and now it seems to be on a week then off a few days.

It seems like the only way to mitigate it is to just stay home in isolation.

I was doing soooo good before Covid. it might spike up while I was out doing stuff, but it would come back down in a couple hours or overnight and it was just the 4k-6k tones in my left ear. I was living free, except I avoided loud places and yadda yadda.