MaxRabbit

Hello! Im sorry you got worse too. Its the most heartbreaking thing. Finally okay and move forward and its wiped out and your ears are even worse. Hoped I'd have 5, 10 yrs maybe before worsening like this but it took just over a year since onset and my ears went completely nuts.

Just getting over a cold now. When sick it was the only time there was improvement. On 2nd day of being sick my high pitch squeals and static went down by about 80% on waking and stayed at about 50% during the day. Wtf. In a year and a half of this nightmare the squeals NEVER went down. Not for an instant. My head was so congested and inflamed. Makes no sense.

The 24/7 static-buzz has crept back up now and who knows how it will settle. Shit is scary, hard to impossible to manage and there is zero from the medical field to help us now or anytime soon from what I see.

Lord, when you have umaskable T! The static is so loud that putting on ear muffs only slightly heightens the sound. However, putting in foam plug makes it pure torture. Combining the two is insanity and only do this for the gardeners.

If you see this post and your T isnt at my level - be very careful to avoid this. Protect your ears when its loud or can be at any moment. Get sleep, support and practice self-care. Best wishes.

Sorry to hear you are still in a bad way @MaxRabbit Was wondering were you had been?

Hey, I’ve seen your old post. Please hang in there I’m doing bad too.

Hei good to hear you !

Hi @MaxRabbit I am trying to live - the whole day is just around the Tinnitus - but I try - I can work fortunately as I can work in my own office in silence - the last two weeks I was in our house in the woods - this was fine

- but one day we invited friends and from this I have a strange lound sound in the right ear .. I try to protect the ears as much as possible - but sometimes I wanna live - why did you get the worsening?

@brixenbrixen i know this is an old post. Just wanted to say, it’s that living part that always kills me. The attitude all of you have is incredible.

Have you tried wax/moldable earplugs?

Hello. Im doing pretty bad. Thank you for asking. Worse and homebound still. My voice makes it worse..everything seems to. Hope you are better in mind, health and body!

Sorry to hear about that @MaxRabbit. Have you got any support around you lately, family or friends? Anymore Dr's appointment etc? Not that they seem to offer much :(
Eh I'm OK ear ringing in my left ear that gets worse/louder when lying down is horrendous for me as I'm getting disturbed sleep which as you know has a knock on effect. Holding out for hope and relief. Sending a virtual hug your way :).

@MaxRabbit I saw your post on @NYGuy re anxiety. My friend takes clonazepam.he adjusts dose to be able to control sleepy effect. Stress is my #1 enemy. Also poor sleep.i have hi pitched scream most days vary in loudness with occasional day or two off but I didn't get any days off for almost 2 years. Sending virtual hug.

Tried BT single speakers. Tribit has great sound! Easy on ears, very clean. But, connection would cut and it came back on at max volume. Didnt bother with another. Got Bose high-fi BT spkr. Quality? No idea. Voice prompt SO LOUD had to have my friend go shut it off. Why the fuck are speaker (JBL too) prompt sounds so loud!? Im back to using cheap SONY BT. Hope you can have better luck! Hope you are well!

@SamRosemary i were these https://shop.pluggerz.com/custom-fit-sleep-traditioneel.html. im from the netherlands. i dont know if they have it where you are from. they are extra soft and dont nearly go as deep as foam plugs

I've been looking at the type of earplug a singer wears so u can control how much sound comes in but I haven't bought any. Do u have hyperacusis?

I use foam earplugs for sleeping when at certain environments in which I dont want to be awaken too early by noisy neighbors. It was really uncomfortable at first but got used quickly.

Bottom line; Think of your cycles as a good thing.

@kingsfan I'm sort of opposite,when a get a day off (or 2!!) I feel like my old self (only more deaf in one ear) but without T & I go and do!!also after 2 yrs of Much isolation im going out some. It's a challenge to overcome the loud hipitched scream in one ear while trying to 'be present' with the other ear. But when it's spiking at a 9 I just have to isolate.

Your T shuts off completely for the day or 2? Thats great if so. How long has it been doing that? You have in just one ear correct?

I see him as Taz. :)

lol @sakrt!

https://ibb.co/WH8D5bq

Hm hm!... :)

ABSOLUTE MAXIMUM

Yeeees <3 Snuggly!

@Damocles Maximum Bună ԅ(¯﹃¯ԅ)

Hello Travis. I saw your intro and commented but it looked like you disappeared...glad you are still here. Did you get any relief?? I really hope so. This condition wipes you out. Ive done the protecting but its still gotten worse. Thank you for the kind and positive words and advice. Hope everyone here gets to heal.

House Rabbit <3

And stay away from those shopping carts =)

Anthony is pretty much correct. Time and controlling anxiety will help you forward. Distract yourself and try to remain positive. It’s a battle for sure

@MaxRabbit try and get an appointment with Dr Djalilian at UC Irvine.

Yeah, depression is crushing on top as Im just stuck at home alone. Unsure how this will end up but I am trying to protect my ears yet they continue to get worse/make new tones. I'll see that Dr. in August if I make it. Thank you for the caring comments!!

Anthony, I did read some of your story when 1st on here. I'll go over these again and get more familiar with your history too! It's the scariest time of my life. Each day is a struggle.

The ENT are useless,they will laugh in your face and tell you to suck it up and fuck yourself.If they don,t do one of their stupid tests and they hurt you even more. If they didn,t exist,it would be even better.