Andrei88

Sorry to see you back

they probably know they cant cure it, yet want to profit off of this condition

I can relate to this, pain comes down in silence but not the level of T.

Some people have used Ambroxol and reported success.

There's also Clomipramine. See its dedicated thread in the Hyperacusis section.

I honestly feel the same, it’s a horrible feeling

Jip, and it does not help that others cannot see or hear or feel what we do.

I'm sure many of us have had an experience whereby a well-intentioned family member shares a link to some demonstrably bogus therapy or device or something. The number of times Lenire has cropped up...

@Andrei88 - just tap the back of your head. Lol

I wanna fire up ableton live! and make shitty electronic music like I used to :(

It's depressing is what it is :(

yes indeed. all I want is to be able to make music again and enjoy music.

12 years. Wow. You are a superhero in my book. Sorry you have had to suffer for so long. Life can really be unfair. Hope real help is available soon.

thank you! yes I have times where it has gotten better, but it just started to go downhill again. back on magnesium again to see if it helps. Also hope we get a real cure soon!!

Me, too!

I said the same thing to myself in 2015!

yes every now and then I just chek in here to see if there is any cure or somethin that works. always nothing.

Same

Yeah, I live off of a busy street and hear the cars bass vibrating.

@Mo8409 thats also supper annoying! I want to live in te middle of nowhere! So much noise everywhere!

@Strawberryblonde thank you, yes it is a shame, but rather give it up and have less days of pain in my ears - I can live with the ringing, wooshing, screetching, buzzing in my ears, but the pain is too much that music and loud sounds causes me.

@Andrei88 Understandable. Shitty of course, but makes sense.

@SamRosemary yip, not worth the decline in quality of life :/

Will it really though?

it may not go away bit we can adapt.

Thanks @Steph1710 its a dinky pro DK2T MIJ

Thank you @SamRosemary :)

"Nice Jackson" eh?

That some kind of euphemism, Steph? (͠≖_≖)

I am really glad to hear you are doing okay! Hopefully one day it will be 5 steps forward and 2 back! There is always hope that things will et better, especially for those who dont have hearing damage.

Yeah I can’t imagine how difficult that must be. Luckily, I don’t have much pain.. The odd loud thing causes a bit, but nothing like what I’ve read some of you go through. Thanks, I try to stay optimistic about recovery or even habituation.

We should! even for me I have hope hope of improvement and at times things do improve, its just difficult as we cannot control the noise other people make that can trigger us. All the best Sam! Il prob not visit here in a while again, thanks for checking up! appreciate it :)

It's hard for them to empathize. Unless someone has a chronic condition that affects their day to day life the situation doesn't really translate.

People in general don’t care about anything lol but yeah I’ve learned real fast… “yeah that sucks… anyways”

if they cannot physically see what's wrong with you they dont care. They can sympathize in the moment when you are in agonizing pain and you feel like you want to die, but 5 mins later they will be slamming doors again and carrying on like always.