Tweaker
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Tweaker

Member, Male, from UK

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I wouldn't risk doing the electrocochleography test. It has loud bursts of sound for a long period. Only pure tone audiometry seems safe. Nov 4, 2022

Tweaker was last seen:
Apr 13, 2024 at 6:12 PM
    1. ErikaS
      ErikaS
      Now in the past two weeks, this vibration when laying down has creeped up again/gotten bad and it’s so distressing. Been taking 3.75mg for 6-7 months now, did you still have the vibrations at that low dose? I feel like I need to stop it asap.
      May 6, 2023
      1. Strawberryblonde likes this.
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      3. ErikaS
        ErikaS
        @Ryan Scott I have been on a baby dose of ativan (.25mg/day) for 6-7 months because when the T and R first came on, oh my gosh the ativan quieted down both. Now that the body got used to it, very little relief, but does temporarily help with my anxiety/spiraling thoughts, but I want off of that too as it's not really serving me a huge purpose and its been way too long even at the very low dose.
        May 7, 2023
        Strawberryblonde and Ryan Scott like this.
      4. ErikaS
        ErikaS
        @Ryan Scott For sleep, I do Magnesium Calm powder (Amazon) as well as 3mg of Source Naturals sleep science melatoin (best I've taken, also Amazon). With weaning the remeron I may have to lean back on some Benedryl temporarily, but rather do that to get me off of the Remeron and onto just natural.
        May 7, 2023
        Strawberryblonde and Ryan Scott like this.
      5. Tweaker
        Tweaker
        @ErikaS I don't experience the ear vibrations with Mirtazapine any more. The effect wore off over time. I still take 3.75mg to help with sleep.
        May 7, 2023
    2. ErikaS
      ErikaS
      I just read in a thread that you experienced ear vibrations on Remeron.. I was taking 3.75mg for a short time for sleep, tried to increase to 7.5 about 3-4 months ago, got the vibrations so went back down to 3.75 and was good…
      May 6, 2023
      2. SarahMLFlemmer
        SarahMLFlemmer
        Whoa.
        May 7, 2023
    3. Theezy
      Theezy
      Hey man how are things going?
      Feb 18, 2023
      1. Sammy0225 and NYCGuy like this.
      2. Tweaker
        Tweaker
        It's a struggle tbh. It doesnt take much noise to keep making ithings worse. I think work stress is not helping either. I don't understand why it keeps getting louder. Praying for some relief. How are you? Any improvement?
        Feb 19, 2023
        Theezy and Sammy0225 like this.
      3. Theezy
        Theezy
        I recently had noticed that my H was starting to improve, and I was feeling more habituated to the worsening T. Then two weeks ago I dropped a fork facing my left ear, and that made my left (previously better ear) worse than my right. Feel like Sisyphus man :/
        Apr 3, 2023
    4. KoolKat
      KoolKat
      i wasted a whole decade with this dam crap, hopefully now that they FINALLY uncovered some new stuff about the auditory system SO we can get something in the near future jesus christ. but in the mean time try investing in hearing aids avoid loud stuff and rest as much as you can. we got this.
      Nov 22, 2022
      1. NYCGuy likes this.
    5. KoolKat
      KoolKat
      God I freaking hate this happen to you man, i hope your spike goes down. i know this decade we are going to get something i feel it. even tho last decade 2010-2020 was suppose to be our reckoning i think our luck might change. also december 3 susan shore is presenting something so please stay strong.
      Nov 22, 2022
      1. SarahMLFlemmer and NYCGuy like this.
    6. Tweaker
      Tweaker
      I wouldn't risk doing the electrocochleography test. It has loud bursts of sound for a long period. Only pure tone audiometry seems safe.
      Nov 4, 2022
      1. CW Dragon likes this.
      2. AfroSnowman
        AfroSnowman
        I did it a couple of times, it’s prettier loud
        Nov 5, 2022
        CW Dragon likes this.
      3. Tweaker
        Tweaker
        Did it affect your tinnitus afterwards?
        Nov 5, 2022
        CW Dragon likes this.
      4. AfroSnowman
        AfroSnowman
        Maybe temporarily.
        Nov 5, 2022
        CW Dragon likes this.
    7. Johan82
      Johan82
      From all the experts i contacted they said it cant effect hearing. Unfortunate the result aint good. As for many people here. The beeps can go from 80 to 110db. They say that should be save (time and exposure)
      Nov 4, 2022
      1. NYCGuy likes this.
      2. View previous comments...
      3. kingsfan
        kingsfan
        Ah yea that test sucks. Had it 2 years ago. Still trying to habituate. I was nearly habituated after only 1 month until I had that test.
        Nov 4, 2022
        CW Dragon and Marshall like this.
      4. Johan82
        Johan82
        Why test anyway. Your tinnitus will not go away, but sure can give it a place by identify the problem. But really, be carefull with loud tones. Would not go above 50 or 60db. Because it right in the ear (right?) It can cause panic or stress reaction.
        Nov 4, 2022
        CW Dragon likes this.
      5. CW Dragon
        CW Dragon
        I'm going to recommend this to my ENT to not make the noises go above 60db. Just test my lower sensing between my ears. I care more about quiet ambience like wind blowing and hearing ocean waves instead of loud noises like traffic or talking. If they can't do this, it's a no go on Ecog.
        Nov 22, 2022
        Johan82 likes this.
    8. Johan82
      Johan82
      I had this test too, but after the third beep i said Stop. Because the last one was to loud. It only was in the right ear. But damn...i made me sweat and now i am stuck with a pure (wave) tone, which i hadnt..do you consider prednison or dexamethason?
      Nov 4, 2022
      1. Nadia231 and NYCGuy like this.
    9. Tweaker
      Tweaker
      I wouldn't recommend it. It has ruined me. Probably about 30 seconds in each ear and can't remember how many beeps or how loud they were.
      Nov 4, 2022
      1. kingsfan and NYCGuy like this.
    10. Johan82
      Johan82
      Hi tweaker could you explain how long the acoustic reflex test take. How many loud tones do you hear and decibels?
      Nov 3, 2022
      1. NYCGuy likes this.
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  • About

    Gender:
    Male
    Birthday:
    December 26
    Location:
    UK
    Occupation:
    Biochemist
    Tinnitus Since:
    05/2010
    Cause of Tinnitus:
    Noise exposure

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